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I encourage readers recovering from a kidney transplant to heed the advice of their medical practitioners.
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Gregory S. Works (Triumph: Life on the Other Side of Trials, Transplants, Transition and Transformation)
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It is not a crime to commit First Degree Writing
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Temple Emmet Williams (Warrior Patient: How to Beat Deadly Diseases With Laughter, Good Doctors, Love, and Guts)
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A dialysis patient's life is hard. Laugh harder.
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Bob Northam
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Maj Thapa rose to the rank of Lieutenant Colonel and served till he retired. He continued to attend almost all the Republic Day parades from 1964 to 2004. Sick and undergoing dialysis for kidney failure in Delhi, Lt Col Thapa would slip in and out of consciousness in his last year. Poornima, who was taking care of him, pleaded with him to not attend the parade that year, but he refused gently yet firmly. ‘When I wear my uniform and go for the parade, I represent my soldiers; those men who fought a war with me. I cannot let them down,’ he told her. Though he could hardly stand for long or even stay alert, he put on his uniform, pinned on his PVC, tilted his Gorkha hat at the perfect angle and went for the parade, remembers Poornima. Through sheer willpower, he managed to stand in the jeep till he had saluted the President. After that, he sat down. That would be the last Republic Day parade he would attend. On 5 September 2005, Lt Col Thapa died of kidney failure. He was 77 years old.
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Rachna Bisht Rawat (The Brave: Param Vir Chakra Stories)
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In March 2002, the National Academy of Sciences, a private, nonprofit society of scholars, released a high-profile report documenting the unequivocal existence of racial bias in medical care, which many thought would mark a real turning point. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care was so brutal and damning that it would seem impossible to turn away. The report, authored by a committee of mostly white medical educators, nurses, behavioral scientists, economists, health lawyers, sociologists, and policy experts, took an exhaustive plunge into more than 480 previous studies. Because of the knee-jerk tendency to assume that health disparities were the end result of differences in class, not race, they were careful to compare subjects with similar income and insurance coverage. The report found rampant, widespread racial bias, including that people of color were less likely to be given appropriate heart medications or to undergo bypass surgery or receive kidney dialysis or transplants. Several studies revealed significant racial differences in who receives appropriate cancer diagnostic tests and treatments, and people of color were also less likely to receive the most sophisticated treatments for HIV/AIDS. These inequities, the report concluded, contribute to higher death rates overall for Black people and other people of color and lower survival rates compared with whites suffering from comparable illnesses of similar severity.
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Linda Villarosa (Under the Skin)
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Another possible solution would be to think about kidney exchange in a global way. There is virtually no kidney transplantation, and little or no access to dialysis, in places such as Nigeria, Bangladesh, and Vietnam, where kidney failure is a death sentence. Presumably, many kidney patients there have willing donors, but in a country such as Nigeria, for example, where fewer than 150 transplants occurred from 2000 to 2010, that willingness doesn’t do patients any good. But suppose we were to offer them access to American hospitals, at no cost? That may sound expensive, but it wouldn’t have to be—indeed, it could be self-financing. Remember that removing an American patient from dialysis saves Medicare a quarter of a million dollars. That’s more than enough to finance two kidney transplants, as well as postsurgical care and medicines. That money could pay for an exchange between an American patient-donor pair and, say, a Nigerian pair.
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Alvin E. Roth (Who Gets What — and Why: The New Economics of Matchmaking and Market Design)
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National data said it wasn’t just our imagination or where we sat. I soon learned that though Blacks and Whites each made up a third of the kidney transplant waiting list at that time, Whites received every other donated kidney and Blacks received every fifth one, which meant that on average, Blacks waited nearly two years longer than Whites for a kidney transplant. As a primary care doctor at the time, not aware of the realities of nephrology, I didn’t know that two years could mean never having to be on dialysis at all. That two years could be the difference between surviving in body and spirit. Or not.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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Robert had been under the care of a nephrologist for years prior to reaching end-stage kidney disease but didn’t hear about kidney transplant as an option until months after starting dialysis. Now in all fairness, few nephrologists would begin a conversation about kidney replacement options before the patient’s kidney function—their estimated glomerular filtration rate or eGFR, how fast the kidneys filter the blood—had fallen to 25 milliliters per minute, and the patient cannot be placed on the kidney transplant waiting list until kidney function reaches 20. The medical world tends to simplify the explanation of eGFR to patients as “percent function,” though 100 percent function of normal kidneys in a young person can be closer to 125 milliliters per minute, so a more accurate and easier-to-understand explanation would be that we start out with about half a cup, or 25 teaspoons, of blood flowing through our kidneys’ filters every minute. Using this analogy, nephrologists usually start talking about kidney replacement options when it has dropped to 5 teaspoons a minute, and a patient can be placed on the waiting list once his kidney function has dropped to 4 teaspoons a minute.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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In December 2014, the Kidney Allocation System implemented a new rule that turned the key in the steerage lock: the waiting list date would be backdated to when the patient started dialysis rather than at the time of transplant evaluation. This was an important step toward minimizing the effect of human error on access to kidney transplantation.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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But it didn’t go far enough. It didn’t go far enough because most people start dialysis when their eGFR is somewhere between 5 and 10. The difference between an eGFR of 20 and 10 alone can be several years for many patients. Years that could be spent accruing time on the kidney transplant waiting list. Sometimes so many years that a patient could potentially get a preemptive transplant—a transplant without ever having to go on dialysis.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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It wasn’t until cyclosporine was discovered in 1976 that the balance between preventing rejection and avoiding infection greatly improved. That plus simultaneous efforts to figure out how to better match donors to recipients and the discovery of newer, better drugs over time has created the current reality in which more than two-thirds of all kidney transplants are still working after five years, while little more than a third of dialysis patients are still alive in that same time span. Some kidney transplants last twenty, thirty, forty, even fifty years.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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His eyes weren’t red anymore. His skin no longer had that washed-out look. He had already been happily guzzling ice-cold water from the pink plastic hospital pitcher to his heart’s content. “They told me to drink,” he said, grinning. I grinned back. I was so happy for him. Gone were the days of having to limit how much liquid he took in between dialysis treatments. Now he had a kidney that could pee out any fluid his body didn’t need. He focused on learning about all the new antirejection medications that would keep his new kidney healthy. He was eager to get on with making up for the six years he lost to dialysis. The six years he had to curb his ambition and planning for the future because he didn’t know what the next hours, days, weeks, months, years would bring.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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The hope is that our efforts will make eventually as far away as possible. Because once eventually comes, all that is left to do is to try to replace the kidneys with a transplant or dialysis, because we can’t live without Her.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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When I think of Mr. Madani now, I am reminded of a joke I heard sometime after I was involved in his care: An oncologist walks into a funeral home, looking for his patient. The casket is closed. He opens it and is surprised to find it empty. “Where is my patient?” he asks the attendant. “I wanted to give him one more round of chemo.” “Oh, they took him to dialysis,” the attendant replies.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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Though I wasn’t aware of it at the time, a small but growing body of research supported my intuition. It showed that patients similar to Mrs. Lee—over seventy-five and with serious medical problems in addition to advanced kidney disease—were as likely to live as long without dialysis as with it and often with a better quality of life. This research comes mostly from the United Kingdom, where about 15 percent of elderly patients with end-stage kidney disease die without ever starting dialysis. They have programs in place to provide conservative management—treatment aimed at minimizing symptoms of kidney failure while maximizing the quality of life remaining without dialysis.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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A 2009 study published in the New England Journal of Medicine showed that almost two-thirds of elderly nursing home patients were in worse shape—either less able to take care of their own basic needs or dead—within just three months of starting dialysis, suggesting that treating such patients with dialysis was in direct violation of one of medicine’s guiding principles: primum non nocere, first do no harm.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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As a fellow in the pre-dialysis clinic, what I observed for how to have discussions with patients approaching end-stage kidney disease seemed consistent with the monolithic, unquestioning agenda implied by the clinic name. The response to patient hesitation toward dialysis or outright refusal of it often felt threatening, coercive, even bullying to me. “Start dialysis or you’ll be dead in two weeks.” “You have a responsibility to your grandchildren to be here.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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We get paid much more to keep someone on dialysis than to keep them off of it. If we don’t achieve dialysis metrics—like avoiding dialysis catheters or providing a certain dose of dialysis—known to best result in long-term benefits, we are financially penalized. But create a fistula in a little old lady that usually requires interventions to make it work and keep it working and make her stay on the dialysis machine as long as it takes for the numbers to look right, then essentially get a bonus. If we see an in-center hemodialysis patient four times in a month, we stand to make 50 percent more money than if we only saw her once. And the nephrologist really only has to see the patient once each month—if a physician assistant sees the patient the other times, we still get paid. We would have to document a comprehensive medical history and examination over the better part of an hour with a patient returning to clinic twice to see the same money—and good luck trying to justify why that was clinically necessary to do. The second, third, and fourth in-center hemodialysis patient visits can be more like drive-bys—a simple documentation that we (or the physician assistant) “saw” the patient, with no notation of time required. Private insurance companies and the Medicare ESRD program pay top dollar for dialysis care, not clinic visits. It’s profitable to build another dialysis center, but we haven’t figured out how to build comprehensive outpatient palliative care services.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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It is our inability to accurately predict when people will die that usually keeps us from preparing patients for death. In one survey of dialysis patients published in the Clinical Journal of the American Society of Nephrology in 2010, less than 10 percent reported that any doctor had ever discussed prognosis with them.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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While tools to estimate prognosis among dialysis patients and tools to estimate prognosis among patients with advanced kidney disease are in development, without a crystal ball it is doubtful that any tool will ever have enough precision for nephrologists to feel assured of accuracy for the patient before us. However, since the vast majority of patients and families only have their experience with illness up to the present moment, our clinical knowledge and experiences with similar patients about what the future may hold are invaluable—and should be shared.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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Yet published research studies suggest that patients and family members want to be given information about life expectancy, even if prognosis is poor. Others have shown that those engaged in shared (as in with input from their doctor), informed decision-making are more likely to make decisions about dialysis and end-of-life care consistent with their personal values—often resulting in preferences for less aggressive care and more conservative management.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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For every five of our dialysis patients, one will die within the year. Yet we often don’t bother spending the time it takes to have conversations about what patients would want their care to be like at the end of their lives. Since dialysis can be a life-saving treatment in many circumstances, we develop a false sense that sudden bouts of illness serious enough to land our dialysis patients in the hospital are temporary when, truth is, dialysis cannot change the reality that the path of kidney failure is a continuous one toward death. A path that is littered with sudden illnesses and setbacks, and recovery is never back to the level of function that the person enjoyed before.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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She’d gone into kidney failure when I was in high school. Never got to the transplant list, though, because her best friend, Dorothy, stepped in and gave her one of hers. Mom was lucky. She never even had to do dialysis.
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Abby Jimenez (Yours Truly (Part of Your World, #2))
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Diabetes – the physical costs Hypertension: 70% of diabetics also require medication for blood pressure. Cholesterol: 65% of diabetics require medication to reduce their cholesterol. Heart attacks: Diabetics, even when on full medication, are twice as likely to be hospitalised, crippled or die from a heart attack. Strokes: Diabetics are 1.5 times more likely to suffer a debilitating stroke. Blindness and Eye Problems: Diabetes is the number one cause of preventable blindness in the developed world. Impotence: Diabetes is also the number one cause of impotence. Dementia: Having diabetes doubles your risk of dementia. Kidney disease: Diabetes is the cause of kidney failure in half of all new cases; most people on dialysis are diabetics. Amputations: There are over 7000 diabetes-related amputations done every year in the UK and over 73,000 in the US.
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Michael Mosley (The 8-week Blood Sugar Diet: Lose Weight Fast and Reprogramme your Body)
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Chronic Kidney Disease
Karma Ayurveda is an ancient Ayurveda company which provides many valuable natural remedies for kidney patients which help to keep kidney problem under control.Karma Ayurveda medicine reduces dialysis, frequency at first, and sometime kidneys can be brought to its normal function.
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Karma Ayurveda
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dialysis is therapy has been initiated, the average expected remaining life span is approximately 8 years.
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Marie Stephens (Healing the kidneys 101)
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palate is a wall or septum that separates the oral cavity from the nasal cavity, forming the roof of the mouth. This important structure makes it possible to chew and breathe at the same time. The hard palate—the anterior portion of the roof of the mouth—is formed by the maxillae and palatine bones and is covered by a mucous membrane; it forms a bony partition between the oral and nasal cavities. The soft palate, which forms the posterior portion of the roof of the mouth, is an arch-shaped muscular partition between the oropharynx and nasopharynx that is lined with mucous membrane. Hanging from the free border of the soft palate is a conical ¯ muscular process called the uvula ( U-vu¯ -la � little grape). During swallowing, the soft palate and uvula are drawn superiorly, closing off the nasopharynx and preventing swallowed • C L I N I C A L C O N N E C T I O N Per i toni t is A common cause of peritonitis, an acute inflammation of the peritoneum, is contamination of the peritoneum by infectious microbes, which can result from accidental or surgical wounds in the abdominal wall, or from perforation or rupture of abdominal organs.If, for example, bacteria gain access to the peritoneal cavity through an intestinal perforation or rupture of the appendix, they can produce an acute, life-threatening form of peritonitis. A less serious (but still painful) form of peritonitis can result from the rubbing together of inflamed peritoneal surfaces. Peritonitis is of particularly grave concern to those who rely on peritoneal dialysis, a procedure in which the peritoneum is used to filter the blood when the kidneys do not function properly (see page 1048). •
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Anonymous
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This is precisely why T2DM, unlike virtually any other disease, affects every single part of the body. Every organ suffers the long-term effects of the excessive sugar load. Your eyes rot – and you go blind. Your kidneys rot – and you need dialysis. You heart rots – and you get heart attacks and heart failure. Your brain rots – and you get Alzheimer’s disease. Your liver rots – and you get fatty liver disease and cirrhosis. Your legs rot – and you get diabetic foot ulcers. Your nerves rot – and you get diabetic neuropathy. No part of your body is spared.
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Tim Noakes (Diabetes Unpacked: Just Science and Sense. No Sugar Coating)
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Human society confers little status on janitors because their position is considered unskilled. The Body [of Christ], however, recognizes that lowly janitor cells are indispensable to overall health. If you doubt that, ask someone who must go in for kidney dialysis three times per week.
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Paul Brand (Fearfully and Wonderfully: The Marvel of Bearing God's Image)
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I am medically trained in kidney dialysis.
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Steven Magee (Pandemic Supplements)
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contamination of foods with heavy metals and include the intentional inclusion of toxic substances in products for mass consumption. “The result is what you see unfolding around you right now: mass insanity, incredible escalations of criminality among political operatives, clinical insanity among an increasing number of mainstream media writers and reporters, widespread infertility in young couples, skyrocketing rates of kidney failure and dialysis patients, plus a near total loss of rational thinking among the voting masses,” he said.
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Jim Marrs (Population Control: How Corporate Owners Are Killing Us)
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God Almighty hears you...Whether you are on dialysis or not. Get this kidney healing book; Kidneys Restored to Good Health: Healed From Kidney/Renal Cancer, a book by Stellah Mupanduki. This is a good book for your kidney healing, bloodstream cleansing and kidney protection. Keep reading all the days of your life. You breakthrough, you live long..."Yeah, says the Lord God Almighty who heals you everlastingly.
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Stellah Mupanduki (Kidneys Restored to Good Health: Healed From Renal/Kidney Cancer)
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Look, Dad. I’m okay. I like this girl. Everything’s normal.
“Only my father,” I say to Tina, “would imagine that anyone could find paperwork arousing.”
“What?” Her smile is a touch too wide, a little too faked. “Don’t tell me your media training didn’t cover this, either.”
I set the stack of papers on the flat surface of my desk and gesture Tina to sit in the leather-bound executive chair.
“What am I supposed to say, then? Come on, baby. It’s a nondisclosure agreement. You’ll like it. I promise.”
She gives me an unimpressed look. “God,” she says. “And I thought you were supposed to be a good liar. That’s not how you do it.” She bites her lip and then she leans toward me. Her eyelashes sweep down, and when she talks, she lowers her voice toward sultry.
“I don’t know, Blake.” She bites her lip and reaches gingerly for the papers, stroking her thumb along the edge. “It’s so…big. I’m not sure it will fit.”
I almost choke. She looks up with a touch of a smile.
Fuck. I started this.
“We’ll go nice and slow.” I pull a chair beside her and sit down, and very slowly take a pen from the holder. “Tell me if it hurts and I can stop anytime. I promise.”
“Be gentle.”
I know we’re just joking. I know this doesn’t mean anything. Still, my body doesn’t know this is a show when I lean toward her. I don’t feel like I’m lying when I inhale the sent of her hair. It goes straight to my groin, a stab of lust. “Trust me,” I murmur.
She’s sitting in my chair. She’s smaller than me and all that dark leather surrounds her, blending in with her hair. But when she looks up, tilting her head toward me, she doesn’t seem tiny. She pulls the first paper-clipped section of pages to her, glances at the first paragraph, and wrinkles her nose.
“Ouch,” she says in a much less sensual tone of voice. “It hurts already.”
“It basically says that if you tell anyone anything about Cyclone business, we get one of your kidneys,” I translate helpfully.
“How sweet.” She hasn’t looked up from the document. “Do your lawyers know you summarize their forms like that?”
“Disclose two things,” I say, “and we get two kidneys.”
“Mmm. Playing rough. What happens if I disclose three? You shut down my dialysis machine?”
“You get a commemorative Cyclone pen,” I say mock-seriously. “Come on. We’re not monsters.”
She cracks a smile at that. She’s not one of those girls who always smiles, and that means that when she does smile, it means something. Her whole face lights up and my breath catches at the sight. I lean in, as if I could breathe in her amusement. But then she drops her head and goes back to reading. When she finishes, she signs with a flourish.
“What’s next?” she says. “Bring it on.”
I hand over the next few pages.
She holds it up and looks at me. “Don’t lie to me, baby. I bet you make all the girls you bring in here sign this.”
You know what? I have never before found SEC regulations this sexy. I lean close to her.
“No way,” I murmur. “This is just for you.”
“Really?” She manages that look of hurt skepticism so well. I reach out, almost touching her cheek—until I remember that this isn’t real.
“No,” I whisper back. “Not really. Everyone does sign it; it’s company policy.”
“Oh, too bad.” She’s still reading the page. “I was hoping you had a selective disclosure just for me.”
Selective, I realize, is a sexy word when drawn out the way she does it, her tongue touching her lips on the l sound. So is disclosure.
“I can disclose,” I hear myself saying. “Selectively.”
“Maybe you can give it to me in a material and nonpublic place.”
I lean toward her. “You know me. I put the inside in insider trading.”
She’s still holding the pen poised above the paper. I touch my finger to the cap and then slowly slide it down the barrel until my hand meets hers. A shock of electricity hits me, followed by a jolt of lust.
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Courtney Milan
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Yes, dialysis was the miracle.
No doubt Ms. Afuta had a different kind of miracle in mind, but dialysis was the only one that was coming. Without it her sixteen-year-old baby girl would soon be motherless. She seemed to be looking at dialysis as if it was the end of her life, when in truth dialysis would just mean her life would be different. No, it would not be perfect. No, it would not take away all the issues that come with a vital organ dying. Yes, it would take time and have its own frustrations to deal with. But the time in between could be filled with life. Family. Friends. Exercise. Work. Play. Travel. Joy. Love. [...] There was no escaping dialysis. If she wanted to survive. If she wanted life.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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But when the kidneys do fail, a strange thing happens. Suddenly they don't feel fine anymore. It becomes too much to deny. It's at this point that fear of death overrides fear of dialysis. Dialysis, they come to see, is the thing that will save them.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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[...] For me Mr. Madani was a lesson in how peculiar medicine can be. It is a place where we fool ourselves into thinking that we can somehow get out of life alive and where dialysis is a means to no end. It is a place where the teaching of dialysis practice becomes more permissive within a two-year fellowship stint, more variable from nephrologist to nephrologist. Dialysis has gone from a miracle to something mundane but to be avoided at all costs to the thing we Americans-no matter if rich or poor, Black, Brown, Yellow, or White-cling to, because it holds the promise of more time. We-providers across specialties, patients, and families-begin to expect it, feel entitled to it, demand it, and we won't let go of it, even when it doesn't make sense, even when all it really guarantees is more suffering.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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As a fellow in the pre-dialysis clinic, what I observed for how to have discussions with patients approaching end-stage kidney disease seemed consistent with the monolithic, unquestioning agenda implied by the clinic name. The response to patient hesitation toward dialysis or outright refusal of it often felt threatening, coercive, even bullying to me.
"Start dialysis or you'll be dead in two weeks."
"You have a responsibility to your grandchildren to be here."
"If you refuse to start dialysis, then you will be discharged from this clinic.
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Vanessa Grubbs (Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match)
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All day long, her small compact body, sweating through one hospital gown after another, had been racked with coughing fits and spasms. Her long black hair, tied into a tight braid, had lashed the pillows like a whip. Her platelet count plummeted, her blood gases revealed she had entered into metabolic acidosis, her breathing became so faint that a mechanical ventilator had to be wheeled in; her major organs began to shut down like dominoes falling in a row. Lungs, liver, central nervous system; when her kidneys failed, Slater had had to immediately put her on dialysis.
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Robert Masello (The Romanov Cross)
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That very month, at the St. Louis Children’s Hospital, two young patients experienced strange and alarming symptoms. As they underwent dialysis, a lifesaving procedure to filter blood for those whose kidneys don’t work properly, the patients’ eyes started swelling, their heart rates escalated, and their blood pressure dropped. These were signs of a life-threatening allergic reaction. Dr. Anne Beck, the director of the nephrology unit, directed her staff to wash out the tubing with extra fluid before hooking the children back up to the dialysis machines. For the next two months, everything seemed fine. But in January 2008, the symptoms struck again. Beck contacted an epidemiologist specializing in children’s infectious diseases who immediately assembled a command center where a team worked around the clock to uncover the cause of the strange reactions. But as more children succumbed and the staff grew frightened, the epidemiologist notified the Centers for Disease Control and Prevention. The CDC immediately contacted dialysis centers in other states and learned of similar reactions elsewhere. As the CDC and the FDA began a joint investigation, their efforts pointed to a common denominator: all the sickened patients had been given heparin made by the brand-name company Baxter, the nation’s biggest heparin supplier. It was a drug that patients took intravenously during dialysis to ensure that they didn’t suffer blood clots. Within weeks, Baxter—at the FDA’s urging—began a sweeping series of recalls, until finally the allergic reactions stopped. Yet
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Katherine Eban (Bottle of Lies: The Inside Story of the Generic Drug Boom)