I have big dreams and big goals. But also big limitations, which means III never reach the big goals unless I have the wisdom to recognize the chains that bind me. Only then will I be able to figure out a way to work within them instead of ignoring them or naively wishing they'll cease to exist. I'm on a perennial quest to find balance. Writing helps me do that.
To quote Neruda: Tengo que acordarme de todos, recoger las briznas, los hilos del acontecer harapiento (I have to remember everything, collect the wisps, the threads of untidy happenings).
That line is ME. But my memory is slipping and that's one of the
scariest aspects about all this. How can I tell my story, how can I create a narrative around my life, if I cant even remember the details?
But I do want to tell my story, and so I write. I write because I want my parents to understand me. I write to leave something behind for them, for my brother Micah, for my boyfriend Jack, and for my extended family and friends, so I won't just end up as ashes scattered in the ocean and nothing else.
Curiously, the things I write in my journal are almost all bad:
the letdowns. the uncertainties. the anxieties. the loneliness. The good stuff I keep in my head and heart, but that proves an unreliable way of holding on because time eventually steals all memories-and if it doesn't completely steal them, it distorts them, sometimes beyond recognition, or the emotional quality accompanying the moment just dissipates.
Many of the feelings I write about are too difficult to share while I'm alive, so I am keeping everything in my journal password-protected until the end. When I die I want my mom to edit these pages to ensure they are acceptable for publication-culling through years of writing, pulling together what will resonate, cutting references that might be hurtful. My hope is that my writing will offer insight for people living with, or loving someone with, chronic illness.