Williams Syndrome Quotes

What's talent but the ability to get away with something?

Oftentimes I felt ridiculous giving my seal of approval to what was in reality such a natural thing to do, sort of like reinventing the wheel and extolling its virtues. Had parents' intuition sunk so low that some strange man had to tell modern women that it was okay to sleep with their babies?

America's state religion, is patriotism, a phenomenon which has convinced many of the citizenry that 'treason' is morally worse than murder or rape.

[ME/CFS patients] are more sick and have greater disability than patients with chronic obstructive lung or cardiac disease, and... psychological factors played no role.

All of us risk being taken advantage of to some degree, but what would it be like to go through life this irremediably vulnerable, biologically unable to peel your heart from your sleeve and lock it safely inside?

have the syndrome, Mrs. MacNeil. For example, the untidiness; the pugnacity; behavior that’s socially embarrassing; the automatism; and of course, the seizures that made the bed shake. Usually, that’s followed by either wetting the bed or vomiting, or both,

Regan had the physical syndrome of possession. That much he knew. Of that he had no doubt. For in case after case, irrespective of geography or period of history, the symptoms of possession were substantially constant. Some Regan had not evidenced as yet: stigmata; the desire for repugnant foods; the insensitivity to pain; the frequent loud and irrepressible hiccuping. But the others she had manifest clearly: the involuntary motor excitement; foul breath; furred tongue; the wasting away of the frame; the distended stomach; the irritations of the skin and mucous membrane. And most significantly present were the basic symptoms of the hard core of cases which Oesterreich had characterized as genuine possession: the striking change in the voice and the features, plus the manifestation of a new personality.

The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.

For the last 48 years, myalgic encephalomyelitis (ME) has been formally classified by the World Health Organisation as a neurological disorder but for the last 29 years a group of UK psychiatrists (known as the Wessely School) have denied it exists other than as an aberrant belief; they insist that it is a mental (behavioural) disorder that can be cured by graded exercise and “cognitive re-structuring”.

There should be no single representation in the autism world. Think about this if someone got up on stage and talked about having “non-autistic syndrome” and made the assumption every one with this syndrome is the same we would be in big trouble. That applies to autism as well - it isn't one condition, there are profile differences between Autism and AS and all autism "fruits salads" are different. That is how diverse autism is.

There are, in fact, some people who do not appear to have a built-in preference for their own race. They suffer from something called Williams Syndrome, and lack the usual fear of strangers and the unknown. Researchers at the Central Institute of Mental health in Mannheim, Germany, found that normal white children, aged five to seven, matched good characteristics with photographs of people of their own race and negative characteristics with people of other races. Twenty children with Williams Syndrome did not, matching characteristics without regard to race. The syndrome appears to change the way the amygdalae communicate with the pre-frontal cortex, and it eliminates social inhibition. People with Williams Syndrome are “hypersocial,” and do not see danger in the faces of people who may be threats. They also tend to be mildly retarded and to suffer from other physical complications.

We ache for this feeling, but it’s everywhere. Booze, drugs, sex, sport, art, prayer, music, meditation, virtual reality. Kids, hyperventilating, spinning in circles, feel oneness. Why William James called it the basic lesson of expanded consciousness—just tweak a few knobs and levers in the brain and bam. So the drop, the comedown, it’s not that we miss oneness once it’s gone; it’s that we suddenly can’t feel what we actually know is there. Phantom limb syndrome for the soul.

It was after a Frontline television documentary screened in the US in 1995 that the Freyds' public profile as aggrieved parents provoked another rupture within the Freyd family, when William Freyd made public his own discomfort. 'Peter Freyd is my brother, Pamela Freyd is both my stepsister and sister-in-law,' he explained. Peter and Pamela had grown up together as step-siblings. 'There is no doubt in my mind that there was severe abuse in the home of Peter and Pam, while they were raising their daughters,' he wrote. He challenged Peter Freyd's claims that he had been misunderstood, that he merely had a 'ribald' sense of humour. 'Those of us who had to endure it, remember it as abusive at best and viciously sadistic at worst.' He added that, in his view, 'The False memory Syndrome Foundation is designed to deny a reality that Peter and Pam have spent most of their lives trying to escape.' He felt that there is no such thing as a false memory syndrome.' Criticising the media for its uncritical embrace of the Freyds' campaign, he cautioned: That the False Memory Syndrome Foundation has been able to excite so much media attention has been a great surprise to those of us who would like to admire and respect the objectivity and motive of people in the media. Neither Peter's mother nor his daughters, nor I have wanted anything to do with Peter and Pam for periods of time ranging up to two decades. We do not understand why you would 'buy' into such an obviously flawed story. But buy it you did, based on the severely biased presentation of the memory issue that Peter and Pam created to deny their own difficult reality. p14-14 Stolen Voices: An Exposure of the Campaign to Discredit Childhood Testimony

Maslow used an apt term for this evasion of growth, this fear of realizing one's own fullest powers. He called it the "Jonah Syndrome." He understood the syndrome as the evasion of the full intensity of life: We are just not strong enough to endure more! It is just too shaking and wearing. So often people in...ecstatic moments say, "It's too much," or "I can't stand it," or "I could die"....Delirious happiness cannot be borne for long. Our organisms are just too weak for any large doses of greatness.... The Jonah Syndrome, then, seen from this basic point of view, is "partly a justified fear of being torn apart, of losing control, of being shattered and disintegrated, eve of being killed by the experience." And the result of this syndrome is what we would expect a weak organism to do: to cut back the full intensity of life: For some people this evasion of one's own growth, setting low levels of aspiration, the fear of doing what one is capable of doing, voluntary self-crippling, pseudo-stupidity, mock-humility are in fact defenses against grandiosity... It all boils down to a simple lack of strength to bear the superlative, to open oneself to the totality of experience-an idea that was well appreciated by William James and more recently was developed in phenomenological terms in the classic work of Rudolf Otto. Otto talked about the terror of the world, the feeling of overwhelming awe, wonder, and fear in the face of creation-the miracle of it, the mysterium tremendum et fascinosum of each single thing, of the fact that there are things at all. What Otto did was to get descriptively at man's natural feeling of inferiority in the face of the massive transcendence of creation; his real creature feeling before the crushing negating miracle of Being.

It is the phenomenon made known by the marine biologist Daniel Pauly as the shifting-baseline syndrome. The world as first seen by the child becomes his lifelong standard of excellence, mindless of the fact he is admiring the ruins of his parents. Generation to generation, the natural world decays, the ratchet of perception tightens. Gradually, imperceptibly, big sharks give way to small sharks, small sharks to baitfish, baitfish to jellyfish to slime. On land, the big cats and wolves become feral house cats and coyotes. The wild standard sinks ever lower and becomes ever heavier to raise. Few notice, few care. Eventually, nobody remembers that wolves not long ago freely roamed the Adirondacks, and hence there is mad howling over the suggestion of returning them to their homeland. Southern Californians panic on learning that a cougar track has been discovered on the fringes of their gated neighborhood - mindless that cougars roamed these hills and canyons long before gated communities drew their lines in the chaparral.

For every diabetic, there are three or four people with prediabetes (encompassing the conditions impaired fasting glucose, impaired glucose tolerance, and metabolic syndrome)

 ‘Zona Rosa,” ’ said the Etruscan, “was the persona of Mercedes Purissima Vargas-Gutierrez. She is twenty-six years old and the victim of an environmental syndrome occurring most frequently in the Federal District of Mexico.” His voice was like rain on a thin metal roof now. “Her father is an extremely successful criminal lawyer.” “Then I can find her,” Chia said. “But she would not wish this,” the idoru said. “Mercedes Purissima is severely deformed by the syndrome, and has lived for the past five years in almost complete denial of her physical self.

acne also comes from other experiences. Women with polycystic ovarian syndrome (PCOS), who demonstrate exaggerated insulin responses and higher blood sugars, are strikingly prone to acne.11 Medications that reduce insulin and glucose in women with PCOS, such as the drug metformin, reduce acne.12 While oral diabetes medications are usually not administered to children, it has been observed that young people who take oral diabetes medications that reduce blood sugar and insulin do experience less acne.13

And of course anyone who could see him here now, with his fever and his sleeping bags, his eyephones and his cellular data port and his bottle of cooling piss, would think he was crazy too. But he isn’t. He knows he isn’t, in spite of everything. He has the syndrome now, the thing that came after every test subject from that Gainesville orphanage, but he isn’t crazy. Just obsessed. And the obsession has its own shape in his head, its own texture, its own weight. He knows it from himself, can differentiate, so he goes back to it whenever he needs to and checks on it. Monitors it. Makes sure it still isn’t him. It reminds him of having a sore tooth, or the way he felt once when he was in love and didn’t want to be. How his tongue always found the tooth, or how he’d always find that ache, that absence in the shape of the beloved. But

Apples: Provide living water to support the liver’s hydration capabilities, so it can store the water and then release it back into the bloodstream when dehydration or dirty blood syndrome occurs. The fruit acids in apples help cleanse the liver by dispersing toxic films that build up inside its storage banks. Apples starve out bacteria, yeast, mold, other funguses, and viruses from the intestinal tract and liver. Great for dissolving gallstones.

people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom (their voluntary muscles do not work properly and are exquisitely painful after exercise)

She traced the dragon’s body on his biceps where it transitioned into rope. “I just thought it would be more difficult. After all this time, the heartache, the waiting, the despairing and giving up, the pure pissed-offness of dealing with near misses…" She blew out a breath. “And there it is. With you, easy as breathing. ‘I’m in love with you.’ You said it and meant it. It changes the universe, but the way throwing a stone in a pond does. All those ripples. It's…amazing.” She frowned and cocked her head. “There should at least be dramatic music.” "I can retract it if you want. Brood for a while, play commitment paranoia games, alienate you so we break up, sort of, and then I chase you down before you make some monumental decision, like moving back to New York, or signing up for a three year stint in the merchant marines. Then we can have a big makeup scene.“ She pursed her lips. "Complete with dramatic music.” "Absolutely. If I could afford it, I’d hire John Williams to come up with the score.“ "You’d do all that for me?” "Hell, no.” He snorted, puffing a short, playful breath against her. “I’d tie you up and keep you in my basement until you contracted Stockholm syndrome and couldn’t breathe without me.“ She tipped her head back, sobering. "Sometimes, it feels like I can’t. Crazy, right?” He put his mouth on hers and took her air in the best kind of way, all while giving it back to her. at her, boyishly appealing, but then sobered. "We’re normal, extraordinary people,” he said. “It took us a while, but we always knew what it would look like when it happened. The simplicity of it is what makes it extraordinary. A tadpole gets legs and walks on land, and evolution begins. All in a simple blink, the whole world changes.

People with Williams Syndrome are “hypersocial,” and do not see danger in the faces of people who may be threats.43 They also tend to be mildly retarded and to suffer from other physical complications.

Even here, however, the element of mythology tinges our picture of the junkie. Heroin withdrawal is, indeed, terrible, but it is not necessarily the worst form of drug withdrawal. Some authorities suspect that withdrawal from barbiturate addiction is even more stressful, and this is indicated by the fact that there are hardly any records of heroin junkies actually dying of withdrawal syndrome (although they often wish for death). Barbiturate addicts, however, often die in the same circumstances, unless they receive careful medical attention. (William S. Burroughs has noted that his one barbiturate withdrawal was more agonizing than his 11 heroin withdrawals.)

Provided you can tolerate the withdrawal (while unpleasant, the withdrawal syndrome is generally harmless aside from the rancor you incur from your irritated spouse, friends, and co-workers), hunger and cravings diminish, caloric intake decreases, mood and well-being increase, weight goes down, wheat belly shrinks.

The concept is to establish a welcoming structure and routine by assigning students to tables and lunchtime discussion topics based upon their mutual (or similar) passions. If possible, the tables could be moved off to one side of the cafeteria, away from the distracting noise and visuals, to help foster successful conversations.

William James said near the end of the nineteenth century, “No mental modification ever occurs which is not accompanied or followed by a bodily change.” A hundred years later, Norman Cousins summarized the modern view of mind-body interactions with the succinct phrase “Belief becomes biology.”6 That is, an external suggestion can become an internal expectation, and that internal expectation can manifest in the physical body. While the general idea of mind-body connections is now widely accepted, forty years ago it was considered dangerously heretical nonsense. The change in opinion came about largely because of hundreds of studies of the placebo effect, psychosomatic illness, psychoneuroimmunology, and the spontaneous remission of serious disease.7 In studies of drug tests and disease treatments, the placebo response has been estimated to account for between 20 to 40 percent of positive responses. The implication is that the body’s hard, physical reality can be significantly modified by the more evanescent reality of the mind.8 Evidence supporting this implication can be found in many domains. For example: • Hypnotherapy has been used successfully to treat intractable cases of breast cancer pain, migraine headache, arthritis, hypertension, warts, epilepsy, neurodermatitis, and many other physical conditions.9 People’s expectations about drinking can be more potent predictors of behavior than the pharmacological impact of alcohol.10 If they think they are drinking alcohol and expect to get drunk, they will in fact get drunk even if they drink a placebo. Fighter pilots are treated specially to give them the sense that they truly have the “right stuff.” They receive the best training, the best weapons systems, the best perquisites, and the best aircraft. One consequence is that, unlike other soldiers, they rarely suffer from nervous breakdowns or post-traumatic stress syndrome even after many episodes of deadly combat.11 Studies of how doctors and nurses interact with patients in hospitals indicate that health-care teams may speed death in a patient by simply diagnosing a terminal illness and then letting the patient know.12 People who believe that they are engaged in biofeedback training are more likely to report peak experiences than people who are not led to believe this.13 Different personalities within a given individual can display distinctly different physiological states, including measurable differences in autonomic-nervous-system functioning, visual acuity, spontaneous brain waves, and brainware-evoked potentials.14 While the idea that the mind can affect the physical body is becoming more acceptable, it is also true that the mechanisms underlying this link are still a complete mystery. Besides not understanding the biochemical and neural correlates of “mental intention,” we have almost no idea about the limits of mental influence. In particular, if the mind interacts not only with its own body but also with distant physical systems, as we’ve seen in the previous chapter, then there should be evidence for what we will call “distant mental interactions” with living organisms.

The Jockey Syndrome has been the primary mechanism in American sports for tilting the ostensibly level playing field of sport away from equal opportunity and toward white supremacy.

18 Jail-Time He was in Gentry's loft. He was watching Cherry do nurse-things to Gentry. Cherry looked over at him from where she sat on the edge of Gentry's bed. 'How y'doin', Slick?' 'Okay... I'm okay.' 'Remember me asking you before?' He was looking down at the face of the man Kid Afrika called the Count. Cherry was fiddling with something on the stretcher's superstructure, a bag of fluid the color of oatmeal. 'How y'feel, Slick?' 'Feel okay.' 'You're not okay. You keep for-' He was sitting on the floor of Gentry's loft. His face was wet. Cherry was kneeling beside him, close, her hands on his shoulders. 'You did time?' He nodded. 'Chemo-penal unit?' 'Yeah.' 'Induced Korsakov's?' He - 'Episodes?' Cherry asked him. He was sitting on the floor in Gentry's loft. Where was Gentry? 'You get episodes like this? Short term-memory goes?' How did she know? Where was Gentry? 'What's the trigger?' 'What triggers the syndrome, Slick? What kicks you into jail-time?' He was sitting on the floor in Gentry's loft and Cherry was practically on top of him. 'Stress,' he said, wondering how she knew about that. 'Where's Gentry?' 'I put him to bed.' 'Why?' 'He collapsed. When he saw that thing...' 'What thing?' Cherry was pressing a pink derm against his wrist. 'Heavy trank,' she said. 'Maybe get you out of it...' 'Out of what?' She sighed. 'Never mind.

Humans have eaten eggs for thousands of years. They were once an amazing survival food for us to eat in areas of the planet where there were no other food options at certain times of year. That changed with the turn of the 20th century, though—when the autoimmune, viral, bacterial, and cancer epidemics began. The average person eats over 350 eggs a year. That includes whole eggs and also all the foods with hidden egg ingredients. If you’re struggling with any illness, such as Lyme disease, lupus, chronic fatigue syndrome, migraines, or fibromyalgia, avoiding eggs can give your body the support it needs to get better. The biggest issue with eggs is that they’re a prime food for cancer and other cysts, fibroids, tumors, and nodules. Women with polycystic ovary syndrome (PCOS), breast cancer, or other cysts and tumors should avoid eggs altogether. Also, if you’re trying to prevent cancer, fight an existing cancer, or avoid a cancer relapse, steer clear. Removing eggs from your diet completely will give you a powerful fighting chance to reverse disease and heal.

The more I came to understand Williams syndrome and to meet a wide range of people who had it, the more I saw that the social impulses that partly defined the disorder weren't so clearly a gift. Their unique combination of gregariousness and guilelessness exposed a paradox in Western culture: we say we like extroverts, but when an extreme extrovert comes barrelling toward us with open arms, we shy away. It's not just warmth or openness that we value; these traits must be coupled with a more sophisticated sense of when to turn them on and off. People with Williams syndrome never turn them off. They have the social drive but not the cognitive ability to use it effectively.

The cruel irony of the disorder is that the very people who crave social connection the most aren't well adapted to get it. Their insatiable drive to connect is, in itself, what ultimately pushes people away.

They hold up a mirror to the part of ourselves we're trying our best to conceal: that utterly defenseless, deeply tender inner part that yearns for connection and kindness- and can be so easily crushed.

There is a wealth of evidence that people with Williams have a much stronger emotional response to music than the average person does. Even young children with Williams who can't talk yet suddenly start crying when they hear a sad song.

Neurobiologists have traced the apparent absence of social fear to abnormalities in the amygdalae of people with Williams. These almond-shaped clusters of neuclei, buried deep in the brain, help process emotions and regulate our fight-or-flight response to danger. In people with Williams, they react more dramatically than normal to images of disasters, such as fires, or plane crashes, which researchers think may explain why people with Williams often develop anxiety disorders. Conversely, they respond with abnormal indifference to images of people making fearful or angry facial expressions. The amygdalae of people without Williams tend to be extremely sensitive to those expressions since we have evolved to see them as warnings. Getting to close to a hostile person, or an aggressive ape, probably cost many of our ancestors their lives. Seeing a look of panic on someone else's face and starting to run probably saved the lives of many more.

Abrupt cessation of grain consumption, and thereby cessation of gliadin-derived opiates (exorphins), especially from modern wheat, yields an opiate withdrawal syndrome: nausea, headache, fatigue, and depression that typically lasts a week.