Disabled Children Quotes

The worst thing you can do is nothing. (re: teaching children with autism)

The most upsetting thing about Society’s attitude towards disabled people is that many millions of disabled people became disabled while trying to please Society, the very same bitch that secretly regards them as subhuman.

There was a story going around about the Special Olympics. For the hundred-yard dash, there were nine contestants, all of them so-called physically or mentally disabled. All nine of them assembled at the starting line and, at the sound of the gun, they took off. But one little boy didn't get very far. He stumbled and fell and hurt his knee and began to cry. The other eight children heard the boy crying. They slowed down, turned around, and ran back to him--every one of them ran back to him. The little boy got up, and he and the rest of the runners linked their arms together and joyfully walked to the finish line. They all finished the race at the same time. And when they did, everyone in the stadium stood up and clapped and whistled and cheered for a long, long time. And you know why? Because deep down we know that what matters in this life is more than winning for ourselves. What really matters is helping others win, too, even if it means slowing down and changing our course now and then.

Children with disabilities are stronger than we know, they fight the battles that most will never know.

Presuming that a nonspeaking child has nothing to say is like presuming that an adult without a car has nowhere to go.

I Have a Dream... someday my son, Zyon and ALL individuals with disabilities will be seen as HUMAN beings. I Have a Dream... someday the human & civil rights of individuals with disabilities are honored and they are treated as equals. I Have a Dream... someday ALL parents who have children with disabilities see their child as a blessing and not a burden. I Have a Dream... someday there will be more jobs and opportunities for individuals with disabilities. I Have a Dream... someday there will be UNITY "within" the disabled community. I HAVE A DREAM!!!

What would happen, they conjectured, if they simply went on assuming their children would do everything. Perhaps not quickly. Perhaps not by the book. But what if they simply erased those growth and development charts, with their precise, constricting points and curves? What if they kept their expectations but erased the time line? What harm could it do? Why not try?

Everything is inspiration. If you look at the world as the incredible place it is, then each moment is a feast.

We are all broken by something. We have all hurt someone and have been hurt. We all share the condition of brokenness even if our brokenness is not equivalent. I desperately wanted mercy for Jimmy Dill and would have done anything to create justice for him, but I couldn’t pretend that his struggle was disconnected from my own. The ways in which I have been hurt—and have hurt others—are different from the ways Jimmy Dill suffered and caused suffering. But our shared brokenness connected us. Paul Farmer, the renowned physician who has spent his life trying to cure the world’s sickest and poorest people, once quoted me something that the writer Thomas Merton said: We are bodies of broken bones. I guess I’d always known but never fully considered that being broken is what makes us human. We all have our reasons. Sometimes we’re fractured by the choices we make; sometimes we’re shattered by things we would never have chosen. But our brokenness is also the source of our common humanity, the basis for our shared search for comfort, meaning, and healing. Our shared vulnerability and imperfection nurtures and sustains our capacity for compassion. We have a choice. We can embrace our humanness, which means embracing our broken natures and the compassion that remains our best hope for healing. Or we can deny our brokenness, forswear compassion, and, as a result, deny our own humanity. I thought of the guards strapping Jimmy Dill to the gurney that very hour. I thought of the people who would cheer his death and see it as some kind of victory. I realized they were broken people, too, even if they would never admit it. So many of us have become afraid and angry. We’ve become so fearful and vengeful that we’ve thrown away children, discarded the disabled, and sanctioned the imprisonment of the sick and the weak—not because they are a threat to public safety or beyond rehabilitation but because we think it makes us seem tough, less broken. I thought of the victims of violent crime and the survivors of murdered loved ones, and how we’ve pressured them to recycle their pain and anguish and give it back to the offenders we prosecute. I thought of the many ways we’ve legalized vengeful and cruel punishments, how we’ve allowed our victimization to justify the victimization of others. We’ve submitted to the harsh instinct to crush those among us whose brokenness is most visible. But simply punishing the broken—walking away from them or hiding them from sight—only ensures that they remain broken and we do, too. There is no wholeness outside of our reciprocal humanity.

We are not “differently abled”—we are disabled, robbed of empowerment and agency in a world that is not built for us. “Differently abled,” “handi-capable,” and similar euphemisms were created in the 1980s by the abled parents of disabled children, who wished to minimize their children’s marginalized status. These terms were popularized further by politicians[76] who similarly felt uncomfortable acknowledging disabled people’s actual experiences of oppression.

If the only time a child looks as if he has bipolar disorder is when he’s frustrated, that’s not bipolar disorder; that’s a learning disability in the domains of flexibility and frustration tolerance.

Are there any Nazis left that I could hunt down and bring to justice?” Augustus asked while we leaned over the vitrines reading Otto’s letters and the gutting replies that no, no one had seen his children after the liberation. “I think they’re all dead. But it’s not like the Nazis had a monopoly on evil.” “True,” he said. “That’s what we should do, Hazel Grace: We should team up and be this disabled vigilante duo roaring through the world, righting wrongs, defending the weak, protecting the endangered.” Although it was his dream and not mine, I indulged it. He’d indulged mine, after all. “Our fearlessness shall be our secret weapon,” I said. “The tales of our exploits will survive as long as the human voice itself,” he said. “And even after that, when the robots recall the human absurdities of sacrifice and compassion, they will remember us.” “They will robot-laugh at our courageous folly,” he said. “But something in their iron robot hearts will yearn to have lived and died as we did: on the hero’s errand.

Children need to see themselves in books. They need to see their gender. They need to see their color, hair texture, their disability, themselves. Picture books are like many children’s first introduction to the world. Seeing yourself is almost like a message. It’s saying, you matter, you are visible, and you’re valuable

They said 'specialist children's wards,' But they meant children-killing centers. They said 'final medical assistance' But they meant murder.

I know of other mothers who have children with disabilities,and right away they loved them and decided to fight for them. That isn’t my story.

Finally, there was the impediment of his nature. In the secret parts of his peculiar brain, those unhappy and inextricable tangles which he felt at the roots, the boy was disabled by something which we cannot explain. He could not have explained either, and for us it is all too long ago. He loved Arthur and he loved Guenever and he hated himself. The best knight of the world: everybody envied the self-esteem which must surely be his. But Lancelot never believed he was good or nice. Under the grotesque, magnificent shell with a face like Quasimodo’s, there was shame and self-loathing which had been planted there when he was tiny, by something which it is now too late to trace. It is so fatally easy to make young children believe that they are horrible.

Folks don’t give themselves enough credit. The mother who endures cavities so her children can get braces. The father who works a dead-end job so his kids can have a roof over their heads. The daughter who sacrifices college so she can take care of her disabled mother. They are all heroes, and don’t you believe otherwise.

It was inevitable: the scent of bitter almonds always reminded him of the fate of unrequited love. Dr. Juvenal Urbino noticed is as soon as he entered the still darkened house where he has hurried on an urgent call to attend a case that for him had lost all urgency many years before. The Antillean refugee Jeremiah de Saint-Amour, disabled war veteran, photographer of children, and his most sympathetic opponent in chess, had escaped the torments of memory with the aromatic fumes of gold cyanide.

Labeling a child’s mind as diseased—whether with autism, intellectual disabilities, or transgenderism—may reflect the discomfort that mind gives parents more than any discomfort it causes their child. Much gets corrected that might better have been left alone.

Understanding our children’s frustrations with dyslexia and giving them the tools to blossom will give them the confidence to reach their true potential. We can help our children channel their interests and talents and ignite the passion within.

health, social life, job, house, partners, finances; leisure use, leisure amount; working time, education, income, children; food, water, shelter, clothing, sex, health care; mobility; physical safety, social safety, job security, savings account, insurance, disability protection, family leave, vacation; place tenure, a commons; access to wilderness, mountains, ocean; peace, political stability, political input, political satisfaction; air, water, esteem; status, recognition; home, community, neighbors, civil society, sports, the arts; longevity treatments, gender choice; the opportunity to become more what you are that's all you need

Near the end of Love's Labor, Eva Feder Kittay (1999, 154) writes that a fundamental aspect of a just society is related to the conditions and limits of mothering. In a just society, women with disabilities can mother because there is adequate emotional and material support for them to do so, and given a context of support and approval to reproduce, they can also choose not to bear children. In a just society, mothers of children with disability can mother, and they, their children, and other needed caregivers will be adequately supported." (15)

There is something ironic in prejudice against the disabled and their families, because their plight might befall anybody. Straight men are unlikely to wake up gay one morning, and white children don't become black; but any of us could be disabled in an instant. People with disabilities make up the largest minority in America; they constitute 15 percent of the population, though only 15 percent of those were born with their disability and about a third are over sixty-five. Worldwide, some 550 million people are disabled. The disability-rights scholar Tobin Siebers has written, "The cycle of life runs in actuality from disability to temporary ability back to disablity, and that only if you are among the most fortunate.

In these days, doctors know little about autism. They blame it on distant parents who don't communicate enough with their children

Religion, by its very nature as an untestable belief in undetectable beings and an unknowable afterlife, disables our reality checks. It ends the conversation. It cuts off inquiry: not only factual inquiry, but moral inquiry. Because God's law trumps human law, people who think they're obeying God can easily get cut off from their own moral instincts. And these moral contortions don't always lie in the realm of theological game-playing. They can have real-world consequences: from genocide to infanticide, from honor killings to abandoned gay children, from burned witches to battered wives to blown-up buildings.

Mental illness is now the number one reason for disability filings for children, representing half of all claims filed in 2012, compared to just 5 to 6 percent of claims twenty years prior.4

If you are disabled, it is probably not your fault, but it is no good blaming the world or expecting it to take pity on you. One has to have a positive attitude and must make the best of the situation that one finds oneself in; if one is physically disabled, one cannot afford to be psychologically disabled as well. In my opinion, one should concentrate on activities in which one's physical disability will not present a serious handicap. I am afraid that Olympic Games for the disabled do not appeal to me, but it is easy for me to say that because I never liked athletics anyway. On the other hand, science is a very good area for disabled people because it goes on mainly in the mind. Of course, most kinds of experimental work are probably ruled out for most such people, but theoretical work is almost ideal. My disabilities have not been a significant handicap in my field, which is theoretical physics. Indeed, they have helped me in a way by shielding me from lecturing and administrative work that I would otherwise have been involved in. I have managed, however, only because of the large amount of help I have received from my wife, children, colleagues and students. I find that people in general are very ready to help, but you should encourage them to feel that their efforts to aid you are worthwhile by doing as well as you possibly can.

When God does not answer His children according to the letter, He does so according to the spirit. If thou askest for coarse meal, wilt thou be angered because He gives thee the finest flour? If thou seekest bodily health, shouldst thou complain if instead thereof He makes thy sickness turn to the healing of spiritual maladies?

Many masked Autistics are sent to gifted education as children, instead of being referred to disability services.[18] Our apparent high intelligence puts us in a double bind: we are expected to accomplish great things to justify our oddness, and because we possess an enviable, socially prized quality, it’s assumed we need less help than other people, not more.

In retrospect, it seems obvious that my research about parenting was also a means to subdue my anxieties about becoming a parent.... I grew up afraid of illness and disability, inclined to avert my gaze from anyone who was too different – despite all the ways I knew myself to be different. This book helped me kill that bigoted impulse, which I had always known to be ugly. The obvious melancholy in the stories I heard should, perhaps, have made me shy away from paternity, but it had the opposite effect.

Parents’ early responses to and interactions with a child determine how that child comes to view himself. These parents are also profoundly changed by their experiences. If you have a child with a disability, you are forever the parent of a disabled child; it is one of the primary facts about you, fundamental to the way other people perceive and decipher you. Such parents tend to view aberrance as illness until habituation and love enable them to cope with their odd new reality—often by introducing the language of identity. Intimacy with difference fosters its accommodation.

didn’t know it then, but we disable our children when we take away their suffering. We teach them that feelings are wrong or scary.

She is convinced that when language dies, out of carelessness, disuse, indifference and absence of esteem, or killed by fiat, not only she herself, but all users and makers are accountable for its demise. In her country children have bitten their tongues off and use bullets instead to iterate the voice of speechlessness, of disabled and disabling language, of language adults have abandoned altogether as a device for grappling with meaning, providing guidance, or expressing love.

Folks don’t give themselves enough credit. The mother who endures cavities so her children can get braces. The father who works a dead-end job so his kids can have a roof over their heads. The daughter who sacrifices college so she can take care of her disabled mother. They are all heroes.

But early in the twenty-first century it became clear that the planet was incapable of sustaining everyone alive at Western levels, and at that point the richest pulled away into their fortress mansions, bought the governments or disabled them from action against them, and bolted their doors to wait it out until some poorly theorized better time, which really came down to just the remainder of their lives, and perhaps the lives of their children if they were feeling optimistic— beyond that, après moi le déluge.

Prisoners, slaves, women and children, the sick, weak, disabled, animals, the earth itself – all were fair game for the cruel sport of those who had power. It was wrong, it was evil, but it was a fact of life.

So many of us have become afraid and angry. We’ve become so fearful and vengeful that we’ve thrown away children, discarded the disabled, and sanctioned the imprisonment of the sick and the weak—not because they are a threat to public safety or beyond rehabilitation but because we think it makes us seem tough, less broken. I

For the rest of his life, he realized, he would be torn like this, aware of Phoebe's awkwardness, the difficulties she encountered in the world simply by being different, and ye propelled beyond all this by her direct and guileless love. By her love, yes, and, he realized...by his own new and strangely uncomplicated love for her.

Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support the health of their children.

Privileged women continue the tradition of compensating for their authority to men through affectations of disablement – from dieting and other disorders to substance abuse, institutionalised detachment from their children, and so on.

Crip time is time travel. Disability and illness have the power to extract us from linear, progressive time with its normative life stages and cast us into a wormhole of backward and forward acceleration, jerky stops and starts, tedious intervals and abrupt endings. Some of us contend with the impairments of old age while still young; some of us are treated like children no matter how old we get.

Communism is what Karl Marx hoped could be an economic scheme for making industrialized nations take as good care of people, and especially of children and the old and disabled, as tribes and extended families used to do, before they were dispersed by the Industrial Revolution.

We’ve become so fearful and vengeful that we’ve thrown away children, discarded the disabled, and sanctioned the imprisonment of the sick and the weak—not because they are a threat to public safety or beyond rehabilitation but because we think it makes us seem tough, less broken.

Aside from wanting to write cracking good books that turn children into lifelong readers, I really want to create stories that enable kids to LOOK at the world around them. To see it for what it is, with wide open, wondering eyes. Our mass media is so horribly skewed. It presents this idea of 'normalcy' which excludes and marginalises so many for an idea of commercial viability which is really nothing but blinkered prejudice. People who are black and Asian and Middle Eastern and Hispanic, people who are gay or transgendered or genderqueer, people who have disabilities, disfigurements or illnesses - all have this vision of a world which does not include them shoved down their throats almost 24-7, and they're told 'No one wants to see stories about people like you. Films and TV shows about people like you won't make money. Stories about straight, white, cisgendered, able-bodied people are universal and everyone likes them. You are small and useless and unattractive and you don't matter.' My worry is that this warped version of 'normal' eventually forms those very same blinkers on children's eyes, depriving them of their ability to see anyone who isn't the same as them, preventing them from developing the ability to empathise with and appreciate and take joy in the lives and experiences of people who are different from them. If Shadows on the Moon - or anything I write - causes a young person to look at their own life, or the life of another, and think, 'Maybe being different is cool' I will die a happy writer. -Guest blog - what diversity means to me

Hypercritical, Shaming Parents Hypercritical and shaming parents send the same message to their children as perfectionistic parents do - that they are never good enough. Parents often deliberately shame their children into minding them without realizing the disruptive impact shame can have on a child's sense of self. Statements such as "You should be ashamed of yourself" or "Shame on you" are obvious examples. Yet these types of overtly shaming statements are actually easier for the child to defend against than are more subtle forms of shaming, such as contempt, humiliation, and public shaming. There are many ways that parents shame their children. These include belittling, blaming, contempt, humiliation, and disabling expectations. -BELITTLING. Comments such as "You're too old to want to be held" or "You're just a cry-baby" are horribly humiliating to a child. When a parent makes a negative comparison between his or her child and another, such as "Why can't you act like Jenny? See how she sits quietly while her mother is talking," it is not only humiliating but teaches a child to always compare himself or herself with peers and find himself or herself deficient by comparison. -BLAMING. When a child makes a mistake, such as breaking a vase while rough-housing, he or she needs to take responsibility. But many parents go way beyond teaching a lesson by blaming and berating the child: "You stupid idiot! Do you think money grows on trees? I don't have money to buy new vases!" The only thing this accomplishes is shaming the child to such an extent that he or she cannot find a way to walk away from the situation with his or her head held high. -CONTEMPT. Expressions of disgust or contempt communicate absolute rejection. The look of contempt (often a sneer or a raised upper lip), especially from someone who is significant to a child, can make him or her feel disgusting or offensive. When I was a child, my mother had an extremely negative attitude toward me. Much of the time she either looked at me with the kind of expectant expression that said, "What are you up to now?" or with a look of disapproval or disgust over what I had already done. These looks were extremely shaming to me, causing me to feel that there was something terribly wrong with me. -HUMILIATION. There are many ways a parent can humiliate a child, such as making him or her wear clothes that have become dirty. But as Gershen Kaufman stated in his book Shame: The Power of Caring, "There is no more humiliating experience than to have another person who is clearly the stronger and more powerful take advantage of that power and give us a beating." I can personally attest to this. In addition to shaming me with her contemptuous looks, my mother often punished me by hitting me with the branch of a tree, and she often did this outside, in front of the neighbors. The humiliation I felt was like a deep wound to my soul. -DISABLING EXPECTATIONS. Parents who have an inordinate need to have their child excel at a particular activity or skill are likely to behave in ways that pressure the child to do more and more. According to Kaufman, when a child becomes aware of the real possibility of failing to meet parental expectations, he or she often experiences a binding self-consciousness. This self-consciousness - the painful watching of oneself - is very disabling. When something is expected of us in this way, attaining the goal is made harder, if not impossible. Yet another way that parents induce shame in their children is by communicating to them that they are a disappointment to them. Such messages as "I can't believe you could do such a thing" or "I am deeply disappointed in you" accompanied by a disapproving tone of voice and facial expression can crush a child's spirit.

The two bond over their mutual lack of family ties: Saul from his disownment, Miriam from the car accident that orphaned her as a college junior. Both want children. Miriam has inherited her parents' idea of procreative legitimacy, wants to compensate for her only-child-dom. She sees in Saul the househusband who will enable her parental ambitions without disabling her autonomy. In Miriam, Saul sees the means to a book-lined study and a lifestyle conducive to mystical advancement. They are both absolutely certain these things equal love.

Audio of interview - http://www.youtube.com/watch?feature=... "Savile was not only abusing all children with or without disabilities in group settings or in hospital settings, he was also invoking belief systems, doing rituals, making children believe that he had extra powers and that if they didn't obey him they would be published in an after life." "There are special things in, especially, for example, Alistair Crowley that can be used to frighten children even more, but the use of cloaks, of making spells, of making threats, of threatening what will happen after death too is something that the 5 different people that spoke to me about Jimmy Savile said that he'd been part of." - Dr Valerie Sinason, Clinic for Dissociative Studies, London

Here is what I say to the children who are our future: never underestimate how denial and a good old-fashioned mild learning disability can team up to come off as unwavering self-confidence.

Internalized ableism—the insidious belief that I would be a better person if I were not disabled—makes me feel like an imposter as a mother. Many of my friends with disabilities worry that they should not be parents; those who already are parents fear that their physical capacities negatively affect their children. It’s much easier to ignore my insecurities in professional or academic settings—to fake it until I make it, to go through the motions until I’m more confident in them. But how can I brazen my way through parenting? Talking myself out of my deepest fears is more difficult when I want, so primally, to be able to lift my son.

For the first time I realized that my life was just full of brokenness. I worked in a broken system of justice. My clients were broken by mental illness, poverty, and racism. They were torn apart by disease, drugs and alcohol, pride, fear, and anger. I thought of Joe Sullivan and of Trina, Antonio, Ian, and dozens of other broken children we worked with, struggling to survive in prison. I thought of people broken by war, like Herbert Richardson; people broken by poverty, like Marsha Colbey; people broken by disability, like Avery Jenkins. In their broken state, they were judged and condemned by people whose commitment to fairness had been broken by cynicism, hopelessness, and prejudice.

Children with disabilities might, to your eyes, look stuck in a perpetual childhood, but our thoughts and sensibilities evolve constantly. So, using vocabulary the child understands, please show them how they can live their lives to the full.

Our ancestors have much to answer for. Why? What did they do? ....Long ago, they used machines and drugs to keep the unhealthy and unfit ones of us alive. In that past time it was believed that all persons must have children. It was a right deemed so precious that it was forced upon even those who did not value it or should not have had it. If one of our people became pregnant, our people used all their knowledge to assure the young would be born, no matter how sick or disabled. Then, if the young lived, they injected them and dosed them and radiated them and transfused and transplanted them, to keep them alive, and then, when they were grown, they used all their skills in assisting them to have children of their own.

No one has ever suggested legal protections for ugly people to make up for the misaligned features that will compromise their personal and professional lives. For people disabled by inherent moral perplexity, we offer not support but imprisonment.

The next time you drive into a Walmart parking lot, pause for a second to note that this Walmart—like the more than five thousand other Walmarts across the country—costs taxpayers about $1 million in direct subsidies to the employees who don’t earn enough money to pay for an apartment, buy food, or get even the most basic health care for their children. In total, Walmart benefits from more than $7 billion in subsidies each year from taxpayers like you. Those “low, low prices” are made possible by low, low wages—and by the taxes you pay to keep those workers alive on their low, low pay. As I said earlier, I don’t think that anyone who works full-time should live in poverty. I also don’t think that bazillion-dollar companies like Walmart ought to funnel profits to shareholders while paying such low wages that taxpayers must pick up the ticket for their employees’ food, shelter, and medical care. I listen to right-wing loudmouths sound off about what an outrage welfare is and I think, “Yeah, it stinks that Walmart has been sucking up so much government assistance for so long.” But somehow I suspect that these guys aren’t talking about Walmart the Welfare Queen. Walmart isn’t alone. Every year, employers like retailers and fast-food outlets pay wages that are so low that the rest of America ponies up a collective $153 billion to subsidize their workers. That’s $153 billion every year. Anyone want to guess what we could do with that mountain of money? We could make every public college tuition-free and pay for preschool for every child—and still have tens of billions left over. We could almost double the amount we spend on services for veterans, such as disability, long-term care, and ending homelessness. We could double all federal research and development—everything: medical, scientific, engineering, climate science, behavioral health, chemistry, brain mapping, drug addiction, even defense research. Or we could more than double federal spending on transportation and water infrastructure—roads, bridges, airports, mass transit, dams and levees, water treatment plants, safe new water pipes. Yeah, the point I’m making is blindingly obvious. America could do a lot with the money taxpayers spend to keep afloat people who are working full-time but whose employers don’t pay a living wage. Of course, giant corporations know they have a sweet deal—and they plan to keep it, thank you very much. They have deployed armies of lobbyists and lawyers to fight off any efforts to give workers a chance to organize or fight for a higher wage. Giant corporations have used their mouthpiece, the national Chamber of Commerce, to oppose any increase in the minimum wage, calling it a “distraction” and a “cynical effort” to increase union membership. Lobbyists grow rich making sure that people like Gina don’t get paid more. The

During the 1980s, in California, a large number of Cambodian women went to their doctors with the same complaint: they could not see. The women were all war refugees. Before fleeing their homeland, they had witnessed the atrocities for which the Khmer Rouge, which had been in power from 1975 to 1979, was well known. Many of the women had been raped or tortured or otherwise brutalized. Most had seen family members murdered in front of them. One woman, who never again saw her husband and three children after soldiers came and took them away, said that she had lost her sight after having cried every day for four years. She was not the only one who appeared to have cried herself blind. Others suffered from blurred or partial vision, their eyes troubled by shadows and pains. The doctors examined the women - about a hundred and fifty in all - found that their eyes were normal. Further tests showed that their brains were normal as well. If the women were telling the truth - and there were some who doubted this, who thought the women might be malingering because they wanted attention or were hoping to collect disability - the only explanation was psychosomatic blindness. In other words, the women's minds, forced to take in so much horror and unable to take more, had managed to turn out the lights.

Parents of children with disabilities live in this constant elevated state of anxiety, sometimes even teetering between despair and dread. We know our children have this beaming innocence within them, but because of that they sometimes misinterpret human intention.

In the story of cancer and chemistry, the harm comes from exposure, and exposure inversely follows gradients of social power. Disproportionate harm is wrought on liberalism’s second-class citizens: the working class, women and children, the disabled, the colonized.

Disability scholars Andrienne Asch and Erik Parens, in their seminal discussion of the problem, wrote,'Pre-natal diagnosis reinforces the medical model that disability itself, not societal discrimination against people with disabilities, is the problem to be solved.

Our family was starting. We kept on moving with our young lives, shortly afterward and took Ben Young with us everywhere. But pretty soon Pegi started noticing that Ben was not doing the things some other babies were doing. Pegi was wondering if something was wrong. She was young, and nothing had ever gone wrong in her life. People told us kids grow at different rates and do things at different times. But as Ben reached six months old, we found ourselves sitting in a doctor's office. He glanced at us and offhandedly said, "Of course. Ben has cerebral palsy." I was in shock. I walked around in a for for weeks. I couldn't fathom how I had fathered two children with a rare condition that was not supposed to be hereditary, with tow different mothers. I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them, going wild. Luckily that never did happen, but there was a root of instability inside me for a while. Although it mellowed with time, I carried that feeling around for years. Eventually Pegi and I, wanting to have another child after Ben, went to se an expert of the subject. That was Pegi's idea. Always organized and methodical in her approach to problems, Pegi planned an approach to our dilemma with her very high intelligence. We both loved children but were a little gun-shy about having another, to say the least. After evaluating our situation and our children, the doctor told us that probably Zeke dis not actually have CP-he likely had suffered a stroke in utero. The symptoms are very similar. Pegi and I weighed this information. To know someone like her and to make a decision about a subject as important as this with her was a gift beyond anything I have ever experienced. It was her idea, and she had guided us to this point. We made a decision together to go forward and have another child.

I am not sure whether you could call this abuse, but when I was (long ago) abroad in the world of dry men, I saw parents, usually upscale and educated and talented and functional and white, patient and loving and supportive and concerned and involved in their children’s lives, profilgate with compliments and diplomatic with constructive criticism, loquacious in their pronouncements of unconditional love for and approval of their children, conforming to every last jot-tittle in any conceivably definition of a good parent, I saw parent after unimpeachable parent who raised kids who were (a) emotionally retarded or (b) lethally self-indulgent or (c) chronically depressed or (d) borderline psychotic or (e) consumed with narcissistic self-loathing or (f) neurotically driven/addicted or (g) variously psychosomatically Disabled or (h) some conjunctive permutation of (a) … (g). Why is this. Why do many parents who seem relentlessly bent on producing children who feel they are good persons deserving of love produce children who grow to feel they are hideous persons not deserving of love who just happen to have lucked into having parents so marvelous that the parents love them even though they are hideous? Is it a sign of abuse if a mother produces a child who believes not that he is innately beautiful and lovable and deserving of magnificent maternal treatment but somehow that he is a hideous unlovable child who has somehow lucked in to having a really magnificent mother? Probably not. But could such a mother then really be all that magnificent, if that’s the child’s view of himself? ...I think, Mrs. Starkly, that I am speaking of Mrs. Avril M.-T. Incandenza, although the woman is so multileveled and indictment-proof that it is difficult to feel comfortable with any sort of univocal accusation of anything. Something just was not right, is the only way to put it. Something creepy, even on the culturally stellar surface.

„Klara, you're a new model of Artificial Friend. You're designed to be a companion to a child who's been chosen by their mother and father to be an Enhanced Child. That means they have illnesses or disabilities of one kind or another. You're a specialist in helping such children.

I definitely think mothers of children with disabilities have to have extraordinary courage every day...Because we all know our children have value and worth and potential, but the everyday world sometimes doesn’t.' —Linda Strobel in Up: A Love Letter to the Down Syndrome Community

With stuff this big, almost any way of looking at it can be true. We all talked like we were going to eventually reach some grand conclusion, some correct stance, but in fact it was different for everybody, impossible to pin down. Was childbirth traumatic or transcendent? Was pregnancy a time of wonder and awe or a kind of temporary disability? Were we supposed to fit our lives around our children or fit our children into our lives? My feelings changed every minute, depending on my mood and on the company I kept. It felt essential, though, to keep asking the question.

My years of struggling against inequality, abusive power, poverty, oppression, and injustice had finally revealed something to me about myself. Being close to suffering, death, executions, and cruel punishments didn't just illuminate the brokenness of others; in a moment of anguish and heartbreak, it also exposed my own brokenness. You can't effectively fight abusive power, poverty, inequality, illness, oppression, or injustice and not be broken by it. We are all broken by something. We have all hurt someone and have been hurt. We all share the condition of brokenness even if our brokenness is not equivalent. The ways in which I have been hurt - and have hurt others - are different from the ways Jimmy Dill suffered and caused suffering. But our shared brokenness connected us. Thomas Merton said: We are bodies of broken bones. I guess I'd always known but never fully considered that being broken is what makes us human. We all have our reasons. Sometimes we're fractured by the choices we make; sometimes we're shattered by things we would never have chosen. But our brokenness is also the source of our common humanity, the basis for our shared search for comfort, meaning, and healing. Our shared vulnerability and imperfection nurtures and sustains our capacity for compassion. We have a choice. We can embrace our humanness, which means embracing our broken natures and the compassion that remains our best hope for healing. Or we can deny our brokenness, forswear compassion, and, as a result, deny our own humanity. I thought of the guards strapping Jimmy Dill to the gurney that very hour. I thought of the people who would cheer his death and see it as some kind of victory. I realized they were broken people, too, even if they would never admit it. So many of us have become afraid and angry. We've become so fearful and vengeful that we've thrown away children, discarded the disabled, and sanctioned the imprisonment of the sick and the weak - not because they are a threat to public safety or beyond rehabilitation but because we think it makes us seem tough, less broken. I thought of the victims of violent crime and the survivors of murdered loved ones, and how we've pressured them to recycle their pain and anguish and give it back to the offenders we prosecute. I thought of the many ways we've legalized vengeful and cruel punishments, how we've allowed our victimization to justify the victimization of others. We've submitted to the harsh instinct to crush those among us whose brokenness is most visible. But simply punishing the broken - walking away from them or hiding them from sight - only ensures that they remain broken and we do, too. There is no wholeness outside of our reciprocal humanity. I frequently had difficult conversations with clients who were struggling and despairing over their situations - over the things they'd done, or had been done to them, that had led them to painful moments. Whenever things got really bad, and they were questioning the value of their lives, I would remind them that each of us is more than the worst thing we've ever done. I told them that if someone tells a lie, that person is not just a liar. If you take something that doesn't belong to you, you are not just a thief. Even if you kill someone, you're not just a killer. I told myself that evening what I had been telling my clients for years. I am more than broken. In fact, there is a strength, a power even, in understanding brokenness, because embracing our brokenness creates a need and desire for mercy, and perhaps a corresponding need to show mercy. When you experience mercy, you learn things that are hard to learn otherwise. You see things that you can't otherwise see; you hear things you can't otherwise hear. You begin to recognize the humanity that resides in each of us.

As discussed earlier, humans who lack the reflective self-awareness of normal adults, such as those with particular forms of amnesia or very young children or those with certain mental disabilities, still are self-aware and still have an interest in continuing to live. There may, of course, be a difference between the self-awareness of normal adult humans and that of other animals. But even if that is the case, it does not mean that the latter have no interest in continuing to live, and it does not justify treating the latter as commodities. Singer begs the question from the outset by maintaining

I never allowed my Autism/Asperger's to have the prerogative to neither tear nor slow me down. I earned a degree in chemistry, juggle for elementary schools, play piano for seniors on Sunday mornings, and been mentoring children/teens from K-12 at Royal Rangers almost every week for six years and counting.

The idea that Autism is a “boy’s” disorder goes all the way back to when the condition was first described at the turn of the twentieth century. Hans Asperger and other early Autism researchers did study girls on the spectrum, but generally left them out of their published research reports.[55] Asperger in particular avoided writing about Autistic girls because he wanted to present certain intelligent, “high-functioning” Autistic people as “valuable” to the Nazis who had taken over Austria and were beginning to exterminate disabled people en masse. As Steve Silberman describes in his excellent book NeuroTribes, Hans Asperger wanted to spare the “high functioning” Autistic boys he’d encountered from being sent to Nazi death camps. Silberman described this fact somewhat sympathetically; Asperger was a scientist who had no choice but to collude with the fascist regime and save what few children he could. However, more recently unearthed documents make it clear that Asperger was far more complicit in Nazi exterminations of disabled children than had been previously believed.[56] Though Asperger held intelligent, “little professor” type Autistics close to his heart, he knowingly sent more visibly debilitated Autistics to extermination centers.

So many of us have become afraid and angry. We’ve become so fearful and vengeful that we’ve thrown away children, discarded the disabled, and sanctioned the imprisonment of the sick and the weak—not because they are a threat to public safety or beyond rehabilitation but because we think it makes us seem tough, less broken. I thought of the victims of violent crime and the survivors of murdered loved ones, and how we’ve pressured them to recycle their pain and anguish and give it back to the offenders we prosecute. I thought of the many ways we’ve legalized vengeful and cruel punishments, how we’ve allowed our victimization to justify the victimization of others. We’ve submitted to the harsh instinct to crush those among us whose brokenness is most visible. But simply punishing the broken--walking away from them or hiding them from sight--only ensures that they remain broken and we do, too. There is no wholeness outside of our reciprocal humanity.

Those who say that children must not be frightened may mean two things. They may mean (1) that we must not do anything likely to give the child those haunting, disabling, pathological fears against which ordinary courage is helpless: in fact, phobias. His mind must, if possible, be kept clear of things he can’t bear to think of. Or they may mean (2) that we must try to keep out of his mind the knowledge that he is born into a world of death, violence, wounds, adventure, heroism and cowardice, good and evil. If they mean the first I agree with them: but not if they mean the second. The second would indeed be to give children a false impression and feed them on escapism in the bad sense. There is something ludicrous in the idea of so educating a generation which is born to the…atomic bomb. Since it is so likely that they will meet cruel enemies, let them at least have heard of brave knights and heroic courage. Otherwise you are making their destiny not brighter but darker.

I can suspend judgment on those who kill–but I think they are evil for the community; they bring in nothing except hate, and take from it all they can. I am willing to believe that they are made that way, that they are born with a disability, for which, perhaps, one should pity them; but even then, I think, not spare them–because you cannot spare them any more than you could spare the man who staggers out from a plague-stricken village in the Middle Ages to mix with innocent and healthy children in a nearby village. The innocent must be protected; they must be able to live at peace and charity with their neighbours. It frightens me that nobody seems to care about the innocent.

With this warning, Mussolini demanded and was given authority to do just about whatever he wanted; but his initial priority, surprisingly, was good government. He knew that citizens were fed up with a bureaucracy that seemed to grow bigger and less efficient each year, so he insisted on daily roll calls in ministry offices and berated employees for arriving late to work or taking long lunches. He initiated a campaign to drenare la palude (“drain the swamp”) by firing more than 35,000 civil servants. He repurposed Fascist gangs to safeguard rail cargo from thieves. He allocated money to build bridges, roads, telephone exchanges, and giant aqueducts that brought water to arid regions. He gave Italy an eight-hour workday, codified insurance benefits for the elderly and disabled, funded prenatal health care clinics, established seventeen hundred summer camps for children, and dealt the Mafia a blow by suspending the jury system and short-circuiting due process. With no jury members to threaten and judges answerable directly to the state, the courts were as incorruptible as they were docile. Contrary to legend, the dictator didn’t quite succeed in making the trains run on time, but he earned bravos for trying.

Let’s Convince Him He’s Addicted for Life Parents consent to their children’s treatment for diseases other than taking drugs. One of the most common groups of childhood diseases is “learning disabilities,” including especially hyperactivity. Are such learning disabilities permanent? One piece of research showed that, “Contrary to the expectations of many experts, . . . boys who are hyperactive do not always have

According to Jay Belsky, a leading proponent of this view and a psychology professor and child care expert at the University of London, the reactivity of these kids’ nervous systems makes them quickly overwhelmed by childhood adversity, but also able to benefit from a nurturing environment more than other children do. In other words, orchid children are more strongly affected by all experience, both positive and negative. Scientists have known for a while that high-reactive temperaments come with risk factors. These kids are especially vulnerable to challenges like marital tension, a parent’s death, or abuse. They’re more likely than their peers to react to these events with depression, anxiety, and shyness. Indeed, about a quarter of Kagan’s high-reactive kids suffer from some degree of the condition known as “social anxiety disorder,” a chronic and disabling form of shyness.

Unfortunately, for the past decade American soldiers have returned to a country that displays many indicators of low social resilience. Resources are not shared equally, a quarter of children live in poverty, jobs are hard to get, and minimum wage is almost impossible to live on. Instead of being able to work and contribute to society—a highly therapeutic thing to do—a large percentage of veterans are just offered lifelong disability payments.

If Roe v. Wade is ever overturned, the foster care system will likely be flooded with special needs cases. Will we, as God’s people, be prepared to take care of the children who were not aborted, but then abandoned? If we claim to be “pro-life,” we must be willing to take an honest look at our attitudes toward children with disabilities. We must be honest with ourselves about how the church has handled and in some cases even mishandled this issue.

Today Is A New Day/New Beginning 1. Send a food hamper to a less fortunate family 2.Tutor a neighborhood child at no cost 3.Give an elderly or disabled neighbor a ride to church 4.Buy a birthday gift for a less fortunate child 5. Donate school supplies to a nearby school 6.Donate to a Children’s charity 7. Donate new books to a library 8.Send military care packages to deployed Service members 9.Send cards to the sick in a Nursing Facility/Shut-ins 10.Cook and serve meals at a Homeless Shelter

But no matter how carefully we schedule our days, master our emotions, and try to wring our best life now from our better selves, we cannot solve the problem of finitude. We will always want more. We need more. We are carrying the weight of caregiving and addiction, chronic pain and uncertain diagnosis, struggling teenagers and kids with learning disabilities, mental illness and abusive relationships. A grandmother has been sheltering without a visitor for months, and a friend's business closed its doors. Doctors, nurses, and frontline workers are acting as levees, feeling each surge of the disease crash against them. My former students, now serving as pastors and chaplains, are in hospitals giving last rites in hazmat suits. They volunteer to be the last person to hold his hand. To smooth her hair. The truth if the pandemic is the truth of all suffering: that it is unjustly distributed. Who bears the brunt? The homeless and the prisoners. The elderly and the children. The sick and the uninsured. Immigrants and people needing social services. People of color and LGBTQ people. The burdens of ordinary evils— descriminations, brutality, predatory lending, illegal evictions, and medical exploitation— roll back on the vulnerable like a heavy stone. All of us struggle against the constraints places on our bodies, our commitments, our ambitions, and our resources, even as we're saddled with inflated expectations of invincibility. This is the strange cruelty of suffering in America, its insistence that everything is still possible.

The passion for such children contains no ego motive of anticipated reciprocity; one is choosing against, in the poet Richard Wilbur's phrase, 'loving things for reasons'. You find beauty and hope in the existence, rather than the achievements, of such a child. Most parenthood entails some struggle to change, educate and improve one's children; people with multiple severe disabilities may not become anything else, and there is a compelling purity in parental engagement not with what might or should or will be, but with, simply, what is.

As discussed earlier, humans who lack the reflective self-awareness of normal adults, such as those with particular forms of amnesia or very young children or those with certain mental disabilities, still are self-aware and still have an interest in continuing to live. There may, of course, be a difference between the self-awareness of normal adult humans and that of other animals. But even if that is the case, it does not mean that the latter have no interest in continuing to live, and it does not justify treating the latter as commodities.

Grazer and Cohn - two outsiders with learning disabilities-played a trick. They bluffed their way into professions that would have been closed to them. The man in the cab assumed that no one would be so audacious as to say he knew how to trade options if he didn't. And it never occurred to the people Brian Grazer called that when he said he was Brian Grazer from Warner Brothers, what he meant was that he was Brian Grazer who pushed the mail cart around at Warner Brothers. What they did is not "right," just as it is not "right" to send children against police dogs. But we need to remember that our definition of what right is, often as not, simply the way that people in positions of privilege close the door on those on the outside. David has nothing to lose, and because he has nothing to lose, he has the freedom to thumb his nose at the rules set by others. That's how people with brains a little bit different from the rest of ours get jobs as options traders and Hollywood producers-and a small band of protesters armed with nothing but their wits have a chance against the likes of Bull Connor

A brick could be used to show you how to live a richer, fuller, more satisfying life. Don’t you want to have fulfillment and meaning saturating your existence? I can show you how you can achieve this and so much more with just a simple brick. For just $99.99—not even an even hundred bucks, I’ll send you my exclusive life philosophy that’s built around a brick. Man’s used bricks to build houses for centuries. Now let one man, me, show you how a brick can be used to build your life up bigger and stronger than you ever imagined. But act now, because supplies are limited. This amazing offer won’t last forever. You don’t want to wake up in ten years to find yourself divorced, homeless, and missing your testicles because you waited even two hours too long to obtain this information. Become a hero today—save your life. Procrastination is only for the painful things in life. We prolong the boring, but why put off for tomorrow the exciting life you could be living today? If you’re not satisfied with the information I’m providing, I’m willing to offer you a no money back guarantee. That’s right, you read that wrong. If you are not 100% dissatisfied with my product, I’ll give you your money back. For $99.99 I’m offering 99.99%, but you’ve got to be willing to penny up that percentage to 100. Why delay? The life you really want is mine, and I’m willing to give it to you—for a price. That price is a one-time fee of $99.99, which of course everyone can afford—even if they can’t afford it. Homeless people can’t afford it, but they’re the people who need my product the most. Buy my product, or face the fact that in all probability you are going to end up homeless and sexless and unloved and filthy and stinky and probably even disabled, if not physically than certainly mentally. I don’t care if your testicles taste like peanut butter—if you don’t buy my product, even a dog won’t lick your balls you miserable cur. I curse you! God damn it, what are you, slow? Pay me my money so I can show you the path to true wealth. Don’t you want to be rich? Everything takes money—your marriage, your mortgage, and even prostitutes. I can show you the path to prostitution—and it starts by ignoring my pleas to help you. I’m not the bad guy here. I just want to help. You have some serious trust issues, my friend. I have the chance to earn your trust, and all it’s going to cost you is a measly $99.99. Would it help you to trust me if I told you that I trust you? Well, I do. Sure, I trust you. I trust you to make the smart decision for your life and order my product today. Don’t sleep on this decision, because you’ll only wake up in eight hours to find yourself living in a miserable future. And the future indeed looks bleak, my friend. War, famine, children forced to pimp out their parents just to feed the dog. Is this the kind of tomorrow you’d like to live in today? I can show you how to provide enough dog food to feed your grandpa for decades. In the future I’m offering you, your wife isn’t a whore that you sell for a knife swipe of peanut butter because you’re so hungry you actually considered eating your children. Become a hero—and save your kids’ lives. Your wife doesn’t want to spread her legs for strangers. Or maybe she does, and that was a bad example. Still, the principle stands. But you won’t be standing—in the future. Remember, you’ll be confined to a wheelchair. Mushrooms are for pizzas, not clouds, but without me, your life will atom bomb into oblivion. Nobody’s dropping a bomb while I’m around. The only thing I’m dropping is the price. Boom! I just lowered the price for you, just to show you that you are a valued customer. As a VIP, your new price on my product is just $99.96. That’s a savings of over two pennies (three, to be precise). And I’ll even throw in a jar of peanut butter for free. That’s a value of over $.99. But wait, there’s more! If you call within the next ten minutes, I’ll even throw in a blanket free of charge. . .

Are you calling me weak?' 'No.' Mira squeezes my hand. 'Just... fragile.' 'That's not any better.' Dragons don't bond fragile women. They incinerate them. 'So she's small.' Mom scans me up and down, taking in the generous fit of the cram belted tunic and pants I selected this morning for my potential execution. I snort. 'Are we just listing my faults now?' 'I never said it was a fault.' Mom turns to my sister. 'Mira, Violet deals with more pain before lunch than you do in an entire week. If any of my children is capable of surviving the Rider's Quadrant, it's her.

When Franklin D. Roosevelt signed the Social Security Act in 1935, old age was defined as sixty-five years, yet estimated life expectancy in the United States at the time was sixty-one years for males and sixty-four years for females.62 A senior citizen today, however, can expect to live eighteen to twenty years longer. The downside is that he or she also should expect to die more slowly. The two most common causes of death in 1935 America were respiratory diseases (pneumonia and influenza) and infectious diarrhea, both of which kill rapidly. In contrast, the two most common causes of death in 2007 America were heart disease and cancer (each accounted for about 25 percent of total deaths). Some heart attack victims die within minutes or hours, but most elderly people with heart disease survive for years while coping with complications such as high blood pressure, congestive heart failure, general weakness, and peripheral vascular disease. Many cancer patients also remain alive for several years following their diagnosis because of chemo-therapy, radiation, surgery, and other treatments. In addition, many of the other leading causes of death today are chronic illnesses such as asthma, Alzheimer’s, type 2 diabetes, and kidney disease, and there has been an upsurge in the occurrence of nonfatal but chronic illnesses such as osteoarthritis, gout, dementia, and hearing loss.63 Altogether, the growing prevalence of chronic illness among middle-aged and elderly individuals is contributing to a health-care crisis because the children born during the post–World War II baby boom are now entering old age, and an unprecedented percentage of them are suffering from lingering, disabling, and costly diseases. The term epidemiologists coined for this phenomenon is the “extension of morbidity.

The idea of denominator neglect helps explain why different ways of communicating risks vary so much in their effects. You read that “a vaccine that protects children from a fatal disease carries a 0.001% risk of permanent disability.” The risk appears small. Now consider another description of the same risk: “One of 100,000 vaccinated children will be permanently disabled.” The second statement does something to your mind that the first does not: it calls up the image of an individual child who is permanently disabled by a vaccine; the 999,999 safely vaccinated children have faded into the background.

More often than not, the people around me weren’t simply deciding to give up. They were living in a culture of dependency that had been passed down from birth. My mother and grandmother gave in to the culture. And they expected me to figure out the best way to live on that same track, to game the system and not even try to escape. My friend Ben agrees. 'Most of the time, what you see in the housing projects are generations of families,' he says. 'People accustomed to this lifestyle. It becomes comfortable, so they don’t move away, and even their children stay and raise kids in the same environment.' In neighborhoods like the ones where Ben and I grew up, there is no perceived incentive to advance. After all, the checks for housing and the food stamps and assistance arrive every month. This is why the system must be reformed. Welfare should exist only for a certain period of time, unless you’re disabled and can’t physically work. It should not last for a generation or more. There are millions of jobs open, without enough people to fill them or, rather, without enough people who have the necessary skills and training. This is where the government should come in, providing incentives for real-world training and educating recipients about a life beyond government dependence.

Sometimes Christian good is hard to be around. It’s not of this world, and the juxtaposition jars. For example, Jean Vanier spent seven years in the British navy, starting in 1942. Later in life he noticed the way people with mental disabilities were mistreated and discarded by society into miserable asylums. He visited the asylums and noticed that nobody in them was crying. “When they realize that nobody cares, that nobody will answer them, children no longer cry. It takes too much energy. We cry out only when there is hope that someone may hear us.” He bought a little house near Paris and started a community for the mentally disabled. Before long there were 134 such communities in thirty-five countries. Vanier exemplifies a selflessness that is almost spooky. He thinks and cares so little of himself. He lives as almost pure gift. People who meet him report that this can have an unnerving effect. Vanier walked out of a society that celebrates the successful and the strong to devote his life purely to those who are weak. He did it because he understands his own weakness. “We human beings are all fundamentally the same,” he wrote. “We all belong to a common, broken humanity. We all have wounded, vulnerable hearts. Each one of us needs to feel appreciated and understood; we all need help.

At the “Capitol Crawl,” people using wheelchairs, leg braces, and canes made their way to the hundred steps in front of the U.S. Capitol building in Washington, D.C. Then they began to climb those stairs, leaving behind whatever gear couldn’t come with them, using their arms or whatever body parts they had available for mobility. Children as young as ten participated in what became a very public, strategic spectacle. That protest is considered by historians to have been the tipping point; the Americans with Disabilities Act was passed in 1990, guaranteeing curb cut changes at every city sidewalk corner and ramped entrances at all newly constructed buildings, among other new provisions.

How much more would I have longed for and needed to see myself in my books if I’d been disabled, gay, black, non-Christian or something else outside the mainstream message? By this time – the mid-1980s – writers’ and publishers’ consciousnesses of matters of sex, race and representation had started to be raised. The first wave of concern had come in the 1960s and 70s, mainly – or perhaps just most successfully – over the matter of heroines. There were some. But not many. And certainly not enough of the right – feisty, non-domestic, un-Meg Marchish – sort. Efforts needed to be made to overcome the teeny imbalance caused by 300 years of unreflecting patriarchal history. It’s this memory that convinces me of the importance of role models and the rightness of including (or as critics of the practice call it, ‘crowbarring in’) a wide variety of characters with different backgrounds, orientations and everything else into children’s books. If it seems – hell, even if it IS – slightly effortful at times, I suspect that the benefits (even though by their very nature as explosions of inward delight, wordless recognition, relief, succour, sustenance, those benefits are largely hidden) vastly outweigh the alleged cons. And I’m never quite sure what the cons are supposed to be anyway. Criticisms usually boil down to some variant of ‘I am used to A! B makes me uncomfortable! O, take the nasty B away!’ Which really isn’t good enough.

In my own periods of darkness, in the underworld of the soul, I find myself frequently overcome and amazed by the ability of people to befriend each other, to love their intimate partners and parents and children, and to do what they must do to keep the machinery of the world running. I knew a man, injured and disabled by a car accident, who was employed by a local utility. For years after the crash he worked side by side with another man, who for his part suffered with a degenerative neurological disease. They cooperated while repairing the lines, each making up for the other’s inadequacy. This sort of everyday heroism is the rule, I believe, rather than the exception. Most individuals are dealing with one or more serious health problems while going productively and uncomplainingly about their business. If anyone is fortunate enough to be in a rare period of grace and health, personally, then he or she typically has at least one close family member in crisis. Yet people prevail and continue to do difficult and effortful tasks to hold themselves and their families and society together. To me this is miraculous—so much so that a dumbfounded gratitude is the only appropriate response. There are so many ways that things can fall apart, or fail to work altogether, and it is always wounded people who are holding it together. They deserve some genuine and heartfelt admiration for that. It’s an ongoing miracle of fortitude and perseverance

Those who say that children must not be frightened may mean two things. They may mean (1) that we must not do anything likely to give the child those haunting, disabling, pathological fears against which ordinary courage is helpless: in fact, phobias. His mind must, if possible, be kept clear of things he can’t bear to think of. Or they may mean (2) that we must try to keep out of his mind the knowledge that he is born into a world of death, violence, wounds, adventure, heroism and cowardice, good and evil. If they mean the first I agree with them: but not if they mean the second. The second would indeed be to give children a false impression and feed them on escapism in the bad sense. There is something ludicrous in the idea of so educating a generation which is born to the Ogpu and the atomic bomb. Since it is so likely that they will meet cruel enemies, let them at least have heard of brave knights and heroic courage. Otherwise you are making their destiny not brighter but darker. Nor do most of us find that violence and bloodshed, in a story, produce any haunting dread in the minds of children. As far as that goes, I side impenitently with the human race against the modern reformer. Let there be wicked kings and beheadings, battles and dungeons, giants and dragons, and let villains be soundly killed at the end of the book. Nothing will persuade me that this causes an ordinary child any kind or degree of fear beyond what it wants, and needs, to feel. For, of course, it wants to be a little frightened.

On a Sunday this January, probably of whatever year it is when you read this (at least as long as I’m living), I will probably be preaching somewhere in a church on “Sanctity of Human Life Sunday.” Here’s a confession: I hate it. Don’t get me wrong. I love to preach the Bible. And I love to talk about the image of God and the protection of all human life. I hate this Sunday not because of what we have to say, but that we have to say it at all. The idea of aborting an unborn child or abusing a born child or starving an elderly person or torturing an enemy combatant or screaming at an immigrant family, these ought all to be so self-evidently wrong that a “Sanctity of Human Life Sunday” ought to be as unnecessary as a “Reality of Gravity Sunday.” We shouldn’t have to say that parents shouldn’t abort their children, or their fathers shouldn’t abandon the mothers of their babies, or that no human life is worthless regardless of age, skin color, disability, or economic status. Part of my thinking here is, I hope, a sign of God’s grace, a groaning by the Spirit at this world of abortion clinics and torture chambers (Rom. 8:22–23). But part of it is my own inability to see the spiritual combat zone that the world is, and has been from Eden onward. This dark present reality didn’t begin with the antebellum South or with the modern warfare state, and it certainly didn’t begin with the Roe v. Wade Supreme Court decision. Human dignity is about the kingdom of God, and that means that in every place and every culture human dignity is contested.

The evil stepmother is a fixture in European fairy tales because the stepmother was very much a fixture in early European society–mortality in childbirth was very high, and it wasn’t unusual for a father to suddenly find himself alone with multiple mouths to feed. So he remarried and brought another woman into the house, and eventually they had yet more children, thus changing the power dynamics of inheritance in the household in a way that had very little to do with inherent, archetypal evil and everything to do with social expectation and pressure. What was a woman to do when she remarried into a family and had to act as mother to her husband’s children as well as her own, in a time when economic prosperity was a magical dream for most? Would she think of killing her husband’s children so that her own children might therefore inherit and thrive? [...] Perhaps. Perhaps not. But the fear that stepmothers (or stepfathers) might do this kind of thing was very real, and it was that fear–fed by the socioeconomic pressures felt by the growing urban class–that fed the stories. We see this also with the stories passed around in France–fairies who swoop in to save the day when women themselves can’t do so; romantic tales of young girls who marry beasts as a balm to those young ladies facing arranged marriages to older, distant dukes. We see this with the removal of fairies and insertion of religion into the German tales. Fairy tales, in short, are not created in a vacuum. As with all stories, they change and bend both with and in response to culture.

The whole South was a military camp. The occupation of the colored people was to furnish supplies for the army. Conscription was resorted to early, and embraced every male from the age of eighteen to forty-five, excluding only those physically unfit to serve in the field, and the necessary number of civil officers of State and intended National government. The old and physically disabled furnished a good portion of these. The slaves, the non-combatants, one-third of the whole, were required to work in the field without regard to sex, and almost without regard to age. Children from the age of eight years could and did handle the hoe; they were not much older when they began to hold the plough. The four million of colored non-combatants were equal to more than three times their number in the North, age for age and sex for sex, in supplying food from the soil to support armies. Women did not work

Predominantly inattentive type Perhaps the majority of girls with AD/HD fall into the primarily inattentive type, and are most likely to go undiagnosed. Generally, these girls are more compliant than disruptive and get by rather passively in the academic arena. They may be hypoactive or lethargic. In the extreme, they may even seem narcoleptic. Because they do not appear to stray from cultural norms, they will rarely come to the attention of their teacher. Early report cards of an inattentive type girl may read, "She is such a sweet little girl. She must try harder to speak up in class." She is often a shy daydreamer who avoids drawing attention to herself. Fearful of expressing herself in class, she is concerned that she will be ridiculed or wrong. She often feels awkward, and may nervously twirl the ends of her hair. Her preferred seating position is in the rear of the classroom. She may appear to be listening to the teacher, even when she has drifted off and her thoughts are far away. These girls avoid challenges, are easily discouraged, and tend to give up quickly. Their lack of confidence in themselves is reflected in their failure excuses, such as, "I can't," "It's too hard," or "I used to know it, but I can't remember it now." The inattentive girl is likely to be disorganized, forgetful, and often anxious about her school work. Teachers may be frustrated because she does not finish class work on time. She may mistakenly be judged as less bright than she really is. These girls are reluctant to volunteer for a project orjoin a group of peers at recess. They worry that other children will humiliate them if they make a mistake, which they are sure they will. Indeed, one of their greatest fears is being called on in class; they may stare down at their book to avoid eye contact with the teacher, hoping that the teacher will forget they exist for the moment. Because interactions with the teacher are often anxiety-ridden, these girls may have trouble expressing themselves, even when they know the answer. Sometimes, it is concluded that they have problems with central auditory processing or expressive language skills. More likely, their anxiety interferes with their concentration, temporarily reducing their capacity to both speak and listen. Generally, these girls don't experience this problem around family or close friends, where they are more relaxed. Inattentive type girls with a high IQ and no learning disabilities will be diagnosed with AD/HD very late, if ever. These bright girls have the ability and the resources to compensate for their cognitive challenges, but it's a mixed blessing. Their psychological distress is internalized, making it less obvious, but no less damaging. Some of these girls will go unnoticed until college or beyond, and many are never diagnosed they are left to live with chronic stress that may develop into anxiety and depression as their exhausting, hidden efforts to succeed take their toll. Issues

Dawn’s afternoons at the Baker Institute for physically disabled kids sounded fascinating. She rode to Stamford in a specially equipped van with four children from Stoneybrook who went to Baker for physical therapy, classes in the arts, and a chance to make new friends. The bus driver was a woman who was going to college to learn to be a physical therapist. She drove the bus to earn some extra money, but the kids were more than just a job to her. She really enjoyed being with them. “Candace is so funny,” Dawn told me. “She jokes around with the kids, and they love her. She treats all of them the way you’d treat kids who aren’t in wheelchairs or wearing braces. She’ll say to them, ‘Hurry up! I haven’t got all day,’ and the kids just giggle. Most people tiptoe around the kids like they’re going to break. And never mention their braces or anything. But if a friend of yours got new clothes, you’d make a comment, right? So if a kid gets on the bus with decorations all over the back of his wheelchair, Candace will say, ‘Your chair looks great today! I think you should go into business as a decorator.

traditional tales are neither so simplistic nor so predictable. They give generous space to the subaltern voice: to the powerless, to the poor, to girls and wives, even to animals, all those creatures who need to find ways not only to survive in this difficult world, but to live well in it, despite the dark forces ranged against them. These stories compel, seizing our attention with their strangeness while at the same time speaking clearly to shared themes of human existence. They explore huge questions: of love and loss, and of the conditions under which we do our everyday work and how we might thrive in it. They patrol the shadowy borderlands between life and death and they tease out our hopes and fears for our children. They demand we consider issues such as migration, asking who belongs here, who can make a home here, who can find the strength to begin all over again in a strange new land – and who might have been here for much longer than you think. Folktales pick fights about disability and aging, about women and men, and, crucially, they hold out to us the environments in which we live – our much-loved British countryside – and show how it might slip through our fingers.

Science fiction writers construct an imaginary future; historians attempt to reconstruct the past. Ultimately, both are seeking to understand the present. In this essay, we blend the two genres to imagine a future historian looking back on a past that is our present and (possible) future. The occasion is the tercentenary of the end of Western culture (1540–2093); the dilemma being addressed is how we—the children of the Enlightenment—failed to act on robust information about climate change and knowledge of the damaging events that were about to unfold. Our historian concludes that a second Dark Age had fallen on Western civilization, in which denial and self-deception, rooted in an ideological fixation on “free” markets, disabled the world’s powerful nations in the face of tragedy. Moreover, the scientists who best understood the problem were hamstrung by their own cultural practices, which demanded an excessively stringent standard for accepting claims of any kind—even those involving imminent threats. Here, our future historian, living in the Second People’s Republic of China, recounts the events of the Period of the Penumbra (1988–2093) that led to the Great Collapse and Mass Migration (2073–2093).

Thanks to the popular policies of our Party and the Government of our Republic, all our people are provided by the state and society with all the practical conditions they need for adequate food, clothing and housing and enjoy an equally happy life. They are supplied by the state with provisions virtually free of charge and receive the benefits of free education, free medical care and all the conditions they need for adequate food, clothing and housing. Moreover, as a result of the abolition of taxation, this word has disappeared from their vocabulary. In our country the state takes responsible care of the old and disabled people and children who have no means of support. In our country preferential, social treatment is accorded to merited people, including veterans who have been disabled in the fight for the noble cause of the fatherland and the people, and the Party and the state take warm care of them. Our people receive many benefits from the Party and the state. The popular policies of our Party and the Government of the Republic are eloquent proof of the advantages of our socialist system which is centred upon the popular masses. The “welfare policies” pursued in capitalist countries are fundamentally different from the popular policies of a socialist society. They are aimed at disguising the class contradictions in that society and at pacifying the resistance of the working masses. Even if the “welfare policies” are enforced, this is done only in name and cannot improve the life of the working people.

While the overall systems of heterosexism and ableism are still with us, they have adapted in limited ways. These adaptations are held up as reassurance to those who fought long and hard for a particular change that equality has now been achieved. These milestones—such as the recognition of same-sex marriage, the passage of the Americans with Disabilities Act, Title 9, the election of Barack Obama—are, of course, significant and worthy of celebration. But systems of oppression are deeply rooted and not overcome with the simple passage of legislation. Advances are also tenuous, as we can see in recent challenges to the rights of LGBTQI (lesbian, gay, bisexual, transgender, queer or questioning, and intersex) people. Systems of oppression are not completely inflexible. But they are far less flexible than popular ideology would acknowledge, and the collective impact of the inequitable distribution of resources continues across history. COLOR-BLIND RACISM What is termed color-blind racism is an example of racism’s ability to adapt to cultural changes.3 According to this ideology, if we pretend not to notice race, then there can be no racism. The idea is based on a line from the famous “I Have a Dream” speech given by Dr. Martin Luther King in 1963 during the March on Washington for Jobs and Freedom. At the time of King’s speech, it was much more socially acceptable for white people to admit to their racial prejudices and belief in white racial superiority. But many white people had never witnessed the kind of violence to which blacks were subjected. Because the struggle for civil rights was televised, whites across the nation watched in horror as black men, women, and children were attacked by police dogs and fire hoses during peaceful protests and beaten and dragged away from lunch counters.

When I hung up the phone that night I had a wet face and a broken heart. The lack of compassion I witnessed every day had finally exhausted me. I looked around my crowded office, at the stacks of records and papers, each pile filled with tragic stories, and I suddenly didn’t want to be surrounded by all this anguish and misery. As I sat there, I thought myself a fool for having tried to fix situations that were so fatally broken. It’s time to stop. I can’t do this anymore. For the first time I realized my life was just full of brokenness. I worked in a broken system of justice. My clients were broken by mental illness, poverty, and racism. They were torn apart by disease, drugs and alcohol, pride, fear, and anger. I thought of Joe Sullivan and of Trina, Antonio, Ian, and dozens of other broken children we worked with, struggling to survive in prison. I thought of people broken by war, like Herbert Richardson; people broken by poverty, like Marsha Colbey; people broken by disability, like Avery Jenkins. In their broken state, they were judged and condemned by people whose commitment to fairness had been broken by cynicism, hopelessness, and prejudice. I looked at my computer and at the calendar on the wall. I looked again around my office at the stacks of files. I saw the list of our staff, which had grown to nearly forty people. And before I knew it, I was talking to myself aloud: “I can just leave. Why am I doing this?” It took me a while to sort it out, but I realized something sitting there while Jimmy Dill was being killed at Holman prison. After working for more than twenty-five years, I understood that I don’t do what I do because it’s required or necessary or important. I don’t do it because I have no choice. I do what I do because I’m broken, too. My years of struggling against inequality, abusive power, poverty, oppression, and injustice had finally revealed something to me about myself. Being close to suffering, death, executions, and cruel punishments didn’t just illuminate the brokenness of others; in a moment of anguish and heartbreak, it also exposed my own brokenness. You can’t effectively fight abusive power, poverty, inequality, illness, oppression, or injustice and not be broken by it. We are all broken by something. We have all hurt someone and have been hurt. We all share the condition of brokenness even if our brokenness is not equivalent. I desperately wanted mercy for Jimmy Dill and would have done anything to create justice for him, but I couldn’t pretend that his struggle was disconnected from my own. The ways in which I have been hurt––and have hurt others––are different from the ways Jimmy Dill suffered and caused suffering. But our shared brokenness connected us. Paul Farmer, the renowned physician who has spent his life trying to cure the world’s sickest and poorest people, once quoted me something that the writer Thomas Merton said: We are bodies of broken bones. I guess I’d always known but never fully considered that being broken is what makes us human. We all have our reasons. Sometimes we’re fractured by the choices we make; sometimes we’re shattered by things we would never have chosen. But our brokenness is also the source of our common humanity, the basis for our shared search for comfort, meaning, and healing. Our shared vulnerability and imperfection nurtures and sustains our capacity for compassion. We have a choice. We can embrace our humanness, which means embracing our broken natures and the compassion that remains our best hope for healing. Or we can deny our brokenness, forswear compassion, and, as a result, deny our own humanity.