Pediatric Cancer Quotes

You can’t just do whatever you feel like.” “You can’t just do anything you want.” “You have to learn self-restraint.” “You’re only interested in gratifying your desires.” “You don’t care about anything but your own pleasure.” Can you hear the judgmentality in these admonitions? Can you see how they reproduce the mentality of domination that runs our civilization? Goodness comes through conquest. Health comes through conquering bacteria. Agriculture is improved by eliminating pests. Society is made safe by winning the war on crime. On my walk today, students accosted me, asking if I wanted to join the “fight” against pediatric cancer. There are so many fights, crusades, campaigns, so many calls to overcome the enemy by force. No wonder we apply the same strategy to ourselves. Thus it is that the inner devastation of the Western psyche matches exactly the outer devastation it has wreaked upon the planet. Wouldn’t you like to be part of a different kind of revolution?

86. I get angry when believers unhesitatingly attribute every good thing in the world to God — and then respond to bad things by saying, “God works in mysterious ways.” If God’s ways are so mysterious, and we can’t begin to understand his thinking behind tsunamis and drought and pediatric cancer, then what makes you think you understand his intentions when it comes to pretty sunsets or cute puppies or helping you find the peanut butter?

In light of all this, it seems fitting that one of God’s great covenants with the Jewish people was a medical procedure that helped combat infection: circumcision (Genesis 17:9–14). In 2012, a task force on circumcision organized by the American Academy of Pediatrics published a review of the costs and benefits of male circumcision. In their estimation the primary benefits are a reduction in urinary tract infections among infants; lower transmission of some STDs, such as HIV and HPV; and fewer cases of penile cancer (often caused by HPV infections). To be sure, circumcision does not appear to reduce transmission of all kinds of STDs; the surgical procedure itself carries a small, non-negligible risk of complications; and some people have raised ethical issues with removing a sensitive part of an infant male’s penis. However, in an era when infectious disease was the number one cause of mortality and incurable STDs could easily cause sterility, male circumcision was probably a wise decision.

Cornelius Rhoades in San Juan (funded by the Rockefeller Institute), the children’s experiments at Brooklyn Doctors Hospital, the 1963 study at University of California’s Department of Pediatrics, the Fred Hutchinson Cancer Research Center study performed in conjunction with Genetic Systems Corporation, and countless others. It was clear that the healthcare industry was profit-oriented, and the entire structure was built around treating, not preventing.

After years of examining the accumulating evidence, eight top health organizations joined forces and agreed to encourage Americans to eat more unrefined plant food and less food from animal sources, as revealed in the dietary guidelines published in the Journal of the American Heart Association. These authorities are the Nutrition Committee of the American Heart Association, the American Cancer Society, the American Academy of Pediatrics, the Council on Cardiovascular Disease in the Young, the Council on Epidemiology and Prevention, the American Dietetic Association, the Division of Nutrition Research of the National Institutes of Health, and the American Society for Clinical Nutrition. Their unified guidelines are a giant step in the right direction. Their aim is to offer protection against the major chronic diseases in America, including heart disease and cancer. “The emphasis is on eating a variety of foods, mostly fruits and vegetables, with very little simple sugar or high-fat foods, especially animal foods,” said

Eight States limit private insurance plan coverage of abortion. Seventeen require medically incorrect counseling before abortion, including disinformation about breast cancer, fetal pain, and mental woes. Contrary to the recommendation of the American Academy of Pediatrics,27 39 States require parental involvement.

Since Henry’s death, I have focused any fundraising I’ve done on both Rainbow Trust and Noah’s Ark. I have not, as some might have suspected I’d do, done any fundraising for pediatric brain cancer. The reason for this is that I saw how far a pound (or a dollar) goes in helping kids who are definitely going to die, and their families—and it is astonishing. An hour with a Fiona or a Lucinda or a Kirsty brings immeasurable peace and joy to a child who is grappling each day with pain, frustration, boredom, and fear. It gives solace and bubbling happiness to the parents who are watching their child suffer day in and day out. I’m forty-five as I write this, and so far I haven’t seen a better or more instantly effective use of money.

Discussions of PTSD still tend to focus on recently returned soldiers, victims of terrorist bombings, or survivors of terrible accidents. But trauma remains a much larger public health issue, arguably the greatest threat to our national well-being. Since 2001 far more Americans have died at the hands of their partners or other family members than in the wars in Iraq and Afghanistan. American women are twice as likely to suffer domestic violence as breast cancer. The American Academy of Pediatrics estimates that firearms kill twice as many children as cancer does.

The American Academy of Pediatrics estimates that firearms kill twice as many children as cancer does.

There are controlled ACT studies on work stress, pain, smoking, anxiety, depression, diabetes management, substance use, stigma toward substance users in recovery, adjustment to cancer, epilepsy, coping with psychosis, borderline personality disorder, trichotillomania, obsessive–compulsive disorder, marijuana dependence, skin picking, racial prejudice, prejudice toward people with mental health problems, whiplash-associated disorders, generalized anxiety disorder, chronic pediatric pain, weight maintenance and self-stigma, clinicians’ adoption of evidence-based pharmacotherapy, and training clinicians in psychotherapy methods other than ACT. The only sour notes so far are the use of ACT for more minor problems, where existing technology exceeded ACT outcomes on some measures (e.g., Zettle, 2003).

Autism Speaks organization. For the nonprofit’s first ten years, none of its board members were openly autistic, and at the same time, many autistic people vocalized that they did not want to be cured. Similarly, in 2009, the organization put out an ad directed by Academy Award–winning director Alfonso Cuarón titled “I Am Autism,” which depicted autism as a menacing force. “I know where you live and guess what? I live there too,” the voice-over said, adding that it worked faster than deadly diseases like pediatric AIDS, cancer, and diabetes combined. “And if you are happily married, I will make sure that your marriage fails,” the voice went on, pledging to bankrupt families (there is some irony, of course, that a millionaire executive’s charity would put out such an ad). The ad ultimately faced massive pushback, and it was removed from its website.

Then in March 1993, everything changed. My one-year-old son, Charlie, had his first seizure. There’s absolutely nothing funny about being the parent of a child with uncontrolled epilepsy. Nothing. After a year of daily seizures, drugs, and a brain surgery, I learned that the cure for Charlie’s epilepsy, the ketogenic diet—a high fat, no sugar, limited protein diet—had been hiding in plain sight for, by then, over seventy years. And despite the diet’s being well documented in medical texts, none of the half-dozen pediatric neurologists we had taken Charlie to see had mentioned a word about it. I found out on my own at a medical library. It was life altering—not just for Charlie and my family, but for tens of thousands like us. Turns out there are powerful forces at work within our health care system that don’t necessarily prioritize good health. For decades, physicians have barely been taught diet therapy or even nutrition in medical school. The pharmaceutical, medical device, and sugar industries make hundreds of billions every year on anti-epileptic drugs and processed foods—but not a nickel if we change what we eat. The cardiology community and American Heart Association demonize fat based on flawed science. Hospitals profit from tests and procedures, but again no money from diet therapy. There is a world epilepsy population of over sixty million people. Most of those people begin having their seizures as children, and only a minuscule percentage ever find out about ketogenic diet therapies. When I realized that 99 percent of what had happened to Charlie and my family was unnecessary, and that there were millions of families worldwide in the same situation, I needed to try to do something. Nancy and I began the Charlie Foundation (charliefoundation.org) in 1994 in order to facilitate research and get the word directly to those who would benefit. Among the high points were countless articles, a couple appearances of Charlie’s story on Dateline NBC, and a movie I produced and directed about another family whose child’s epilepsy had been cured by the ketogenic diet starring Meryl Streep titled First Do No Harm (1997). Today, of course, the diet permeates social media. When we started, there was one hospital in the world offering ketogenic diet therapy. Today, there are 250. Equally important, word about the efficacy of the ketogenic diet for epilepsy spread within the scientific community. In 1995, we hosted the first of many scientific global symposia focused on the diet. As research into its mechanisms and applications has spiked, incredibly the professional communities have found the same metabolic pathway that is triggered by the ketogenic diet to reduce seizures has also been found to benefit Alzheimer’s disease, ALS, severe psychiatric disorders, traumatic brain injury, and even some cancers. I

He pitied Bill, of course, and he might have offered some encouragement, some advice, or a ride to his weekly AA meeting, but it seemed Bill was still in denial of his demons. Graham knew his own demons too well. They lived in the pediatric cancer ward.