Edwards Syndrome Quotes

What would happen, they conjectured, if they simply went on assuming their children would do everything. Perhaps not quickly. Perhaps not by the book. But what if they simply erased those growth and development charts, with their precise, constricting points and curves? What if they kept their expectations but erased the time line? What harm could it do? Why not try?

Do not be sad Edward. They exclude you because they don’t understand you. Be happy you are the single one that differs from their normal community

Apropos of nothing at all except that it has been on my mind and I think I had better say it because it accounts for a good deal of my behaviour. There is a strong streak in me that wishes not to exist and really does not believe that I do, so that I tend to become unnerved when these curious ideas are proved to be not really true because someone (in this case you) has responded to something I have said or done just as if I were an actual person the same as you (especially) or anyone else. Some of it is, I guess, just the worst sorts of arrogance and irresponsibility , but not all of it, as I really don't think I exist a lot of the time, so I'm asking you to bear with it, me, whatever, for the sake of what?—friendship I suppose, which I want to be capable of, which is obviously not enough. More brains might help, but enough unseemly remarks for eight o'clock in the morning and the shivering in pyjama bottoms syndrome.

For the rest of his life, he realized, he would be torn like this, aware of Phoebe's awkwardness, the difficulties she encountered in the world simply by being different, and ye propelled beyond all this by her direct and guileless love. By her love, yes, and, he realized...by his own new and strangely uncomplicated love for her.

Part of the depressive syndrome is that you are immensely loyal to your interpretation of yourself and your world. If God says you are forgiven in Christ, you create new rules that mandate contrition, penance, and self-loathing. If God says he loves you, you insist it is impossible. There it is: your system is higher than God’s.

Widespread pain conditions like fibromyalgia or chronic fatigue syndrome are especially social conditions, since their symptoms have a direct impact on a patient’s ability to maintain various roles and identities. Ties to the outside world via employment, family obligations, activities and hobbies, and social engagements are whittled away, and physical and psychosocial isolation increases.

ADD is a neurological syndrome whose classic defining triad of symptoms include impulsivity, distractibility, and hyperactivity or excess energy.

Barkley’s comment that ADD is more impairing than any syndrome in all mental health that is treated on an outpatient basis. More impairing than anxiety, more impairing than depression, more impairing than substance abuse. The “morbidity” of untreated ADD is profound.

Remember that what you have is a neurological condition. It is genetically transmitted. It is caused by biology, by how your brain is wired. It is not a disease of the will, nor a moral failing, nor some kind of neurosis. It is not caused by a weakness in character, nor by a failure to mature. Its cure is not to be found in the power of the will, nor in punishment, nor in sacrifice, nor in pain. Always remember this. Try as they might, many people with ADD have great trouble accepting the syndrome as being rooted in biology rather than weakness of character.

And impostor syndrome is something every Black person has been conditioned to feel. It’s the energy of, ‘What are you doing here?’ internalised into a kind of constant feedback loop.

With every step forward we become more sure what the disorder is not: it is not willful misbehaving, it is not a moral failing, it is not a lack of trying nor an inability to take an interest in the world. Neurobiological data now show that the syndrome is rooted in the central nervous system.