Rare Disease Day Quotes

He started to apologize for the fact that there were no chairs in his son's room--only floor cushions--but I quickly gave him to believe that for me this was little short of a godsend. (In fact, I think I said I hated chairs. I was so nervous that if he had informed me that his son's room was flooded, night and day, with a foot of water, I probably would have let out a little cry of pleasure. I probably would have said I had a rare foot disease, one that required my keeping my feet wet eight hours daily.)

If you don’t drink coffee, you should think about two to four cups a day. It can make you more alert, happier, and more productive. It might even make you live longer. Coffee can also make you more likely to exercise, and it contains beneficial antioxidants and other substances associated with decreased risk of stroke (especially in women), Parkinson’s disease, and dementia. Coffee is also associated with decreased risk of abnormal heart rhythms, type 2 diabetes, and certain cancers.12, 13 Any one of those benefits of coffee would be persuasive, but cumulatively they’re a no-brainer. An hour ago I considered doing some writing for this book, but I didn’t have the necessary energy or focus to sit down and start working. I did, however, have enough energy to fix myself a cup of coffee. A few sips into it, I was happier to be working than I would have been doing whatever lazy thing was my alternative. Coffee literally makes me enjoy work. No willpower needed. Coffee also allows you to manage your energy levels so you have the most when you need it. My experience is that coffee drinkers have higher highs and lower lows, energywise, than non–coffee drinkers, but that trade-off works. I can guarantee that my best thinking goes into my job, while saving my dull-brain hours for household chores and other simple tasks. The biggest downside of coffee is that once you get addicted to caffeine, you can get a “coffee headache” if you go too long without a cup. Luckily, coffee is one of the most abundant beverages on earth, so you rarely have to worry about being without it. Coffee costs money, takes time, gives you coffee breath, and makes you pee too often. It can also make you jittery and nervous if you have too much. But if success is your dream and operating at peak mental performance is something you want, coffee is a good bet. I highly recommend it. In fact, I recommend it so strongly that I literally feel sorry for anyone who hasn’t developed the habit.

Horned humans are not unknown to medical science as there is a rare skin disease, which goes by the name of ‘Cornu Cutaneum’, a cutaneous growth, which resembles a horn and grows from the scalp.

He started to apologize for the fact that there were no chairs in his son's room -only floor cushions- but I quickly gave him to believe that for me this was little short of a godsend. (In fact, I think I said I hated chairs. I was so nervous that if he had informed me that his son's room was flooded, night and day, with a foot of water, I probably would have let out a little cry of pleasure. I probably would have said I had a rare foot disease, one that required my keeping my feet wet eight hours daily.)

Josie suffers from a very rare disease," he said. "It's caused by a genetic mutation. But the good news is that researchers are working on a gene therapy that could correct the mutation. It's still in the experimental stage, but there's a good chance it'll work. If it does, Josie could be cured." And I wondered, as I often did these days, whether Artificial Friends could help with such work.

There is one in this tribe too often miserable - a child bereaved of both parents. None cares for this child: she is fed sometimes, but oftener forgotten: a hut rarely receives her: the hollow tree and chill cavern are her home. Forsaken, lost, and wandering, she lives more with the wild beast and bird than with her own kind. Hunger and cold are her comrades: sadness hovers over, and solitude besets her round. Unheeded and unvalued, she should die: but she both lives and grows: the green wilderness nurses her, and becomes to her a mother: feeds her on juicy berry, on saccharine root and nut. There is something in the air of this clime which fosters life kindly: there must be something, too, in its dews, which heals with sovereign balm. Its gentle seasons exaggerate no passion, no sense; its temperature tends to harmony; its breezes, you would say, bring down from heaven the germ of pure thought, and purer feeling. Not grotesquely fantastic are the forms of cliff and foliage; not violently vivid the colouring of flower and bird: in all the grandeur of these forests there is repose; in all their freshness there is tenderness. The gentle charm vouchsafed to flower and tree, - bestowed on deer and dove, - has not been denied to the human nursling. All solitary, she has sprung up straight and graceful. Nature cast her features in a fine mould; they have matured in their pure, accurate first lines, unaltered by the shocks of disease. No fierce dry blast has dealt rudely with the surface of her frame; no burning sun has crisped or withered her tresses: her form gleams ivory-white through the trees; her hair flows plenteous, long, and glossy; her eyes, not dazzled by vertical fires, beam in the shade large and open, and full and dewy: above those eyes, when the breeze bares her forehead, shines an expanse fair and ample, - a clear, candid page, whereon knowledge, should knowledge ever come, might write a golden record. You see in the desolate young savage nothing vicious or vacant; she haunts the wood harmless and thoughtful: though of what one so untaught can think, it is not easy to divine. On the evening of one summer day, before the Flood, being utterly alone - for she had lost all trace of her tribe, who had wandered leagues away, she knew not where, - she went up from the vale, to watch Day take leave and Night arrive. A crag, overspread by a tree, was her station: the oak-roots, turfed and mossed, gave a seat: the oak-boughs, thick-leaved, wove a canopy. Slow and grand the Day withdrew, passing in purple fire, and parting to the farewell of a wild, low chorus from the woodlands. Then Night entered, quiet as death: the wind fell, the birds ceased singing. Now every nest held happy mates, and hart and hind slumbered blissfully safe in their lair. The girl sat, her body still, her soul astir; occupied, however, rather in feeling than in thinking, - in wishing, than hoping, - in imagining, than projecting. She felt the world, the sky, the night, boundlessly mighty. Of all things, herself seemed to herself the centre, - a small, forgotten atom of life, a spark of soul, emitted inadvertent from the great creative source, and now burning unmarked to waste in the heart of a black hollow. She asked, was she thus to burn out and perish, her living light doing no good, never seen, never needed, - a star in an else starless firmament, - which nor shepherd, nor wanderer, nor sage, nor priest, tracked as a guide, or read as a prophecy? Could this be, she demanded, when the flame of her intelligence burned so vivid; when her life beat so true, and real, and potent; when something within her stirred disquieted, and restlessly asserted a God-given strength, for which it insisted she should find exercise?

People don’t line up in medical school to get intimate with AIDS, parasitic worms, and flesh-eating bacteria. The natural human impulse is to pull away and protect ourselves, and to think we’re safe because we’re not in some jungle, waiting for the next Ebola outbreak. But the truth is, in the big-city HMO where I work, I often get paged twenty or thirty times a day to size up infectious diseases that come from what we eat, what we breathe, what we touch, and where we go. The rare and mysterious cases I see walk into my hospital every day.

I have heard people covering their sins by saying they are not religious, but I tell you this; it is better to love God Almighty and live a healed and protected long life that knows and honours God Almighty instead of groaning in pain and living hopelessly troubled lives because of incurable diseases. Be humble and open your heart to Jesus Christ and find mercy, stability, peace and salvation for you and your children. Do not live a lost life in this day and age where disasters, terminal, rare and chronic illnesses are devouring people's lives. Be wise and seek the Lord God Almighty for healing, cleansing and divine protection.Row your boat of life in Christ and move to the top

Like it or not, we are slightly fat, furless, bipedal primates who crave sugar, salt, fat, and starch, but we are still adapted to eating a diverse diet of fibrous fruits and vegetables, nuts, seeds, tubers, and lean meat. We enjoy rest and relaxation, but our bodies are still those of endurance athletes evolved to walk many miles a day and often run, as well as dig, climb, and carry. We love many comforts, but we are not well adapted to spend our days indoors in chairs, wearing supportive shoes, staring at books or screens for hours on end. As a result, billions of people suffer from diseases of affluence, novelty, and disuse that used to be rare or unknown. We then treat the symptoms of these diseases because it is easier, more profitable, and more urgent than treating their causes, many of which we don’t understand anyway. In doing so, we perpetuate a pernicious feedback loop—dysevolution—between culture and biology. Maybe

THE DIET-GO-ROUND LOW-CALORIE DIETS Diets began by limiting the number of calories consumed in a day. But restricting calories depleted energy, so people craved high-calorie fat and sugar as energizing emergency fuel. LOW-FAT DIETS High-calorie fats were targeted. Restricting fat left people hungry, however, and they again craved more fats and sugars. FAKE FAT Synthetic low-cal fats were invented. People could now replace butter with margarine, but without calories it didn’t deliver the energy and satisfaction people needed. They still craved real fat and sugar. THE DIET GO-ROUND GRAPEFRUIT DIETS Banking on the antioxidant and fat-emulsifying properties of grapefruit, dieters could eat real fat again, as long as they ate a grapefruit first. But even grapefruits were no match for the high-fat American diet. SUGAR BLUES The more America restricted fat in any way to lose weight, the more the body rebounded by storing fat, and craving and bingeing on fats and sugars. Sugar was now to blame! SUGAR FREE High-calorie sugars were replaced with no-calorie synthetic sweeteners. The mind was happy but the body was starving as diet drinks replaced meals. People eventually binged on excess calories from other sources, such as protein. HIGH-PROTEIN DIETS The new diet let people eat all the protein they wanted without noticing the restriction of carbs and sugar. Energy came from fat stores and dieters lost weight. But without carbs, they soon experienced low energy and craved and binged on carbs. HIGH-CARB DIETS Carb-craving America was ripe for high-carb diets. You could now lose weight and eat up to 80 percent carbs—but they had to be slow-burning, complex carbs. Fast-paced America was addicted to fast energy, however, and high-carb diets soon became high-sugar diets. LOW CHOLESTEROL The combination of sugar, fat, and stress raised cholesterol to dangerous levels. The solution: Reemphasize complex carbs and reduce all animal fats. Once again, dieters felt restricted and began craving and bingeing on fats and sugars. EXERCISE Diets weren’t working, so exercise became the cholesterol cure-all. It worked for a time, but people didn’t like to “work out.” Within 25 years, no more than 20 percent of Americans would do it regularly. VEGETARIANISM With heart disease and cancers on the rise, red meat was targeted. Vegetarianism came into fashion but was rarely followed correctly. People lived on pasta and bread, and blood sugars and energy levels went out of control. GRAZING High-carb diets were causing energy and blood sugar problems. If you ate every 2 hours, energy was propped up and fast-paced America could keep speeding. Fatigue became chronic fatigue, however, with depression and anxiety to follow. FOOD COMBINING By eating fats, proteins, and carbs separately, digestion improved and a host of digestive, energy, and weight problems were helped temporarily. But the rules for what you could eat together led to more frequent small meals. People eventually slipped back to their old ways and old problems. THE ZONE Aimed at fixing blood sugar levels, this diet balanced intake of proteins, fats, and carbs. It worked, but again restricted certain kinds of carbs, so it didn’t last, and America was again craving emergency fuel. COFFEE TO THE RESCUE Exhausted and with a million things to do, America turned to legal stimulants like coffee for energy. But borrowed energy must be paid back, and many are still living in debt. FULL CIRCLE Frustrated, America is turning to new crash diets and a wave of high-protein diets. It is time to break this man-made cycle with the simplicity of nature’s own 3-Season Diet. If you let nature feed you, you will not starve or crave anything.

Another risk of long-term food storage is contamination. Aflatoxins, for example, are harmful compounds produced by funguses that thrive on cereals, nuts, and oilseeds and that can cause liver damage, cancer, and neurological problems.32 Since hunter-gatherers don’t store foods for more than a day or two, they rarely if ever encounter these toxins. An additional and very significant health problem caused by farmers’ diets is due to lots of starch. Hunter-gatherers

Coffee If you don’t drink coffee, you should think about two to four cups a day. It can make you more alert, happier, and more productive. It might even make you live longer. Coffee can also make you more likely to exercise, and it contains beneficial antioxidants and other substances associated with decreased risk of stroke (especially in women), Parkinson’s disease, and dementia. Coffee is also associated with decreased risk of abnormal heart rhythms, type 2 diabetes, and certain cancers.12, 13 Any one of those benefits of coffee would be persuasive, but cumulatively they’re a no-brainer. An hour ago I considered doing some writing for this book, but I didn’t have the necessary energy or focus to sit down and start working. I did, however, have enough energy to fix myself a cup of coffee. A few sips into it, I was happier to be working than I would have been doing whatever lazy thing was my alternative. Coffee literally makes me enjoy work. No willpower needed. Coffee also allows you to manage your energy levels so you have the most when you need it. My experience is that coffee drinkers have higher highs and lower lows, energywise, than non–coffee drinkers, but that trade-off works. I can guarantee that my best thinking goes into my job, while saving my dull-brain hours for household chores and other simple tasks. The biggest downside of coffee is that once you get addicted to caffeine, you can get a “coffee headache” if you go too long without a cup. Luckily, coffee is one of the most abundant beverages on earth, so you rarely have to worry about being without it. Coffee costs money, takes time, gives you coffee breath, and makes you pee too often. It can also make you jittery and nervous if you have too much. But if success is your dream and operating at peak mental performance is something you want, coffee is a good bet. I highly recommend it. In fact, I recommend it so strongly that I literally feel sorry for anyone who hasn’t developed the habit. Pleasure

Our days have changed from noticing the outside to thinking on the inside. If this change truly protected us, then it would be adaptive. But only in rare situations are our negative thoughts and self-doubt helpful. Mostly, the resulting stress from these thoughts peels away the fragile scab of healing from old hurts, pushes compassion and forgiveness into the attic, and predisposes us to many chronic medical conditions, including diabetes, hypertension, cardiovascular disease, inflammatory conditions, chronic infections, addictions, and perhaps even early mortality.720-723 Neuroplasticity, our brain’s ability to change with experience, worsens the toxic effects of unhelpful ruminations.

Now look at verse 22.” Ibrahim continued reading. “‘With pestilence and with blood I will enter into judgment with him; and I will rain on him and on his troops, and on the many peoples who are with him, a torrential rain, with hailstones, fire and brimstone.’” “Here the Lord talks of the judgment he will bring against Gog, the Russian dictator, and his allies. This will be the most terrifying sequence of events in human history to date. On the heels of a supernatural global earthquake that will undoubtedly take many lives will come a cascading series of other catastrophes. Pandemic diseases, for example, will sweep through the troops of the Russian coalition. And the attackers will face other judgments such as have rarely been seen since the cataclysmic showdown in Egypt between Moses and Pharaoh. Devastating hailstorms will hit these enemy forces and their supporters. So, too, will apocalyptic firestorms that will call to mind the terrible judgment of Sodom and Gomorrah. The Scriptures indicate that the firestorms will be geographically widespread and exceptionally deadly.” Birjandi took a sip of tea as he let the implications of the words sink in. “Think about it, gentlemen. This suggests that targets throughout Russia and the former Soviet Union, and perhaps throughout some of Russia’s allies, will be supernaturally struck on this day of judgment and partially consumed. These could be limited to nuclear missile silos, military bases, radar installations, defense ministries, intelligence headquarters, and other

Don’t fuck with an old lady, you shitty kid,” I yelled. “I have a lifetime of asshole tricks up my sleeve. They’re all right behind my Kleenex and my emergency Advil.” Mind you, I was doing all this in no bra, sweatpants, and leather slippers with shearling lining. “Sara,” I asked, “when we all get together for dinner in a restaurant, do you think other people see a group of old people having dinner instead of—us?” “Yeah,” she said after she thought for a moment. “Yeah, I think they see old people.” And that’s a trip, because when I look at Sara, I still see Sara. I see Sara as she was at twenty-seven. She hasn’t changed to me. Most of my friends haven’t changed, in my opinion. Jim lost his hair, but so what? Lots of guys shave their heads. Sandra has a couple of gray hairs in her long, jet-black hair. And yet, some of our friend group has died. From heart attacks. Pancreatitis. Liver failure. Drug overdoses. Suicides. Cancer. Aneurysms. We were stunned by each of those deaths. Honestly, drug overdoses and suicides are almost easier to take than pancreatitis and heart attacks, because those diseases rarely happen to kids our age. And then one day, your body stops working. It can be sudden, like throwing out your back while shaving your legs, and it just never goes back to normal. You live the rest of your days with a “bad back.” Then there’s the opposite; there’s the creep. In your thirties, a nerve pings in your hand, like someone has plucked a rubber band inside it. It’s startling and odd. In another five years, your hands start to tingle a little bit when you’re typing, and you buy a pair of hand braces to wear at night. In the next five years, you can’t open a jar, and in the five years after that, they suddenly fall asleep and you have to elicit a hearty round of applause to no one to wake them back up and make them functional again. And no one prepared me for that. I noticed that my nana’s fingers were oddly formed, racked with arthritis, but she never explained that they hadn’t always been like that. She never told me that once, a long time ago, she had hands just like mine, until she felt that first ping. And that’s the weird thing. As a young person, you assume all old people were just always that way—unfortunate. They came like that. And, as an old person, you think that young people surely understand that yesterday, you were just like them.

YELENA ANDREYEVNA: It’s not a question of trees, or medicine… You see, my dear, it’s talent! And do you know what talent means? Courage, a free mind, a broad sweep… He plants a little tree and he can foretell what will come of it in a thousand years, he’s already dreaming of the happiness of mankind. Such men are rare, to be loved… He drinks, he’s often a bit coarse – but what harm in that? A man with talent in Russia can’t be nice and clean. Think yourself what kind of life this doctor has! Impassable mud on the roads, frosts, snow-storms, huge distances, crude and primitive people, everywhere poverty, disease, and in these circumstances it’s hard for someone struggling and fighting from day to day to get to forty and remain nice and sober…

our ancestors consumed an average of 11 g of potassium per day and only 0.7 g of sodium. Today, the situation is reversed: We eat about 4 g of sodium per day and only 2.5 g of potassium. That is bad for our body, particularly in the long term and mainly for our heart and blood vessels. When the relationship between sodium and potassium is out of balance, it results in a higher risk of various aging-related diseases, such as high blood pressure, which in turn can dramatically increase the risk of heart attack or stroke. In many primitive tribes across the world high blood pressure is very rare, even in the elderly. One reason is the high intake of potassium via their diet.

A kind of sundering was taking place within me: There was the good-natured patient, young and spunky and cheerful, who raged courageously against her disease, determined to make the best of her terrible circumstances, and this new version, envious, short-fused, sleeping sixteen hours a day and rarely ever leaving her room. On Sunday nights, when Will packed his bags, preparing to leave Saratoga for the workweek, I wanted to put on a happy, supportive face. I tried. But as the weeks passed and I got sicker, it grew harder. It was unfair of me to resent him for going—not least because I was the one who had convinced him to take the job—but an anger unlike any I’d experienced before was building inside me, contained for now, but threatening to consume everything around me. Will, the social worker, everyone else who was out there participating in the world—they weren’t the enemy, the disease was. I knew that, but with each day, each dream deferred, it got harder and harder to tell the difference.

If you are otherwise in good health and you desire animal products, you can chop a small amount into small pieces and add it to any soup, vegetable, or bean dish to enhance flavor. Don’t eat more than 1–2 ounces per day. If you decide to use small amounts of animal products in your diet, then your animal product consumption should be a mix of fish and wild fowl. You should avoid eating red meats and cheese, or only consume these very rarely. I generally advise that the intake of all animal products combined should not exceed 8–10 ounces a week for a woman and 10–12 ounces a week for a man. Avoid all processed, cured, and barbecued meats and full-fat dairy.

In 1848, the twenty-five-year-old Gage was working on a railroad bed when he was distracted by some activity behind him. As he turned his head, the large rod he was using to pack powder explosives struck a rock, caused a spark and the powder exploded. The rod flew up through his jaw, traveled behind his eye, made its way through the left-hand side of his brain and shot out the other side. Despite his somewhat miraculous survival, Gage was never the same again. The once jovial, kind young man became aggressive, rude and prone to swearing at the most inappropriate times. As a toddler, Alonzo Clemons also suffered a traumatic head injury, after falling onto the bathroom floor. Left with severe learning difficulties and a low IQ, he was unable to read or write. Yet from that day on he showed an incredible ability to sculpt. He would use whatever materials he could get his hands on—Play-Doh, soap, tar—to mold a perfect image of any animal after the briefest of glances. His condition was diagnosed as acquired savant syndrome, a rare and complex disorder in which damage to the brain appears to increase people’s talent for art, memory or music. SM, as she is known to the scientific world, has been held at gunpoint and twice threatened with a knife. Yet she has never experienced an ounce of fear. In fact, she is physically incapable of such emotion. An unusual condition called Urbach-Wiethe disease has slowly calcified her amygdalae, two almond-shaped structures deep in the center of the brain that are responsible for the human fear response. Without fear, her innate curiosity sees her approach poisonous spiders without a second’s thought. She talks to muggers with little regard for her own safety. When she comes across deadly snakes in her garden, she picks them up and throws them away.

With the Stellah Mupanduki healing books breathed by the Holy Spirit of a Sovereign God, you will find inner peace and your hope is fulfilled. God is above all powers. Do not hesitate to read and find your healing in this day and age. Get rid of hopeless thoughts and embrace these healing books given to you by God Almighty himself and be healed…There is no doubt about this…Hallelujah...Sacred Writing…So that you are healed...Anointed Readers

People laugh about my poems my poems are elegant enough they don’t need Cheng Hsuan’s comments much less Mao Heng’s explanations I don’t mind few understand me those who know one’s voice are rare if we had no fa or sol my disease would surely spread one day I’ll meet someone with eyes then my poems will plague the world

Most people today rarely step outside their comfort zones. We are living progressively sheltered, sterile, temperature-controlled, overfed, underchallenged, safety-netted lives. And it’s limiting the degree to which we experience our “one wild and precious life,” as poet Mary Oliver put it. But a radical new body of evidence shows that people are at their best—physically harder, mentally tougher, and spiritually sounder—after experiencing the same discomforts our early ancestors were exposed to every day. Scientists are finding that certain discomforts protect us from physical and psychological problems like obesity, heart disease, cancers, diabetes, depression, and anxiety, and even more fundamental issues like feeling a lack of meaning and purpose.