Hospice Worker Quotes

That churchgoers do the lion's share of the charitable work in our communities is simply untrue. They get credit for it because they do a better job of tying the good works they do to their creed. But according to a 1998 study, 82% of volunteerism by churchgoers falls under the rubric of "church maintenance" activities -- volunteerism entirely within, and for the benefit of, the church building and immediate church community. As a result of this siphoning of volunteer energy into the care and feeding of churches themselves, most of the volunteering that happens out in the larger community -- from AIDS hospices to food shelves to international aid workers to those feeding the hungry and housing the homeless and caring for the elderly -- comes from the category of "unchurched" volunteers.

another hospice worker—another of the amazing women that Charlie had seen in the homes of the dying, helping to deliver them into the next world with as much comfort and dignity and even joy as they could gather—benevolent Valkyries, midwives of the final light, they were—and as Charlie watched them at work, he saw that rather than become detached from, or callous to their job, they became involved with every patient and every family. They were present. He’d seen them grieve with a hundred different families, taking part in an intensity of emotion that most people would feel only a few times in their lives.

A group of grandmothers is a tapestry. A group of toddlers, a jubilance (see also: a bewailing). A group of librarians is an enlightenment. A group of visual artists is a bioluminescence. A group of short story writers is a Flannery. A group of musicians is--a band. A resplendence of poets. A beacon of scientists. A raft of social workers. A group of first responders is a valiance. A group of peaceful protestors is a dream. A group of special education teachers is a transcendence. A group of neonatal ICU nurses is a divinity. A group of hospice workers, a grace. Humans in the wild, gathered and feeling good, previously an exhilaration, now: a target. A target of concert-goers. A target of movie-goers. A target of dancers. A group of schoolchildren is a target.

Some years ago I saw a documentary on dying whose main theme was that people die as they lived. That was Jimmy. For five years, since he began undergoing operations for bladder cancer and even after his lung cancer was diagnosed, he continued the activities that he considered important, marching against crackhouses, campaigning against the demolition of the Ford Auditorium, organizing Detroit Summer, making speeches, and writing letters to the editor and articles for the SOSAD newsletter and Northwest Detroiter. In 1992 while he was undergoing the chemotherapy that cleared up his bladder cancer, he helped form the Coalition against Privatization and to Save Our City. The coalition was initiated by activist members of a few AFSCME locals who contacted Carl Edwards and Alice Jennings who in turn contacted us. Jimmy helped write the mission statement that gave the union activists a sense of themselves as not only city workers but citizens of the city and its communities. The coalition’s town meetings and demonstrations were instrumental in persuading the new mayor, Dennis Archer, to come out against privatization, using language from the coalition newsletter to explain his position. At the same time Jimmy was putting out the garbage, keeping our corner at Field and Goethe free of litter and rubbish, mopping the kitchen and bathroom floors, picking cranberries, and keeping up “his” path on Sutton. After he entered the hospice program, which usually means death within six months, and up to a few weeks before his death, Jimmy slowed down a bit, but he was still writing and speaking and organizing. He used to say that he wasn’t going to die until he got ready, and because he was so cheerful and so engaged it was easy to believe him. A few weeks after he went on oxygen we did three movement-building workshops at the SOSAD office for a group of Roger Barfield’s friends who were trying to form a community-action group following a protest demonstration at a neighborhood sandwich shop over the murder of one of their friends. With oxygen tubes in his nostrils and a portable oxygen tank by his side, Jimmy spoke for almost an hour on one of his favorite subjects, the need to “think dialectically, rather than biologically.” Recognizing that this was probably one of Jimmy’s last extended speeches, I had the session videotaped by Ron Scott. At the end of this workshop we asked participants to come to the next session prepared to grapple with three questions: What can we do to make our neighborhoods safe? How can we motivate people to transform? How can we create jobs?

Hospice deploys nurses, doctors, chaplains, and social workers to help people with a fatal illness have the fullest possible lives right now—much as nursing home reformers deploy staff to help people with severe disabilities. In terminal illness that means focusing on objectives like freedom from pain and discomfort, or maintaining mental awareness for as long as feasible, or getting out with family once in a while—

hospice care would be assigned to them and while they would see that nurse most frequently, hospice care entailed a team—very much like our palliative care team, which they had come to know—with a physician, chaplain, social worker, and even volunteer visitors.

not the difference between treating and doing nothing, she explained. The difference was in the priorities. In ordinary medicine, the goal is to extend life. We’ll sacrifice the quality of your existence now—by performing surgery, providing chemotherapy, putting you in intensive care—for the chance of gaining time later. Hospice deploys nurses, doctors, chaplains, and social workers to help people with a fatal illness have the fullest possible lives right now—

The difference between standard medical care and hospice is not the difference between treating and doing nothing, she explained. The difference was in the priorities. In ordinary medicine, the goal is to extend life. We’ll sacrifice the quality of your existence now—by performing surgery, providing chemotherapy, putting you in intensive care—for the chance of gaining time later. Hospice deploys nurses, doctors, chaplains, and social workers to help people with a fatal illness have the fullest possible lives right now—much as

hospice care? Some of the services are as follows: Home visits by specialty trained hospice nurses and Medical Director Pain management and symptom control Personal hygiene care from certified home health aides All medications related to the terminal diagnosis All specialized therapies required for the terminal diagnosis Psychosocial, spiritual, and grief support services Volunteers as requested

And as they came out, they found a man of Cyrene, Simon by name: him they compelled to bear his cross. —Matthew 27:32 (KJV) WEDNESDAY OF HOLY WEEK: GOD IS IN THE DETAILS Which cliché do you abide by: The devil is in the details or God is in the details? No matter; something extraordinary is in the details. Take for instance that single line about Simon of Cyrene. Maybe the Romans forced Simon to help; maybe he would’ve offered this small gift anyway. In either case, Jesus accepted. A cynic might note that Jesus didn’t have much choice, but that misses the point: Jesus had lots of choices. He could have wiggled out of the whole mess with Pilate. He could have chosen a quicker execution. He could have skipped the whole proceeding. He did not. Our youngest daughter, Grace, has talked about becoming a hospice worker when she grows up. She’s seen two grandparents die in hospices. She has seen the kind of people who work there: kind people. Maybe it’s a job; maybe economic circumstances compelled them to work there—does it matter? Fact is, they’re there, in someone’s time of need, to assist others on their journey, to make their passing less difficult. Are we compelled to help others or do we offer? I’m guessing that the person whose burden is suddenly lightened by our presence doesn’t really care what brought us to that moment. Those are just details…and I think God is, most assuredly, in the details. Lord, You said that what we do for the least of our brothers and sisters we do for You. Help us to see You in everything we do in our everyday lives, even in the tiniest details. —Mark Collins Digging Deeper: Ps 147:4–5; Lk 12:6–7

That night in the hospital I walked in and out of the hospice ward ten or twenty times, and my eyes and hands moved through the necessary tasks. Well into the night and deeper in my brain, it came to me that as hospital workers, we were being paid to trail along behind Death as he escorted frail, wasted bodies over difficult miles, dragging their loved ones along with him. My job was to meet the traveling party at its designated way stations and faithfully provide fresh supplies for the journey.

The average time of death after stopping eating and drinking is about seven days, though 8 percent lived for more than two weeks. The last days of life were rated as peaceful, with low levels of pain and suffering, even more so than a physician-assisted death.6680 Most hospice workers said they would consider VSED themselves should they become terminally ill.

As corporations have amassed more market power, they’ve made every effort to keep wages low and productivity high. Increasingly, workers are providing far more value to their companies than their pay reflects, and employers are constantly finding new avenues to squeeze their labor force. Algorithms have proven to be more exacting bosses than people. Those algorithms powering just-in-time scheduling have allowed bosses to fine-tune staffing levels to demand, leading to unpredictable hours that cause paychecks to grow and shrink from week to week. Companies have deployed programs that record workers’ keystrokes and mouse clicks and capture screenshots at random intervals and have even made use of devices that sense heat and motion. Warehouse workers, cashiers, delivery drivers, fast food managers, copy editors, and millions of other kinds of workers—even therapists and hospice chaplains—are now monitored by software with names like Time Doctor and WorkSmart. Most large private firms track worker productivity, sometimes docking pay for “idle time,” including when employees use the bathroom or consult with clients. Such technological advances have increased workers’ efficiency and their precarity: You produce more profit but enjoy less of it, which is the textbook definition of exploitation.