Parents Of Children With Disabilities Quotes

We've searched our database for all the quotes and captions related to Parents Of Children With Disabilities. Here they are! All 75 of them:

I Have a Dream... someday my son, Zyon and ALL individuals with disabilities will be seen as HUMAN beings. I Have a Dream... someday the human & civil rights of individuals with disabilities are honored and they are treated as equals. I Have a Dream... someday ALL parents who have children with disabilities see their child as a blessing and not a burden. I Have a Dream... someday there will be more jobs and opportunities for individuals with disabilities. I Have a Dream... someday there will be UNITY "within" the disabled community. I HAVE A DREAM!!!
Yvonne Pierre (The Day My Soul Cried: A Memoir)
If the only time a child looks as if he has bipolar disorder is when he’s frustrated, that’s not bipolar disorder; that’s a learning disability in the domains of flexibility and frustration tolerance.
Ross W. Greene (The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children)
Labeling a child’s mind as diseased—whether with autism, intellectual disabilities, or transgenderism—may reflect the discomfort that mind gives parents more than any discomfort it causes their child. Much gets corrected that might better have been left alone.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
We are not “differently abled”—we are disabled, robbed of empowerment and agency in a world that is not built for us. “Differently abled,” “handi-capable,” and similar euphemisms were created in the 1980s by the abled parents of disabled children, who wished to minimize their children’s marginalized status. These terms were popularized further by politicians[76] who similarly felt uncomfortable acknowledging disabled people’s actual experiences of oppression.
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
There is something ironic in prejudice against the disabled and their families, because their plight might befall anybody. Straight men are unlikely to wake up gay one morning, and white children don't become black; but any of us could be disabled in an instant. People with disabilities make up the largest minority in America; they constitute 15 percent of the population, though only 15 percent of those were born with their disability and about a third are over sixty-five. Worldwide, some 550 million people are disabled. The disability-rights scholar Tobin Siebers has written, "The cycle of life runs in actuality from disability to temporary ability back to disablity, and that only if you are among the most fortunate.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
In these days, doctors know little about autism. They blame it on distant parents who don't communicate enough with their children
Pénélope Bagieu (Brazen: Rebel Ladies Who Rocked the World)
In retrospect, it seems obvious that my research about parenting was also a means to subdue my anxieties about becoming a parent.... I grew up afraid of illness and disability, inclined to avert my gaze from anyone who was too different – despite all the ways I knew myself to be different. This book helped me kill that bigoted impulse, which I had always known to be ugly. The obvious melancholy in the stories I heard should, perhaps, have made me shy away from paternity, but it had the opposite effect.
Andrew Solomon
Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support the health of their children.
Charisse Montgomery (Home Care CEO: A Parent's Guide to Managing In-home Pediatric Nursing)
Parents of children with disabilities live in this constant elevated state of anxiety, sometimes even teetering between despair and dread. We know our children have this beaming innocence within them, but because of that they sometimes misinterpret human intention.
Cynthia Pelayo (The Shoemaker's Magician (Chicago Saga #2))
Parents’ early responses to and interactions with a child determine how that child comes to view himself. These parents are also profoundly changed by their experiences. If you have a child with a disability, you are forever the parent of a disabled child; it is one of the primary facts about you, fundamental to the way other people perceive and decipher you. Such parents tend to view aberrance as illness until habituation and love enable them to cope with their odd new reality—often by introducing the language of identity. Intimacy with difference fosters its accommodation.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Hypercritical, Shaming Parents Hypercritical and shaming parents send the same message to their children as perfectionistic parents do - that they are never good enough. Parents often deliberately shame their children into minding them without realizing the disruptive impact shame can have on a child's sense of self. Statements such as "You should be ashamed of yourself" or "Shame on you" are obvious examples. Yet these types of overtly shaming statements are actually easier for the child to defend against than are more subtle forms of shaming, such as contempt, humiliation, and public shaming. There are many ways that parents shame their children. These include belittling, blaming, contempt, humiliation, and disabling expectations. -BELITTLING. Comments such as "You're too old to want to be held" or "You're just a cry-baby" are horribly humiliating to a child. When a parent makes a negative comparison between his or her child and another, such as "Why can't you act like Jenny? See how she sits quietly while her mother is talking," it is not only humiliating but teaches a child to always compare himself or herself with peers and find himself or herself deficient by comparison. -BLAMING. When a child makes a mistake, such as breaking a vase while rough-housing, he or she needs to take responsibility. But many parents go way beyond teaching a lesson by blaming and berating the child: "You stupid idiot! Do you think money grows on trees? I don't have money to buy new vases!" The only thing this accomplishes is shaming the child to such an extent that he or she cannot find a way to walk away from the situation with his or her head held high. -CONTEMPT. Expressions of disgust or contempt communicate absolute rejection. The look of contempt (often a sneer or a raised upper lip), especially from someone who is significant to a child, can make him or her feel disgusting or offensive. When I was a child, my mother had an extremely negative attitude toward me. Much of the time she either looked at me with the kind of expectant expression that said, "What are you up to now?" or with a look of disapproval or disgust over what I had already done. These looks were extremely shaming to me, causing me to feel that there was something terribly wrong with me. -HUMILIATION. There are many ways a parent can humiliate a child, such as making him or her wear clothes that have become dirty. But as Gershen Kaufman stated in his book Shame: The Power of Caring, "There is no more humiliating experience than to have another person who is clearly the stronger and more powerful take advantage of that power and give us a beating." I can personally attest to this. In addition to shaming me with her contemptuous looks, my mother often punished me by hitting me with the branch of a tree, and she often did this outside, in front of the neighbors. The humiliation I felt was like a deep wound to my soul. -DISABLING EXPECTATIONS. Parents who have an inordinate need to have their child excel at a particular activity or skill are likely to behave in ways that pressure the child to do more and more. According to Kaufman, when a child becomes aware of the real possibility of failing to meet parental expectations, he or she often experiences a binding self-consciousness. This self-consciousness - the painful watching of oneself - is very disabling. When something is expected of us in this way, attaining the goal is made harder, if not impossible. Yet another way that parents induce shame in their children is by communicating to them that they are a disappointment to them. Such messages as "I can't believe you could do such a thing" or "I am deeply disappointed in you" accompanied by a disapproving tone of voice and facial expression can crush a child's spirit.
Beverly Engel (The Nice Girl Syndrome: Stop Being Manipulated and Abused -- And Start Standing Up for Yourself)
The two bond over their mutual lack of family ties: Saul from his disownment, Miriam from the car accident that orphaned her as a college junior. Both want children. Miriam has inherited her parents' idea of procreative legitimacy, wants to compensate for her only-child-dom. She sees in Saul the househusband who will enable her parental ambitions without disabling her autonomy. In Miriam, Saul sees the means to a book-lined study and a lifestyle conducive to mystical advancement. They are both absolutely certain these things equal love.
Myla Goldberg (Bee Season)
Internalized ableism—the insidious belief that I would be a better person if I were not disabled—makes me feel like an imposter as a mother. Many of my friends with disabilities worry that they should not be parents; those who already are parents fear that their physical capacities negatively affect their children. It’s much easier to ignore my insecurities in professional or academic settings—to fake it until I make it, to go through the motions until I’m more confident in them. But how can I brazen my way through parenting? Talking myself out of my deepest fears is more difficult when I want, so primally, to be able to lift my son.
Alice Wong (Disability Visibility : First-Person Stories from the Twenty-first Century)
I am not sure whether you could call this abuse, but when I was (long ago) abroad in the world of dry men, I saw parents, usually upscale and educated and talented and functional and white, patient and loving and supportive and concerned and involved in their children’s lives, profilgate with compliments and diplomatic with constructive criticism, loquacious in their pronouncements of unconditional love for and approval of their children, conforming to every last jot-tittle in any conceivably definition of a good parent, I saw parent after unimpeachable parent who raised kids who were (a) emotionally retarded or (b) lethally self-indulgent or (c) chronically depressed or (d) borderline psychotic or (e) consumed with narcissistic self-loathing or (f) neurotically driven/addicted or (g) variously psychosomatically Disabled or (h) some conjunctive permutation of (a) … (g). Why is this. Why do many parents who seem relentlessly bent on producing children who feel they are good persons deserving of love produce children who grow to feel they are hideous persons not deserving of love who just happen to have lucked into having parents so marvelous that the parents love them even though they are hideous? Is it a sign of abuse if a mother produces a child who believes not that he is innately beautiful and lovable and deserving of magnificent maternal treatment but somehow that he is a hideous unlovable child who has somehow lucked in to having a really magnificent mother? Probably not. But could such a mother then really be all that magnificent, if that’s the child’s view of himself? ...I think, Mrs. Starkly, that I am speaking of Mrs. Avril M.-T. Incandenza, although the woman is so multileveled and indictment-proof that it is difficult to feel comfortable with any sort of univocal accusation of anything. Something just was not right, is the only way to put it. Something creepy, even on the culturally stellar surface.
David Foster Wallace (Infinite Jest)
No one has ever suggested legal protections for ugly people to make up for the misaligned features that will compromise their personal and professional lives. For people disabled by inherent moral perplexity, we offer not support but imprisonment.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Disability scholars Andrienne Asch and Erik Parens, in their seminal discussion of the problem, wrote,'Pre-natal diagnosis reinforces the medical model that disability itself, not societal discrimination against people with disabilities, is the problem to be solved.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
I definitely think mothers of children with disabilities have to have extraordinary courage every day...Because we all know our children have value and worth and potential, but the everyday world sometimes doesn’t.' —Linda Strobel in Up: A Love Letter to the Down Syndrome Community
Ashley Asti (Up: A Love Letter to the Down Syndrome Community)
Let’s Convince Him He’s Addicted for Life Parents consent to their children’s treatment for diseases other than taking drugs. One of the most common groups of childhood diseases is “learning disabilities,” including especially hyperactivity. Are such learning disabilities permanent? One piece of research showed that, “Contrary to the expectations of many experts, . . . boys who are hyperactive do not always have
Stanton Peele (Diseasing of America: How We Allowed Recovery Zealots and the Treatment Industry to Convince Us We Are Out of Control)
According to Jay Belsky, a leading proponent of this view and a psychology professor and child care expert at the University of London, the reactivity of these kids’ nervous systems makes them quickly overwhelmed by childhood adversity, but also able to benefit from a nurturing environment more than other children do. In other words, orchid children are more strongly affected by all experience, both positive and negative. Scientists have known for a while that high-reactive temperaments come with risk factors. These kids are especially vulnerable to challenges like marital tension, a parent’s death, or abuse. They’re more likely than their peers to react to these events with depression, anxiety, and shyness. Indeed, about a quarter of Kagan’s high-reactive kids suffer from some degree of the condition known as “social anxiety disorder,” a chronic and disabling form of shyness.
Susan Cain (Quiet: The Power of Introverts in a World That Can't Stop Talking)
The passion for such children contains no ego motive of anticipated reciprocity; one is choosing against, in the poet Richard Wilbur's phrase, 'loving things for reasons'. You find beauty and hope in the existence, rather than the achievements, of such a child. Most parenthood entails some struggle to change, educate and improve one's children; people with multiple severe disabilities may not become anything else, and there is a compelling purity in parental engagement not with what might or should or will be, but with, simply, what is.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
A brick could be used to show you how to live a richer, fuller, more satisfying life. Don’t you want to have fulfillment and meaning saturating your existence? I can show you how you can achieve this and so much more with just a simple brick. For just $99.99—not even an even hundred bucks, I’ll send you my exclusive life philosophy that’s built around a brick. Man’s used bricks to build houses for centuries. Now let one man, me, show you how a brick can be used to build your life up bigger and stronger than you ever imagined. But act now, because supplies are limited. This amazing offer won’t last forever. You don’t want to wake up in ten years to find yourself divorced, homeless, and missing your testicles because you waited even two hours too long to obtain this information. Become a hero today—save your life. Procrastination is only for the painful things in life. We prolong the boring, but why put off for tomorrow the exciting life you could be living today? If you’re not satisfied with the information I’m providing, I’m willing to offer you a no money back guarantee. That’s right, you read that wrong. If you are not 100% dissatisfied with my product, I’ll give you your money back. For $99.99 I’m offering 99.99%, but you’ve got to be willing to penny up that percentage to 100. Why delay? The life you really want is mine, and I’m willing to give it to you—for a price. That price is a one-time fee of $99.99, which of course everyone can afford—even if they can’t afford it. Homeless people can’t afford it, but they’re the people who need my product the most. Buy my product, or face the fact that in all probability you are going to end up homeless and sexless and unloved and filthy and stinky and probably even disabled, if not physically than certainly mentally. I don’t care if your testicles taste like peanut butter—if you don’t buy my product, even a dog won’t lick your balls you miserable cur. I curse you! God damn it, what are you, slow? Pay me my money so I can show you the path to true wealth. Don’t you want to be rich? Everything takes money—your marriage, your mortgage, and even prostitutes. I can show you the path to prostitution—and it starts by ignoring my pleas to help you. I’m not the bad guy here. I just want to help. You have some serious trust issues, my friend. I have the chance to earn your trust, and all it’s going to cost you is a measly $99.99. Would it help you to trust me if I told you that I trust you? Well, I do. Sure, I trust you. I trust you to make the smart decision for your life and order my product today. Don’t sleep on this decision, because you’ll only wake up in eight hours to find yourself living in a miserable future. And the future indeed looks bleak, my friend. War, famine, children forced to pimp out their parents just to feed the dog. Is this the kind of tomorrow you’d like to live in today? I can show you how to provide enough dog food to feed your grandpa for decades. In the future I’m offering you, your wife isn’t a whore that you sell for a knife swipe of peanut butter because you’re so hungry you actually considered eating your children. Become a hero—and save your kids’ lives. Your wife doesn’t want to spread her legs for strangers. Or maybe she does, and that was a bad example. Still, the principle stands. But you won’t be standing—in the future. Remember, you’ll be confined to a wheelchair. Mushrooms are for pizzas, not clouds, but without me, your life will atom bomb into oblivion. Nobody’s dropping a bomb while I’m around. The only thing I’m dropping is the price. Boom! I just lowered the price for you, just to show you that you are a valued customer. As a VIP, your new price on my product is just $99.96. That’s a savings of over two pennies (three, to be precise). And I’ll even throw in a jar of peanut butter for free. That’s a value of over $.99. But wait, there’s more! If you call within the next ten minutes, I’ll even throw in a blanket free of charge. . .
Jarod Kintz (Brick)
In my own periods of darkness, in the underworld of the soul, I find myself frequently overcome and amazed by the ability of people to befriend each other, to love their intimate partners and parents and children, and to do what they must do to keep the machinery of the world running. I knew a man, injured and disabled by a car accident, who was employed by a local utility. For years after the crash he worked side by side with another man, who for his part suffered with a degenerative neurological disease. They cooperated while repairing the lines, each making up for the other’s inadequacy. This sort of everyday heroism is the rule, I believe, rather than the exception. Most individuals are dealing with one or more serious health problems while going productively and uncomplainingly about their business. If anyone is fortunate enough to be in a rare period of grace and health, personally, then he or she typically has at least one close family member in crisis. Yet people prevail and continue to do difficult and effortful tasks to hold themselves and their families and society together. To me this is miraculous—so much so that a dumbfounded gratitude is the only appropriate response. There are so many ways that things can fall apart, or fail to work altogether, and it is always wounded people who are holding it together. They deserve some genuine and heartfelt admiration for that. It’s an ongoing miracle of fortitude and perseverance
Jordan B. Peterson (12 Rules for Life: An Antidote to Chaos)
Ḥayā’, in Arabic, conveys the meaning of “shame,” though the root word of ḥayā’ is closely associated with “life” and “living.” The Prophet stated, “Every religion has a quality that is characteristic of that religion, and the characteristic of my religion is ḥayā’,” an internal sense of shame that includes bashfulness and modesty. As children, many of us had someone say to us at times, “Shame on you!” Unfortunately, shame has now come to be viewed as a negative word, as if it were a pejorative. Parents are now often advised to never cause a child to feel shame. The current wisdom largely suggests that adults should always make the child feel good, regardless of his or her behavior. However, doing so eventually disables naturally occurring deterrents to misbehavior.
Hamza Yusuf (Purification of the Heart: Signs, Symptoms and Cures of the Spiritual Diseases of the Heart)
On a Sunday this January, probably of whatever year it is when you read this (at least as long as I’m living), I will probably be preaching somewhere in a church on “Sanctity of Human Life Sunday.” Here’s a confession: I hate it. Don’t get me wrong. I love to preach the Bible. And I love to talk about the image of God and the protection of all human life. I hate this Sunday not because of what we have to say, but that we have to say it at all. The idea of aborting an unborn child or abusing a born child or starving an elderly person or torturing an enemy combatant or screaming at an immigrant family, these ought all to be so self-evidently wrong that a “Sanctity of Human Life Sunday” ought to be as unnecessary as a “Reality of Gravity Sunday.” We shouldn’t have to say that parents shouldn’t abort their children, or their fathers shouldn’t abandon the mothers of their babies, or that no human life is worthless regardless of age, skin color, disability, or economic status. Part of my thinking here is, I hope, a sign of God’s grace, a groaning by the Spirit at this world of abortion clinics and torture chambers (Rom. 8:22–23). But part of it is my own inability to see the spiritual combat zone that the world is, and has been from Eden onward. This dark present reality didn’t begin with the antebellum South or with the modern warfare state, and it certainly didn’t begin with the Roe v. Wade Supreme Court decision. Human dignity is about the kingdom of God, and that means that in every place and every culture human dignity is contested.
Russell D. Moore (Onward: Engaging the Culture without Losing the Gospel)
Each of the three recognized categories—care, service, and education—would encompass a wide range of activities, with different levels of compensation for full- and part-time participation. Care work could include parenting of young children, attending to an aging parent, assisting a friend or family member dealing with illness, or helping someone with mental or physical disabilities live life to the fullest. This category would create a veritable army of people—loved ones, friends, or even strangers—who could assist those in need, offering them what my entrepreneur friend’s touchscreen device for the elderly never could: human warmth. Service work would be similarly broadly defined, encompassing much of the current work of nonprofit groups as well as the kinds of volunteers I saw in Taiwan. Tasks could include performing environmental remediation, leading afterschool programs, guiding tours at national parks, or collecting oral histories from elders in our communities. Participants in these programs would register with an established group and commit to a certain number of hours of service work to meet the requirements of the stipend. Finally, education could range from professional training for the jobs of the AI age to taking classes that could transform a hobby into a career. Some recipients of the stipend will use that financial freedom to pursue a degree in machine learning and use it to find a high-paying job.
Kai-Fu Lee (AI Superpowers: China, Silicon Valley, and the New World Order)
Developing a business depends on many factors. But you should basically understand the exchange between value. In other words, you must provide value to receive equal value. If you look at single people, you can see that they can’t provide any value – they don’t smile, dress, talk or behave in a way that makes others want to spend time, much less a life, with them. Relationships and Business are not much different. In a business, people know that appearance and the way you talk to a costumer is as important as the value of your product, and that’s why brands sell, even when their products have no quality. For example, in shopping malls you can see shops packed with people buying clothes that have no value and will be ruined or out of fashion very soon, because the brand is selling an image, not quality anymore. China, on the other hand, managed to compete in the world markets by reducing price over quality, and is now paying the price of a very bad reputation, as most people don’t trust Chinese brands anymore. This is already impacting the economy, so I don’t know what will happen in the next years. It’s all in the hands of the politicians and the internationalization of the companies. And yet, I just said this to explain the relation between value and product. But here’s another example. I tried to share what I know about Learning with Teachers, Parents and Psychologists, and nobody cared. Besides, what I earned in helping children with learning disabilities was a very low payment, and I had to quit that as I couldn’t afford to pay an apartment and daily expenses with such job. However, there are people making thousands of dollars with drugs that have no effect, toilets for cats and pet-rocks. In other words, is never about what the world needs but what the world wants.
Robin Sacredfire
Developing a business depends on many factors. But you should basically understand the exchange between value. In other words, you must provide value to receive equal value. If you look at most singles, you can see that they can’t provide any value – they often don’t smile, dress, talk or behave in a way that makes others want to spend time, much less a lifetime, with them. Relationships and businesses are not much different. In a business, people know that appearance and the way you talk to a costumer is as important as the value of your product, and that’s why brands sell, even when their products have no quality. For example, in shopping malls you can see shops packed with people buying clothes that have no value and will be ruined or out of fashion very soon, because the brand is selling an image, not quality anymore. China, on the other hand, managed to compete in the world market by reducing price over quality, and is now paying the cost of a very bad reputation, as most people don’t trust Chinese brands anymore. This is already impacting the economy, so I don’t know what will happen in the next years. It is all in the hands of the politicians and the internationalization of the companies. And yet, I just said this to explain the relation between value and product. But here’s another example: I tried to share what I know about learning with teachers, parents and psychologists, and nobody cared. Besides, what I earned in helping children with learning disabilities was a very low payment, and I had to quit that as I couldn’t afford to pay an apartment and daily expenses with such job. However, there are people making thousands of dollars with drugs that have no effect, toilets for cats and pet-rocks. In other words, it is never about what the world needs but what the world wants.
Robin Sacredfire
From the beginning, the poorhouse served irreconcilable purposes that led to terrible suffering and spiraling costs. On the one hand, the poorhouse was a semi-voluntary institution providing care for the elderly, the frail, the sick, the disabled, orphans, and the mentally ill. On the other, its harsh conditions were meant to discourage the working poor from seeking aid. The mandate to deter the poor drastically undercut the institution’s ability to provide care. Inmates were required to swear a pauper’s oath stripping them of whatever basic civil rights they enjoyed (if they were white and male). Inmates could not vote, marry, or hold office. Families were separated because reformers of the time believed that poor children could be redeemed through contact with wealthy families. Children were taken from their parents and bound out as apprentices or domestics, or sent away on orphan trains as free labor for pioneer farms. Poorhouses provided a multitude of opportunities for personal profit for those who ran them. Part of the keeper of the poorhouse’s pay was provided by unlimited use of the grounds and the labor of inmates.
Virginia Eubanks (Automating Inequality: How High-Tech Tools Profile, Police, and Punish the Poor)
Do you know what one school supplier suggests that “special-education teachers” do for students who struggle with dyslexia, ADD, or other learning disabilities? They want the teachers to hypnotize the child to help them reach the higher levels of potential within themselves. They actually say in the catalog that spirit guides will assist the child, and the teacher should help the child get to know his or her guide. Of course, the teachers don’t inform the parents that their children will be exposed to demonic forces. The parents naively assume their children are receiving advanced reading lessons.
Israel Wayne (Education: Does God Have an Opinion?)
Intuitively we all know that it is better to feel than to not feel. Our emotions are not a luxury but an essential aspect of our makeup. We have them not just for the pleasure of feeling but because they have crucial survival value. They orient us, interpret the world for us, give us vital information without which we cannot thrive. They tell us what is dangerous and what is benign, what threatens our existence and what will nurture our growth. Imagine how disabled we would be if we could not see or hear or taste or sense heat or cold or physical pain. To shut down emotions is to lose an indispensable part of our sensory apparatus and, beyond that, an indispensable part of who we are. Emotions are what make life worthwhile, exciting, challenging, and meaningful. They drive our explorations of the world, motivate our discoveries, and fuel our growth. Down to the very cellular level, human beings are either in defensive mode or in growth mode, but they cannot be in both at the same time. When children become invulnerable, they cease to relate to life as infinite possibility, to themselves as boundless potential, and to the world as a welcoming and nurturing arena for their self-expression. The invulnerability imposed by peer orientation imprisons children in their limitations and fears. No wonder so many of them these days are being treated for depression, anxiety, and other disorders. The love, attention, and security only adults can offer liberates children from the need to make themselves invulnerable and restores to them that potential for life and adventure that can never come from risky activities, extreme sports, or drugs. Without that safety our children are forced to sacrifice their capacity to grow and mature psychologically, to enter into meaningful relationships, and to pursue their deepest and most powerful urges for self-expression. In the final analysis, the flight from vulnerability is a flight from the self. If we do not hold our children close to us, the ultimate cost is the loss of their ability to hold on to their own truest selves.
Gabor Maté (Hold On to Your Kids: Why Parents Need to Matter More Than Peers)
Developing a business depends on many factors. But you should basically understand the exchange between value. In other words, you must provide value to receive equal value. If you look at single people, you can see that they can’t provide any value – they don’t smile, dress, talk or behave in a way that makes others want to spend time, much less a life, with them. Relationships and Business are not much different. In a business, people know that appearance and the way you talk to a costumer is as important as the value of your product, and that’s why brands sell, even when their products have no quality. For example, in shopping malls you can see shops packed with people buying clothes that have no value and will be ruined or out of fashion very soon, because the brand is selling an image, not quality anymore. China, on the other hand, managed to compete in the world markets by reducing price over quality, and is now paying the price of a very bad reputation, as most people don’t trust Chinese brands anymore. This is already impacting the economy, so I don’t know what will happen in the next years. It’s all in the hands of the politicians and the internationalization of the companies. Actually, that’s why this Chinese government sends its companies to other countries. And yet, I just said this to explain the relation between value and product. But here’s another. I tried to share what I know about Learning with Teachers, Parents and Psychologists, and nobody cared. Besides, what I earned in helping children with learning disabilities was a very low payment, and I had to quit that as I couldn’t afford to pay an apartment and daily expenses with such job. However, there are people making thousands of dollars with drugs that have no effect, toilets for cats and pet-rocks. In other words, is never about what the world needs but what the world wants.
Samuel River
Cerebral palsy is any disability caused by damage to the cerebrum before birth, just afterward, or in the first three years of life.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Haya', in Arabic, conveys the meaning of shame, though the root word of haya ’ is closely associated with life and living. The Prophet stated, “Every religion has a quality that is characteristic of that religion. And the characteristic of my religion is haya, an internal sense of shame, which includes bashfulness and modesty. Most adults alive today have heard it said when they were children, “Shame on you!” Unfortunately, shame has come to be viewed as a negative word, as if it were a pejorative. Parents are now advised never to “shame a child,” never correct a child’s behavior by causing an emotional response. Instead, the current wisdom suggests that people always make the child feel good regardless of his or her behavior. Eventually, what this does is disable naturally occurring deterrents to misbehavior. Some anthropologists divide cultures into shame and guilt cultures. They say that guilt is an inward mechanism and shame an outward one. With regard to this discussion, guilt alludes to a human mechanism that produces strong feelings of remorse when someone has done something wrong, to the point that he or she needs to rectify the matter. Most primitive cultures are not guilt-based, but shame-based, which is rooted in the fear of bringing shame upon oneself and the larger family. What Islam does is honor the concept of shame and take it to another level altogether—to a rank in which one feels a sense of shame before God. When a person acknowledges and realizes that God is fully aware of all that one does, says, or thinks, shame is elevated to a higher plane, to the unseen world from which there is no cover. In fact, one feels a sense of shame even before the angels. So while Muslims comprise a shame-based culture, this notion transcends shame before one’s family—whether one’s elders or parents— and admits a mechanism that is not subject to the changing norms of human cultures. It is associated with the knowledge and active awareness that God is all-seeing of what one does—a reality that is permanent. The nurturing of this realization deters one from engaging in acts that are displeasing and vulgar. This is the essence of the noble prophetic teachings.
Hamza Yusuf (Purification of the Heart: Signs, Symptoms and Cures of the Spiritual Diseases of the Heart)
At Old Glory, we believe in giving houses, and people, a fighting chance. For over a decade we have been transforming distressed properties into decent places to live, improving property values and saving resources. We have also been providing low income, affordable housing opportunities to people who need it the most – seniors, people on disability, immigrants, veterans returning and adapting, single parents trying to keep their children fed, and struggling families.
Old Glory
If the plan succeeded, it would be a step to bring about the kind of golden age envisioned by Confucius millennia ago: “And then men would care for all elders as if they were their own parents, love all children as if they were their own children. The aged would grow old and die in security; the youthful would have opportunities to contribute and prosper; and children would grow up under the guidance and protection of all. Widows, orphans, the disabled, the diseased—everyone would be cared for and loved.
Ken Liu (Invisible Planets: Contemporary Chinese Science Fiction in Translation)
In the months since my brother's diagnosis, Ma had become very protective of him in a way she'd never become of me. It made sense. Parents of black children can be ultra-protective, knowing they are raising their children within the dangerous smog of racism. Parents of children with disabilities can be very protective, knowing they are raising their children within the dangerous smog of ableism. Now imagine the level of protectiveness for parents of children of color with a disability, knowing they are raising them within the doubly thick smog of racism and ableism.
Ibram X. Kendi (How to Raise an Antiracist)
Control is the product of your disabled will. It is an attempt to will what cannot be willed. You cannot change another person. You cannot fix your parents, spouse, lover or children. You cannot control their lives or their pain.
John Bradshaw (Healing the Shame that Binds You)
The children I describe here have horizontal conditions that are alien to their parents. They are deaf or dwarfs; they have Down syndrome, autism, schizophrenia, or multiple severe disabilities; they are prodigies; they are people conceived in rape or who commit crimes; they are transgender. The timeworn adage says that the apple doesn't fall far from the tree, meaning that a child resembles his or her parents; these children are apples that have fallen elsewhere—some a couple of orchards away, some on the other side of the world. Yet myriad families learn to tolerate, accept, and finally celebrate children who are not what they originally had in mind.
Andrew Solomon
Families are finding that they are getting funding from a variety of sources. One typical family has counseling covered through their insurance for family counseling, and counseling funded by a federally funded adoption support program for their child. They receive respite care funded through the Division of Developmental Disabilities. They pay privately for Sibshop, a well-loved program for the siblings of their special needs children. Since the Sibshop is through a non-profit organization, it is particularly affordable. Their school district pays for tutoring. After they specifically requested a review, they received an adoption subsidy available to older children through their state. The cost of braces was partially reimbursed by the adoption support system, as well. The combination of resources and financial relief allowed the parents to enjoy some outings, plan a simple family vacation, and get some household help. They said, “Without this help, we would not have made it as an emotionally intact family. We would not have disrupted, but we would not have been the unit that we are today.
Deborah D. Gray (Attaching in Adoption: Practical Tools for Today's Parents)
There is no simple way to determine when and where to get help. Many factors come into play, including the child’s age, family’s financial status, insurance, knowledge of resources, religious affiliation, availability of services in community, and so on. Parents may seek outside assistance for their adopted child when other factors such as a divorce, job loss, or other stresses compound the family needs. Parents are generally in the best position to determine when to get help, but advice from relatives, family physicians, teachers, and others in a position to know the family should be carefully considered. Services for children with special needs are provided by a variety of professionals. A physician—pediatrician or the family practitioner—is usually the place to begin. Families may be referred to a neurologist for a thorough assessment and diagnosis of neurological functioning (related to cognitive or learning disabilities, seizure disorders or other central nervous system problems). For specific communication difficulties, families may consult with a speech and language therapist, while a physical therapist would develop a treatment plan to enhance motor development. A rehabilitation technologist or an occupational therapist prescribes adaptive aids or activities of daily living. Early childhood educators specializing in working with children with special needs may be called a variety of titles, including Head Start teachers, early childhood special education teacher, or early childhood specialist.
Mary Hopkins-Best (Toddler Adoption: The Weaver's Craft Revised Edition)
Our world is broken and disability is part of that brokenness. But God is working to make it unbroken. He has a plan for each of us and that plan doesn’t exclude our children with disabilities, or even the disability itself. God created each of us uniquely in His own image. Disability might appear to mar that image like a reflection in a shattered mirror; but in fact, God is shining His light on the broken pieces to reveal more of Himself to us and to the world. A lot more light reflects off a broken mirror than a whole one.
Sandra Peoples (30 Prayers for Special-Needs Parents)
While some siblings accept, and even embrace, their destiny as members of the 'team,' others are (mostly privately) outraged, having experienced the obverse of the soothing stereotype in their own families. A graphic designer whose autistic brother tried to strangle her when they were children, and who struggled for years to get her parents to recognize the danger he presented, is acutely aware of the discrepancy between the illusion and the reality of damaged families: I'm trying to eradicate the Hallmark Hall of Fame Special myth - 'how I learned the meaning of life by having a disabled sibling.' The cover of Newsweek on autism had a beautiful blond good boy. People just want to look at the pretty kids on Jerry Lewis, the sanitized version, not the ugly cases like my brother. The severely disabled aren't telegenic.
Jeanne Safer (The Normal One: Life with a Difficult or Damaged Sibling)
Around the same time that index was released, Nicholas Kristof (again, a hero to many liberals), wrote a column that addressed the dependency on government programs.5 He focused on Kentucky’s Appalachian area, where people have yanked their kids out of literacy classes because if those kids learn to read, the parents will be less likely to qualify for a monthly SSI check for having kids with intellectual disabilities. We are not even making this up. Apparently, many of these people receive nearly $700 each month from Supplemental Security Income for those “disabled” children, and they receive those payments until their kids turn eighteen. And when the kids do turn eighteen, they are illiterate and unproductive because of their parents, and they collect SSI income as adults, many of them never holding a job in their entire lives. This is how our entitlement programs “help.” Nice, huh? Kristof wrote, “This is painful for a liberal to admit, but conservatives have a point when they suggest that America’s safety net can sometimes entangle people in a soul-crushing dependency. Our poverty programs do rescue many people, but other times they backfire.
Miriam Weaver (Right for a Reason: Life, Liberty, and a Crapload of Common Sense)
Disability is not predictive of the happiness of either the parent or the child, which reflects the larger puzzle that people who have won the lottery are, in the long run and on average, only marginally happier than amputees—people in each category having adjusted rather quickly to their new normal.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
The Wall Street Journal (The Wall Street Journal) - Clip This Article on Location 1055 | Added on Tuesday, May 5, 2015 5:10:24 PM OPINION Baltimore Is Not About Race Government-induced dependency is the problem—and it’s one with a long history. By William McGurn | 801 words For those who see the rioting in Baltimore as primarily about race, two broad reactions dominate. One group sees rampaging young men fouling their own neighborhoods and concludes nothing can be done because the social pathologies are so overwhelming. In some cities, this view manifests itself in the unspoken but cynical policing that effectively cedes whole neighborhoods to the thugs. The other group tut-tuts about root causes. Take your pick: inequality, poverty, injustice. Or, as President Obama intimated in an ugly aside on the rioting, a Republican Congress that will never agree to the “massive investments” (in other words, billions more in federal spending) required “if we are serious about solving this problem.” There is another view. In this view, the disaster of inner cities isn’t primarily about race at all. It’s about the consequences of 50 years of progressive misrule—which on race has proved an equal-opportunity failure. Baltimore is but the latest liberal-blue city where government has failed to do the one thing it ought—i.e., put the cops on the side of the vulnerable and law-abiding—while pursuing “solutions” that in practice enfeeble families and social institutions and local economies. These supposed solutions do this by substituting federal transfers for fathers and families. They do it by favoring community organizing and government projects over private investment. And they do it by propping up failing public-school systems that operate as jobs programs for the teachers unions instead of centers of learning. If our inner-city African-American communities suffer disproportionately from crippling social pathologies that make upward mobility difficult—and they do—it is in large part because they have disproportionately been on the receiving end of this five-decade-long progressive experiment in government beneficence. How do we know? Because when we look at a slice of white America that was showered with the same Great Society good intentions—Appalachia—we find the same dysfunctions: greater dependency, more single-parent families and the absence of the good, private-sector jobs that only a growing economy can create. Remember, in the mid-1960s when President Johnson put a face on America’s “war on poverty,” he didn’t do it from an urban ghetto. He did it from the front porch of a shack in eastern Kentucky’s Martin County, where a white family of 10 eked out a subsistence living on an income of $400 a year. In many ways, rural Martin County and urban Baltimore could not be more different. Martin County is 92% white while Baltimore is two-thirds black. Each has seen important sources of good-paying jobs dry up—Martin County in coal mining, Baltimore in manufacturing. In the last presidential election, Martin Country voted 6 to 1 for Mitt Romney while Baltimore went 9 to 1 for Barack Obama. Yet the Great Society’s legacy has been depressingly similar. In a remarkable dispatch two years ago, the Lexington Herald-Leader’s John Cheves noted that the war on poverty sent $2.1 billion to Martin County alone (pop. 12,537) through programs including “welfare, food stamps, jobless benefits, disability compensation, school subsidies, affordable housing, worker training, economic development incentives, Head Start for poor children and expanded Social Security, Medicare and Medicaid.” The result? “The problem facing Appalachia today isn’t Third World poverty,” writes Mr. Cheves. “It’s dependence on government assistance.” Just one example: When Congress imposed work requirements and lifetime caps for welfare during the Clinton administration, claims of disability jumped. Mr. Cheves quotes
Anonymous
Some parents manufacture an affirmative construction of their child's disability to disguise their despair, while others have a deep and genuine experience of joy in caring for disabled children, and that sometimes the first stance can generate the second.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
In churches that care about special needs inclusion I have found that the single biggest determinant for a child's success is the strength of the relationship between the church and the child's parents. When church leaders and parents are in general agreement regarding a child's abilities and needs, problems tend to get solved with greater speed and ingenuity. But when parents view their child's special needs as nonexistent or insignificant, it creates extra work (and stress!) for everyone serving that child. This is the reason that it is sometimes easier for churches to successfully include children with complex needs that are obvious than it is for churches to successfully include high-functioning children whose disabilities are less obvious. When parents dismiss a child's legitimate need for even occasional assistance it makes it really hard for the child and the volunteers serving them to experience success.
Amy Fenton Lee (Leading a Special Needs Ministry)
Showing participants in a positive light may be the first time some parents have had their child celebrated at all, let alone publicly. The church cannot underestimate the meaningful way this affects a family of a child with special needs. Using the public venue of a worship service will shape the entire church's view of disability, reminding them of God's value for everyone.
Amy Fenton Lee (Leading a Special Needs Ministry)
While grief is a natural part of any special needs parent's journey, it may be processed somewhat differently for the family affected by a diagnosis with a wide range of outcomes, such as autism. Every child with or without a disability is unique. And no special-needs diagnosis affects any two children the same way.
Amy Fenton Lee (Leading a Special Needs Ministry)
Disability isn’t a choice, but neurodevelopmental disabilities are often treated as though they are.
Meghan Ashburn (I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World)
This was the church’s great achievement in Ireland. It had so successfully disabled a society’s capacity to think for itself about right and wrong that it was the parents of an abused child, not the bishop who enabled that abuse, who were ‘quite apologetic’. It had managed to create a flock who, in the face of an outrageous violation of trust, would be concerned as much about the abuser as about those he had abused and might abuse in the future. It had inserted its system of control and power so deeply into the minds of the faithful that they could scarcely even feel angry about the perpetration of disgusting crimes on their own children.
Fintan O'Toole (We Don't Know Ourselves: A Personal History of Modern Ireland)
If genius springs from genetics, a meritocracy is hardly more just than the divine right of kings; it, too, mythologizes inherent superiority. If genius results from labor, then brilliant people deserve the kudos and wealth they reap. The communist perspective is that everyone can be a genius if he will only work at it; the fascist perspective is that born geniuses are a different species from the rest of humanity. Many people fall short of their potential through lack of discipline, but a visit to a coal mine will amply demonstrate that hard work on its own neither constitutes genius nor guarantees riches. The history of high intelligence is no less political than the history of intellectual disability or of mental illness.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Being neurodivergent doesn’t mean a person is broken or needs to be fixed. They need support to access the world around them. The solution to helping someone who needs a wheelchair get up steps isn’t to teach them to walk; it is to build a ramp. The solution for someone who has a disability based on their neurological wiring isn’t to tell them to try harder; it is to build (and help them build for themselves) accommodations that allow them to thrive.
Emily Kircher-Morris M.A. M.Ed. LPC (Raising Twice-Exceptional Children: A Handbook for Parents of Neurodivergent Gifted Kids)
Recognizing a disability requires us to become comfortable with vulnerability. Self-advocacy begins with recognizing disability without shame. When we give our children permission to recognize their difficulties, we liberate them to ask for accommodations. We empower them to look beyond the status quo and find the solutions that work for them, instead of trying to use the solutions that work for other people. And we provide a framework for self-understanding and self-acceptance that is the key for neurodivergent people of all ages.
Emily Kircher-Morris M.A. M.Ed. LPC (Raising Twice-Exceptional Children: A Handbook for Parents of Neurodivergent Gifted Kids)
Do you think ADHD should be recognized as a separate disability category according to IDEA? Support your position. What are the three subtypes of ADHD? List three symptoms typical of each subtype. Identify three possible causes of ADHD. Give an example of each. Give five examples of characteristics typical of children and adolescents with ADHD. Why do you think pupils with ADHD frequently exhibit other academic and behavioral difficulties? How is ADHD diagnosed? What role do parents and teachers play in the diagnostic process? What role does medication play in the treatment of ADHD? Why is this approach controversial? Describe three other intervention options for students with ADHD. How can assistive technology help students with ADHD? ADHD is usually a lifelong condition. In what ways might this disorder affect the lives of adults with ADHD? Why are some professionals concerned about the identification of ADHD in students from culturally and linguistically diverse backgrounds?
Richard M. Gargiulo (Special Education in Contemporary Society: An Introduction to Exceptionality)
Some kinds of grace would not have entered the world if everyone’s hips and legs worked the same way. Deformity has been brought into beauty’s fold, a catalyst for justice rather than an affront to it.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
We all face the prospect that what is supposed to be a private decision—the termination of a pregnancy—might become the first step in a campaign to eliminate people with disabilities.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
At least half of the children available for adoption in the United States have disabilities of some kind.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
People with disabilities make up the largest minority in America; they constitute 15 percent of the population though only 15 percent of those were born with their disability and about a third are over sixty-five…
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Disabled people are protected by fragile laws, and if they are judged to have an identity rather than an illness, they may forfeit those safeguards.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Do you ever read a feature praising a woman whose life is to care for her disabled child or parent with Alzheimer’s? No, you don’t. When someone talks about ‘achievement’ they’re talking about salary and status, not the fact that you actually managed to take a shower and change your clothes after being in the hospital with your child for two nights straight even though, believe me, that’s an achievement. You read about hedge fund managers who get up at three in the morning so they can get their workout done, use the gym, clear their emails and make a healthy breakfast for the whole family before putting in a full day of work in the city and returning home in time to read bedtime stories and then do another few hours of work before having perfect sex, three hours undisturbed REM sleep and waking up and starting again. You read about women who were at home with children and suddenly realized that if they started charging for all the cupcakes they made for their children’s friends and school events, they could turn their baking skills into a profitable business.
Sarah Morgan (A Wedding in December)
When children are brought into the world with an extra chromosome—with Down syndrome, that is—the first words parents often hear are, 'I’m sorry,' as if Down syndrome itself is something to be down about. It’s not. I want to say, 'Congratulations.' I want to say, 'What a beautiful gift you’ve brought into the world, one more being here for a reason, here with purpose.' I want to say, 'Oh, mama,' or 'Oh, dad—this new little being is going to lift you up.
Ashley Asti (Up: A Love Letter to the Down Syndrome Community)
As illustrated by Woman on the Edge of Time, and as manifested in the furor surrounding McCullough and Duchesneau's reproductive choices, disability is often seen as a difference that has no place in the future. Disability is a problem that must be eliminated, a hindrance to one's future opportunities, a drag on one's quality of life. Speaking directly about the Duchesneau and McCullough case, bioethicist Alta Charo argues, “The question is whether the parents have violated the sacred duty of parenthood, which is to maximize to some reasonable degree the advantages available to their children. I'm loath to say it, but I think it's a shame to set limits on a child's potential.” Similar claims are made in opposition to same-sex parenting; critics argue that children raised in queer households will have a lower quality of life than children raised in heterosexual ones. However, in both of these situations, it is assumed not only that disability and queerness inherently and irreversibly lower one's quality of life but also that there is only one possible understanding of “quality of life” and that everyone knows what “it” is without discussion or elaboration.
Alison Kafer (Feminist, Queer, Crip)
Children are especially dependent on their parents and caregivers to provide the stability and unconditional love that will help them establish a core of resiliency and a sense of self-efficacy to draw upon when faced with adversity later in life. Childhood events that can lead to PTSD and serious difficulties in regulating emotions, and are often linked in research to cutting, certainly include the most abject forms of abuse—physical, sexual, and emotional. But a child's emotional response system—which is controlled by the still developing brain, the sympathetic nervous system, and stress hormones—can be thrown off-kilter by a wide range of painful experiences, whether they are the result of intentionally abusive acts or purely accidental circumstances. Confusing and overwhelming feelings experienced as a result of adoption or abandonment, natural disasters (such as hurricanes or earthquakes,) deaths in the family, serious illness or disability, or witnessing or being the victim of an accident or violent crime can result in symptoms of posttraumatic stress. These kinds of taxing and traumatic events, as well as other societal stressors—from school bullying to identity struggles to perfectionism to body-image issues and the eating disorders often associated with them—have been linked to cutting in various populations.
Marilee Strong (A Bright Red Scream: Self-Mutilation and the Language of Pain)
Consider the power of love. I remember a mother I met once as I made a professional house call. This woman was confined in an iron lung. The ravages of polio had effectively destroyed all the breathing muscles so that her life was completely dependent upon the large metal tank and the electrical motor that powered its noisy bellows. While there, I watched her three children as they related to their mother. The oldest interrupted our work to ask permission to go to a friend's house for an hour. Later the second child asked her mother for help with arithmetic. Finally the youngest child, so small that she couldn't see her mother's face directly, looked up at the mother's image in a mirror that had been placed over her head and asked, "Mommy, may I have a cookie?" I've never forgotten that lesson on the power of love. This woman, virtually disabled and certainly incapable of any degree of physical enforcement of parental authority, sweetly influenced that home solely with the power to love.
Russell M. Nelson (The Power Within Us)
We have an almost equal mix of children with and without disabilities. Thorin wouldn’t be the only child with Down syndrome.” Ward asked, “How’d you create that ratio? Why would parents when’d their children here if they didn’t have a disability?” Louise smiled. “Some parents believe diversity of all kinds is important to their children’s development. Also we have numerous siblings here. Parents want their children at the same school.
Kari Wagner-Peck (Not Always Happy: An Unusual Parenting Journey)
An untreated severe cleft palate can have dire consequences and is undeniably a disability. But there is no simple equation whereby the existence of the fix means that the condition is no longer a disability; rectifying a condition is not the same thing as forestalling
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Ambivalence exists in all human relationships, including parent-child. Anna Freud maintained that a mother could never satisfy her infant's needs because those are infinite, but that eventually child and mother outgrow that dependence...In Torn in Tow, the British psycho analyst Rozsika Parker complains that in our open, modern society, the extent of maternal ambivalence is a dark secret. Most mothers treat their occasional wish to be rid of their children as if it were the equivalent of murder itself. Parker proposes that mothering requires two impulses - the impulse to hold on, and the impulse to push away. To be a successful mother you must nurture and love your child, but cannot smother and cling to your child. Mothering involves sailing between what Parker calls 'the Scylla of intrusiveness and the Charybdis of neglect.' She proposes that the sentimental idea of perfect synchrony between mother and child 'can cast a sort of sadness over motherhood - a constant state of mild regret that a delightful oneness seems always out of reach.' Perfection is a horizon virtue, and our very approach to it reveals its immutable distance. The dark portion of maternal ambivalence toward typical children is posited as crucial to the child's individuation. But severely disabled children who will never become independent will not benefit from their parents' negative feelings, and so their situation demands an impossible state of emotional purity. Asking the parents of severely disabled children to feel less negative emotion than parents of healthy children is ludicrous. My experience of these parents was that they all felt both love and despair. You cannot decide whether to be ambivalent/ All you can decide is what to do with your ambivalence. Most of these parents have chosen to act on one side of the ambivalence they feel, and Julia Hollander chose to act on another side, but I am not persuaded that the ambivalence itself was so different from one of these families to the next. I am enough of a creature of my times to admire most the parents who kept their children and made brave sacrifices for them. I nonetheless esteem Julia Hollander for being honest with herself, and for making what all those other families did look like a choice.
Andrew Solomon (Far from the Tree: How Children and Their Parents Learn to Accept One Another . . . Our Differences Unite Us)
The cycle of life runs in actuality from disability to temporary ability back to disability, and that only if you are among the most fortunate.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
All kinds of attributes make one less able. Illiteracy and poverty are disabilities, and so are stupidity, obesity, and boringness. Extreme age and extreme youth are both disabilities. Faith is a disability insofar as it constrains you from self-interest; atheism is a disability inasmuch as it shields you from hope. One might see power as a disability, too, for the isolation in which it imprisons those who wield it.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Institutionalization and ‘special housing' At the time of the passage of the ADA, states still had laws on the books requiring people with mental disabilities to be institutionalized. Not even slaves had been so restricted. "Spurred by the eugenics movement," write legal historians Morton Horwitz, Martha Field and Martha Minow, "every state in the country passed laws that singled out people with mental or physical disabilities for institutionalization." The laws made it clear that the state's purpose was not to benefit disabled people but to segregate them from "normal" society. Thus, statutes noted that the disabled were segregated and institutionalized for being a "menace to society" [and] so that "society [might be] relieved from the heavy economic and moral losses arising from the existence at large of these unfortunate persons." "The state of Washington made it a crime for a parent to refuse state-ordered institutionalization," they wrote; "once children were institutionalized, many state laws required parents to waive all custody rights." Justice Thurgood Marshall wrote in the 1985 Cleburne Supreme Court decision (the decision saying that people with mental retardation did not constitute a "discrete and insular" minority) that this "regime of state-mandated segregation and degradation [had] in its virulence and bigotry rivaled, and indeed paralleled, the worst excesses of Jim Crow. Massive custodial institutions were built to warehouse the retarded for life." Yet they continue today. In 1999, the Supreme Court in its Olmstead decision acknowledged that the ADA did in fact require states to provide services to people with disabilities in the "most integrated setting"; but institutionalization continued, because federal funds  -- Medicaid, mostly  -- had a built-in "institutional bias," the result of savvy lobbying over the years by owners of institutions like nursing homes: In no state could one be denied a "bed" in a nursing home, but in only a few states could one use those same Medicaid dollars to get services in one's home that were usually much less expensive. Ongoing battles were waged to close down the institutions, to allow the people in them to live on their own or in small group settings. But parents often fought to keep them open. When they did close, other special facilities cropped up.
Mary Johnson (Make Them Go Away: Clint Eastwood, Christopher Reeve & The Case Against Disability Rights)
Faith is a disability insofar as it constrains you from self-interest; atheism is a disability inasmuch as it shields you from hope. One might see power as a disability, too, for the isolation in which it imprisons those who wield it.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
The current Bishop Prelate of Opus Dei caused a huge outcry in 1997, when he asserted that 90% of disabled children, according to 'scientific research', were born to couples who had 'not entered into marriage in a pure state', and were thus paying for the sinfulness of their parents.
Cyrus Shahrad (Secrets of the Vatican)
In typical circumstances, to have children who won't care for you in your dotage is to be King Lear. Disability changes the reciprocity equation.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
Those, disabled people, however, may be angered by the prospect of interventions that would make them function more like non-disabled people without mitigating the hard reality of their disabling condition. Some may even curse the contraptions that keep them going.
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)