Disability Support Worker Quotes

Over the past seventy years the various identity struggles have to some degree remediated the great wrongs that have been done to workers, people of color, Indigenous Peoples, women, gays and lesbians, and the disabled, while helping to humanize our society overall. But they have also had a shadow side in the sense that they have encouraged us to think of ourselves more as determined than as self-determining, more as victims of 'isms' (racism, sexism, capitalism, ableism) than as human beings who have the power of choice. For our own survival we must assume individual and collective responsibility for creating a new nation—one that is loved rather than feared and one that does not have to bribe and bully other nations to win support.

We cannot pick and choose whom among the oppressed it is convenient to support. We must stand with all the oppressed or none of the oppressed. This is a global fight for life against corporate tyranny. We will win only when we see the struggle of working people in Greece, Spain, and Egypt as our own struggle. This will mean a huge reordering of our world, one that turns away from the primacy of profit to full employment and unionized workplaces, inexpensive and modernized mass transit, especially in impoverished communities, universal single-payer health care and a banning of for-profit health care corporations. The minimum wage must be at least $15 an hour and a weekly income of $500 provided to the unemployed, the disabled, stay-at-home parents, the elderly, and those unable to work. Anti-union laws, like the Taft-Hartley Act, and trade agreements such as NAFTA, will be abolished. All Americans will be granted a pension in old age. A parent will receive two years of paid maternity leave, as well as shorter work weeks with no loss in pay and benefits. The Patriot Act and Section 1021 of the National Defense Authorization Act, which permits the military to be used to crush domestic unrest, as well as government spying on citizens, will end. Mass incarceration will be dismantled. Global warming will become a national and global emergency. We will divert our energy and resources to saving the planet through public investment in renewable energy and end our reliance on fossil fuels. Public utilities, including the railroads, energy companies, the arms industry, and banks, will be nationalized. Government funding for the arts, education, and public broadcasting will create places where creativity, self-expression, and voices of dissent can be heard and seen. We will terminate our nuclear weapons programs and build a nuclear-free world. We will demilitarize our police, meaning that police will no longer carry weapons when they patrol our streets but instead, as in Great Britain, rely on specialized armed units that have to be authorized case by case to use lethal force. There will be training and rehabilitation programs for the poor and those in our prisons, along with the abolition of the death penalty. We will grant full citizenship to undocumented workers. There will be a moratorium on foreclosures and bank repossessions. Education will be free from day care to university. All student debt will be forgiven. Mental health care, especially for those now caged in our prisons, will be available. Our empire will be dismantled. Our soldiers and marines will come home.

The answers are perhaps as varied as the questions one asks, but a common theme that comes through in discussions with caregivers on the front lines and those who think a great deal about patient safety, is our failure to change our culture. What we have not done, they say, is create a “culture of safety,” as has been done so impressively in other industries, such as commercial aviation, nuclear power and chemical manufacturing. These “high-reliability organizations” are intrinsically hazardous enterprises that have succeeded in becoming (amazingly!) safe. Worse, the culture of health care is not only unsafe, it is incredibly dysfunctional. Though the culture of each health care organization is unique, they all suffer many of the same disabilities that have, so far, effectively stymied progress: An authoritarian structure that devalues many workers, lack of a sense of personal accountability, autonomous functioning and major barriers to effective communication. What is a culture of safety? Pretty much the opposite! Books have been written on the subject, and every expert has his or her own specific definition. But an underlying theme, a common denominator, is teamwork, founded on an open, supportive, mutually reinforcing, dedicated relationship among all participants. Much more is required, of course: Sensitivity to hazard, sense of personal responsibility, attitudes of awareness and risk, sense of personal responsibility and more. But those attitudes, that type of teamwork and those types of relationships are rarely found in health care organizations.

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A future where disability justice won looks like queer, trans, Black, Indigenous, folks of colour, and women, girls, and nonbinary humans are living in a world where disability is the norm, and where access is no longer a question but a fait accompli. Gone are the days where our disabled bodies and minds are compared to the able-bodied and able-minded. We’ve flipped the script. We still like our non-queer, non–people of colour, non-disabled friends and we’ll have them at our fully accessible dance parties (which include comfy chairs and couches for our aches and pains, subwoofers that make you feel the vibrations, active listeners, and personal support workers, so we can fully enjoy our time out, and plenty of room as well as fully accessible bathrooms for wheelchair-users to dance, dance, and dance as well as pee with ease, and no stairs in sight and clear paths to sway or rest as we please). Because, please, did you really think this could go on, this able-bodied and -minded domination? It’s not that we’ve flipped the script to exert power and replicate oppressions on our able-bodied and able-minded friends, they just over time learned to not take up so much space and not be offended or feel left out if we don’t organize with them in mind. Actually, in our accessible/disabled future, binaries are broken. We fully live on and in the spectrum of possibilities of non-stigmatized minds and bodies. In this spectrum, we are fully connected to one another, which means that decolonization has happened and is still happening and that patriarchy has been toppled and much more. This interconnectedness that we now live daily means that sometimes our able-bodied and able-minded friends are learning every day, including from their mistakes, and are understanding in how many ways our differences and disabilities manifest. This also means that we have collectively built this future and thus have learned and understood differences and disabilities, and all of us are still doing that important work even when it is hard because this future world is ours! -KARINE MYRGIANIE JEAN-FRANÇOIS AND NELLY BASSILY, DAWN (DISABLED WOMEN’S NETWORK) CANADA

The major function of social work is concerned with helping people perform their normal life tasks by providing information and knowledge, social support, social skills, and social opportunities; it is also concerned with helping people deal with interference and abuse from other individuals and groups, with physical and mental disabilities, and with overburdening responsibilities they have for others. Most important, social work’s objective is to strengthen the community’s capacities to solve problems through development of groups and organizations, community education, and community systems of governance and control over systems of social care. The concern of psychotherapy is with helping people to deal with feelings, perceptions, and emotions that prevent them from performing their normal life tasks because of impairment or insufficient development of emotional and cognitive functions that are intimately related to the self. Social workers help people make use of and develop community and social resources to build connections with others and reduce alienation and isolation; psychotherapists help people to alter, reconstruct, and improve the self.