“
A common source of disappointment and frustration for parents is the letdown that happens soon after diagnosis. Parents seek diagnostic evaluations both to better understand their child and also to have that child be eligile for services. Many, if not most, parents are not aware that it can take months to find and secure these resources and to get an actual appointment. Additionally, the cost of these services is often far greater than anticipated.
One parent, who participated in in-depth interviews by researchers interested in the partnership between parents and providers, had this to say, "It felt like you were being taken to the edge of a cliff. You've been given the diagnosis, you got shoved off the end, and then it was, 'Oh by the way, we haven't got the parachute. You'll need to get that for yourself.' You feel like you finally got there, and you're quite happy, you're ready to fly - but then all the sudden you don't have the rest of the equipment you need to fly with.
”
”