Unmasking Autism Quotes

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Refusing to perform neurotypicality is a revolutionary act of disability justice. It's also a radical act of self-love.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Most of us are haunted by the sense there's something "wrong" or "missing" in our lives--that we're sacrificing far more of ourselves than other people in order to get by and receiving far less in return.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We have to keep other people at arm's length, because letting them see our hyperfixations, meltdowns, obsessions, and outbursts could mean losing their respect. But locking ourselves away means we can't ever be fully loved.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
What non-Autistic folks often don’t realize is that Autistic people experience intense sensory input as if it were physical pain.[6
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Much of what we call maturity is a silly pantomime of independence and unfeeling, not a real quality of unbreakable strength.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Though masking is incredibly taxing and causes us a lot of existential turmoil, it’s rewarded and facilitated by neurotypical people. Masking makes Autistic people easier to “deal” with. It renders us compliant and quiet. It also traps us. Once you’ve proven yourself capable of suffering in silence, neurotypical people tend to expect you’ll be able to do it forever, no matter the cost. Being a well-behaved Autistic person puts us in a real double bind and forces many of us to keep masking for far longer (and far more pervasively) than we want to.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
People with so-called “female Autism” may be able to make eye contact, carry on a conversation, or hide their tics and sensory sensitivities. They might spend the first few decades of their lives with no idea they’re Autistic at all, believing instead that they’re just shy, or highly sensitive.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Recovery is predicated on aligning your life with your values, and you aren’t going to be able to align anything until you know who you are.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The concepts of “work-life” balance and “burnout” just don’t always translate to Autistic people’s schedules in the ways neurotypicals might expect.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I had always been overwhelmed by loud sounds and bright lights. I got inexplicably angry in crowds; laughter and chatter could make me blow up with rage. When I got too stressed out or became overcome with sadness, I found it hard to speak.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Research shows that most Autistic people have a reduced sense of the body’s warning signals, or interoception.[31] Most of us tend to feel like our bodies are not really our own, and struggle to draw connections between the external world and how we feel inside.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
It’s neurotypicals who categorized autism as a social disorder.” Autistic people don’t actually lack communication skills, or a drive to connect. We aren’t doomed to forever feel lonely and broken. We can step out of the soul-crushing cycle of reaching for neurotypical acceptance and being rejected despite our best efforts. Instead, we can support and uplift one another, and create our own neurodiverse world where everyone—including neurotypicals—is welcome.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We are not “differently abled”—we are disabled, robbed of empowerment and agency in a world that is not built for us. “Differently abled,” “handi-capable,” and similar euphemisms were created in the 1980s by the abled parents of disabled children, who wished to minimize their children’s marginalized status. These terms were popularized further by politicians[76] who similarly felt uncomfortable acknowledging disabled people’s actual experiences of oppression.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Interestingly, adults are only shamed for having an obsessive interest if that interest is a bit too “strange,” and doesn’t come with the opportunity to rack up a lot of achievements or make a lot of money. People who routinely complete eighty-hour workweeks aren’t penalized for being obsessive or hyperfixated; they’re celebrated for their diligence. If an adult fills their evenings after work learning to code or creating jewelry that they sell on Etsy, they’re seen as enterprising. But if someone instead devotes their free time to something that gives them pleasure but doesn’t financially benefit anyone, it’s seen as frivolous or embarrassing, even selfish. In this instance, it’s clear that the punishing rules imposed on Autistic children reflect a much broader societal issue: pleasure and nonproductive, playful time are not valued, and when someone is passionate about the “wrong” things, that passion is discouraged because it presents a distraction from work and other “respectable” responsibilities.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Therapy that is focused on battling “irrational beliefs,” such as cognitive behavioral therapy (CBT), doesn’t work as well on Autistic people as it does on neurotypicals.[72] One reason for that is many of the fears and inhibitions of Autistic people are often entirely reasonable, and rooted in a lifetime of painful experiences. We tend to be pretty rational people, and many of us are already inclined to analyze our thoughts and feelings very closely (sometimes excessively so). Autistics don’t need cognitive behavioral training to help us not be ruled by our emotions. In fact, most of us have been browbeaten into ignoring our feelings too much.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Most of us are haunted by the sense there’s something “wrong” or “missing” in our lives—that we’re sacrificing far more of ourselves than other people in order to get by and receiving far less in return.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Many masked Autistics are sent to gifted education as children, instead of being referred to disability services.[18] Our apparent high intelligence puts us in a double bind: we are expected to accomplish great things to justify our oddness, and because we possess an enviable, socially prized quality, it’s assumed we need less help than other people, not more.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
One of the major ways abled society dehumanizes the disabled is by calling our maturity into question. “Adults” are supposed to be independent, though of course no person actually is. We all rely on the hard work and social-emotional support of dozens of people every single day. You’re only seen as less adult, and supposedly less of a person,[3] if you need help in ways that disrupt the illusions of self-sufficiency.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When an Autistic person is not given resources or access to self-knowledge, and when they’re told their stigmatized traits are just signs that they’re a disruptive, overly sensitive, or annoying kid, they have no choice but to develop a neurotypical façade. Maintaining that neurotypical mask feels deeply inauthentic and it’s extremely exhausting to maintain.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
It's not always possible (or helpful) to try to untangle which of a person's traits are Autistic and which are caused by the trauma of being neurodiverse in a neurotypical world.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Maintaining that neurotypical mask feels deeply inauthentic and it’s extremely exhausting to maintain.[5] It’s also not necessarily a conscious choice.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
So if we are to create a world where all Autistic people of all backgrounds are able to unmask, we have to remove the systems of power that might violently punish those who fail or refuse to conform.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
Masking also obscures the fact that the world is massively inaccessible to us. If allistics (non-Autistics) never hear our needs voiced, and never see our struggle, they have no reason to adapt to include us. We must demand the treatment we deserve, and cease living to placate those who have overlooked us.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The label neurodiverse includes everyone from people with ADHD, to Down Syndrome, to Obsessive-Compulsive Disorder, to Borderline Personality Disorder. It also includes people with brain injuries or strokes, people who have been labeled “low intelligence,” and people who lack any formal diagnosis, but have been pathologized as “crazy” or “incompetent” throughout their lives. As Singer rightly observed, neurodiversity isn’t actually about having a specific, catalogued “defect” that the psychiatric establishment has an explanation for. It’s about being different in a way others struggle to understand or refuse to accept.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I made friends by drinking. Alcohol gave me dating and adventures and sex. Without it, all of these things are much harder, some of them impossible. I don’t leave the house very much anymore. In a lot of ways, I became a more autistic person when I got sober.” The flip side of this can sometimes be true. In order to get sober, sometimes you have to be willing to be more Autistic.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We are hyperreactive to even small stimuli in our environment We have trouble distinguishing between information or sensory data that should be ignored versus data that should be carefully considered We are highly focused on details rather than “big picture” concepts We’re deeply and deliberatively analytical Our decision-making process is methodical rather than efficient; we don’t rely on mental shortcuts or “gut feelings
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistic people are born with the mask of neurotypicality pressed against our faces. All people are assumed to think, socialize, feel, express emotion, process sensory information, and communicate in more or less the same ways. We’re all expected to play along with the rules of our home culture, and blend into it seamlessly. Those of us who need alternate tools for self-expression and self-understanding are denied them. Our first experience of ourselves as a person in the world, therefore, is one of being othered and confused. We only get the opportunity to take our masks off when we realize other ways of being exist.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
Being honest with myself about who I am, who I enjoy spending time with, and what I want out of life. Speaking out when I see someone being mistreated.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
There is some research suggesting that people who are used to being disliked and going against the social grain are more likely to speak out and blow the whistle on injustice.[12
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
As an Autistic person without ADHD, I need a quiet, private, clean space in order to feel calm and focused. I also need silence and darkness in order to sleep.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Clutter and mess overwhelms many Autistic people;
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Almost every neurodiverse person I’ve spoken to has been deemed “lazy” numerous times by exasperated parents, teachers, and friends.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Some are assumed to be too “high functioning” to need accommodations, but actually suffer deeply from a lack of accessibility and support.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The term neurodiverse refers to the wide spectrum of individuals whose thoughts, emotions, or behaviors have been stigmatized as unhealthy, abnormal, or dangerous.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masking is an exhausting performance that contributes to physical exhaustion, psychological burnout, depression, anxiety,8 and even suicide ideation.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
I don’t want to pretend that life as an out Autistic person is effortless. Ableism is a powerful force of oppression. There are plenty of Autistics who are never fully able to unmask.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
I started hanging out with group members outside of the group itself, and found I wasn’t ashamed to be a visibly identifiable member of a “weird” crowd anymore. Instead, I felt accepted.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
Thank you to everyone who has helped me feel less broken over the years, particularly every friend who has extended me grace when I didn’t understand myself or how to relate to other people.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
Almost every Autistic person I spoke to has found that in order to build a life that suits them, they’ve had to learn to let certain unfair expectations go, and withdraw from activities that don’t matter to them. It’s scary to allow ourselves to disappoint other people, but it can be radical and liberating, too. Admitting what we can’t do means confronting the fact we have a disability, and therefore we occupy a marginalized position in society—but it also is an essential part of finally figuring out what assistance we need, and which ways of living are best for us.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Non-compliance is a social skill. It's only bad if you're looking at it from the outside, from the perspective of someone who seeks to control or restrict. (Rabbi Ruti Regan, RealSocialSkills)
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The few relationships I did have were enmeshed; I took responsibility for others’ problems, tried to manage their emotions for them, and lacked any capacity to say “no” to unreasonable requests.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We tend to be both easily disturbed by sound in our environment, and unable to tell when a noise actually merits our attention, at the same time.[44] I often brute-force my way into paying attention to something by shutting the rest of the world out. I think it’s also likely that lifelong masking has rendered me hypervigilant, almost as a trauma response. My sensory system is used to scanning the environment, to determine whether I’m alone and thus “safe” enough to be myself. Trauma survivors often become hypervigilant, which tends to come with intense sensory issues.[45] Some researchers have also theorized that sensory issues in Autistics are, at least in part, caused by the anxiety and hypervigilance we experience from living in a world that doesn’t accommodate us, and often treats us with hostility.[46]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
learning in adulthood that you have been secretly nursing a disability all your life is quite the world-shattering experience. Adjusting your self-concept is a long process. It can involve mourning, rage, embarrassment, and dozens upon dozens of “wait, that was an Autism thing?” revelations. Though many of us come to see Autistic identity as a net positive in our lives, accepting our limitations is an equally important part of the journey. The clearer we are with ourselves about where we excel and where we need help, the more likely we are to eke out an existence that’s richly interdependent, sustainable, and meaningful.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When designing an interior space,” Marta writes,[1] “design for how you actually live, not how you aspire to live…your space must be designed to accommodate the reality of your life, without shame or judgement.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Neither girls nor boys related to me as one of their own, and I didn’t identify with them, either. I felt more like a mystical fairy creature dropped into the wrong reality than I felt like a “female,” or even a human being.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
For Autistic self-disclosure to really have an impact on someone, you need a mutually respectful, trusting relationship. They need to be willing to keep learning and revise their understanding of what Autism is as they go along.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The redemptive self essentially is an unmasked Autistic self: unashamed of one’s sensitivity, profoundly committed to one’s values, passionately driven by the causes ones cares about, strong enough to self-advocate, and vulnerable enough to seek connection and aid. A person with an integrated, redemptive sense of self knows who they are, and isn’t ashamed of it. They’re able to resolve life’s tensions in an authentic way that honors their feelings and personal ethics.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I noticed that there were clear patterns in which kinds of Autistic people succumbed to this kind of fate. Autistic women, transgender people, and people of color often had their traits ignored when they were young, or have symptoms of distress interpreted as “manipulative” or “aggressive.” So did Autistic people who grew up in poverty, without access to mental health resources. Gay and gender nonconforming men often didn’t fit the masculine image of Autism well enough to be diagnosed. Older Autistics never had the opportunity to be assessed, because knowledge about the disability was so limited during their childhoods. These systematic exclusions had forced an entire massive, diverse population of disabled people to live in obscurity.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The redemptive self essentially is an unmasked Autistic self: unashamed of one’s sensitivity, profoundly committed to one’s values, passionately driven by the causes ones cares about, strong enough to self-advocate, and vulnerable enough to seek connection and aid.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Since we can’t openly stim or engage in other repetitive behaviors, some masked Autistic people reach for flawed coping strategies to help manage stress. We’re at an elevated risk of eating disorders,[32] alcoholism and drug addiction,[33] and insecure attachments to others.[34
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I played Legend of Zelda: Ocarina of Time and recognized myself for the first time in the game’s wordless, androgynous protagonist Link. He didn’t speak, and didn’t belong in the community of childlike elves he’d been raised in. His difference was what marked him as special and destined to save the world. Link was brave, strong, and softly pretty, all at the same time. He was clueless and ineffectual in most social situations, but that didn’t keep him from doing important things or from being met with gratitude and affection everywhere he went. I loved absolutely everything about Link, and modeled my own style after him for many years.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Therapy that is focused on battling “irrational beliefs,” such as cognitive behavioral therapy (CBT), doesn’t work as well on Autistic people as it does on neurotypicals. One reason for that is many of the fears and inhibitions of Autistic people are often entirely reasonable, and rooted in a lifetime of painful experiences. We tend to be pretty rational people, and many of us are already inclined to analyze our thoughts and feelings very closely (sometimes excessively so). Autistics don’t need cognitive behavioral training to help us not be ruled by our emotions. In fact, most of us have been browbeaten into ignoring our feelings too much.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I met Autistics who’d at first been diagnosed with things like Borderline Personality Disorder, Oppositional Defiant Disorder, or Narcissistic Personality Disorder. I also found scores of transgender and gender-nonconforming Autistic people like me, who had always felt “different” both because of their gender and their neurotype. In each of these people’s lives, being Autistic was a source of uniqueness and beauty. But the ableism around them had been a fount of incredible alienation and pain. Most had floundered for decades before discovering who they truly were. And nearly all of them were finding it very difficult to take their long-worn masks off.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masked Autistics are frequently compulsive people pleasers. We present ourselves as cheery and friendly, or nonthreatening and small. Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere. “Fawn types avoid emotional investment and potential disappointment by barely showing themselves,” Walker writes, “by hiding behind their helpful personas, over-listening, over-eliciting or overdoing for the other.”[54]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Before I knew I was Autistic, I was profoundly alienated in every possible sense. I was at odds with myself, unable to understand why normal life felt so perplexing and imprisoning to me. I was detached from the world, with no trust in others or in my own potential to connect and be understood. Because I was so alone, my identity was also completely unmoored. I had no community to anchor myself within.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I never could fit in with other kids, but I could impress teachers with my grasp of big words and my sophisticated-sounding opinions. Though my language was highly developed, my social and emotional life was not. I annoyed other kids by talking too much about subjects that didn’t interest them. I clung to adults who found me “impressive” and equated being well-behaved with being mature and worthy of their respect
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I think for most masked Autistic people, there are key moments in childhood or adolescence where we learn we are embarrassing or wrong. We say the wrong thing, misread a situation, or fail to play along with a neurotypical joke, and our difference is suddenly laid bare for all to see. Neurotypical people may not know we’re disabled, but they identify in us some key flaw that is associated with disability: we’re childish, or bitter, self-absorbed, or too “angry,” or maybe we’re just awkward and make people cringe.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The idea that Autism is a “boy’s” disorder goes all the way back to when the condition was first described at the turn of the twentieth century. Hans Asperger and other early Autism researchers did study girls on the spectrum, but generally left them out of their published research reports.[55] Asperger in particular avoided writing about Autistic girls because he wanted to present certain intelligent, “high-functioning” Autistic people as “valuable” to the Nazis who had taken over Austria and were beginning to exterminate disabled people en masse. As Steve Silberman describes in his excellent book NeuroTribes, Hans Asperger wanted to spare the “high functioning” Autistic boys he’d encountered from being sent to Nazi death camps. Silberman described this fact somewhat sympathetically; Asperger was a scientist who had no choice but to collude with the fascist regime and save what few children he could. However, more recently unearthed documents make it clear that Asperger was far more complicit in Nazi exterminations of disabled children than had been previously believed.[56] Though Asperger held intelligent, “little professor” type Autistics close to his heart, he knowingly sent more visibly debilitated Autistics to extermination centers.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I know so many Autistic people for whom their diagnosis or self-realization was a clarifying and affirming moment. After the initial shock and shame passes, coming into a neurodiverse identity can prompt you to reexamine your entire life, and all your old values, allowing you to build something slower, more peaceful, and more beautiful. But it’s not only Autistics who benefit from embracing neurodiversity in that way. We all deserve to take a step back and ask whether our lives line up with our values, whether the work we do and the face we show to others reflects our genuine self, and if not, what we might want to change.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When Harry Potter author J. K. Rowling published the piece "TERF Wars" on her blog in the summer of 2020, she specifically mentioned her fear that many transgender men are actually Autistic girls who weren't conventionally feminine, and have been influenced by transactivists on the internet into identifying out of womanhood. In presenting herself as defending disabled "girls," she argued for restricting young trans Autistic people's ability to self-identity and access necessary services and health care. Rowling's perspective (which she shares with many gender critical folks) is deeply dehumanising to both the trans and Autistic communities.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere. “Fawn types avoid emotional investment and potential disappointment by barely showing themselves,” Walker writes, “by hiding behind their helpful personas, over-listening, over-eliciting or overdoing for the other.”[54] Walker notes that by never revealing their own needs or discomfort with other people, fawners spare themselves the risk of rejection. But they also fail to connect with people in any meaningful way. It’s a lonesome state to live
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autism is associated with a deliberative processing style. When making sense of the world, Autistic people usually defer to logic and reason rather than emotion or intuition. We dive deep into all the pros and cons, sometimes excessively so, not knowing where to draw the line between an important variable and an unimportant one. We tend not to get habituated to familiar situations or stimuli as readily as other people, so we often think through a situation as if it’s completely new to us, even if it isn’t.[25] All of this requires a lot of energy, focus, and time, so we get exhausted and overloaded quite easily. However, it also makes us less prone to errors. Experimental research shows that Autistic people are far less susceptible to the biases allistic people commonly fall prey to.[26]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Common, Healthy Autistic Behaviors Intense studying of a new favorite topic Not noticing sounds or social signals when focusing on an engrossing task Needing to know exactly what to expect before entering an unfamiliar situation Sticking to a very rigid schedule, and rejecting deviations to that schedule Taking a long time to think before responding to a complex question Spending hours or days alone sleeping and recharging after a socially demanding event or stressful project Needing “all the information” before coming to a decision Not knowing how they feel, or needing a few days to figure out how they feel about something Needing a rule or instruction to “make sense” before they can follow it Not putting energy toward expectations that seem unfair or arbitrary, such as wearing makeup or elaborate grooming
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
This is actually a really common Autistic experience. Perhaps because so many of us are alienated from mainstream neurotypical life, we come to identify with fantasy creatures,[14] aliens, robots,[15] or animals instead of the people around us.[16] Our hyperliteral, analytic minds recognize that the rules of the gender binary are arbitrary and entirely made up,[17] so making up our own gender identities and rules of presentation seems like fair game. Identifying outside of the binary (and outside of humanity) also helps many of us put a name to how detached we feel from society, and from our bodies. Of course it’s hard for me to carry myself in a “ladylike” way, I’m a robot in a human suit! There’s a term for Autistic trans people who see their neurotype and gender identity as inextricably linked: autigender.[18]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
They don’t rely on memorized conversational scripts, and they don’t have to carefully parse every single piece of data they encounter to make sense of it. They can wing it. Autistic people, on the flip side, don’t rely on knee-jerk assumptions or quick mental shortcuts to make our decisions. We process each element of our environment separately, and intentionally, taking very little for granted. If we’ve never been in a particular restaurant before, we may be slow to make sense of its layout or figure out how ordering works. We’ll need really clear-cut indications of whether it’s the kind of place where you sit down and get table service, or if you’re supposed to go to a counter to ask for what you like. (Many of us try to camouflage this fact by doing extensive research on a restaurant before setting foot inside.) Every single light, laugh, and smell in the place is taken in individually by our sensory system, rather than blended into a cohesive whole.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When society first starts flirting with accepting a marginalized group, that acceptance is often wrapped up in a born this way type narrative. For example, in the early 2000s, many straight allies claimed to support gay people because being gay wasn't a choice, and we couldn't help being the way that we are. There was a lot of pop science writing at that time exploring the search for the "gay gene," and suggesting that certain hormone exposures in the womb might predispose a fetus to being gay. Today we don't have conversations about the biological causes of gayness very much anymore. In the United States at least, being gay has started becoming accepted enough that queer people don't have to justify our existence by saying that we can't help but be this way. If someone were to choose to be gay, that wouldn't be a problem, because being gay is good. Similarly, Autistic people deserve acceptance not because we can't help but have the brains we have, but because being Autistic is good.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The opposite of alienation is integration, a psychological sense of connection and wholeness.[1] People whose identities are integrated can see a through-line connecting the many selves they have been across various times and places. Every human being changes over time, of course, and alters their behavior depending on the situation or setting they’re in. There is no static “true self” that stops adapting and changing. To a masked Autistic person, this fact can be really disturbing, because we may lack a consistent “story” to tell ourselves about who we really are. Our personalities are just means to an end, externally motivated rather than driven by some internal force or desire. Someone with an integrated identity isn’t disturbed by change and variance, though, because they see a connection that endures across the many people they have been: core values that persist across their life span, and a narrative of personal growth that explains how they moved from the person they once were, to who they are today.[2]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Internally, I was fractured, a series of faked personalities and protective shields that kept people at a distance. I could only drop the shield when I was alone, but even in my solitude I was miserable and confused. I was all defense mechanisms, with nothing left inside worth defending. When a masked Autistic person lacks self-knowledge or any kind of broad social acceptance, they are often forced to conceive of themselves as compartmentalized, inconsistent parts. Here is the person I have to be at work, and the person I must be at home. These are the things I fantasize about doing but can’t tell anybody about. Here are the drugs that keep my energy levels up, and the lies I tell to be entertaining at parties. These are the tension-defusing distractions I’ll deploy when someone begins to suspect there’s something off about me. We don’t get the chance to come together into a unified whole that we can name or understand, or that others can see and love. Some sides of us go unacknowledged entirely, because they don’t serve our broader goal of remaining as inoffensive and safe as possible.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Generally speaking, if an Autistic person was verbal from a young age and could fake some social niceties, they were likely to either be considered “high functioning” as kids, or they weren’t identified as Autistic at all. This is a bit ironic, because learning to speak at an early age was an early indicator of Asperger’s Disorder
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The founder of ABA, Ole Ivar Lovaas, used to coerce children into providing hugs and kisses to their therapists by giving them candy.[15]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
One former ABA therapist confessed on an anonymous blog that she worries she conditioned her patients to be easy to manipulate and abuse.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
You can’t offend anyone if you simply melt into the wallpaper.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
Neurotypical people are obsessed with functioning levels. If you tell a nondisabled person that you’re Autistic, but you’re able to hold a conversation or maintain a job, they’ll immediately start gushing about how functional you are.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
so
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Neurotypical brains engage in sensory adaptation and habituation: the longer they are in the presence of a sound, smell, texture, or visual cue, the more their brain learns to ignore it, and allow it to fade into the background. Their neurons become less likely to be activated by a cue the longer they are around it. The exact opposite is true for Autistic people: the longer we are around a stimulus, the more it bothers us.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistics have been observed to exhibit what’s called an anxious-ambivalent attachment style at rates that are elevated compared to the neurotypical population. People with an anxious-ambivalent attachment are difficult to soothe and reassure, and don’t see close loved ones as a safe, “secure base” they can find comfort in when lost or threatened. As adults, people who are anxious-ambivalent tend to get into patterns of intense emotional dependency, combined with insecurity. They yearn to be accepted yet doubt that they can be. When other people try to connect with us, we rebuff them without even realizing it.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Public awareness can put a target on your back just as easily as it can liberate. In a truly just world, I wouldn’t have to educate neurotypical people about how I think and process information, and I wouldn’t have to slowly warm people up to tolerating me, worrying the entire time that I might be mocked or attacked if I challenge neurotypical expectations too dramatically.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Value #1: Candor What this value means to me: Honestly sharing how I feel and the way I see things. Sharing observations that might not be convenient, but which are true and important to hear. Being honest with myself about who I am, who I enjoy spending time with, and what I want out of life. Speaking out when I see someone being mistreated. Value #2: Courage What this value means to me: Trusting my intuition and being willing to take risks. Standing up for my beliefs even when they are unpopular. Enthusiastically, passionately saying “yes” to the things that I want, instead of searching for excuses to say “no.” Letting my emotions be loud and bold. Taking up space, and taking a huge, hungry bite out of life. Value #3: Inspiration What this value means to me: Observing the world around me, filling myself up with ideas, and sharing my thoughts and passions with the world. Listening to my own creative drive and bursts of insight. Being a light that can guide others, by empowering people to do what is best for themselves. Value #4: Passion What this value means to me: Giving myself the space to feel things deeply. Making time to be sad, angry, resentful, or joyous. No longer filtering emotions based on how others might receive them. Being unashamed of who I am, pursuing the things I desire that feel good, and letting myself leave the situations that distress me.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Many neurodiverse people suffer from Autistic inertia.[24] The same heightened focus that makes us so good at studying our special interests for hours also makes it challenging for us to get off the couch and attend to the overflowing trash. To an external, neurotypical observer, it doesn’t look like we’re struggling. It just looks like we’re being “lazy.” Almost every neurodiverse person I’ve spoken to has been deemed “lazy” numerous times by exasperated parents, teachers, and friends. People see us sitting frozen, incapable of taking action, and assume it’s because we don’t care or lack willpower.[25] Then they admonish us for being apathetic and unreliable, which leaves us feeling even more paralyzed by anxiety.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistic people are constantly having to invent our own unique ways of getting things done. We use extensive research, digital tools, and a variety of little sneaks and cheats to brute-force our way through activities that NT people don’t even think about.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
for Autistics, this level of scripting and pre-planning is normal.[27] It gives us a comforting sense of mastery and control. However, when neurotypical people figure out we’ve put this much time and thought into activities that are “basic” to them, they tend to find it very off-putting. So for masked Autistics, blending in isn’t just a matter of figuring out the right hacks. We also learn to hide the fact we’re relying on such hacks at all.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
It's meaningless to question whether a trans Autistic person would have "still" been trans had they not been born neurodiverse, because Autism is such a core part of who we are. Without our disability (or our gender identity) we'd be entirely different people. There is no separating these aspects of ourselves from our personhood or personality. They're both core parts.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Racism has permeated psychology and psychiatry from its genesis. Early clinicians came from white, European backgrounds, and used their culture's social norms as the basis for what being healthy looked like. It was a very narrow and oppressive definition, which assumed that being genteel, well-dressed, well-read, and white were the marks of humanity, and that anyone who deviated from that standard was not a person, but an animal in need of being tamed.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Our current definition of health is tied to the state and employers' desire for productive, inoffensive conformity...It is only by expanding our definition of what is acceptable human behaviour and working to meet other people's manifold needs that we can move forward.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We dive deep into all the pros and cons, sometimes excessively so, not knowing where to draw the line between an important variable and an unimportant one.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
we’ve never been in a particular restaurant before, we may be slow to make sense of its layout or figure out how ordering works. We’ll need really clear-cut indications of whether it’s the kind of place where you sit down and get table service, or if you’re supposed to go to a counter to ask for what you like. (Many of us try to camouflage this fact by doing extensive research on a restaurant before setting foot inside.) Every single light, laugh, and smell in the place is taken in individually by our sensory system, rather than blended into a cohesive whole.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Let's start at the beginning: the first step of the unmasking process is realizing you're Autistic. It might not feel like it's an active step toward self-acceptance or authenticity, but coming to understand yourself as disabled is a pretty dramatic reframing of your life. Almost every neuro-diverse person I've spoken to for this book shared that discovering they were Autistic was a powerful aha moment, one that prompted them to rethink every narrative they'd believed about who they were. Painful labels they'd carried around inside themselves for years suddenly didn't seem as relevant: it wasn't that they were stupid, or clueless, or lazy, they were just disabled. It wasn't that their effort had never been enough, or that they were fundamentally wrong or bad. They simply hadn't been treated with the compassion they deserved, or given the tools that would have allowed them to flourish. Naming their position in society as a disabled person helped them to externalize that which had long been internalized. It proved that none of their suffering had been their fault.
Devon Price (Unmasking Autism [Hardcover], How to Break Up with Your Phone, Hyperfocus, One Thing 4 Books Collection Set)
For example, weighted blankets or fidget toys sold by sites like Stimtastic might help soothe your anxiety. Or the social skills toolkits offered on blogs like RealSocialSkills.org may help you develop greater confidence in interacting with people, disabled and neurotypical alike.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
There’s nothing innately wrong with using the internet to help meet your need for social contact and structure. Disabled people have found community and shared resources on the internet for decades. However, excessive and compulsive internet use and gaming can prove damaging to Autistic people and inhibit our social connections and development.[42] When we spend too much time online, it can limit how much practice we get interacting and communicating out in the world, contribute to feelings of loneliness and depression, and further the detachment so many of us feel from our bodies. Hiding our struggles away from the world is not a productive means of
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
gaining acceptance, and there’s a difference between using the internet as a way to develop a sense of fluency and competence, and retreating into it because we feel we have no other choice. Thomas tells me that as he’s come to understand his own Autism and work on unmasking, he’s gotten better at noticing how he feels and figuring out how to care for himself. For many years, particularly before his diagnosis, he would just push his emotions and desires away. “This week I noticed my energy replenishment was at a standstill,” he says. “I couldn’t focus on data work, which is normally one of my passions. I journaled about it a bit and realized my girlfriend has been home more than usual lately. I love her, but being around her all day was overstimulating me.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
In the scientific literature, it’s arguable whether the disability should even be defined by the presence of clear behavioral signs, such as trouble reading social cues or hesitating to initiate contact with other people.[8] Instead of looking to the external signals of Autism that others might pick up on, it’s important that we instead focus on the neurobiological markers of the neurotype, and the internal experiences and challenges that Autistic people themselves report.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Clinical research has found that somewhere between 20 and 37 percent of diagnosed anorexia nervosa sufferers are Autistic.[24] Since Autism is underdiagnosed in the populations who are most likely to be diagnosed with eating disorders (women, trans people, and gay men), the actual rate of co-occurrence might be much higher.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Research by psychologist Geoff Bird indicates that about half of all Autistics suffer from alexithymia,[34] or the inability to recognize and name emotions.[35] For those of us with alexithymia, we may know in a vague way that we’re distressed, but might not be able to name a specific feeling like jealousy or resentment. We also struggle to figure out why we’re feeling emotions. This trait is yet another reason that neurotypicals stereotype us as unfeeling and detached. Alexithymia may arise, in part, because Autistics aren’t given the tools to understand how emotions feel in our bodies, and because we are taught to prioritize others’ feelings above our own. Growing up, we’re told how neurotypical emotions look and feel. We’re
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
To avoid embodying this trope, Autistic people fold ourselves into all kinds of accommodating shapes. We do what we can to not seem difficult, cruel, or self-absorbed. We internalize the message that talking about ourselves and our interests bores other people, that we’re socially inept and bad at reading emotions, and that our sensory needs make us big babies who never stop complaining. For fear of becoming a Sherlock, we morph ourselves into Watsons: agreeable, docile, passive to a fault, always assuming that the larger personalities around us know what’s best.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masked Autistics are frequently compulsive people pleasers. We present ourselves as cheery and friendly, or nonthreatening and small. Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Self-stigma is heavy; people high in it experience reduced self-esteem and see themselves as less capable than other people, and they’re often afraid to seek help.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I was “too much” in so many ways. To other people, my tears were immature tantrums and my opinions were condescending diatribes. As I grew up, I learned to be less intense, less embarrassing—less me.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autism is associated with a deliberative processing style. When making sense of the world, Autistic people usually defer to logic and reason rather than emotion or intuition. We dive deep into all the pros and cons, sometimes excessively so, not knowing where to draw the line between an important variable and an unimportant one. We tend not to get habituated to familiar situations or stimuli as readily as other people, so we often think through a situation as if it’s completely new to us, even if it isn’t.[25] All of this requires a lot of energy, focus, and time, so we get exhausted and overloaded quite easily.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
before we examine our masks and learn to take them off, we must first recognize that the version of ourselves we’ve been hiding from the world is somebody we can trust.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
For all the reasons outlined above, I firmly support Autistic self-determination. I prefer the terms self-determination or self-realization to self-diagnosis, because I believe it’s more sensible to view Autistic identity through a social lens than a strictly medical one.[75] Diagnosis is a gatekeeping process, and it slams its heavy bars in the face of anyone who is too poor, too busy, too Black, too feminine, too queer, and too gender nonconforming, among others.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)