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Meantime, I underwent another echocardiogram and a CT test with dye. Turns out, my condition had zero to do with diet or behavior. I was born with a congenital heart defect known as a bicuspid aortic valve, the valve that transports blood flow from the heart. It’s an inherited form of heart disease in which two of the leaflets of the valve fuse together in the womb. It is the most common cause of heart disease present at birth and affects between 1 and 2 percent of adults. The walls of the aorta are typically strong enough to tolerate the stress of blood flow from the heart. Aneurysms—which develop in about half of all patients with bicuspid valves—occur when the walls weaken. As the weakened wall deteriorates, it leaves behind damaged tissue that grows in size, heightening the risk of a serious tear. The aortic valve is supposed to be three centimeters. Mine? The size of a can of Coca-Cola. So that’s why time was of the essence.
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Jon Dorenbos (Life Is Magic: My Inspiring Journey from Tragedy to Self-Discovery)