Unmasking Autism Quotes

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Refusing to perform neurotypicality is a revolutionary act of disability justice. It's also a radical act of self-love.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Most of us are haunted by the sense there's something "wrong" or "missing" in our lives--that we're sacrificing far more of ourselves than other people in order to get by and receiving far less in return.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We have to keep other people at arm's length, because letting them see our hyperfixations, meltdowns, obsessions, and outbursts could mean losing their respect. But locking ourselves away means we can't ever be fully loved.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Much of what we call maturity is a silly pantomime of independence and unfeeling, not a real quality of unbreakable strength.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
What non-Autistic folks often don’t realize is that Autistic people experience intense sensory input as if it were physical pain.[6
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Recovery is predicated on aligning your life with your values, and you aren’t going to be able to align anything until you know who you are.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
People with so-called “female Autism” may be able to make eye contact, carry on a conversation, or hide their tics and sensory sensitivities. They might spend the first few decades of their lives with no idea they’re Autistic at all, believing instead that they’re just shy, or highly sensitive.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Though masking is incredibly taxing and causes us a lot of existential turmoil, it’s rewarded and facilitated by neurotypical people. Masking makes Autistic people easier to “deal” with. It renders us compliant and quiet. It also traps us. Once you’ve proven yourself capable of suffering in silence, neurotypical people tend to expect you’ll be able to do it forever, no matter the cost. Being a well-behaved Autistic person puts us in a real double bind and forces many of us to keep masking for far longer (and far more pervasively) than we want to.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Research shows that most Autistic people have a reduced sense of the body’s warning signals, or interoception.[31] Most of us tend to feel like our bodies are not really our own, and struggle to draw connections between the external world and how we feel inside.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I had always been overwhelmed by loud sounds and bright lights. I got inexplicably angry in crowds; laughter and chatter could make me blow up with rage. When I got too stressed out or became overcome with sadness, I found it hard to speak.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We are not “differently abled”—we are disabled, robbed of empowerment and agency in a world that is not built for us. “Differently abled,” “handi-capable,” and similar euphemisms were created in the 1980s by the abled parents of disabled children, who wished to minimize their children’s marginalized status. These terms were popularized further by politicians[76] who similarly felt uncomfortable acknowledging disabled people’s actual experiences of oppression.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The concepts of “work-life” balance and “burnout” just don’t always translate to Autistic people’s schedules in the ways neurotypicals might expect.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Therapy that is focused on battling “irrational beliefs,” such as cognitive behavioral therapy (CBT), doesn’t work as well on Autistic people as it does on neurotypicals.[72] One reason for that is many of the fears and inhibitions of Autistic people are often entirely reasonable, and rooted in a lifetime of painful experiences. We tend to be pretty rational people, and many of us are already inclined to analyze our thoughts and feelings very closely (sometimes excessively so). Autistics don’t need cognitive behavioral training to help us not be ruled by our emotions. In fact, most of us have been browbeaten into ignoring our feelings too much.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Many masked Autistics are sent to gifted education as children, instead of being referred to disability services.[18] Our apparent high intelligence puts us in a double bind: we are expected to accomplish great things to justify our oddness, and because we possess an enviable, socially prized quality, it’s assumed we need less help than other people, not more.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Interestingly, adults are only shamed for having an obsessive interest if that interest is a bit too “strange,” and doesn’t come with the opportunity to rack up a lot of achievements or make a lot of money. People who routinely complete eighty-hour workweeks aren’t penalized for being obsessive or hyperfixated; they’re celebrated for their diligence. If an adult fills their evenings after work learning to code or creating jewelry that they sell on Etsy, they’re seen as enterprising. But if someone instead devotes their free time to something that gives them pleasure but doesn’t financially benefit anyone, it’s seen as frivolous or embarrassing, even selfish. In this instance, it’s clear that the punishing rules imposed on Autistic children reflect a much broader societal issue: pleasure and nonproductive, playful time are not valued, and when someone is passionate about the “wrong” things, that passion is discouraged because it presents a distraction from work and other “respectable” responsibilities.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
It’s neurotypicals who categorized autism as a social disorder.” Autistic people don’t actually lack communication skills, or a drive to connect. We aren’t doomed to forever feel lonely and broken. We can step out of the soul-crushing cycle of reaching for neurotypical acceptance and being rejected despite our best efforts. Instead, we can support and uplift one another, and create our own neurodiverse world where everyone—including neurotypicals—is welcome.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
One of the major ways abled society dehumanizes the disabled is by calling our maturity into question. “Adults” are supposed to be independent, though of course no person actually is. We all rely on the hard work and social-emotional support of dozens of people every single day. You’re only seen as less adult, and supposedly less of a person,[3] if you need help in ways that disrupt the illusions of self-sufficiency.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masking also obscures the fact that the world is massively inaccessible to us. If allistics (non-Autistics) never hear our needs voiced, and never see our struggle, they have no reason to adapt to include us. We must demand the treatment we deserve, and cease living to placate those who have overlooked us.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
So if we are to create a world where all Autistic people of all backgrounds are able to unmask, we have to remove the systems of power that might violently punish those who fail or refuse to conform.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
Most of us are haunted by the sense there’s something “wrong” or “missing” in our lives—that we’re sacrificing far more of ourselves than other people in order to get by and receiving far less in return.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When an Autistic person is not given resources or access to self-knowledge, and when they’re told their stigmatized traits are just signs that they’re a disruptive, overly sensitive, or annoying kid, they have no choice but to develop a neurotypical façade. Maintaining that neurotypical mask feels deeply inauthentic and it’s extremely exhausting to maintain.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
It's not always possible (or helpful) to try to untangle which of a person's traits are Autistic and which are caused by the trauma of being neurodiverse in a neurotypical world.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Almost every neurodiverse person I’ve spoken to has been deemed “lazy” numerous times by exasperated parents, teachers, and friends.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Maintaining that neurotypical mask feels deeply inauthentic and it’s extremely exhausting to maintain.[5] It’s also not necessarily a conscious choice.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I started hanging out with group members outside of the group itself, and found I wasn’t ashamed to be a visibly identifiable member of a “weird” crowd anymore. Instead, I felt accepted.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
When designing an interior space,” Marta writes,[1] “design for how you actually live, not how you aspire to live…your space must be designed to accommodate the reality of your life, without shame or judgement.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Though masking is incredibly taxing and causes us a lot of existential turmoil, it’s rewarded and facilitated by neurotypical people. Masking makes autistic people easier to “deal” with.’ —Devon Price, Unmasking Autism
Fern Brady (Strong Female Character)
Almost every Autistic person I spoke to has found that in order to build a life that suits them, they’ve had to learn to let certain unfair expectations go, and withdraw from activities that don’t matter to them. It’s scary to allow ourselves to disappoint other people, but it can be radical and liberating, too. Admitting what we can’t do means confronting the fact we have a disability, and therefore we occupy a marginalized position in society—but it also is an essential part of finally figuring out what assistance we need, and which ways of living are best for us.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The label neurodiverse includes everyone from people with ADHD, to Down Syndrome, to Obsessive-Compulsive Disorder, to Borderline Personality Disorder. It also includes people with brain injuries or strokes, people who have been labeled “low intelligence,” and people who lack any formal diagnosis, but have been pathologized as “crazy” or “incompetent” throughout their lives. As Singer rightly observed, neurodiversity isn’t actually about having a specific, catalogued “defect” that the psychiatric establishment has an explanation for. It’s about being different in a way others struggle to understand or refuse to accept.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I made friends by drinking. Alcohol gave me dating and adventures and sex. Without it, all of these things are much harder, some of them impossible. I don’t leave the house very much anymore. In a lot of ways, I became a more autistic person when I got sober.” The flip side of this can sometimes be true. In order to get sober, sometimes you have to be willing to be more Autistic.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We are hyperreactive to even small stimuli in our environment We have trouble distinguishing between information or sensory data that should be ignored versus data that should be carefully considered We are highly focused on details rather than “big picture” concepts We’re deeply and deliberatively analytical Our decision-making process is methodical rather than efficient; we don’t rely on mental shortcuts or “gut feelings
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistic people are born with the mask of neurotypicality pressed against our faces. All people are assumed to think, socialize, feel, express emotion, process sensory information, and communicate in more or less the same ways. We’re all expected to play along with the rules of our home culture, and blend into it seamlessly. Those of us who need alternate tools for self-expression and self-understanding are denied them. Our first experience of ourselves as a person in the world, therefore, is one of being othered and confused. We only get the opportunity to take our masks off when we realize other ways of being exist.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
learning in adulthood that you have been secretly nursing a disability all your life is quite the world-shattering experience. Adjusting your self-concept is a long process. It can involve mourning, rage, embarrassment, and dozens upon dozens of “wait, that was an Autism thing?” revelations. Though many of us come to see Autistic identity as a net positive in our lives, accepting our limitations is an equally important part of the journey. The clearer we are with ourselves about where we excel and where we need help, the more likely we are to eke out an existence that’s richly interdependent, sustainable, and meaningful.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Therapy that is focused on battling “irrational beliefs,” such as cognitive behavioral therapy (CBT), doesn’t work as well on Autistic people as it does on neurotypicals. One reason for that is many of the fears and inhibitions of Autistic people are often entirely reasonable, and rooted in a lifetime of painful experiences. We tend to be pretty rational people, and many of us are already inclined to analyze our thoughts and feelings very closely (sometimes excessively so). Autistics don’t need cognitive behavioral training to help us not be ruled by our emotions. In fact, most of us have been browbeaten into ignoring our feelings too much.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
We tend to be both easily disturbed by sound in our environment, and unable to tell when a noise actually merits our attention, at the same time.[44] I often brute-force my way into paying attention to something by shutting the rest of the world out. I think it’s also likely that lifelong masking has rendered me hypervigilant, almost as a trauma response. My sensory system is used to scanning the environment, to determine whether I’m alone and thus “safe” enough to be myself. Trauma survivors often become hypervigilant, which tends to come with intense sensory issues.[45] Some researchers have also theorized that sensory issues in Autistics are, at least in part, caused by the anxiety and hypervigilance we experience from living in a world that doesn’t accommodate us, and often treats us with hostility.[46]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Clutter and mess overwhelms many Autistic people;
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
There is some research suggesting that people who are used to being disliked and going against the social grain are more likely to speak out and blow the whistle on injustice.[12
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Some are assumed to be too “high functioning” to need accommodations, but actually suffer deeply from a lack of accessibility and support.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
As an Autistic person without ADHD, I need a quiet, private, clean space in order to feel calm and focused. I also need silence and darkness in order to sleep.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
An Autistic person who was mocked for being needy and intense as a child may camouflage as hyperindependent and emotionally avoidant, for example.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The term neurodiverse refers to the wide spectrum of individuals whose thoughts, emotions, or behaviors have been stigmatized as unhealthy, abnormal, or dangerous.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masking is an exhausting performance that contributes to physical exhaustion, psychological burnout, depression, anxiety,8 and even suicide ideation.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
Being honest with myself about who I am, who I enjoy spending time with, and what I want out of life. Speaking out when I see someone being mistreated.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
Label avoidance (taking steps to evade diagnosis) is a very common consequence of disability and mental health stigma.[
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I don’t want to pretend that life as an out Autistic person is effortless. Ableism is a powerful force of oppression. There are plenty of Autistics who are never fully able to unmask.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
Thank you to everyone who has helped me feel less broken over the years, particularly every friend who has extended me grace when I didn’t understand myself or how to relate to other people.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
Non-compliance is a social skill. It's only bad if you're looking at it from the outside, from the perspective of someone who seeks to control or restrict. (Rabbi Ruti Regan, RealSocialSkills)
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The few relationships I did have were enmeshed; I took responsibility for others’ problems, tried to manage their emotions for them, and lacked any capacity to say “no” to unreasonable requests.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
To unmask is to lay bare a proud face of noncompliance, to refuse to be silenced, to stop being compartmentalized and hidden away, and to stand powerfully in our wholeness alongside other disabled and marginalized folks. Together we can stand strong and free, shielded by the powerful, radical acceptance that comes only when we know who we are, and with the recognition that we never had anything to hide.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When Harry Potter author J. K. Rowling published the piece "TERF Wars" on her blog in the summer of 2020, she specifically mentioned her fear that many transgender men are actually Autistic girls who weren't conventionally feminine, and have been influenced by transactivists on the internet into identifying out of womanhood. In presenting herself as defending disabled "girls," she argued for restricting young trans Autistic people's ability to self-identity and access necessary services and health care. Rowling's perspective (which she shares with many gender critical folks) is deeply dehumanising to both the trans and Autistic communities.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
What unites us, generally speaking, is a bottom-up processing style that impacts every aspect of our lives and how we move through the world, and the myriad practical and social challenges that come with being different.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Neither girls nor boys related to me as one of their own, and I didn’t identify with them, either. I felt more like a mystical fairy creature dropped into the wrong reality than I felt like a “female,” or even a human being.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Racism has permeated psychology and psychiatry from its genesis. Early clinicians came from white, European backgrounds, and used their culture's social norms as the basis for what being healthy looked like. It was a very narrow and oppressive definition, which assumed that being genteel, well-dressed, well-read, and white were the marks of humanity, and that anyone who deviated from that standard was not a person, but an animal in need of being tamed.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
For Autistic self-disclosure to really have an impact on someone, you need a mutually respectful, trusting relationship. They need to be willing to keep learning and revise their understanding of what Autism is as they go along.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masked Autistics are frequently compulsive people pleasers. We present ourselves as cheery and friendly, or nonthreatening and small. Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere. “Fawn types avoid emotional investment and potential disappointment by barely showing themselves,” Walker writes, “by hiding behind their helpful personas, over-listening, over-eliciting or overdoing for the other.”[54]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The redemptive self essentially is an unmasked Autistic self: unashamed of one’s sensitivity, profoundly committed to one’s values, passionately driven by the causes ones cares about, strong enough to self-advocate, and vulnerable enough to seek connection and aid. A person with an integrated, redemptive sense of self knows who they are, and isn’t ashamed of it. They’re able to resolve life’s tensions in an authentic way that honors their feelings and personal ethics.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I noticed that there were clear patterns in which kinds of Autistic people succumbed to this kind of fate. Autistic women, transgender people, and people of color often had their traits ignored when they were young, or have symptoms of distress interpreted as “manipulative” or “aggressive.” So did Autistic people who grew up in poverty, without access to mental health resources. Gay and gender nonconforming men often didn’t fit the masculine image of Autism well enough to be diagnosed. Older Autistics never had the opportunity to be assessed, because knowledge about the disability was so limited during their childhoods. These systematic exclusions had forced an entire massive, diverse population of disabled people to live in obscurity.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I think for most masked Autistic people, there are key moments in childhood or adolescence where we learn we are embarrassing or wrong. We say the wrong thing, misread a situation, or fail to play along with a neurotypical joke, and our difference is suddenly laid bare for all to see. Neurotypical people may not know we’re disabled, but they identify in us some key flaw that is associated with disability: we’re childish, or bitter, self-absorbed, or too “angry,” or maybe we’re just awkward and make people cringe.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The redemptive self essentially is an unmasked Autistic self: unashamed of one’s sensitivity, profoundly committed to one’s values, passionately driven by the causes ones cares about, strong enough to self-advocate, and vulnerable enough to seek connection and aid.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Since we can’t openly stim or engage in other repetitive behaviors, some masked Autistic people reach for flawed coping strategies to help manage stress. We’re at an elevated risk of eating disorders,[32] alcoholism and drug addiction,[33] and insecure attachments to others.[34
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
But for most masked Autistic people, it’s downright terrifying to stand up for yourself. We tend to default to people pleasing, smiling, and laughing uncomfortably through social difficulty, and to do so in such a reflexive way that it’s as if our true feelings and preferences disappear when other people are around.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I played Legend of Zelda: Ocarina of Time and recognized myself for the first time in the game’s wordless, androgynous protagonist Link. He didn’t speak, and didn’t belong in the community of childlike elves he’d been raised in. His difference was what marked him as special and destined to save the world. Link was brave, strong, and softly pretty, all at the same time. He was clueless and ineffectual in most social situations, but that didn’t keep him from doing important things or from being met with gratitude and affection everywhere he went. I loved absolutely everything about Link, and modeled my own style after him for many years.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I met Autistics who’d at first been diagnosed with things like Borderline Personality Disorder, Oppositional Defiant Disorder, or Narcissistic Personality Disorder. I also found scores of transgender and gender-nonconforming Autistic people like me, who had always felt “different” both because of their gender and their neurotype. In each of these people’s lives, being Autistic was a source of uniqueness and beauty. But the ableism around them had been a fount of incredible alienation and pain. Most had floundered for decades before discovering who they truly were. And nearly all of them were finding it very difficult to take their long-worn masks off.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
My acceptance in society is conditional on my behaving respectably and being productive. That’s really a deeply ableist reality, but I shouldn’t pretend it isn’t true. Though having to mask as a desirable, respectable person can be very soul-crushing, it does protect me from physical violence, institutionalization, poverty, and loneliness.
Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity (Unmasking Autism Series))
Autism is associated with a deliberative processing style. When making sense of the world, Autistic people usually defer to logic and reason rather than emotion or intuition. We dive deep into all the pros and cons, sometimes excessively so, not knowing where to draw the line between an important variable and an unimportant one. We tend not to get habituated to familiar situations or stimuli as readily as other people, so we often think through a situation as if it’s completely new to us, even if it isn’t.[25] All of this requires a lot of energy, focus, and time, so we get exhausted and overloaded quite easily. However, it also makes us less prone to errors. Experimental research shows that Autistic people are far less susceptible to the biases allistic people commonly fall prey to.[26]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Before I knew I was Autistic, I was profoundly alienated in every possible sense. I was at odds with myself, unable to understand why normal life felt so perplexing and imprisoning to me. I was detached from the world, with no trust in others or in my own potential to connect and be understood. Because I was so alone, my identity was also completely unmoored. I had no community to anchor myself within.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I never could fit in with other kids, but I could impress teachers with my grasp of big words and my sophisticated-sounding opinions. Though my language was highly developed, my social and emotional life was not. I annoyed other kids by talking too much about subjects that didn’t interest them. I clung to adults who found me “impressive” and equated being well-behaved with being mature and worthy of their respect
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
They don’t rely on memorized conversational scripts, and they don’t have to carefully parse every single piece of data they encounter to make sense of it. They can wing it. Autistic people, on the flip side, don’t rely on knee-jerk assumptions or quick mental shortcuts to make our decisions. We process each element of our environment separately, and intentionally, taking very little for granted. If we’ve never been in a particular restaurant before, we may be slow to make sense of its layout or figure out how ordering works. We’ll need really clear-cut indications of whether it’s the kind of place where you sit down and get table service, or if you’re supposed to go to a counter to ask for what you like. (Many of us try to camouflage this fact by doing extensive research on a restaurant before setting foot inside.) Every single light, laugh, and smell in the place is taken in individually by our sensory system, rather than blended into a cohesive whole.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The idea that Autism is a “boy’s” disorder goes all the way back to when the condition was first described at the turn of the twentieth century. Hans Asperger and other early Autism researchers did study girls on the spectrum, but generally left them out of their published research reports.[55] Asperger in particular avoided writing about Autistic girls because he wanted to present certain intelligent, “high-functioning” Autistic people as “valuable” to the Nazis who had taken over Austria and were beginning to exterminate disabled people en masse. As Steve Silberman describes in his excellent book NeuroTribes, Hans Asperger wanted to spare the “high functioning” Autistic boys he’d encountered from being sent to Nazi death camps. Silberman described this fact somewhat sympathetically; Asperger was a scientist who had no choice but to collude with the fascist regime and save what few children he could. However, more recently unearthed documents make it clear that Asperger was far more complicit in Nazi exterminations of disabled children than had been previously believed.[56] Though Asperger held intelligent, “little professor” type Autistics close to his heart, he knowingly sent more visibly debilitated Autistics to extermination centers.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I know so many Autistic people for whom their diagnosis or self-realization was a clarifying and affirming moment. After the initial shock and shame passes, coming into a neurodiverse identity can prompt you to reexamine your entire life, and all your old values, allowing you to build something slower, more peaceful, and more beautiful. But it’s not only Autistics who benefit from embracing neurodiversity in that way. We all deserve to take a step back and ask whether our lives line up with our values, whether the work we do and the face we show to others reflects our genuine self, and if not, what we might want to change.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere. “Fawn types avoid emotional investment and potential disappointment by barely showing themselves,” Walker writes, “by hiding behind their helpful personas, over-listening, over-eliciting or overdoing for the other.”[54] Walker notes that by never revealing their own needs or discomfort with other people, fawners spare themselves the risk of rejection. But they also fail to connect with people in any meaningful way. It’s a lonesome state to live
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Common, Healthy Autistic Behaviors Intense studying of a new favorite topic Not noticing sounds or social signals when focusing on an engrossing task Needing to know exactly what to expect before entering an unfamiliar situation Sticking to a very rigid schedule, and rejecting deviations to that schedule Taking a long time to think before responding to a complex question Spending hours or days alone sleeping and recharging after a socially demanding event or stressful project Needing “all the information” before coming to a decision Not knowing how they feel, or needing a few days to figure out how they feel about something Needing a rule or instruction to “make sense” before they can follow it Not putting energy toward expectations that seem unfair or arbitrary, such as wearing makeup or elaborate grooming
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
This is actually a really common Autistic experience. Perhaps because so many of us are alienated from mainstream neurotypical life, we come to identify with fantasy creatures,[14] aliens, robots,[15] or animals instead of the people around us.[16] Our hyperliteral, analytic minds recognize that the rules of the gender binary are arbitrary and entirely made up,[17] so making up our own gender identities and rules of presentation seems like fair game. Identifying outside of the binary (and outside of humanity) also helps many of us put a name to how detached we feel from society, and from our bodies. Of course it’s hard for me to carry myself in a “ladylike” way, I’m a robot in a human suit! There’s a term for Autistic trans people who see their neurotype and gender identity as inextricably linked: autigender.[18]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When society first starts flirting with accepting a marginalized group, that acceptance is often wrapped up in a born this way type narrative. For example, in the early 2000s, many straight allies claimed to support gay people because being gay wasn't a choice, and we couldn't help being the way that we are. There was a lot of pop science writing at that time exploring the search for the "gay gene," and suggesting that certain hormone exposures in the womb might predispose a fetus to being gay. Today we don't have conversations about the biological causes of gayness very much anymore. In the United States at least, being gay has started becoming accepted enough that queer people don't have to justify our existence by saying that we can't help but be this way. If someone were to choose to be gay, that wouldn't be a problem, because being gay is good. Similarly, Autistic people deserve acceptance not because we can't help but have the brains we have, but because being Autistic is good.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
The opposite of alienation is integration, a psychological sense of connection and wholeness.[1] People whose identities are integrated can see a through-line connecting the many selves they have been across various times and places. Every human being changes over time, of course, and alters their behavior depending on the situation or setting they’re in. There is no static “true self” that stops adapting and changing. To a masked Autistic person, this fact can be really disturbing, because we may lack a consistent “story” to tell ourselves about who we really are. Our personalities are just means to an end, externally motivated rather than driven by some internal force or desire. Someone with an integrated identity isn’t disturbed by change and variance, though, because they see a connection that endures across the many people they have been: core values that persist across their life span, and a narrative of personal growth that explains how they moved from the person they once were, to who they are today.[2]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Internally, I was fractured, a series of faked personalities and protective shields that kept people at a distance. I could only drop the shield when I was alone, but even in my solitude I was miserable and confused. I was all defense mechanisms, with nothing left inside worth defending. When a masked Autistic person lacks self-knowledge or any kind of broad social acceptance, they are often forced to conceive of themselves as compartmentalized, inconsistent parts. Here is the person I have to be at work, and the person I must be at home. These are the things I fantasize about doing but can’t tell anybody about. Here are the drugs that keep my energy levels up, and the lies I tell to be entertaining at parties. These are the tension-defusing distractions I’ll deploy when someone begins to suspect there’s something off about me. We don’t get the chance to come together into a unified whole that we can name or understand, or that others can see and love. Some sides of us go unacknowledged entirely, because they don’t serve our broader goal of remaining as inoffensive and safe as possible.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Let’s explore some key signs you should be watchful for: Unrelenting fatigue: Persistent exhaustion, even after adequate rest and sleep, is a key part of Autistic burnout. When grappling with burnout, your body may feel utterly exhausted, leaving you scrambling for energy to complete even the simplest tasks. Heightened sensory sensitivities: Sensitivity to sensory stimuli—be it noise, light, texture, or smell—intensifies during burnout, amplifying your susceptibility to sensory overload, meltdowns, and shutdowns. Sensory stimuli that used to feel manageable may now feel overwhelming. Skills and functioning decline: A conspicuous drop in skills like focusing, organizing, problem-solving, and speaking is another feature of burnout and makes social interactions more daunting. Emotional dysregulation: Burnout-induced dysregulation in your nervous and sensory systems hampers your ability to manage your emotions, resulting in intense emotions or emotional numbness. Increased anxiety, irritability, or feelings of being overwhelmed are common during burnout. Diminished tolerance for change: During burnout, your capacity to absorb and adapt to change wanes, and you may seek comfort in sameness and predictability. You might experience heightened distress in the face of the unexpected. Social isolation: Burnout can spark a retreat into solitude and diminish your ability to engage socially. You might withdraw from social interactions and lose motivation for once-enjoyed hobbies or activities. Masking: Burnout can throw a wrench in your masking abilities, and it can be confusing if you don’t understand what is happening! Interestingly, lots of adults don’t get their autism diagnosis until they are in burnout and have lost their ability to mask.
Megan Anna Neff (Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!)
In a landmark study into the psychology of perceived “creepiness,” psychologists McAndrew and Koehnke (2016) asked 1,341 respondents to answer questions about which personal qualities and behaviors they associated with “creepy” people, and used statistical factor analysis to develop a measurable “creepiness” factor. The creepiness factor they developed included the following traits: a person having awkward, unpredictable behavior, an unnatural-looking smile, laughter that occurred at “unnatural” times, speaking for too long about a single topic, and not knowing when to end a conversation.[30] When Autistic people attempt to socialize and bond with others in an affable, enthusiastic way, these are often the very traits we embody. Even as we try to put the neurotypical people around us at ease by smiling, keeping the conversation moving, and staying present, we might be seen as scary or unsettling. A series of experiments by social psychologists Leander, Chartrand, and Bargh (2012) found that when a person engages in social mirroring in an even slightly inappropriate way, it skeeves people out, and even makes them feel physically colder.[31] A little bit of mimicry is normal among friends. People mirror one another’s postures and mannerisms as they get comfortable and fall “ into sync. But if you mirror someone too much, or at the wrong time, these studies show you can literally give other people the chills. Autistic maskers try really hard to mirror other people, but since we can’t do it as fluently and effortlessly as neurotypicals do, we often unwittingly set off NT’s creep-dars. The solution, then, is to stop hiding and pretending to be something we’re not. Instead of straining (and failing) to imitate NT people, we can become radically visible. Sasson’s research found that when participants were told they were interacting with an Autistic person, their biases against us disappeared. Suddenly they liked their slightly awkward conversation partner, and expressed interest in getting to know them. Having an explanation for the Autistic person’s oddness helped the creeped-out feeling go away. Follow-up research by Sasson and Morrison (2019) confirmed that when neurotypical people know that they’re meeting an Autistic person, first impressions of them are far more positive, and after the interaction neurotypicals express more interest in learning about Autism.[32] 30. McAndrew, F. T., & Koehnke, S. S. (2016). On the nature of creepiness. New Ideas in Psychology, 43, 10–15. 31. Leander, N. P., Chartrand, T. L., & Bargh, J. A. (2012). You give me the chills: Embodied reactions to inappropriate amounts of behavioral mimicry. Psychological Science, 23(7), 772–779. Note: many of John Bargh’s priming studies have failed replication attempts in recent years. For a discussion of a failed attempt of a related but different series of temperature priming studies, see Lynott, D., Corker, K. S., Wortman, J., Connell, L., Donnellan, M. B., Lucas, R. E., & O’Brien, K. (2014). Replication of “Experiencing physical warmth promotes interpersonal warmth” by Williams and Bargh (2008). Social Psychology. 32. Sasson, N. J., & Morrison, K. E. (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers. Autism, 23(1), 50–59.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistics have been observed to exhibit what’s called an anxious-ambivalent attachment style at rates that are elevated compared to the neurotypical population. People with an anxious-ambivalent attachment are difficult to soothe and reassure, and don’t see close loved ones as a safe, “secure base” they can find comfort in when lost or threatened. As adults, people who are anxious-ambivalent tend to get into patterns of intense emotional dependency, combined with insecurity. They yearn to be accepted yet doubt that they can be. When other people try to connect with us, we rebuff them without even realizing it.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
It's meaningless to question whether a trans Autistic person would have "still" been trans had they not been born neurodiverse, because Autism is such a core part of who we are. Without our disability (or our gender identity) we'd be entirely different people. There is no separating these aspects of ourselves from our personhood or personality. They're both core parts.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
One reason for that is many of the fears and inhibitions of Autistic people are often entirely reasonable, and rooted in a lifetime of painful experiences. We tend to be pretty rational people, and many of us are already inclined to analyze our thoughts and feelings very closely (sometimes excessively so). Autistics don’t need cognitive behavioral training to help us not be ruled by our emotions. In fact, most of us have been browbeaten into ignoring our feelings too much.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistic people process the world from the bottom up. If you want to understand Autism as a disability and a source of human difference at a glance, it’s best summed up this way: we process in a careful, systematic, bottom-up way. Allistic folks, in contrast, make sense of the world in a very top-down fashion. They’ll enter a new environment, such as an unfamiliar restaurant, take a quick look around, and jump to reasonable conclusions about how to order, where to sit, what kind of service to expect, and even how loudly they should talk.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
make an informed guess about how they feel. Often, it’s too much discordant data to make sense of. When I don’t have the energy to carefully process others’ emotional expressions, people are inscrutable to me and arouse a lot of anxiety.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Many ADHDers that I know describe themselves as “time blind,” or as perceiving time as moving in a spiral or series of waves. I experience time quite linearly, and rigidly, and have never been late to an appointment or missed a deadline in my life.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
you are not ‘ungrateful’ for not feeling overcome with joy when receiving your diagnosis.
Ellie Middleton (Unmasked: The Ultimate Guide to ADHD, Autism and Neurodivergence)
Our current definition of health is tied to the state and employers' desire for productive, inoffensive conformity...It is only by expanding our definition of what is acceptable human behaviour and working to meet other people's manifold needs that we can move forward.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
If you’ve been unaware of your disability for a long time, or been in denial about it, you may have used getting high or drunk to cover up your suffering, or to give you the energy to socialize. You may believe, for example, that you can’t be interesting or fun without the aid of substances. If you have trauma related to abuse you’ve endured as a masked Autistic person (or from other sources), you might use substances to self-medicate post-traumatic stress.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Many of us mask through compulsive people pleasing and compliance.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
To avoid embodying this trope, Autistic people fold ourselves into all kinds of accommodating shapes. We do what we can to not seem difficult, cruel, or self-absorbed. We internalize the message that talking about ourselves and our interests bores other people, that we’re socially inept and bad at reading emotions, and that our sensory needs make us big babies who never stop complaining. For fear of becoming a Sherlock, we morph ourselves into Watsons: agreeable, docile, passive to a fault, always assuming that the larger personalities around us know what’s best.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Masked Autistics are frequently compulsive people pleasers. We present ourselves as cheery and friendly, or nonthreatening and small. Masked Autistics are also particularly likely to engage in the trauma response that therapist Pete Walker describes as “fawning.”[53] Coping with stress doesn’t always come down to fight versus flight; fawning is a response designed to pacify anyone who poses a threat. And to masked Autistics, social threat is just about everywhere.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Walker notes that by never revealing their own needs or discomfort with other people, fawners spare themselves the risk of rejection. But they also fail to connect with people in any meaningful way. It’s a lonesome state to live in. It’s also deeply draining. Many masked Autistic adults struggle to balance full-time work with social lives or hobbies at all because maintaining a conciliatory mask for eight hours per day is just too labor intense to have energy for anything else.[55] The connections we do form may never feel satisfying or authentic to who we truly are, because they rely on us meeting people’s needs reflexively and always telling them what we think they want to hear.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Self-stigma is heavy; people high in it experience reduced self-esteem and see themselves as less capable than other people, and they’re often afraid to seek help.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
When it comes to special interests, Autistic brains are total sponges, absorbing facts and figures at a rate that seems kind of inhuman to neurotypical people. We can develop a special interest in nearly anything. Some of us learn to speak fluent Klingon; others memorize algorithms for solving Rubik’s cubes. My sister’s brain is a compendium of movie trivia and dialogue. My own special interests have included everything from bat biology to the history of the Tudor dynasty, to personal finance, to subreddits run by so-called men’s rights activists.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Fawn types avoid emotional investment and potential disappointment by barely showing themselves,” Walker writes, “by hiding behind their helpful personas, over-listening, over-eliciting or overdoing for the other.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Autistic people usually defer to logic and reason rather than emotion or intuition.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
Our brain wiring appears to actually be more diverse than the wiring of neurotypical brains, which researchers believe have a consistent pruning pattern.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
There’s a term for Autistic trans people who see their neurotype and gender identity as inextricably linked: autigender.[18]
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I was “too much” in so many ways. To other people, my tears were immature tantrums and my opinions were condescending diatribes. As I grew up, I learned to be less intense, less embarrassing—less me.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
I realize that's how it sometimes feels to be me. As if I have to hide who I am, all of the time. As if I have to pretend to be like everyone else, just so people will love me. As if I'm constantly being asked to share, to reveal myself, to open up, and when I do--when I finally show people who I truly am--it's not what anyone wanted and they explode right in front of me. I am so fucking done with making myself smaller.
Holly Smale (Cassandra in Reverse)
My life as a parent was a battleground for various belief systems,” she writes,[43] “all of which had one thing in common: an inability to come to terms with human variability.” Singer and her family were disabled in a way that no one knew how to name, so she created a name for them: they were neurodiverse, and they suffered because the world demanded they be neurotypical. These terms would be popularized by journalist Harvey Blume and widely adopted by disability advocates a few years later. The label neurodiverse includes everyone from people with ADHD, to Down Syndrome, to Obsessive-Compulsive Disorder, to Borderline Personality Disorder.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)