“
A nurse has five seconds to make a patient like you and trust you. It’s in the whole way you present yourself. I do not come in saying, ‘I’m so sorry.’ Instead, it’s: ‘I’m the hospice nurse, and here’s what I have to offer you to make your life better. And I know we don’t have a lot of time to waste.
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Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
We'll bury our mothers and fathers - shuttling our children off for sleepovers, jumping on red-eyes, telling eachother stories that hurt to hear, about gasping, agonal breaths, hospice nurses, scars and bruises and scabs, and how skin papers shortly after a person passes. We will nod in agreement that it is as much an honor to witness a person leave this world as it is to watch a person come into it.
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Kelly Corrigan (The Middle Place)
“
A great deal of tenderness, but it was the tenderness of a hospice nurse - of one committed to caring but too familiar with pain and parting to every truly or fully invest.
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Hannah Pittard (The Fates Will Find Their Way)
“
What life she had left could be measured in hours. Small recompense though they were, they belonged to me now. I had only to claim them.
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”
Kim van Alkemade (Orphan Number Eight)
“
I do not come in saying, ‘I’m so sorry.’ Instead, it’s: ‘I’m the hospice nurse, and here’s what I have to offer you to make your life better. And I know we don’t have a lot of time to waste.
”
”
Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
As Stephen Levine says, “When your fear touches someone’s pain it becomes pity; when your love touches someone’s pain, it becomes compassion.
”
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Nina Angela McKissock (From Sun to Sun: A Hospice Nurse Reflects on the Art of Dying)
“
The hospice fridge is filled with cream: ice cream, sour cream, heavy cream, cans and cans of whipped cream. There’s definitely a now or never feeling about food around here, and it makes you wonder what you think you might be waiting for in your own life. I mean, crusty, gooey mac and cheese? Thickly frosted éclairs? Velveeta melted over a plate of potato chips—what the nurses call the house nachos? Eat your kale and blueberries and whatever else, but go ahead. Have some of the good stuff now too. We
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Catherine Newman (We All Want Impossible Things)
“
There was no perfect family. The Cleavers were on television. We are all walking wounded. We are all dysfunctional. It is only a matter of degree that separates us from each other. This is life. There are good times, difficult times, happy times, sad times. It is the name of the game.
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Barbara Karnes (The Final Act of Living: Reflections of a Longtime Hospice Nurse)
“
excels at what he or she does. Rachel Walton, whom you met earlier in the book, is a hospice nurse. As she works with those who have reached the end of their lives, she also has regular experiences of intense calm, elation, and a sense that some kind of invisible hand is at work: “I feel settled in myself when I’m with these people. I have experiences where words and thoughts come through me, that I don’t consciously think. I’m in the stream of something . . . I have moments of absolute joy—I think, ‘It’s so amazing that I get to be here with these people at this moment,’ and my heart gets so huge.”7 Another interesting
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Donald Van de Mark (The Good Among the Great: 19 Traits of the Most Admirable, Creative, and Joyous People)
“
California nurse Jared Axen was holding a dying hospice patient’s hand when he began to sing an old hymn. The woman, who didn’t speak English, hadn’t been responsive in days. But when Axen sang to her, she squeezed his hand, a response that soothed the woman’s family. Six years later, Axen, a classically trained musician, sings to some of his patients every day. “It gives them their humanity back,” he said. “Music is a common language that helps me connect with my patients.” Many patients also claim to feel better and to need fewer pain medications, Axen said. “It’s become a vital tool for my patients and their families.
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Alexandra Robbins (The Nurses: A Year of Secrets, Drama, and Miracles with the Heroes of the Hospital)
“
The labor to leave this world takes from one to three weeks. The key sign that tells us labor has begun is when a person begins sleeping with their eyes partially open, eyelids at half-mast. It takes energy to keep your eyes open; it takes energy to keep them closed. The normal position for our eyelids is at half-mast.
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Barbara Karnes (The Final Act of Living: Reflections of a Longtime Hospice Nurse)
“
In this country, we think of dying primarily as a medical event. It’s much more than that. It’s about relationships: to ourselves, those we may be caring for, or those caring for us. Caring for the dying can be an intense, intimate, and deeply enlivening experience. Death can be an extraordinary mirror through which we see ourselves.
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Nina Angela McKissock (From Sun to Sun: A Hospice Nurse Reflects on the Art of Dying)
“
His mind remained freakishly pin-point sharp until his last days, but his body had shut-down a good six months before. He surprised his hospice doctor and nurses by clinging to life long after he should have expired. It was a fear of dying, driven by guilt over something he did early on. He was afraid of judgment day. His strict Catholic upbringing wreaked havoc in his brain and kept his will from preventing his body to die.
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Stephen Joseph Mitskavich (Crossing a Bridge through Time; Conversations with my Father before it's too Late)
“
In the past few decades, we have witnessed an explosion of information about death and the afterlife, generated by an ever-growing number of psychologists and psychiatrists, physicians, hospice nurses and bereavement counselors, near-death experiencers, researchers in parapsychology, and, of course, mediums, who are working toward a better understanding of the world to come. This is one of many signs that the human race is poised to enter a new era, an era I would call a revolution in consciousness. Another sign is that belief in survival after death is on the rise, up to 89 percent according to some surveys.7 In Western countries, more and more people believe in a kinder hereafter. Instead of hell they expect joy, reunion with loved ones, and the complete absence of pain and worry. As concepts of the afterlife are inextricable from concepts of the Divine, when one changes, so does the other. Predictably, the fear-inspiring God of old is giving way to a more abstract Supreme Being whose laws are written in the spirit of love, compassion, and forgiveness rather than judgment.
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Julia Assante (The Last Frontier: Exploring the Afterlife and Transforming Our Fear of Death)
“
A group of grandmothers is a tapestry. A group of toddlers, a jubilance (see also: a bewailing). A group of librarians is an enlightenment. A group of visual artists is a bioluminescence. A group of short story writers is a Flannery. A group of musicians is--a band.
A resplendence of poets.
A beacon of scientists.
A raft of social workers.
A group of first responders is a valiance. A group of peaceful protestors is a dream. A group of special education teachers is a transcendence. A group of neonatal ICU nurses is a divinity. A group of hospice workers, a grace.
Humans in the wild, gathered and feeling good, previously an exhilaration, now: a target.
A target of concert-goers.
A target of movie-goers.
A target of dancers.
A group of schoolchildren is a target.
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Kathy Fish
“
Eight Bells: Robert J. Kane ‘55D died June 3, 2017, in Palm Harbor, Florida. He came to MMA by way of Boston College. Bob or “Killer,” as he was affectionately known, was an independent and eccentric soul, enjoying the freedom of life. After a career at sea as an Officer in the U.S. Navy and in the Merchant Marine he retired to an adventurous single life living with his two dogs in a mobile home, which had originally been a “Yellow School Bus.” He loved watching the races at Daytona, Florida, telling stories about his interesting deeds about flying groceries to exotic Caribbean Islands, and misdeeds with mysterious ladies he had known. For years he spent his summers touring Canada and his winters appreciating the more temperate weather at Fort De Soto in St. Petersburg, Florida…. Enjoying life in the shadow of the Sunshine Bridge, Bob had an artistic flare, a positive attitude and a quick sense of humor. Not having a family, few people were aware that he became crippled by a hip replacement operation gone bad at the Bay Pines VA Hospital. His condition became so bad that he could hardly get around, but he remained in good spirits until he suffered a totally debilitating stroke. For the past 6 years Bob spent his time at various Florida Assisted Living Facilities, Nursing Homes and Palliative Care Hospitals. His end came when he finally wound up as a terminal patient at the Hospice Facility in Palm Harbor, Florida. Bob was 86 years old when he passed. He will be missed….
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Hank Bracker
“
For a certainty I have come to know that hospice is not a place but a philosophy of care.
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Liz Walters (Memoirs of a Hospice Nurse)
“
We know Job's faith survived because his reaction to his devastating loss was to worship God: "Then Job arose and tore his robe and shaved his head, and he fell to the ground and worshiped. He said, 'Naked I came from my mother's womb, and naked I shall return there. The Lord gave and the Lord has taken away. Blessed be the name of the Lord'" (Job 1:20-21). Let me encourage you and your messed up man, should he be willing, to begin to worship God from your place of brokenness.
Tina shares a dramatic story from her work as a music therapist for hospice. One day, as she prepared to leave the hospice floor at the hospital, a nurse called her back to work with a patient in respiratory arrest. Music therapists use music to match the beat of a patient's heart rate, and as the therapist slows down the beat of music, most of the time the heart rate follows, as well as the breathing. At the start of the process, the patient's wife shouted, "Sing 'Amazing Grace'?" Deciding to minister rather than work, Tina sang "Amazing Grace." The patient's distress was overwhelming. He could hardly take in air, and his chest heaved while his wife wept. Right in the middle of "Amazing Grace," The wife once more blurted out, "Sing 'Jesus Loves Me'!" Tina, switched gears and sang, "Yes, Jesus loves me." Tears streamed down the man's cheeks as he sang with her, "Yes, Jesus loves me." His words were broken and he could hardly say them, but in that moment, he worshiped the God who was about to take him home. Whatever you're facing . . . worship.
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Tina Samples (Messed Up Men of the Bible)
“
10. What realities are captured in the story of Lou Sanders and his daughter, Shelley, regarding home care for an aging and increasingly frail parent? What conflicts did Shelley face between her intentions and the practical needs of the family and herself? What does the book illustrate about the universal nature of this struggle in families around the globe? 11. A key concept that emerges from the author’s interviews is “home.” Much more than just the place where you go to bed at night, home evokes a set of values and freedoms for many as they face old age. As you consider the life you want lead in old age, what does home mean to you? 12. Reading about Bill Thomas’s Eden Alternative in Chapter 5, what came to mind when he outlined the Three Plagues of nursing home existence: boredom, loneliness, and helplessness? What do you think matters most when you envision eldercare? 13. What can be learned from the medical treatment choices that were made in the final days of Sara Monopoli’s life? 14. What are your feelings about hospice care? When is the appropriate time to introduce hospice in the treatment of those with life-threatening illness?
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Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
Hospice deploys nurses, doctors, chaplains, and social workers to help people with a fatal illness have the fullest possible lives right now—much as nursing home reformers deploy staff to help people with severe disabilities. In terminal illness that means focusing on objectives like freedom from pain and discomfort, or maintaining mental awareness for as long as feasible, or getting out with family once in a while—
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Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
Last Comforts” was born when one nagging question kept arising early in my journey as a hospice volunteer. Why were people coming into hospice care so late in the course of their illness? That question led to many others that rippled out beyond hospice care. Are there better alternatives to conventional skilled nursing home operations? How are physicians and nurses educated about advanced illness and end-of-life care? What are more effective ways of providing dementia care? What are the unique challenges of minority and LGBT people? What is the role of popular media in our death-denying culture? What has been the impact of public policy decisions about palliative and hospice care?
The book is part memoir of lessons learned throughout my experiences with patients and families as a hospice volunteer; part spotlight on the remarkable pathfinders and innovative programs in palliative and late-life care; and part call to action.
I encourage readers – particularly my fellow baby boomers -- not only to make their wishes and goals clear to friends and family, but also to become advocates for better care in the broader community.
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Ellen Rand (Last Comforts: Notes from the Forefront of Late Life Care)
“
hospice care would be assigned to them and while they would see that nurse most frequently, hospice care entailed a team—very much like our palliative care team, which they had come to know—with a physician, chaplain, social worker, and even volunteer visitors.
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Ira Byock (The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life)
“
not the difference between treating and doing nothing, she explained. The difference was in the priorities. In ordinary medicine, the goal is to extend life. We’ll sacrifice the quality of your existence now—by performing surgery, providing chemotherapy, putting you in intensive care—for the chance of gaining time later. Hospice deploys nurses, doctors, chaplains, and social workers to help people with a fatal illness have the fullest possible lives right now—
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Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
I know my role is to walk toward death with those who are dying. But the lesson that keeps repeating itself is this: in all its odd forms, love always wins over fear.
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Nina Angela McKissock (From Sun to Sun: A Hospice Nurse Reflects on the Art of Dying)
“
The difference between standard medical care and hospice is not the difference between treating and doing nothing, she explained. The difference was in the priorities. In ordinary medicine, the goal is to extend life. We’ll sacrifice the quality of your existence now—by performing surgery, providing chemotherapy, putting you in intensive care—for the chance of gaining time later. Hospice deploys nurses, doctors, chaplains, and social workers to help people with a fatal illness have the fullest possible lives right now—much as
”
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Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
was told by one of the nursing homes that I was no longer allowed to visit with one of our older Christians. The government has apparently taken over and Christians are no longer allowed or anyone who isn’t a family member. Have you heard anything since you work in a hospice?” “Yeah, I’ve heard. I was fired this afternoon because of this new policy,” “Really? Why?” “From what I was told, since the government has taken over all health-related facilities, they no longer want Christians working for them. I was told that the order came directly from the President,
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Cliff Ball (Times of Trial: Christian End Times Thriller (The End Times Saga Book 3))
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hospice care? Some of the services are as follows: Home visits by specialty trained hospice nurses and Medical Director Pain management and symptom control Personal hygiene care from certified home health aides All medications related to the terminal diagnosis All specialized therapies required for the terminal diagnosis Psychosocial, spiritual, and grief support services Volunteers as requested
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Annie Clara Brown (My Little People: A Social Worker's Journey)
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When the weary group disappeared over the horizon, we turned back, knowing that another agonized family would be arriving soon. The doctors, nurses, and I didn’t cry because the bewildered husbands and stricken daughters were crying enough for all of us. Helpless and impotent against the awesome power of Death, we nonetheless bowed our heads in the pharmacy, injected twenty milliliters of salvation into a bag of tears, blessed it again and again, and then carried it like a baby to the hospice and offered it up. The drug would flow into a passive vein, the family would draw close, and a cup of fluid might be temporarily removed from their ocean of pain.
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Hope Jahren (Lab Girl)
“
Early July 2012 In one of Andy’s responses, my ex-lover wrote, Young, That sounds great! I look forward to co-writing the fourth book of A Harem Boy Saga with you. This will provide us time to map out the outline of our joint project during the course of our correspondence. As much as I’d love to work with you on this project, I want to be sure that Walter is okay with us going into this venture together. I have no desire to upset your loving relationship and certainly have no wish to be an unwelcome intruder into your lives. Let me know if he agrees. When I was in hospital recovering from my nervous breakdown, I met Jack, a 24-year-old nursing student. He cared for me during my recovery. We dated for several months before his transfer to a hospice in a different city. I did not have the courage to tell Toby that Jack and I were dating. I was afraid Toby would threaten suicide again, until the fateful evening when he discovered Jack and me making out in my flat. My caregiver and I had proceeded to my lodgings after a scrumptious dinner one evening. After several glasses of wine while watching television, Jack leaned his head against my shoulder. His dreamy, doe-like eyes looked adoringly at me, reminding me of your beautiful Asian eyes staring at me during our intimate moments together. Our kisses soon led to lingering sensual foreplay. Before long, our clothes were scattered all over. Jack went on his knees, eagerly caressing my growing hardness and wrapping his luscious lips around me under my briefs. Easing down my underwear, he went to work. His sweetness stirred my longing for you. Closing my eyes to savor his warm fallation, I reclined against the comfortable sofa and enjoyed the pleasurable sensation showered upon my erection. He engulfed my pulsating manhood, suckling away as if to satisfy his hunger. It was similar to the way you used to relish my hardness for hours on end. Like you, he pleasured me with deep, devotional worship; I was overwhelmed by his sexual imperativeness, wanting his warmth to wash over my entirety. His expert titillation did wonders for my soul, causing me to spasm involuntarily. He devoured my length as if deprived of nourishment while I nurtured my feed into Jack’s bobbing head, pressing him against my quivering palpitations.
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Young (Unbridled (A Harem Boy's Saga, #2))
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Hospice nursing is the purest kind of nursing you can do, and every day you are reminded that you walk on holy ground in preparing God’s children for heaven. Hospice nursing is very intimately participating in the kingdom of God that Jesus spoke about.
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Trudy Harris (More Glimpses of Heaven: Inspiring True Stories of Hope and Peace at the End of Life's Journey)
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When the Guardian asked a hospice nurse for the Top 5 Regrets of the Dying, one of the most common answers was that people regretted not being true to their dreams:
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Anonymous
“
But at least he’d died at home and not some hospice. Who in their right mind wanted to die among the dying? Or surrounded by a load of caring, sharing hospice nurses hell-bent on making sure you’d drawn up a “good death plan.” If you were having an OK day, somebody might wheel you into the hospice garden and sit you on a wooden bench donated by relatives of a former dying person. From there you would, no doubt, have an uninterrupted view of the ornamental fountain and fiberglass flamingos.
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Sue Margolis (Losing Me)
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To the Worst Wingman Ever, You, kind sir, have restored my faith in humanity. I did see the sensor alert. I stopped and put air in it before I parked it the first time you saw it. I was hoping it was just a slow leak and I could put off going to a tire store until my schedule opens up a bit, but I guess the plan failed. I’m a hospice nurse. I’m caring for someone in the building, and it’s been very time consuming and mentally and emotionally draining. I think coming out and seeing a flat tire would have done me in. I can’t thank you enough for helping me. Here’s a small token of my appreciation. I trust your anxiety over the air in my tire will ensure you find this before a thief does. If it doesn’t and a thief is reading this instead of you, have the day you deserve, jerk. —H.
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Abby Jimenez (Worst Wingman Ever (The Improbable Meet-Cute, #2))
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soon lie. The hospice nurse said she’ll pass by the end of the day. It’s odd. Some people never see it coming, others have a countdown, and I don’t know which is worse.
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Jeneva Rose (Home Is Where the Bodies Are)
“
I also took care of a four year-old that was in the dying process. Both of his parents were already dead. His maternal grandparents were caring for him. In the weeks before he died he told everyone he was taking a trip, that he was going to live with his “parents.” In the hours before his death, he began looking around the room as if searching for something or someone. We asked him what he was doing, and he told us he was looking for his mother. It was as if the room was filled with people we couldn’t see. Just before he died, he raised his arm, pointed to the corner of his room and called his mother by name. He stayed focused on that corner until his last breath. You can’t convince me his mother wasn’t there to help him make the change from this world to the next. We do not die alone!
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Barbara Karnes (The Final Act of Living: Reflections of a Longtime Hospice Nurse)
“
I have loved being a hospice nurse. It is not an easy job, but it is an honor. It is a privilege. It’s a calling. That said, I don’t know how much longer I can do it.
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Cathy Lamb (A Different Kind of Normal)
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As a hospice nurse, this is what I’ve noticed: At the end, for the vast majority of people, it’s about one thing. Love. That’s it. That’s all. Love.
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Cathy Lamb (A Different Kind of Normal)
“
Wrieto-San’s mother was eighty-one when she came to Tokyo, where she was revered by everyone who came into contact with her. In Japan, unlike America, we honor the old for the passage of their years and the diachronic luxury of their thoughts. They are living artifacts and they are people, not abandoned husks to be shunted off to the purgatory of nursing home and hospice.
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T. Coraghessan Boyle (The Women)
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Every day, I live with guilt about my mother’s death in a hospice as do thousands of other Australians and people from around the world. Yet society wants to sanitise euthanasia, sending us down a slippery slope of grey and murky murderous acts.
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Vanessa de Largie
“
Live for something—do good. And leave behind a monument of virtue that the storms of time can never destroy. Write your name in kindness, love, and mercy on the hearts of thousands you will come in contact with year by year, and you will never be forgotten. Your name and good deeds will shine as the stars of heaven.
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Janet Wehr (Peaceful Passages: A Hospice Nurse's Stories of Dying Well)
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Finally, it was a hospice nurse, a gentle black woman, who broke the silence and said, “Now that is only the second or third time in all my years that I have heard that trumpet right after somebody died.
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Laurin Bellg (Near Death in the ICU: Stories from Patients Near Death and Why We Should Listen to Them)
“
In October, Dad’s mother, my Nanny, got very sick. She had been fighting breast cancer, and now it had gone into her lymph nodes. She had been a nurse, and she knew her hour was near. She wanted to go on her terms, and a wonderful hospice team came to her home. Nick came with me to see her one last time, and he was my rock. My father couldn’t bear to go into her room, but Nick came in with me. She was beautiful, so sick but still radiating the grace she brought to the demands of being a pastor’s wife. I realized that everything that was good in my life, I had because of her. Nanny had paid to press my first album. She was the reason I had a career at all and the reason I met Nick. I smoothed her hair back as I told her I was there. She squeezed my hand. “Nick is here, too, Nanny,” I whispered. “I want you to know we’re back together. I’m gonna marry him, Nanny. Just like you wanted.” She squeezed my hand again. “We’re going to have a beautiful wedding,” I said, “and you’ll always be with me. You’ll be right there.” She had asked to have my version of “His Eye Is on the Sparrow,” the last song off my second album, on repeat as she passed. As she took her last breath, surrounded by love and her family, my voice filled the room, saying, “His eye is on the sparrow, and I know He watches me.” It’s a celebration of faith and gratitude that no matter how insignificant we may feel, God is looking out for us. At her funeral at First Baptist Church of Leander, Nick was a pallbearer and helped to carry her home. I will always be grateful to him for that. She was reunited in heaven with my late grandfather, to whom she had been married for forty-one years. I wanted that forever love for Nick and me, too.
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Jessica Simpson (Open Book)
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I stared at the hospice nurse's clipboard of notes, her purple scrubs, her file filled with Momma's health history, and I listened to the clicking of her pen and never looked her in the eye. She didn't belong in our home. She was just full of false information, cynical with age, and her pessimism about Momma's lifespan was making the house feel claustrophobic, like a coffin. She was closing the lid.
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Caitlin Garvey
“
One of her best days in America was the day she was sworn in as a US citizen! She made a promise to herself to be an asset to this great nation, not a liability. Evangeline has worked as a licensed practical nurse since 2004 in the areas of rehabilitation, hospice, and home health while attending school towards her greater passion of affecting social change as a criminal justice professional. One of Evangeline’s worst moments in America happened when her husband was arrested for immigration irregularities, detained in Miami for eight months, and finally deported back to Cameroon. The nightmares—and God’s unending presence that followed these events—prompted the writing of Letters of Gratitude. Evangeline holds a master of science degree in criminal justice and is currently pursuing a Ph.D. degree in criminal justice at Walden University.
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Evangeline N. Asafor (My Letters of Gratitude to Jehovah God)
“
In the 1970s, attitudes slowly began changing. In England, Cicely Saunders, a nurse and researcher, opened a hospice that treated terminal cancer patients with opiates. Under Saunders, St. Christopher’s Hospice in London was the world’s first to combine care for the dying with research and clinical trials.
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Sam Quinones (Dreamland: The True Tale of America's Opiate Epidemic)
“
Use of hospice care has been growing steadily—to the point that, by 2010, 45 percent of Americans died in hospice. More than half of them received hospice care at home, and the remainder received it in an institution, usually an inpatient hospice facility for the dying or a nursing home. These are among the highest rates in the world.
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Atul Gawande (Being Mortal: Medicine and What Matters in the End)
“
This is a great time for a segue, since I’m on the topic. Who the fuck do you think watched six hundred thousand people die in the United States so far? Because I bet you no more than a few thousand of those people managed to make it home to die, with hospice or without, since we would never send someone home with active covid to infect the rest of their family. But let’s pretend maybe a hundred thousand got out—fine, that still leaves us with half a million corpses. Who held their hands, or tried to, through gloves? Who held phones and iPads up so that they could hear your last words and maybe see your face one last time? Who took care of them for hours, days, weeks, months, greeting you on the phone by name, until your loved one’s final passing? Who tried to give them dignity, in a place and time where it was sorely lacking? Who tried to show them the compassion when portions of the outside world were saying that covid—the very thing that was clotting their blood and stealing their breath—was a lie? It was us. The nurses.
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Cassandra Alexander (Year of the Nurse: A Covid-19 Pandemic Memoir)
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A hospice nurse, on the advice of a Catholic chaplain decades ago, left the window slightly open to make it easier for one's spirit to travel. Ma had sung with her son twenty-one hours before she passed by him toward that window; indeed she sang until the day she died, just as she said she would, and I believe it was her harmony, not her spirit that first arrived at heaven's door.
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Barbara Lynn-Vannoy
“
Even when Alex slipped into a coma, Kathy refused to stop reading to him because one of the nurses from the hospice service had told her that her daddy could still hear her.
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Sue Brown (The Isle of... Where? (The Isle #1))