Syndrome Day Quotes

Not one day in anyone’s life is an uneventful day, no day without profound meaning, no matter how dull and boring it might seem, no matter whether you are a seamstress or a queen, a shoeshine boy, or a movie star, a renowned philosopher or a Down’s-syndrome child. Because in every day of your life, there are opportunities to perform little kindnesses for others, both by conscious acts of will and unconscious example. Each smallest act of kindness—even just words of hope when they are needed, the remembrance of a birthday, a compliment that engenders a smile—reverberates across great distances and spans of time, affecting lives unknown to the one whose generous spirit was the source of this good echo, because kindness is passed on and grows each time it’s passed, until a simple courtesy becomes an act of selfless courage years later and far away. Likewise, each small meanness, each thoughtless expression of hatred, each envious and bitter act, regardless of how petty, can inspire others, and is therefore the seed that ultimately produces evil fruit, poisoning people whom you have never met and never will. All human lives are so profoundly and intricately entwined—those dead, those living, those generations yet to come—that the fate of all is the fate of each, and the hope of humanity rests in every heart and in every pair of hands. Therefore, after every failure, we are obliged to strive again for success, and when faced with the end of one thing, we must build something new and better in the ashes, just as from pain and grief, we must weave hope, for each of us is a thread critical to the strength—to the very survival of the human tapestry. Every hour in every life contains such often-unrecognized potential to affect the world that the great days and thrilling possibilities are combined always in this momentous day.

When you focus on someone's disability you'll overlook their abilities, beauty and uniqueness. Once you learn to accept and love them for who they are, you subconsciously learn to love yourself unconditionally.

Should happiness and success be hidden, in view of the misery and poverty around. Would it be a sign of selfishness and un-intellectual behavior, if we admit to a pursuit of happiness? Could it, on the contrary, not work out as a motivation and an incentive? When giving voice to our happiness, could it not be perceived as a positive challenge? Could happiness not be contagious and become a salutary infectious syndrome? A beneficial infection. ( "Happy days are back again" )

With relationships, I always had a reason why some time in the future would be better for me than it was that day. When I was fat, I thought I'd feel pretty when I was thin, and when I was thin, I thought I'd be happier if I was more toned and muscular and had more money to look more coordinated. I wasn't comfortable in my own skin unless there was a man there to tell me just how radiant that skin looked. I was a victim of low self-esteem and had the Soon syndrome bad. I was running toward a brighter future, unaware of the mirages I'd created in the distance.

The glorification of hatred is predicated on a foundation of fear-induced ignorance venomous to haters and those they believe they hate.

Often people ask, "How can you say you're blessed to have a son with Down syndrome?" My outlook on life has forever changed. I see my own challenges differently. He's always showing me that life is so much bigger than self.

My children taught me the true meaning of unconditional love.

I Have a Dream... someday my son, Zyon and ALL individuals with disabilities will be seen as HUMAN beings. I Have a Dream... someday the human & civil rights of individuals with disabilities are honored and they are treated as equals. I Have a Dream... someday ALL parents who have children with disabilities see their child as a blessing and not a burden. I Have a Dream... someday there will be more jobs and opportunities for individuals with disabilities. I Have a Dream... someday there will be UNITY "within" the disabled community. I HAVE A DREAM!!!

Great, he was going to have PMS for at least a few days. Pissy Man Syndrome.

I love the days when my body cooperates.

My faith has strengthen. God has shown me through my son with Down syndrome to not take anything for granted. I'm more grateful.

One Day Syndrome. You live your life like there’ll always be one day to do all the things you put off. One day you’ll take the trip. One day you’ll have the family. One day you’ll try the thing. You’re all work and not enough play. Money can’t make you happy unless you know what you want,

Far too many people on the spectrum spend most of their days with people who carry around memories of, and are often too overwhelmed by incidents of, prior misinterpretation. This is no fun. In travel you can start over, and reinvent yourself. If somehow a relationship gets weird, you can leave and go to the next town, the next block, or whatever the case may be, and try again.

Every EDS patient knows that one of the hardest parts of our day is the moment we open our eyes and waken into the reality of our bodies, stirred from dreams of ourselves as we used to be, and the futures we imagined we’d have.

Because consistently high insulin levels are the root cause of all the diseases of metabolic syndrome, it’s especially important for those with metabolic syndrome to consider how foods stimulate the release of insulin.

The ones whose light will remain with me long after they have burnt out are the ones that had grace. Because it's rare that the gift comes with grace. Some of the biggest arseholes I've ever met are the most gifted. Because it's "pretty girl" syndrome. Being gifted is like being born beautiful. You don't have to work a day in a year in your life for it. You were born with it. In one sense, it's like blue blood, money, gift, or beauty. They are the things that should make you the most humble, because they are not the things you have earned. They are the things you were given. Yet, it is my experience that they male people the most spoiled. And the people who work the hardest, and who have overcome the most obstacles on their life, who have reason to beat their breasts are the most humble, sometimes. I can't get over that. it's bewildering to me. To make it through success and still have manners, to still have curiosity, intellectual curiosity, to still have some grace, to keep your dignity, that is really... rare.

In all probability the Human Genome Project will, someday, find that I carry some recessive gene for optimism, because despite all my best efforts I still can't scrape together even a couple days of hopelessness. Future scientists will call it the Pollyanna Syndrome, and if forced to guess, I'd say that mine has been a way-long case history of chasing rainbows.

For a long time I had wanted to take leave of Planet Tourism, to find one of those places that occasionally turn up in the middle pages of newspapers in far-flung cities, in which--we are told--a mad loner has been discovered who has lost all contact with the modern world. It seems inevitable that this desire will one day be listed in the Diagnostic and Statistical Manual of the American Psychiatric Association as Robinson Crusoe Syndrome.

They have a name for it these days. They have a name for everything these days. They call it Second Lifetime Syndrome, and it happens when a sorcerer watches her family and friends age and die around her. You’ll latch on to other mages from that moment on, because what’s the point of going through all that pain again? Valkyrie, there are some stark realities you have to face. You’re going to look the way you do for the next eighty years. In two hundred years, you’ll look twenty-five. You won’t be able to form attachments to mortals. They will start to notice something is different about you when they’re lined and saggy and you’re still young and perky. You’re going to have to say goodbye to your parents before they start to ask questions.

I’m in a caregiver's relationship with my body, a perpetual internal gauging of wellness. My spine is Hogarth’s thermometer. I ascend and descend its rungs a hundred times a day, reading the mercury level. The same dis-ease speaks many languages. If you block one mouth, another will speak. The symptoms represent differently, and as I get older, my translation changes. The prescription changes. Must be vigilant. Must be my best nurse.

Too fucking late for sorry, innit? I hope he catches bubonic plague and dies in slow fucking agony the day before they legalise euthanasia and then I'm gonna go and learn Riverdance and I don't care how fucking long it takes cos I wanna do it on his grave.

Well, my dear sisters, the gospel is the good news that can free us from guilt. We know that Jesus experienced the totality of mortal existence in Gethsemane. It's our faith that he experienced everything- absolutely everything. Sometimes we don't think through the implications of that belief. We talk in great generalities about the sins of all humankind, about the suffering of the entire human family. But we don't experience pain in generalities. We experience it individually. That means he knows what it felt like when your mother died of cancer- how it was for your mother, how it still is for you. He knows what it felt like to lose the student body election. He knows that moment when the brakes locked and the car started to skid. He experienced the slave ship sailing from Ghana toward Virginia. He experienced the gas chambers at Dachau. He experienced Napalm in Vietnam. He knows about drug addiction and alcoholism. Let me go further. There is nothing you have experienced as a woman that he does not also know and recognize. On a profound level, he understands the hunger to hold your baby that sustains you through pregnancy. He understands both the physical pain of giving birth and the immense joy. He knows about PMS and cramps and menopause. He understands about rape and infertility and abortion. His last recorded words to his disciples were, "And, lo, I am with you always, even unto the end of the world." (Matthew 28:20) He understands your mother-pain when your five-year-old leaves for kindergarten, when a bully picks on your fifth-grader, when your daughter calls to say that the new baby has Down syndrome. He knows your mother-rage when a trusted babysitter sexually abuses your two-year-old, when someone gives your thirteen-year-old drugs, when someone seduces your seventeen-year-old. He knows the pain you live with when you come home to a quiet apartment where the only children are visitors, when you hear that your former husband and his new wife were sealed in the temple last week, when your fiftieth wedding anniversary rolls around and your husband has been dead for two years. He knows all that. He's been there. He's been lower than all that. He's not waiting for us to be perfect. Perfect people don't need a Savior. He came to save his people in their imperfections. He is the Lord of the living, and the living make mistakes. He's not embarrassed by us, angry at us, or shocked. He wants us in our brokenness, in our unhappiness, in our guilt and our grief. You know that people who live above a certain latitude and experience very long winter nights can become depressed and even suicidal, because something in our bodies requires whole spectrum light for a certain number of hours a day. Our spiritual requirement for light is just as desperate and as deep as our physical need for light. Jesus is the light of the world. We know that this world is a dark place sometimes, but we need not walk in darkness. The people who sit in darkness have seen a great light, and the people who walk in darkness can have a bright companion. We need him, and He is ready to come to us, if we'll open the door and let him.

My only regret is that no one told me at the beginning of my journey what I'm telling you now: there will be an end to your pain. And once you've released all those pent-up emotions, you will experience a lightness and buoyancy you haven't felt since you were a very young child. The past will no longer feel like a lode of radioactive ore contaminating the present, and you will be able to respond appropriately to present-day events. You will feel angry when someone infringes on your territory, but you won't overreact. You will feel sad when something bad happens to you, but you won't sink into despair. You will feel joy when you have a good day, and your happiness won't be clouded with guilt. You, too, will have succeeded in making history, history.

It ain't embarrassing just thinking something's hot. You can be as sensible and respectable as you like through all the day and night but all that goes out the window when it's about sex. Just go with it. If it makes you hard and it ain't hurting no one who don't wanna get hurt, then it's a good thing. No drama. You need to just let go sometimes.

It dawns on me that maybe I'm just terrifically lazy; that I might be appropriating other people’s invisible sicknesses and disorders and scribbling them on the clipboard at the end of my bed to fool the nurses; so I can indulge in rest cures all day, every day. That I’m even fooling myself.

Everything is temporary, almost like a passing fase, some of laughter Some of pain. What we would do, If we had the chance to explore What we had taken for Granted the very day before, Some would say I'm selfish, To hold a little sadness in my eyes, But they don't feel the sorrow When I can't do, all that helps me feel alive. I can express my emotions, but I can't run wild and free, My mind and soul would handle it but hell upon my hip, ankle and knees, This disorder came about, as a friendship said its last goodbyes, Soooo this is what I got given for all the years I stood by? I finally stand still to question it, life it is in fact? What the fuck is the purpose of it all if you get stabbed in the back? And after the anger fills the air, the regret takes it places, I never wanted to be that girl, Horrid, sad and faded... So I took with a grain of salt, my new found reality, I am not of my pain, the disability doesnt define me. I find away to adjust, also with the absence of my friend, I trust the choices I make, allow my heart to mend. I pick up the pieces I retrain my leg, I find where I left off And I start all over again, You see what happens... When a warrior gets tested; They grow from the ashes Powerful and invested. So I thank all this heartache, As I put it to a rest, I move forward with my life And I'll build a damn good nest.

How to be there for someone with depression or anxiety 1. Know that you are needed, and appreciated, even if it seems you are not. 2. Listen. 3. Never say ‘pull yourself together’ or ‘cheer up’ unless you’re also going to provide detailed, foolproof instructions. (Tough love doesn’t work. Turns out that just good old ‘love’ is enough.) 4. Appreciate that it is an illness. Things will be said that aren’t meant. 5. Educate yourself. Understand, above all, that what might seem easy to you –going to a shop, for instance –might be an impossible challenge for a depressive. 6. Don’t take anything personally, any more than you would take someone suffering with the flu or chronic fatigue syndrome or arthritis personally. None of this is your fault. 7. Be patient. Understand it isn’t going to be easy. Depression ebbs and flows and moves up and down. It doesn’t stay still. Do not take one happy/ bad moment as proof of recovery/ relapse. Play the long game. 8. Meet them where they are. Ask what you can do. The main thing you can do is just be there. 9. Relieve any work/ life pressure if that is doable. 10. Where possible, don’t make the depressive feel weirder than they already feel. Three days on the sofa? Haven’t opened the curtains? Crying over difficult decisions like which pair of socks to wear? So what. No biggie. There is no standard normal. Normal is subjective. There are seven billion versions of normal on this planet.

Both incest and the Holocaust have been subject to furious denial by perpetrators and other individuals and by highly organised groups such as the False Memory Syndrome Foundation and the Committee for Historical Review. Incest and the Holocaust are vulnerable to this kind of concerted denial because of their unfathomability, the unjustifiability, and the threat they pose to the politics of patriarchy and anti-Semitism respectively. Over and over, survivors of the Holocaust attest that they were warned of what was happening in Poland but could not believe it at the time, could not believe it later as it was happening to them, and still to this day cannot believe what they, at the same time, know to have occurred. For Holocaust deniers this is a felicitous twist, for their arguments denying the Holocaust and therefore the legitimacy of Israel as a Jewish state capitalize on the discrepancies of faded memory. In the case of incest, although post-traumatic stress disorder, amnesia, and dissociation represent some of the mind's strategies for comprehending the incomprehensible, incest deniers have taken advantage of inconsistencies to discredit survivor testimony.

Things that have happened to me that have generated more sympathy than depression Having tinnitus. Scalding my hand on an oven, and having to have my hand in a strange ointment-filled glove for a week. Accidentally setting my leg on fire. Losing a job. Breaking a toe. Being in debt. Having a river flood our nice new house, causing ten thousand pounds’ worth of damage. Bad Amazon reviews. Getting the norovirus. Having to be circumcised when I was eleven. Lower-back pain. Having a blackboard fall on me. Irritable bowel syndrome. Being a street away from a terrorist attack. Eczema. Living in Hull in January. Relationship break-ups. Working in a cabbage-packing warehouse. Working in media sales (okay, that came close). Consuming a poisoned prawn. Three-day migraines.

Let me guess---Nathan," he said with a bitter laugh. "It has to be Nathan. Christ, he told me day one that he liked you. But don't forget our history, Leigh. We were great together.

One of the problems that people commonly have in their adult relationships if they have never received a firm commitment from their parents is the “I’ll desert you before you desert me” syndrome. This syndrome will take many forms or disguises. One form was Rachel’s frigidity. Although it was never on a conscious level, what Rachel’s frigidity was expressing to her husband and previous boyfriends was, “I’m not going to give myself to you when I know damn well that you’re going to dump me one of these days.” For Rachel, “letting go,” sexually or otherwise, represented

You might be scared to start. That’s natural. There’s this very real thing that runs rampant in educated people. It’s called “impostor syndrome.” The clinical definition is a “psychological phenomenon in which people are unable to internalize their accomplishments.” It means that you feel like a phony, like you’re just winging it, that you really don’t have any idea what you’re doing. Guess what: None of us do. Ask anybody doing truly creative work, and they’ll tell you the truth: They don’t know where the good stuff comes from. They just show up to do their thing. Every day.

All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about being a bit tired because its way and above beyond that. One day ME will be unravelled by the many researchers working tirelessly around the world I hope it's in my lifetime!

The thought had occurred to me as I was flying to Salt Lake City earlier that day that Ted Bundy might offer to let me stay in his apartment” (p. 74). (Loftus testified as a defense expert for Ted Bundy in 1976)

The trick is not to find the story of the century. You won’t miss that story when it happens. No one will miss it. The trick is to find the story of the day and for that day make whoever reads it or hears it care about it so intensely that it doesn’t leave them. Then it becomes a story of their life. Maybe even the story of their life.

I feel successful 3–4 days a month. The other days I feel like I’m barely accomplishing the minimum or that I’m a loser. I have imposter syndrome so even when I get compliments they are difficult to take and I just feel like I’m a bigger fraud than before. I feel the worst when I get so paralyzed by fear that I end up huddled in bed and fall further and further behind. To make myself feel more successful I spend real time with my daughter every day, even if it’s just huddling under a blanket and watching Doctor Who reruns on TV. I also try to remind myself that people like Dorothy Parker and Hunter S. Thompson struggled as well, and that this struggle might make me stronger, if it doesn’t first destroy me.

The last day i was home i took the rental car up old 14 behind the Sandia Mountains. as i drove north toward Santa Fe past Madrid I rolled the window down halfway and let the cold, brisk, February air come into the car. I smelled the pinon trees and the damp earth. The Gray came over me. My life flashed through my heart in one deep rush of feeling. When I made the turn around the mountain to the west, the mesas and valleys spread out before me under the orange and gold horizon. The sun hit me like a wave that flooded out the past and dissolved any idea of the future, and I felt okay and whole for about twenty minutes.

My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me. Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong. Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride. I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain, Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the " incurable " battle.

Rearview Mirror Syndrome One of the most crippling causes of mediocrity in life is a condition I call Rearview Mirror Syndrome (RMS). Our subconscious minds are equipped with a self-limiting rearview mirror, through which we continuously relive and recreate our past. We mistakenly believe that who we were is who we are, thus limiting our true potential in the present, based on the limitations of our past.   As a result, we filter every choice we make—from what time we will wake up in the morning to which goals we will set to what we allow ourselves to consider possible for our lives—through the limitations of our past experiences. We want to create a better life, but sometimes we don’t know how to see it any other way than how it’s always been.   Research shows that on any given day, the average person thinks somewhere between 50,000 and 60,000 thoughts. The problem is that ninety-five percent of our thoughts are the same as the ones we thought the day before, and the day before that, and the day before that. It’s no wonder most people go through life, day after day, month after month, year after year, and never change the quality of their lives.   Like old, worn baggage, we carry stress, fear, and worry from yesterday with us into today. When presented with opportunities, we quickly check our rearview mirror to assess our past capabilities. “No, I’ve never done anything like that before. I’ve never achieved at that level. In fact, I’ve failed, time and time again.”   When presented with adversity, we go back to our trusty rearview mirror for guidance on how to respond. “Yep, just my luck. This crap always happens to me. I’m just going to give up; that’s what I’ve always done when things get too difficult.”   If you are to move beyond your past and transcend your limitations, you must stop living out of your rearview mirror and start imagining a life of limitless possibilities. Accept the paradigm:  my past does not equal my future. Talk to yourself in a way that inspires confidence that not only is anything possible, but that you are capable and committed to making it so. It’s not even necessary to believe it at first. In fact, you probably won’t believe it. You might find it uncomfortable and that you resist doing it. That’s okay. Repeat it to yourself anyway, and your subconscious mind will begin to absorb the positive self-affirmations. (More on how to do this in Chapter 6:  The Life S.A.V.E.R.S.)   Don’t place unnecessary limitations on what you want for your life. Think bigger than you’ve allowed yourself to think up until this point. Get clear on what you truly want, condition yourself to the belief that it’s possible by focusing on and affirming it every day, and then consistently move in the direction of your vision until it becomes your reality. There is nothing to fear, because you cannot fail—only learn, grow, and become better than you’ve ever been before.   Always remember that where you are is a result of who you were, but where you go depends entirely on who you choose to be, from this moment on.

You suffer from One Day Syndrome.” He wrinkled his brows. “What?” “One Day Syndrome. You live your life like there’ll always be one day to do all the things you put off. One day you’ll take the trip. One day you’ll have the family. One day you’ll try the thing. You’re all work and not enough play. Money can’t make you happy unless you know what you want, Adrian. So what do you want?

I definitely think mothers of children with disabilities have to have extraordinary courage every day...Because we all know our children have value and worth and potential, but the everyday world sometimes doesn’t.' —Linda Strobel in Up: A Love Letter to the Down Syndrome Community

He has so little energy in his body that he can only walk to the bathroom on the other side of the hallway twice a day. After a few meters he is worn out, much worse than after the marathons he used to run. He was a triathlete, he earned a brown belt in judo, became Dutch champion in hockey, until he contracted pneumonia in 2005 and never recovered. Ever since, he has a headache, vertigo, and insomnia, but worst of all the fatigue: after minimal effort his muscles would lose all their strength and take days to recover. Only after a few years did he get a diagnosis: Chronic Fatigue Syndrome (CFS).

An apple a day might have kept the doctor away prior to the industrialization of food growing and preparation. But, according to research compiled by the United States Drug Administration (USDA) today’s apple contains residue of eleven different neurotoxins—azinphos, methyl chloripyrifos, diazinon, dimethoate, ethion, omthoate, parathion, parathion methyl, phosalone, and phosmet — and the USDA was testing for only one category of chemicals known as organophosphate insecticides. That doesn’t sound too appetizing does it? The average apple is sprayed with pesticides seventeen times before it is harvested.

EDS is a scary and challenging diagnosis, but the consequences of not knowing are far greater than that of a correct diagnosis. EDS symptoms can range from the very mild to the extremely severe. One thing is certain, though: If I had received a diagnosis back when my symptoms were mild, I would be living a very different life now. Every single day, in my struggle to actualize the person I still can be, I cannot help but mourn the person I could have been.

In 1973, Jan Erik Olsson walked into a small bank in Stockholm, Sweden, brandishing a gun, wounding a police officer, and taking three women and one man hostage. During negotiations, Olsson demanded money, a getaway vehicle, and that his friend Clark Olofsson, a man with a long criminal history, be brought to the bank. The police allowed Olofsson to join his friend and together they held the four hostages captive in a bank vault for six days. During their captivity, the hostages at times were attached to snare traps around their necks, likely to kill them in the event that the police attempted to storm the bank. The hostages grew increasingly afraid and hostile toward the authorities trying to win their release and even actively resisted various rescue attempts. Afterward they refused to testify against their captors, and several continued to stay in contact with the hostage takers, who were sent to prison. Their resistance to outside help and their loyalty toward their captors was puzzling, and psychologists began to study the phenomenon in this and other hostage situations. The expression of positive feelings toward the captor and negative feelings toward those on the outside trying to win their release became known as Stockholm syndrome.

there’s a lot to like about day-to-day life in the advanced welfare states of western Europe. They are great places to visit. But the view of life that has taken root in those same countries is problematic. It seems to go something like this: The purpose of life is to while away the time between birth and death as pleasantly as possible, and the purpose of government is to make it as easy as possible to while away the time as pleasantly as possible—the Europe Syndrome.

The feast lasted nine days, the last three becoming a continuous circle dance accompanied by songs and music. Noemi always stayed on the belvedere among the banquet remains. ... No, she didn't dance, she didn't laugh, but it was enough for her to see people enjoying themselves, because she too hoped to take part in the festival of life.

[Patricia Highsmith] was an extremely unbalanced person, extremely hostile and misanthropic and totally incapable of any kind of relationship, not just intimate ones. I felt sorry for her, because it wasn't her fault. There was something in her early days or whatever that made her incapable. She drove everybody away and people who really wanted to be friends ended up putting the phone down on her. It seemed to me as if she had to ape feelings and behaviour, like Ripley. Of course sometimes having no sense of social behaviour can be charming, but in her case it was alarming. I remember once, when she was trying to have a dinner party with people she barely knew, she deliberately leaned towards the candle on the table and set fire to her hair. People didn't know what to do as it was a very hostile act and the smell of singeing and burning filled the room.

I have no idea what I’m doing. No parent does. We’re all full of imposter syndrome, winging it every minute of the day.

The half-life between story of the century and not even the story of the day is quicker than you would ever guess.

I remember a woman, the mother of a child with Down syndrome, had come to talk to us about the manner in which the doctors and geneticists had discussed her daughter’s postnatal diagnosis with her, which ranged from heartless to clueless. But then, she said, on the day she and her baby were being discharged, the attending resident had come to say goodbye to them. “Enjoy her,” he had said to this woman. Enjoy her: No one had ever told her that she might delight in her baby, that her baby might be a source not of troubles but of pleasure.

Try to follow the 80/20 rule. Eat exactly what your body needs 80 percent of the time. The other 20 percent is for those times that you indulge, slip, or otherwise fall off the wagon.

But then, not long after, in another article, Loftus writes, "We live in a strange and precarious time that resembles at its heart the hysteria and superstitious fervor of the witch trials." She took rifle lessons and to this day keeps the firing instruction sheets and targets posted above her desk. In 1996, when Psychology Today interviewed her, she burst into tears twice within the first twenty minutes, labile, lubricated, theatrical, still whip smart, talking about the blurry boundaries between fact and fiction while she herself lived in another blurry boundary, between conviction and compulsion, passion and hyperbole. "The witch hunts," she said, but the analogy is wrong, and provides us with perhaps a more accurate window into Loftus's stretched psyche than into our own times, for the witch hunts were predicated on utter nonsense, and the abuse scandals were predicated on something all too real, which Loftus seemed to forget: Women are abused. Memories do matter. Talking to her, feeling her high-flying energy the zeal that burns up the center of her life, you have to wonder, why. You are forced to ask the very kind of question Loftus most abhors: did something bad happen to her? For she herself seems driven by dissociated demons, and so I ask. What happened to you? Turns out, a lot. (refers to Dr. Elizabeth F. Loftus)

You are gonna shoot me," he says. "One day." He's still holding Lindsay's hand, he's looking down at where their fingers are wound together and not at Lindsay's face, but his voice is clear. "I ain't thick. I know you'll get sick of me. You can't just let me go, I know too much, you'd be freaked out forever in case I snitched. You'll get proper sick of me one day, not just annoyed, and then you'll shoot me. It's okay." "I won't get sick of you," Lindsay says. He feels numb and far away, as if its somebody else talking, and almost like he's going to throw up, a sort of lurch in his stomach like when you're at the top of the the Angel tube station escalator and somebody a bit too eager to get on the train shoves you from behind. "Yeah you will. I'm gonna be with you til I die, though. Least I can say that and know its true, how many people can do that? Bit romantic, really. If you squint, and look at it sideways.

some degree of pain all the time; we consider it normal. It’s the cost of holding on to hope that we will, one day, meet Human Giver Syndrome’s standard and finally, at long last, fully belong in the human community and deserve love.

Please, please, you have to, I never ask you for anything, please just do it." "What are you talking about? You always ask me for everything." "Okay, then, but you always do it, so don't change the rules now." He knows its true. That's just the way they work. As much as he grouses and sneers and makes a big show of authority, he can't deny the kid a thing. If he wants a vintage Aston Martin so he can play at being James Bond, he gets one. If he wants to go one top, he can. He says he's never been to Africa and Lindsay goes online and books flights that same day to Morocco because he wants to see the smile when he presents Valentine with tickets. When the kid suggests setting a camcorder up in the bedroom so they can watch the tape back later and laugh at their stupid sex-faces, Lindsay goes along with it, wincing all the way, because he always says no and he never really means it in the end. This is love, he supposes, and it's mental.

Many of the Chinese medical texts dating back from 2,000 years ago lament the ills of 'modern times' and allude to the traditional 'good old days' another 3,000 years before that. A common theme in these texts is the decline in human health due to careless lifestyles and the deterioration in human relations due to lack of love: degenerative conditions that Taoist alchemy as well as psychoneuroimmunology would link as symptoms of the same syndrome. In his essay entitled 'Loving People' Chang San-feng, the thirteenth-century master, summed it up by saying: 'Therefore to those who want to know the way to deal with the world, I suggest, Love People.' This is a potent description for health and longevity that generates positive healing energy throughout the human system by stimulating the internal alchemy of psychoneuroimmunology.

This syndrome is a distant cousin to Post-Traumatic Stress Disorder, or PTSD. What makes PBS different from PTSD is the sense of disbelief one gets from PBS. How could someone who loved me hate me so deeply? How could I stay and subject myself to all that pain despite all my education and awareness? Remember the error message—the brain can’t compute bizarre behavior right away, but after some time, it can look back and parse through the details. But that’s rarely a neutral process. It can create an inability to focus and a foggy mental state that keeps the victim stumbling through their day.

November 2, 1984 was an especially tragic day in the Chronic Fatigue Syndrome/AIDS epidemic. That was the day Anthony Fauci became the Director of the National Institutes of Allergy and Infectious Diseases. (NIAID). (Good Intentions p.128) It was the day a thin-skinned, physically ultra-diminutive man with a legendary Napoleonic attitude was positioned by destiny to become the de facto AIDS Czar. In the fog of culpability that constitutes what could be called "Holocaust II" one thing is clear: the buck, on its way to the very top of the government, at least pauses at the megalomaniac desk of Anthony Fauci.

Welcome back our old friend imposter syndrome. The inescapable feeling that you do not belong. You could have worked your hardest, put your blood, sweat and tears into getting where you are today and still feel like at any moment the rug will be pulled from beneath your feet when everyone realises the failure you really are. With anxiety you worry, and even when you've put your most into this world, you will still worry, because anxiety is stupid and hateful. You worry that you're not doing well enough, you worry that your colleagues don't like you, you worry your boss thinks your work is fucking awful, you worry about talking to people, you worry about the commute, you worry and you worry and worrying is fucking exhausting. This all happens before you have even started work that day. This is the pre-game: inescapable fear, irrational dread, complete implosion of self-confidence, and you're only halfway through pouring your first coffee.

Kristen needs time in the morning to shower and get ready for work. Compared to the more advanced topics on the list, such as Be more present in our family’s moments and Take a break from your own head once in a while, the shower-time thing seemed relatively easy to master. I’d start there. Normally on workdays, Kristen would wake up at five thirty or six, a few minutes before the kids, and try to take a quick shower. Inevitably the shower would wake up Emily because her room was next to our bathroom. Emily would toddle past me, sound asleep in my bed, to join Kristen in the bathroom until she finished showering. Then they’d wake up Parker and go downstairs for breakfast. After breakfast (so I’m told) Kristen would play with the kids before returning to our bathroom to finish getting ready, while they crowded her and played at her feet. All I ever saw of this process was the tail end, when Kristen would emerge from the bathroom to kiss me good-bye and tell me she was taking the kids next door to Mary’s. That’s when my day would begin. How can I make time for her to get ready without interfering with my own routine? I wondered, sitting down on the edge of our bed. Maybe she could wake up a half hour earlier, say five A.M.? I didn’t think that would work.

Humans are biased machines, and we are especially influenced by negatives. We want to believe the worst about ourselves and will pick those scraps up throughout the day and piece them together until we have something that we can look at and say, 'Look, arent I terrible' even if everyone else says otherwise. Maybe that's just me.

If you are the partner of a man with Asperger’s you may be the one who first noticed his anomalies; he may or may not be officially diagnosed. You might be perpetually frustrated at your inability to connect with him on a deep and consistent level. One day you feel as if your relationship is finally on solid ground, and the next day that ground has dropped out from under you.

And I think for a moment, because people don't actually ask that very often. They tell me what they think I feel because they've read it in books, or they say incredible things like "autistic people have no sense of humour or imagination or empathy" when I'm standing right there beside them (and one day I'm going to point out that that is more than a little bit rude, not to mention Not Even True) or they -- even worse -- talk to me like I'm about five, and can't understand. "It's like living with all your senses turned up to full volume all the time," I say. "And it's like living life in a different language, so you can't ever quite relax because even when you think you're fluent it's still using a different part of your brain so by the end of the day you're exhausted.

To this day, I am embarrassed to admit that I still deeply struggle with get-yo-ass-up syndrome. At least back then, my dad was still down to be my human alarm clock. When all other tactics failed to get the job done- tickling me, pulling the covers off of my virtually comatose body, shouting- my dad made up a wake-up song that he sang to me nearly every morning for sixteen years: "Lainey Flainey, give me your answer true. I'm half crazy over the likes of you." He'd saunter into my room and sit on the edge of my bed, tap, tap, tapping my tiny body to the beat until I finally woke up. Looking back, it was the most loving, patient act of parenting in the universe. Of course, at the time, it was simply annoying as hell. "And we're off like a herd of turtles!" he'd say. Every. Single. Day.

Although the connection is not as definitive as it is with apnea, restless legs syndrome appears to correlate with obesity.14 There’s also some evidence that restless legs syndrome may be brought on by mild neurological inflammation and nervous system disruption by toxins, heavy metals, environmental mold, and eating foods to which one is allergic. If you have restless legs, there’s an easy way to tell if toxins from your diet are causing it: run a fasting experiment. Fast for a day, and go to sleep. If your restless legs are magically cured, it’s likely that something in your diet is causing them. I used to have restless legs intermittently and discovered that by removing foods I was sensitive to, such as those high in histamine, lectins, and particularly mold toxins, my restless legs went away. Fasting will tell you if your

Migraines are described as “one of the most common” pain syndromes, affecting as much as 12 percent of the population.63 That’s common? How about menstrual cramps, which plague up to 90 percent of younger women?64 Can ginger help? Even just one-eighth of a teaspoon of ginger powder three times a day dropped pain from an eight to a six on a scale of one to ten, and down further to a three in the second month.65 And these women hadn’t been taking ginger all month; they started the day before their periods began, suggesting that even if it doesn’t seem to help much the first month, women should try sticking with it. What about the duration of pain? A quarter teaspoon of ginger powder three times a day was found to not only drop the severity of menstrual pain from about seven down to five but decrease the duration from a total of nineteen hours in pain down to about fifteen hours,66 significantly better than the placebo, which were capsules filled with powdered toast. But women don’t take bread crumbs for their cramps. How does ginger compare to ibuprofen? Researchers pitted one-eighth of a teaspoon of powdered ginger head-to-head against 400 mg of ibuprofen, and the ginger worked just as effectively as this leading drug.67 Unlike the drug, ginger can also reduce the amount of menstrual bleeding, from around a half cup per period down to a quarter cup.68 What’s more, ginger intake of one-eighth of a teaspoon twice daily started a week before your period can yield a significant drop in premenstrual mood, physical, and behavioral symptoms.69 I like sprinkling powdered ginger on sweet potatoes or using it fresh to make lemon-ginger apple chews as an antinausea remedy. (Ever since I was a little kid, I’ve suffered from motion sickness.) There is an array of powerful antinausea

[ Dr. Lois Jolyon West was cleared at Top Secret for his work on MKULTRA. ] Dr. Michael Persinger [235], another FSMF Board Member, is the author of a paper entitled “Elicitation of 'Childhood Memories' in Hypnosis-Like Settings Is Associated With Complex Partial Epileptic-Like Signs For Women But Not for Men: the False Memory Syndrome.” In the paper Perceptual and Motor Skills,In the paper, Dr. Persinger writes: On the day of the experiment each subject (not more than two were tested per day) was asked to sit quietly in an acoustic chamber and was told that the procedure was an experiment in relaxation. The subject wore goggles and a modified motorcycle helmet through which 10-milligauss (1 microTesla) magnetic fields were applied through the temporal plane. Except for a weak red (photographic developing) light, the room was dark. Dr. Persinger's research on the ability of magnetic fields to facilitate the creation of false memories and altered states of consciousness is apparently funded by the Defense Intelligence Agency through the project cryptonym SLEEPING BEAUTY. Freedom of Information Act requests concerning SLEEPING BEAUTY with a number of different intelligence agencies including the CIA and DEA has yielded denial that such a program exists. Certainly, such work would be of direct interest to BLUEBIRD, ARTICHOKE, MKULTRA and other non-lethal weapons programs. Schnabel [280] lists Dr. Persinger as an Interview Source in his book on remote viewing operations conducted under Stargate, Grill Flame and other cryptonyms at Fort Meade and on contract to the Stanford Research Institute. Schnabel states (p. 220) that, “As one of the Pentagon's top scientists, Vorona was privy to some of the strangest, most secret research projects ever conceived. Grill Flame was just one. Another was code-named Sleeping Beauty; it was a Defense Department study of remote microwave mind-influencing techniques ... [...] It appears from Schnabel's well-documented investigations that Sleeping Beauty is a real, but still classified mind control program. Schnabel [280] lists Dr. West as an Interview Source and says that West was a, “Member of medical oversight board for Science Applications International Corp. remote-viewing research in early 1990s.

Several years ago I was lecturing in British Columbia. Dr [Simon] Wessely was speaking and he gave a thoroughly enjoyable lecture on M.E. and CFS. He had the hundreds of staff physicians laughing themselves silly over the invented griefs of the M.E. and CFS patients who according to Dr Wessely had no physical illness what so ever but a lot of misguided imagination. I was appalled at his sheer effectiveness, the amazing control he had over the minds of the staid physicians….His message was very clear and very simple. If I can paraphrase him: “M.E. and CFS are non-existent illnesses with no pathology what-so-ever. There is no reason why they all cannot return to work tomorrow. The next morning I left by car with my crew and arrived in Kelowna British Columbia that afternoon. We were staying at a patient’s house who had severe M.E. with dysautanomia and was for all purposes bed ridden or house bound most of the day. That morning she had received a phone call from her insurance company in Toronto. (Toronto is approximately 2742 miles from Vancouver). The insurance call was as follows and again I paraphrase: “Physicians at a University of British Columbia University have demonstrated that there is no pathological or physiological basis for M.E. or CFS. Your disability benefits have been stopped as of this month. You will have to pay back the funds we have sent you previously. We will contact you shortly with the exact amount you owe us”. That night I spoke to several patients or their spouses came up to me and told me they had received the same message. They were in understandable fear. What is important about this story is that at that meeting it was only Dr Wessely who was speaking out against M.E. and CFS and how … were the insurance companies in Toronto and elsewhere able to obtain this information and get back to the patients within a 24 hour period if Simon Wessely was not working for the insurance industry… I understand that it was also the insurance industry who paid for Dr Wessely’s trip to Vancouver.

Observation: Thanks to technological advances, avid readers seem to be replacing DTBAD (Dead Tree Book Acquisition Disorder) with an alphabet soup of more more modern-day hoarding behaviors: EBAD (E-Book Acquistion Disorder), EGAD (Electronic Gadget Acquisition Disorder), and ABAD (Audiobook Acquisition Disorder). Of course, there's also MYBAD (Movie and YouTube Acquisition Disorder: the hoarding or obsessive viewing of digital films and videos, some based on books). If any of these syndromes describes you, take heart: there's probably an app for that! - 8/9/2013

The majority of people living with chronic pain have the symptoms attributed to conditions that are not fully understood, including Spinal Stenosis, Fibromyalgia, Diabetic Neuropathy, Arthritis, and Restless Leg Syndrome. These diagnoses provide a label allowing the patient to be classified and guiding physicians to treat, but often do not reflect the true cause of symptoms. Using approaches presented in Walking Well Again, both patients and clinicians are guided to recognizing and treating the hidden causes of pain, which often results in relief in just one or two days.

Rearview Mirror Syndrome One of the most crippling causes of mediocrity in life is a condition I call Rearview Mirror Syndrome (RMS). Our subconscious minds are equipped with a self-limiting rearview mirror, through which we continuously relive and recreate our past. We mistakenly believe that who we were is who we are, thus limiting our true potential in the present, based on the limitations of our past.   As a result, we filter every choice we make—from what time we will wake up in the morning to which goals we will set to what we allow ourselves to consider possible for our lives—through the limitations of our past experiences. We want to create a better life, but sometimes we don’t know how to see it any other way than how it’s always been.   Research shows that on any given day, the average person thinks somewhere between 50,000 and 60,000 thoughts. The problem is that ninety-five percent of our thoughts are the same as the ones we thought the day before, and the day before that, and the day before that. It’s no wonder most people go through life, day after day, month after month, year after year, and never change the quality of their lives.

to love Grace unconditionally—to be blind to her condition. Bonnie had already reached that point. In fact, as she realized that our culture would not affect Grace in the same way as other girls, she began to see the advantage of having a daughter with Down syndrome. On the day of her surgery, Bonnie could not bear to be the one to hand her over to the medical staff. As I held Grace in the early morning hours prior to her surgery and then eventually walked down the hall to the operating room with her, my heart swelled with emotion. I was falling in love. Suddenly, I couldn’t imagine losing my baby girl.

Simply put, within AS, there is a wide range of function. In truth, many AS people will never receive a diagnosis. They will continue to live with other labels or no label at all. At their best, they will be the eccentrics who wow us with their unusual habits and stream-of-consciousness creativity, the inventors who give us wonderfully unique gadgets that whiz and whirl and make our life surprisingly more manageable, the geniuses who discover new mathematical equations, the great musicians and writers and artists who enliven our lives. At their most neutral, they will be the loners who never now quite how to greet us, the aloof who aren't sure they want to greet us, the collectors who know everyone at the flea market by name and date of birth, the non-conformists who cover their cars in bumper stickers, a few of the professors everyone has in college. At their most noticeable, they will be the lost souls who invade our personal space, the regulars at every diner who carry on complete conversations with the group ten tables away, the people who sound suspiciously like robots, the characters who insist they wear the same socks and eat the same breakfast day in and day out, the people who never quite find their way but never quite lose it either.

On 13th December 1988 Brynmor John MP died from ME/CFS. His experience of the illness was all too familiar: ‘Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’. He found himself unable to dress; the slightest exertion exhausted him and it took days to regain his strength. He was irritated by the profusion of psychiatric comment and was trying to ensure better understanding of ME/CFS (Perspectives, Summer 1991:28‐30). Brynmor John suddenly collapsed and died as he was leaving the House of Commons gym after having been advised to exercise back to fitness.

Kristen and I always have a lot to celebrate at the end of June. First there’s Father’s Day, followed by our wedding anniversary and my birthday. But prior to the Best Practices this two-week season of parties didn’t inspire much of a celebratory mood. It always felt strange celebrating Father’s Day, given that my parenting skills had been something of a disappointment for the first three years, and the tears that Kristen had shed on our third wedding anniversary spoke rather poignantly to the fact that our marriage hadn’t been much to celebrate, either. That left my birthday, a day that was all about toasting the birth of the very person who had made Kristen’s life miserable.

Of that first decade, Neil said I would have this recurring fantasy in which there would be a knock on the door, and I would go down, and there would be somebody wearing a suit – not an expensive suit, just the kind of suit that showed they had a job – and they would be holding a clipboard, and they'd have a paper on the clipboard, and I'd open the door and they'd say, „Hello, excuse me, I'm afraid I am here on official business. Are you Neil Gaiman?” And I would say yes. „Well, it says here that you are a writer and that you don't have to get up in the morning at any particular time, that you just write each day as much you want.” And I'd go „That's right.” "And that you enjoy writing. And it says here that all the books you want – they are just sent to you and you don't have to buy them. And films: it says here that you just go to see films. If you want to see them you just call up the person who runs the films." And I say, „Yes, that's right.” And that people like what you do and they give you money for just writing things down." And I'd say yes. And he'd say, „Well, I'm afraid we are on to you. We've caught up with you. And I'm afraid you are now going to have to go out and get a proper job.” At which point in my fantasy my heart would always sink, and I'd go, „Okay,” and I'd go and buy a cheap suit and I'd start applying to real jobs. Because once they've caught up with you, you can't argue with this: they've caught up with you. So that was the thing in my head.

Yes, you do hate Switzerland. And," doctor Messerli paused for effect, "you love it. You love it and you hate it. What you don't feel is apathy. You're not indifferent. You're ambivalent." Anna had thought about this before, when nights came during which she could do nothing but wander Dietlikon's sleeping streets or hike the hill behind her house to sit upon the bench where most often she went to weep. She'd considered her ambivalence many, many times, and in the end, she's diagnosed herself with a disease that she'd also invented. Switzerland syndrome. Like Stockholm syndrome. But instead of my captors, I'm attached to the room in which I'm held captive. It's the prison I'm bound to, not the warden. Anna was absolutely right. It was the landscape. it was the geography. The fields, the streams, the lakes, the forests. And the mountains. On exceptionally clear days when the weather was right, if you walked south on Dietlikon's Bahnhofstrasse you could see the crisp outlines of snow-capped Alps against a blazing blue horizon eighty kilometers away. On these certain days it was something in the magic of the atmosphere that made them tangible and moved them close. The mutability of those particular mountains reminded Anna of herself. And it wasn't simply the natural landscape that she attached herself to emotionally. It was the cobblestone roads of Zürich's old town and the spires of this church and the towers of that one. And the trains, the trains, the goddamn trains. She could take the train anywhere she wanted to go.

Many a morning I found myself waking up in America and being surprised to find myself in a bed. I had been having nightmares all night long, and I didn’t know where I was. It would take me awhile to adjust, because I couldn’t believe I was in a bed. What was I doing in a bed? After the war I never slept more than three or four hours a night. In those days you didn’t talk about stuff like that. There was no such thing as war syndrome, but you knew something was different. You tried not to remember anything from over there, but things came back to you. You had done every damn thing overseas, from killing in cold blood to destroying property to stealing whatever you wanted and to drinking as much wine and having as many women as you wanted. You lived every minute of every day in danger of your own life and limb. You couldn’t take chances. Many times you had a split second to decide to be judge, jury, and executioner. You had just two rules you had to obey. You had to be back in your outfit when you went back on the line. You had to obey a direct order in combat. Break one of those rules and you could be executed yourself, right on the spot even. Otherwise, you flaunted authority. You lost the moral skill you had built up in civilian life, and you replaced it with your own rules. You developed a hard covering, like being encased in lead. You were scared more than you’d ever been in your life. You did certain things, maybe against your will sometimes, but you did them, and if you stayed over there long enough you didn’t even think about them anymore. You did them like you might scratch your head if it itched. You

Patients who develop ME/CFS often lose the natural antidepressant effect of exercise, feeling worse after exercise rather than better. Patients may have a drop in body temperature with exercise. Thus fatigue is correlated with other symptoms, often in a sequence that is unique to each patient. After relatively normal physical or intellectual exertion, a patient may take an inordinate amount of time to regain her/his pre-exertion level of function and competence. For example, a patient who has bought a few groceries may be too exhausted to unpack them until the next day. The reactive fatigue of post-exertional malaise or lack of endurance usually lasts 24 hours or more and is often associated with impairment of cognitive functions. There is often delayed reactivity following exertion, with the onset the next day, or even later.

If at all possible, a boy should stay home with one of his parents or a close relative until about age three. Daycare of the institutional kind does not suit boys’ nature during these very early years. Many studies have shown that boys are more prone than girls to separation anxiety and to becoming emotionally shut down as a result of feeling abandoned. Also, a boy of this age may cope with his anxiety by becoming restless or aggressive. Experienced caregivers talk about the “sad/angry boy syndrome”—a little boy who feels abandoned and anxious and converts that into hitting and hurting behavior. He may carry this behavior into school and later life. Care by a loving relative is far better than an institutional situation for toddlers under three. Children under three need to spend the long days of childhood with people to whom they are very special.

Lamentations about the tribulations of public life, followed by celebrations of the bucolic splendor of retirement to rural solitude, had become a familiar, even formulaic, posture within the leadership class of the revolutionary generation, especially within the Virginia dynasty. Everyone knew the classical models of latter-day seclusion represented by Cincinnatus and described by Cicero and Virgil. Declarations of principled withdrawal from the hurly-burly of politics to the natural rhythms of one’s fields or farms had become rhetorical rituals. If Washington’s retirement hymn featured the “vine and fig tree,” Jefferson’s idolized “my family, my farm, and my books.” The motif had become so commonplace that John Adams, an aspiring Cicero himself, claimed that the Virginians had worn out the entire Ciceronian syndrome: “It seems the Mode of becoming great is to retire,” he wrote Abigail in 1796. “It is marvellous how political Plants grow in the shade.” Washington

Gordon MacDonald once wrote about how what he called the “sinkhole syndrome” happens in a human life. It may be triggered by a failure at work, a severed relationship, harsh criticism from a parent, or for no apparent reason at all. But it feels like the earth has given way. It turns out, MacDonald wrote, that in a sense we have two worlds to manage: an outer world of career and possessions and social networks; and an inner world that is more spiritual in nature, where values are selected and character is formed — a place where worship and confession and humility can be practiced. Because our outer worlds are visible and measurable and expandable, they are easier to deal with. They demand our attention. “The result is that our private world is often cheated, neglected because it does not shout quite so loudly. It can be effectively ignored for large periods of time before it gives way to a sinkhole-like cave-in.” He quotes the haunting words of Oscar Wilde: “I was no longer captain of my own soul.” The sinkhole, says MacDonald, is the picture of spiritual vulnerability in our day.

The above is stereotypical FMS rhetoric. It employs a formulaic medley of factual distortions, exaggerations, emotionally charged language and ideological codewords, pseudo-scientific assertions, indignant protestations of bigotry and persecution, mockering of religious belief, and the usual tiresome “witch hunt” metaphors to convince the reader that there can be no debating the merits of the case. No matter what the circumstances of the case, the syntax is always the same, and the plot line as predictable as a 1920's silent movie. Everyone accused of abuse is somehow the victim of overzealous religious fanatics, who make unwarranted, irrational, and self-serving charges, which are incredibly accepted uncritically by virtually all social service and criminal justice professionals assign to the case, who are responsible for "brainwashing" the alleged perpetrator or witnesses to the crime. This mysterious process of "mass hysteria" is then amplified in the media, which feeds back upon itself, which finally causes a total travesty of justice which the FMS people in the white hats are duty-bound to redress. By reading FMS literature one could easily draw the conclusion that the entire American justice system is no better than that of the rural south in the days of lynchings and the Ku Klux Klan. The Salem witch trials of the seventeenth century are always the touchstone for comparison.

Say you live five miles from the grocery store. When you need food, you hop in your car, and fifteen minutes later you’re buying groceries. One day on your way to the grocery store you get stopped by a train. You’re delayed five additional minutes. The whole time you’re waiting for the train to pass, you’re irritated by the delay. You forget the fact that before cars were invented, a five-mile trip to the store could take a whole day. “Or how about the student who’s working on a research paper for a class assignment. Because of a slow internet connection, it takes him thirty more minutes to look up and download the necessary information for his paper. He’s peeved by the delay. He’s forgotten that before the Internet, he would’ve had to motor over to the library, look up books in an archaic card file system, find the books in the library stacks, then search through the books for his information. A process that could take hours. “But the quintessential example of this phenomenon is the microwave. Whereas in the past it might take twenty to thirty minutes to cook or heat food in a conventional oven, the same outcome can be derived with a microwave oven in less than two minutes. Yet we stand at the microwave tapping our toe impatiently waiting for those two minutes to conclude, frustrated by how long it’s taking. “Which is why I say today’s world suffers from a serious case of the Microwave Syndrome.

Treating Abuse Today 3(4) pp. 26-33 TAT: I want to move back to an area that I'm not real comfortable asking you about, but I'm going to, because I think it's germane to this discussion. When we began our discussion [see "A Conversation with Pamela Freyd, Ph.D., Part 1", Treating Abuse Today, 3(3), P. 25-39] we spoke a bit about how your interest in this issue intersected your own family situation. You have admitted writing about it in your widely disseminated "Jane Doe" article. I think wave been able to cover legitimate ground in our discussion without talking about that, but I am going to return to it briefly because there lingers an important issue there. I want to know how you react to people who say that the Foundation is basically an outgrowth of an unresolved family matter in your own family and that some of the initial members of your Scientific Advisory Board have had dual professional relationships with you and your family, and are not simply scientifically attached to the Foundation and its founders. Freyd: People can say whatever they want to say. The fact of the matter is, day after day, people are calling to say that something very wrong has taken place. They're telling us that somebody they know and love very much, has acquired memories in some kind of situation, that they're sure are false, but that there has been no way to even try to resolve the issues -- now, it's 3,600 families. TAT: That's kind of side-stepping the question. My question -- Freyd: -- People can say whatever they want. But you know -- TAT: -- But, isn't it true that some of the people on your scientific advisory have a professional reputation that is to some extent now dependent upon some findings in your own family? Freyd: Oh, I don't think so. A professional reputation dependent upon findings in my family? TAT: In the sense that they may have been consulted professionally first about a matter in your own family. Is that not true? Freyd: What difference does that make? TAT: It would bring into question their objectivity. It would also bring into question the possibility of this being a folie à deux --

Treating Abuse Today (Tat), 3(4), pp. 26-33 Freyd: You were also looking for some operational criteria for false memory syndrome: what a clinician could look for or test for, and so on. I spoke with several of our scientific advisory board members and I have some information for you that isn't really in writing at this point but I think it's a direction you want us to go in. So if I can read some of these notes . . . TAT: Please do. Freyd: One would look for false memory syndrome: 1. If a patient reports having been sexually abused by a parent, relative or someone in very early childhood, but then claims that she or he had complete amnesia about it for a decade or more; 2. If the patient attributes his or her current reason for being in therapy to delayed-memories. And this is where one would want to look for evidence suggesting that the abuse did not occur as demonstrated by a list of things, including firm, confident denials by the alleged perpetrators; 3. If there is denial by the entire family; 4. In the absence of evidence of familial disturbances or psychiatric illnesses. For example, if there's no evidence that the perpetrator had alcohol dependency or bipolar disorder or tendencies to pedophilia; 5. If some of the accusations are preposterous or impossible or they contain impossible or implausible elements such as a person being made pregnant prior to menarche, being forced to engage in sex with animals, or participating in the ritual killing of animals, and; 6. In the absence of evidence of distress surrounding the putative abuse. That is, despite alleged abuse going from age two to 27 or from three to 16, the child displayed normal social and academic functioning and that there was no evidence of any kind of psychopathology. Are these the kind of things you were asking for? TAT: Yeah, it's a little bit more specific. I take issue with several, but at least it gives us more of a sense of what you all mean when you say "false memory syndrome." Freyd: Right. Well, you know I think that things are moving in that direction since that seems to be what people are requesting. Nobody's denying that people are abused and there's no one denying that someone who was abused a decade ago or two decades ago probably would not have talked about it to anybody. I think I mentioned to you that somebody who works in this office had that very experience of having been abused when she was a young teenager-not extremely abused, but made very uncomfortable by an uncle who was older-and she dealt with it for about three days at the time and then it got pushed to the back of her mind and she completely forgot about it until she was in therapy. TAT: There you go. That's how dissociation works! Freyd: That's how it worked. And after this came up and she had discussed and dealt with it in therapy, she could again put it to one side and go on with her life. Certainly confronting her uncle and doing all these other things was not a part of what she had to do. Interestingly, though, at the same time, she has a daughter who went into therapy and came up with memories of having been abused by her parents. This daughter ran away and is cutoff from the family-hasn't spoken to anyone for three years. And there has never been any meeting between the therapist and the whole family to try to find out what was involved. TAT: If we take the first example -- that of her own abuse -- and follow the criteria you gave, we would have a very strong disbelief in the truth of what she told.

As the body and mind deteriorate, the dying are not less themselves. Dementia steals the faculties for expressing the self—language, memory, personality—but the self remains, albeit largely inaccessible to others. The experience of actually being with the demented and dying is one of watching someone move farther and farther away, out of earshot and eventually out of sight. It’s wrong to think, “Because I cannot access something, it does not exist.” Being with someone who is near death undermines such nonsense. If people are as much themselves when there is no chance of further accomplishment, activity, or self-expression, then the fact that the unborn may grow up to great accomplishment, activity, or self-expression is irrelevant. That a precious child with Down syndrome may some day compete in the Special Olympics is irrelevant. Another precious child with a different genetic abnormality will spend all his days in a state that most of us will inhabit only at the end of our lives, if ever: incapable of communication, incontinent, compromised in language, memory, intellect, and personality. The compassion we show to the dying is not earned by the things they “used to be” any more than it should be earned by the things that the unborn might become. We will all end up in a state of total incapacity and inaccessibility, some for a long time and some only briefly.

Upon her retirement, Supreme Court justice Sandra Day O’Connor reflected on her pioneer status. “My concern was whether I could do the job of a justice well enough to convince the nation that my appointment was the right move. If I stumbled badly in doing the job, I think it would have made life more difficult for women.

Time blocking, as it’s called, helps ensure that you don’t schedule other things on the days—or part of a day—you’ve set aside to work on this task.

Effectiveness lies in the balance. Excessive focus on P results in ruined health, worn-out machines, depleted bank accounts, and broken relationships. Too much focus on PC is like a person who runs three or four hours a day, bragging about the extra ten years of life it creates, unaware he’s spending them running. Or a person endlessly going to school, never producing, living on other people’s golden eggs—the eternal student syndrome.

After a patient of his with pneumonia coughed in his face, Vink’s energy and endurance quickly tanked. He estimated that from one day to the next he lost 70-80% of the power in his legs. Very quickly this former marathoner was unable to walk 30 yards without having to rest for 15 minutes. He also experienced severe dizziness, headaches (for the first time in his life) and problems sleeping. Graded exercise therapy (GET) caused him to relapse further and he ended up bedridden.

Autophagy also plays an important role in the prevention of Alzheimer’s disease. Alzheimer’s is characterized by the abnormal accumulation of amyloid beta (Aß) proteins in the brain, and it’s believed that these accumulations eventually destroy the synaptic connections in the memory and cognition areas. Normally, clumps of Aß protein are removed by autophagy: the brain cell activates the autophagosome, the cell’s internal garbage truck, which engulfs the Aß protein targeted for removal and excretes it, so it can be removed by the blood and recycled into other protein or turned into glucose, depending upon the body’s needs. But in Alzheimer’s disease, autophagy is impaired and the Aß protein remains inside the brain cell, where eventual buildup will result in the clinical syndromes of Alzheimer’s disease. Cancer is yet another disease that may be a result of disordered autophagy. We’re learning that mTOR plays a role in cancer biology, and mTOR inhibitors have been approved by the Food and Drug Administration for the treatment of various cancers. Fasting’s role in inhibiting mTOR, thereby stimulating autophagy, provides an interesting opportunity to prevent cancer’s development.

fasting also stimulates growth hormone, which signals the production of some new snazzy cell parts, giving our bodies a complete renovation. Since it triggers both the breakdown of old cellular parts and the creation of new ones, fasting may be considered one of the most potent anti-aging methods in existence. Autophagy also plays an important role in the prevention of Alzheimer’s disease. Alzheimer’s is characterized by the abnormal accumulation of amyloid beta (Aß) proteins in the brain, and it’s believed that these accumulations eventually destroy the synaptic connections in the memory and cognition areas. Normally, clumps of Aß protein are removed by autophagy: the brain cell activates the autophagosome, the cell’s internal garbage truck, which engulfs the Aß protein targeted for removal and excretes it, so it can be removed by the blood and recycled into other protein or turned into glucose, depending upon the body’s needs. But in Alzheimer’s disease, autophagy is impaired and the Aß protein remains inside the brain cell, where eventual buildup will result in the clinical syndromes of Alzheimer’s disease. Cancer is yet another disease that may be a result of disordered autophagy. We’re learning that mTOR plays a role in cancer biology, and mTOR inhibitors have been approved by the Food and Drug Administration for the treatment of various cancers. Fasting’s role in inhibiting mTOR, thereby stimulating autophagy, provides an interesting opportunity to prevent cancer’s development. Indeed, some leading scientists, such as Dr. Thomas Seyfried, a professor of biology at Boston College, have proposed a yearly seven-day water-only fast for this very reason.

In 1848, the twenty-five-year-old Gage was working on a railroad bed when he was distracted by some activity behind him. As he turned his head, the large rod he was using to pack powder explosives struck a rock, caused a spark and the powder exploded. The rod flew up through his jaw, traveled behind his eye, made its way through the left-hand side of his brain and shot out the other side. Despite his somewhat miraculous survival, Gage was never the same again. The once jovial, kind young man became aggressive, rude and prone to swearing at the most inappropriate times. As a toddler, Alonzo Clemons also suffered a traumatic head injury, after falling onto the bathroom floor. Left with severe learning difficulties and a low IQ, he was unable to read or write. Yet from that day on he showed an incredible ability to sculpt. He would use whatever materials he could get his hands on—Play-Doh, soap, tar—to mold a perfect image of any animal after the briefest of glances. His condition was diagnosed as acquired savant syndrome, a rare and complex disorder in which damage to the brain appears to increase people’s talent for art, memory or music. SM, as she is known to the scientific world, has been held at gunpoint and twice threatened with a knife. Yet she has never experienced an ounce of fear. In fact, she is physically incapable of such emotion. An unusual condition called Urbach-Wiethe disease has slowly calcified her amygdalae, two almond-shaped structures deep in the center of the brain that are responsible for the human fear response. Without fear, her innate curiosity sees her approach poisonous spiders without a second’s thought. She talks to muggers with little regard for her own safety. When she comes across deadly snakes in her garden, she picks them up and throws them away.

In the main courtyard, the pool is a sapphire under the sun, shooting liquid rainbows into the house at oblique angles. How she adores submergence. She is a healer of human cracks and fissures, her days spent dealing with her patients struggles and agonies, the emotional and psychic often embodied in the physical. She uncovers all the states and syndromes that can spark and catch fire from infancy on, searing a being, those flames rarely sputtering out on their own. She works hard quenching the symptoms, providing parents with answers, and the toddlers, children, and teenagers with techniques to manage their frightening infernos, helping them douse the alarming heat and gain interior strength against what is burning them up.

My very high lactate levels after this trivial walk also show that this trivial walk is very strenuous exercise for me which I have been doing twice a day for a number of years and if exercise would really be the answer to this disease, on the one hand I would not have fallen ill with this disease and on the other I would have long exercised myself back to full fitness as my very high lactate levels show that I do my upmost.

illusionists have to know how to cure someone. The real art in performing such a magic trick these days, is in complying with the various regulations imposed by the Animal Protection activists. We need medical professionals to acknowledge that our families are worth protecting too and not to succumb

I’m not asking for true love or any promises of tomorrow – because tomorrow is an illusion these days. Let’s find pleasure where we can.

The truth is, marriage is both difficult and effortless, magnificent and excruciating, blissful and tedious. Sometimes it’s all of those things within the same day—even within the same hour.