Scleroderma Quotes

You talked about Nietzsche and his tertiary syphilis. Mozart and his uremia. Paul Klee and the scleroderma that shrank his joints and muscles to death. Frida Kahlo and the spina bifida that covered her legs with bleeding sores. Lord Byron and his clubfoot. The Brontë sisters and their tuberculosis. Mark Rothko and his suicide. Flannery O'Connor and her lupus. Inspiration needs disease, injury, madness.

You said how Michelangelo was a manic-depressive who portrayed himself as a flayed martyr in his painting. Henri Matisse gave up being a lawyer because of appendicitis. Robert Schumann only began composing after his right hand became paralyzed and ended his career as a concert pianist. (...) You talked about Nietzsche and his tertiary syphilis. Mozart and his uremia. Paul Klee and the scleroderma that shrank his joints and muscles to death. Frida Kahlo and the spina bifida that covered her legs with bleeding sores. Lord Byron and his clubfoot. The Bronte sisters and their tuberculosis. Mark Rothko and his suicide. Flannery O’Connor and her lupus. Inspiration needs disease, injury, madness. “According to Thomas Mann,” Peter said, “‘Great artists are great invalids.

And I went from sleeper to sleeper, examining their faces as I had so many years ago in the tunnel, always looking for His Cognizance and always hoping—although I knew how absurd it was—that I would find Silk, that Silk had left Hyacinth and would be going with us after all, that Silk had rejoined us when I was inattentive, talking to Scleroderma and Shrike, and lagging behind the slowest walkers to talk to His Cognizance, whom I sought without finding on that nightmare night under the cloud-capped trees that outreach all our towers, so that at last I called out softly “Silk? Silk?” as I walked among the sleepers until Oreb grasped my hand with fingers that were in fact feathers, repeating, “Here Silk. Good Silk,” and I took my own advice and found the numbing fruit, cut one in two with the gold-chased black blade of the sword that I had imagined for myself and pressed a half against the sting on my arm, weeping. *

Despite the best efforts of many physicians, Mary died in Vancouver Hospital eight years after her diagnosis, succumbing to the complications of scleroderma. To the end she retained her gentle smile, though her heart was weak and her breathing laboured. Every once in a while she would ask me to schedule long private visits, even in hospital during her final days. She just wanted to chat, about matters serious or trivial. “You are the only one who ever listened to me,” she once said. I have wondered at times how Mary’s life might have turned out if someone had been there to hear, see and understand her when she was a small child — abused, frightened, feeling responsible for her little sisters. Perhaps had someone been there consistently and dependably, she could have learned to value herself, to express her feelings, to assert her anger when people invaded her boundaries physically or emotionally. Had that been her fate, would she still be alive?

We have lost something. In 1892 the Canadian William Osler, one of the greatest physicians of all time, suspected rheumatoid arthritis—a condition related to scleroderma—to be a stress-related disorder. Today rheumatology all but ignores that wisdom, despite the supporting scientific evidence accumulated in the 110 years since Osler first published his text.

DMSO has been used with excellent results in transporting antibiotics to areas of the body that are hard to reach like the bone marrow and brain. DMSO can leave a virus unprotected by dissolving the virus protein coating with its nucleic acid exposed to the immune system.