Haemophilia Quotes

Grief is an amputation, but hope is incurable haemophilia: you bleed and bleed and bleed.

Grief is an amputation, but hope is incurable haemophilia: you bleed and bleed and bleed. Like Schrödinger’s cat inside a box you can never ever open.

He was like a child with haemophilia: every contact drew blood.

Alexandra Feodorovna, Empress of Russia, was only thirty-two but was already a physical wreck after ten physically and mentally draining years of pregnancy and childbirth. Her always precarious mental state was severely undermined by the discovery of Alexey’s condition and she tormented herself that she of all people had unwittingly transmitted haemophilia to her much-loved and longed-for son.* Her already melancholic air henceforth became an inexplicably tragic one to those not privy to the truth. The whole focus of the family now dramatically shifted, to protecting Alexey against accident and injury – to literally keeping him alive within their own closely controlled domestic world. Nicholas and Alexandra therefore abandoned their newly refurbished apartments in the Winter Palace and ceased staying in town for the court season. Tsarskoe Selo and Peterhof would from now on be their refuge.

There are two major patterns of bleeding: 1. Mucosal bleeding Reduced number or function of platelets (e.g. bone marrow failure or aspirin) or von Willebrand factor (e.g. von Willebrand disease) • Skin: petechiae, bruises, post-surgical bleeding • Gum and mucous membrane bleeding • Fundal haemorrhage 2. Coagulation factor deficiency (e.g. haemophilia or warfarin) • Bleeding into joints (haemarthrosis) or muscles • Bleeding into soft tissues • Intracranial haemorrhage • Post-surgical bleeding