Myotonic Dystrophy Quotes

Her words felt like a new beginning, a turning of a page, and, ominously, rang like the beginning of a final chapter.

I haven’t been able to pray with the same unquestioned simplicity of hope since Dustin passed. My childhood ended the day my brother died. The naive hope that a miracle would save him, that he would one day walk, that a disease was a blessing in my family – that hope died with him.

I knew you’d know,” Mom said in a stabilizing, more confident, yet still husky voice. A smile broke across her face in the simple relief of her only remaining child not being shocked by the death of her youngest. She smiled genuinely, perhaps for the first time since cradling Dustin’s body as the fire truck alarm blared towards the house in response to her 911 call. Her son had died that morning in her arms as she tried resuscitating him with her own breath, but the first indication of her daughter’s reaction was calm. The child raised to expect death met the first moments of the news with seeming serenity.