Chronic Fatigue Quotes

We've searched our database for all the quotes and captions related to Chronic Fatigue. Here they are! All 200 of them:

I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.
Jennifer Starzec (Determination (5k, Ballet, #2))
After trauma the world is experienced with a different nervous system. The survivor’s energy now becomes focused on suppressing inner chaos, at the expense of spontaneous involvement in their lives. These attempts to maintain control over unbearable physiological reactions can result in a whole range of physical symptoms, including fibromyalgia, chronic fatigue, and other autoimmune diseases. This explains why it is critical for trauma treatment to engage the entire organism, body, mind, and brain.
Bessel van der Kolk (The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma)
People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly.
Jennifer Starzec (Determination (5k, Ballet, #2))
In fact, I do not think laziness exists. You know what does exist? Executive dysfunction, procrastination, feeling overwhelmed, perfectionism, trauma, amotivation, chronic pain, energy fatigue, depression, lack of skills, lack of support, and differing priorities.
K.C. Davis (How to Keep House While Drowning)
Cat, you asked me before to find out if those dream -suppression pills had any side effects. I’ve checked with Pathology, and they said you might experience depression, mood swings, irritability, paranoia, and chronic fatigue. Have you noticed any of that?
Jeaniene Frost (Destined for an Early Grave (Night Huntress, #4))
Addiction, self-sabotage, procrastination, laziness, rage, chronic fatigue, and depression are all ways that we withhold our full participation in the program of life we are offered. When the conscious mind cannot find a reason to say no, the unconscious says no in its own way.
Charles Eisenstein (The More Beautiful World Our Hearts Know Is Possible (Sacred Activism))
Sure, society understands visible shackles-- they get the symbolism of the wheelchair, of prosthetics, of a bumper sticker reading disabled veteran, but they still struggle for comprehension of the profound, invisible shackles that an illness such as [Chronic Fatigue] puts on a person's body.
Peggy Munson (Stricken)
People with [Chronic Fatigue] who kill themselves are the millenium's favorite type of disabled citizens-- those who will walk quietly among the healthy, then quietly dispose of themselves.
Marta Russell (Beyond Ramps: Disability at the End of the Social Contract)
And so it is a truth universally acknowledged that a young woman in possession of vague symptoms like fatigue and pain will be in search of a doctor who believes she is actually sick.
Meghan O'Rourke (The Invisible Kingdom: Reimagining Chronic Illness)
I’m really tired”, you come to understand, is meaningless, giving the impression all will be well with a good rest and that if you’ve ever been tired, you know what it is to be exhausted.
Frances Ryan
Pain is a portal to transformation, It does not knock politely.
Lucy H. Pearce (Medicine Woman: Reclaiming the Soul of Healing)
I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.
Sarah Todd Hammer (Determination (5k, Ballet, #2))
It's extraordinary how many people have a postviral syndrome that's very strikingly similar to myalgic encephalomyelitis/chronic fatigue syndrome.
Anthony S. Fauci
Jay Levy saw ten women," the doctor later recalled, "And he thought they were all hysterical. Then he saw a man, whose complaints he took seriously.
Hillary Johnson (Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic)
Within that tired body, lies a soul so persistent in love, repentant in serving others before yourself. I see the person who can sympathize all layers of the human experience. I see you.
Karen A. Baquiran
Because doctors can’t name the illness, everyone—the patient's family, friends, health insurance, and in many cases the patient—comes to think of the patient as not really sick and not really suffering. What the patient comes to require in these circumstances, in the absence of help, are facts—tests and studies that show that they might “in fact” have something.
Joseph Dumit
Do you know about the spoons? Because you should. The Spoon Theory was created by a friend of mine, Christine Miserandino, to explain the limits you have when you live with chronic illness. Most healthy people have a seemingly infinite number of spoons at their disposal, each one representing the energy needed to do a task. You get up in the morning. That’s a spoon. You take a shower. That’s a spoon. You work, and play, and clean, and love, and hate, and that’s lots of damn spoons … but if you are young and healthy you still have spoons left over as you fall asleep and wait for the new supply of spoons to be delivered in the morning. But if you are sick or in pain, your exhaustion changes you and the number of spoons you have. Autoimmune disease or chronic pain like I have with my arthritis cuts down on your spoons. Depression or anxiety takes away even more. Maybe you only have six spoons to use that day. Sometimes you have even fewer. And you look at the things you need to do and realize that you don’t have enough spoons to do them all. If you clean the house you won’t have any spoons left to exercise. You can visit a friend but you won’t have enough spoons to drive yourself back home. You can accomplish everything a normal person does for hours but then you hit a wall and fall into bed thinking, “I wish I could stop breathing for an hour because it’s exhausting, all this inhaling and exhaling.” And then your husband sees you lying on the bed and raises his eyebrow seductively and you say, “No. I can’t have sex with you today because there aren’t enough spoons,” and he looks at you strangely because that sounds kinky, and not in a good way. And you know you should explain the Spoon Theory so he won’t get mad but you don’t have the energy to explain properly because you used your last spoon of the morning picking up his dry cleaning so instead you just defensively yell: “I SPENT ALL MY SPOONS ON YOUR LAUNDRY,” and he says, “What the … You can’t pay for dry cleaning with spoons. What is wrong with you?” Now you’re mad because this is his fault too but you’re too tired to fight out loud and so you have the argument in your mind, but it doesn’t go well because you’re too tired to defend yourself even in your head, and the critical internal voices take over and you’re too tired not to believe them. Then you get more depressed and the next day you wake up with even fewer spoons and so you try to make spoons out of caffeine and willpower but that never really works. The only thing that does work is realizing that your lack of spoons is not your fault, and to remind yourself of that fact over and over as you compare your fucked-up life to everyone else’s just-as-fucked-up-but-not-as-noticeably-to-outsiders lives. Really, the only people you should be comparing yourself to would be people who make you feel better by comparison. For instance, people who are in comas, because those people have no spoons at all and you don’t see anyone judging them. Personally, I always compare myself to Galileo because everyone knows he’s fantastic, but he has no spoons at all because he’s dead. So technically I’m better than Galileo because all I’ve done is take a shower and already I’ve accomplished more than him today. If we were having a competition I’d have beaten him in daily accomplishments every damn day of my life. But I’m not gloating because Galileo can’t control his current spoon supply any more than I can, and if Galileo couldn’t figure out how to keep his dwindling spoon supply I think it’s pretty unfair of me to judge myself for mine. I’ve learned to use my spoons wisely. To say no. To push myself, but not too hard. To try to enjoy the amazingness of life while teetering at the edge of terror and fatigue.
Jenny Lawson (Furiously Happy: A Funny Book About Horrible Things)
This sort of sickness is a nothingness, really – a state of limbo; neither well enough to be a functioning member of society nor possessing a sign of illness that signals to the world you are sick. There’s no broken arm. Not even a sore throat and hacking cough.
Frances Ryan
No matter how hopeless you feel, strive to find the one thing that makes you feel alive and pull yourself to the light at the end of the tunnel. There is hope. Trust me.
Tammy-Louise Wilkins
We can't escape from our problems, but we can learn to live with them in a way that is peaceful and joyful.
Pema Chödrön (The Wisdom of No Escape: How to Love Yourself and Your World)
Time becomes very weird. Sometimes it seems as if the hours are rushing by in a blur, the moment of performance hurtling toward me. Other times the clock seems to poke along like a sloth with chronic fatigue syndrome.
Bruce Coville
Highly traumatized and chronically neglected or abused individuals are dominated by the immobilization/shutdown system. On the other hand, acutely traumatized people (often by a single recent event and without a history of repeated trauma, neglect or abuse) are generally dominated by the sympathetic fight/flight system. They tend to suffer from flashbacks and racing hearts, while the chronically traumatized individuals generally show no change or even a decrease in heart rate. These sufferers tend to be plagued with dissociative symptoms, including frequent spacyness, unreality, depersonalization, and various somatic and health complaints. Somatic symptoms include gastrointestinal problems, migraines, some forms of asthma, persistent pain, chronic fatigue, and general disengagement from life.
Peter A. Levine (In an Unspoken Voice: How the Body Releases Trauma and Restores Goodness)
Somatic symptoms for which no clear physical basis can be found are ubiquitous in traumatized children and adults. They can include chronic back and neck pain, fibromyalgia, migraines, digestive problems, spastic colon/irritable bowel syndrome, chronic fatigue, and some forms of asthma.16 Traumatized children have fifty times the rate of asthma as their nontraumatized peers.17 Studies have shown that many children and adults with fatal asthma attacks were not aware of having breathing problems before the attacks.
Bessel van der Kolk (The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma)
If I say, “I have Chronic Fatigue Syndrome,” I’m likely to be discredited as a witness to my own condition. I’ve had doctors tell me there’s no such thing as Chronic Fatigue Syndrome. One doctor said: “Just drink some coffee.
Toni Bernhard
I have continued to get sicker in part because I refuse to rest as much as I should, because I am optomistic and because I push myself.
Whitney Dafoe
Mental illness and chronic fatigue are comparable to a dead soul inhabiting a surviving body.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
The absolute worst thing that you can say to a person that suffers with chronic fatigue: It is all in your head.
Steven Magee
As one patient with chronic fatigue syndrome put it, 'The difference between a crazed neurotic and a seriously ill person is simply a test.
Maya Dusenbery (Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick)
Sleep apnea is known to cause mental illness and chronic fatigue.
Steven Magee
My chronic fatigue is tired for her.
Torie Jean (Finding Gene Kelly)
But the fatigue of physical dysfunction, I came to recognize, is as different from normal sleep deprivation as COVID-19 is from the common cold. It was not caused by needing sleep, I thought, but by my body’s cellular conviction that it needed to conserve energy in order to fix whatever was wrong. The feeling erased my will, the sense of identity that drives most of us. The worst part of my fatigue was the loss of an intact sense of self.
Meghan O'Rourke (The Invisible Kingdom: Reimagining Chronic Illness)
Van der Poel discovered—in addition to Buteyko’s diagnoses—that people with chronic fatigue, burnout, fibromyalgia and myalgic encephalomyelitis also breathe more rapidly or deeply than is necessary.
Wim Hof (The Way of the Iceman: How the Wim Hof Method Creates Radiant Long-term Health—Using the Science and Secrets of Breath Control, Cold-Training and Commitment)
I am so fed up of having to explain to people that Danny is not just tired; if only that were the case. We have lost friends, good friends, when we ran out of patience with explaining that Danny was off school so much, not because he had friendship issues or didn’t like his classes, but because he had an illness that seemed to be eating him up from the inside, despite it not really being visible on the outside.
Sonya Chowdhury
The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.
Jennifer Starzec (Determination (5k, Ballet, #2))
If I have found promise, it is because I’ve squeezed it from the seemingly impossible.
Naomi Whittingham
I’m in a caregiver's relationship with my body, a perpetual internal gauging of wellness. My spine is Hogarth’s thermometer. I ascend and descend its rungs a hundred times a day, reading the mercury level. The same dis-ease speaks many languages. If you block one mouth, another will speak. The symptoms represent differently, and as I get older, my translation changes. The prescription changes. Must be vigilant. Must be my best nurse.
Jalina Mhyana
Widespread pain conditions like fibromyalgia or chronic fatigue syndrome are especially social conditions, since their symptoms have a direct impact on a patient’s ability to maintain various roles and identities. Ties to the outside world via employment, family obligations, activities and hobbies, and social engagements are whittled away, and physical and psychosocial isolation increases.
Laurie Edwards (In the Kingdom of the Sick: A Social History of Chronic Illness in America)
hierarchies of diseases exist among patients and healthcare professionals...and when it comes to hierarchies of illness, evidence shows that chronic fatigue syndrome (CFS) /myalgic encephalomyelitis (ME), features at the bottommost end of the medical “favoured” list
Charlotte Blease
Chronic illness, with its invisible symptoms of fatigue and pain, is largely the burden of women. And it's worth considering to what extent its relative neglect by the medical system is because it mostly affects women, whose complaints are so often heard not as a roar but as a whine.
Maya Dusenbery (Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick)
It dawns on me that maybe I'm just terrifically lazy; that I might be appropriating other people’s invisible sicknesses and disorders and scribbling them on the clipboard at the end of my bed to fool the nurses; so I can indulge in rest cures all day, every day. That I’m even fooling myself.
Jalina Mhyana
Multiple allergies are perhaps the most obvious sign of immune system overreaction. Patients with CFIDS frequently have a past history of allergies, implying that their immune response is genetically primed for a vigorous response. Other patients with CFIDS develop allergic symptoms after the onset of their illness. CFIDS patients have a hair trigger for allergies.
David S. Bell
Eighteen months ago, after seeing thirteen different doctors and undergoing multiple tests and investigations, not only was I given a diagnosis of a condition that I didn’t know about or understand, it was an illness I didn’t believe in.
Nina Muirhead
How to be there for someone with depression or anxiety 1. Know that you are needed, and appreciated, even if it seems you are not. 2. Listen. 3. Never say ‘pull yourself together’ or ‘cheer up’ unless you’re also going to provide detailed, foolproof instructions. (Tough love doesn’t work. Turns out that just good old ‘love’ is enough.) 4. Appreciate that it is an illness. Things will be said that aren’t meant. 5. Educate yourself. Understand, above all, that what might seem easy to you –going to a shop, for instance –might be an impossible challenge for a depressive. 6. Don’t take anything personally, any more than you would take someone suffering with the flu or chronic fatigue syndrome or arthritis personally. None of this is your fault. 7. Be patient. Understand it isn’t going to be easy. Depression ebbs and flows and moves up and down. It doesn’t stay still. Do not take one happy/ bad moment as proof of recovery/ relapse. Play the long game. 8. Meet them where they are. Ask what you can do. The main thing you can do is just be there. 9. Relieve any work/ life pressure if that is doable. 10. Where possible, don’t make the depressive feel weirder than they already feel. Three days on the sofa? Haven’t opened the curtains? Crying over difficult decisions like which pair of socks to wear? So what. No biggie. There is no standard normal. Normal is subjective. There are seven billion versions of normal on this planet.
Matt Haig (Reasons To Stay Alive)
People with chronic illness, pain, and fatigue have been among the most critical of this aspect of the social model, rightly noting that social and structural changes will do little to make one's joints stop aching or to alleviate back pain. Nor will changes in architecture and attitude heal diabetes or cancer or fatigue. Focusing exclusively on disabling barriers, as a strict social model seems to do, renders pain and fatigue irrelevant to the project of disability politics.
Alison Kafer (Feminist, Queer, Crip)
we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit well into a cardiac ward awaiting transplant... The whole idea that you can take a disease like this [M.E./Chronic Fatigue Syndrome] and exercise your way to health is foolishness. It is insane.
Paul Cheney
ME’ as a medical entity was later supplanted in the 1980s by psychiatrists such as Simon Wessely, replaced by the label ‘chronic fatigue syndrome’; a fatiguing syndrome of unknown origin that exists, in part, as a result of dysfunctional illness beliefs, as well as social trends and social care systems that reward illness seeking behaviours.
Charlotte Blease
It is a perfectly normal side-effect for someone to have depression because he cannot move or function in his job. That is all that it is: a side-effect. Those with disabilities and debilitating illnesses probably have more to get depressed about than others.
Dominic Hubbard
The single biggest factor determining recovery and remission from Myalgic Encephalomyelitis (M.E.) at this point is undoubtedly appropriate rest in the early and/or severe stages of the illness. The importance of avoiding overexertion in M.E. can not be overestimated.
Jodi Bassett
Burnout occurs when an individual has experienced prolonged demands, chronic stress, fatigue, a lack of support, and a decrease satisfaction in what they are doing.
Asa Don Brown
Chronic pain shatters productive lives. Chronic pain almost always is accompanied by depression, anxiety, frustration, fatigue, isolation, and lowered self-esteem.
Jed Diamond (Stress Relief for Men: How to Use the Revolutionary Tools of Energy Healing to Live Well)
If your body is chronically deprived of the regenerative sleep between 10:00 p.m. and 2:00 a.m., then you may still feel fatigued when you wake up in the morning.
Shawn Stevenson (Sleep Smarter: 21 Essential Strategies to Sleep Your Way to a Better Body, Better Health, and Bigger Success)
Fatigue had started to set in...and now my eyes showed it as I struggled to keep them open.
Jennifer Starzec
The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.
Sarah Todd Hammer (Determination (5k, Ballet, #2))
During my time of need, the medical system failed me.
Steven Magee (Long COVID Supplements)
The biochemistry and needs of each patient is unique. Chronically ill patients require nutritional support for healing.
Bruce M. Carruthers
I have great expertise in procrastination.
Steven Magee
A journey into self diagnosis and treatment was required when the medical profession left me suffering for years with mental illness and chronic fatigue.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
People do fully recover from chronic fatigue syndrome. Know this. Internalize this. Carve these words into your soul as the absolute truth.
Raelan Agle
Chronic Fatigue crushes the soul.
Steven Magee
I have great respect for the loyal partners of people that are afflicted by chronic fatigue.
Steven Magee
Whether you believe you’re suffering from chronic fatigue syndrome or that 9/11 was an inside job, the World Wide Web exists to tell you you’re right. You are always right.
Noah Hawley (Anthem)
I am a person suffering from chronic fatigue syndrome and I am appalled that it has been given such a trivial name. Here is a disease that totally disables most of its victims; a disease that causes balance disorders, resulting in some of us requiring wheelchairs, cognitive disorders that leave us unable to perform formerly simple mental tasks, and immune disorders that lay us open to multiple infections and to autoimmune problems. And all the medical profession can come up with to define this syndrome to the general population is "fatigue!
Jane Cuozzo
Most of us have physical or mental conditions that have caused us distress in the past. And when we get a whiff of one coming—an incipient asthma attack, a symptom of chronic fatigue, a twinge of anxiety—we panic. Instead of relaxing with the feeling and letting it do its minute and a half while we’re fully open and receptive to it, we say, “Oh no, oh no, here it is again.” We refuse to feel fundamental ambiguity when it comes in this form, so we do the thing that will be most detrimental to us: we rev up our thoughts about it. What if this happens? What if that happens? We stir up a lot of mental activity. Body, speech, and mind become engaged in running away from the feeling, which only keeps it going and going and going. We
Pema Chödrön (Living Beautifully: with Uncertainty and Change)
I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack of respect given patients with poorly understood neurological disease.
David S. Bell (Faces of CFS)
Please don't look at our scarlet A's and write us off. Look us in the eye, talk directly to us. Don't panic or take it personally if we make mistakes, because we will. We will repeat ourselves, we will misplace things, and we will get lost. We will forget your name and what you said two minutes ago. We will also try our hardest to compensate for and overcome our cognitive losses.
Lisa Genova (Still Alice)
All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about being a bit tired because its way and above beyond that. One day ME will be unravelled by the many researchers working tirelessly around the world I hope it's in my lifetime!
Tracey Browett (Severe ME : Notes for Carers)
A heated and often bitter debate persists over whether chronic fatigue syndrome (or myalgic encephalomyelitis (or the postviral fatigue syndrome) is physical or psychological. Although many doctors avoid controversy by stating the obvious—namely, that the mind-body split is artificial and all diseases have physical and mental components—what is really at issue is whether this illness is real or imaginary.
Karen Prince
You have no idea what I have been through or how hard I have tried to wait out, overcome, and make the best of a devastating illness that has slowly made all of my dreams more and more difficult to achieve.
Whitney Dafoe
Allison of RADAD: The Royal Academy of Dramatic Arts and Disability The ticks of Lyme Suck my blood of time And leave me rather drowsy. My feet move like tar With Epstein-Barr And I wake up feeling lousy. I fall asleep in my Pepsi With Narcolepsy To the chagrin of the soda jerk. My Chronic Fatigue (and thespian ability) puts me in the big league (of insurance fraud disability) So who the fuck needs to work!
Beryl Dov
As a doctor who has been bedridden with severe ME for a long period after GET caused a severe relapse from which I have not recovered, I am in a unique position to combine the patient and doctor perspective...
Mark Vink
The description given by a leading gastro-enterologist at the Mayo Clinic [of patients with chronic fatigue syndrome] remains accurate: 'the average doctor will see they are neurotic and he will often be disgusted with them'.
Simon Wessely
I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between the two illnesses, and I can tell you that if I had to choose between the two illnesses (in 2009) I would rather have HIV.
Nancy G. Klimas
If the individual feels never- ending self-imposed pressure to do good, be good, or appear good, she will eventually fall into the long-term effects of fatigue. The long-term effects of this can only be characterized as chronic fatigue.
Steven Ray Ozanich (The Great Pain Deception: Faulty Medical Advice Is Making Us Worse)
Many chronic symptoms and health conditions—such as fatigue, sleepiness, mood disorders, insomnia, gastroesophageal reflux disease, lipid disorders, high blood pressure, headaches (including migraines), gas, bloating, irritable bowel syndrome, joint inflammation, acne, and difficulty concentrating, to name a few—will improve on a ketogenic diet. Treating lifestyle conditions with lifestyle change such as this can make us a healthier and less drug-dependent country. – Jackie Eberstein
Eric C. Westman (Keto Clarity: Your Definitive Guide to the Benefits of a Low-Carb, High-Fat Diet)
You get ill, you are accused of being mentally ill, denied effective treatment, then when you campaign for ‘real science’, you are accused of terrorising those who do not believe in your illness...after all, if your message is that people who say they are suffering from ME or CFS are mentally ill, then accusing them of irrational attacks adds strength to your case.
Martin J. Walker (Skewed: Psychiatric Hegemony and the Manufacture of Mental Illness in Multiple Chemical Sensitivity, Gulf War Syndrome, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome)
This feeling of stress triggers a cascade of physiological consequences. The hypothalamus and pituitary gland in the brain release hormones that cause the release of cortisol from the adrenal glands located on the kidneys. Cortisol increases heart rate, among other things, readying the body for “fight” or “flight.” Acutely, the release of cortisol is beneficial and helps you cope with whatever is urgently being demanded of you. But if the stress becomes chronic, maladaptive things begin to happen. Normally, the release of cortisol turns the hypothalamus and pituitary off, stopping the release of hormone, which in turn stops the further release of cortisol from the adrenal glands. It’s a nice, clean, negative feedback loop. But in the chronically stressed, the loop breaks. The brain stops reacting to cortisol. Our natural, automatic shutoff valve stops working. The brain keeps releasing hormone, and the adrenal glands keep dumping cortisol into the bloodstream, even when the stressful thing that initially triggered the stress response is no longer around. Chronic, elevated levels of cortisol have been associated with a weakened immune system, deficits in short-term memory, chronic fatigue syndrome, anxiety disorders, and depression.
Lisa Genova (Left Neglected)
It must be noted that there is no proof that it is justified to apply the label somatisation to such conditions as chronic fatigue syndrome and several more illnesses that established medicine has so for failed to explain scientifically. ……Don't hesitate to ask questions about scientific evidence behind this talk about somatisation. Be persistent, because a diagnosis of somatisation is definitely not an innocuous label. It will close various doors and lead (to) treatments that usually get nowhere.
Per Dalén
It is [Simon] Wessely’s often-unconcealed “derision” directed towards people with ME -- a disease from which people die and which appears on Coroners’ death certificates as the cause of death -- which arouses such anger, an anger that is not confined to patients in the UK but encompasses medical scientists in other countries whose decision-makers have come under Wessely’s thrall.
Michael Hanlon
Severe, persisting fatigue is a prominent symptom of Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), but individuals with this illness frequently report the occurrence of unique fatigue states that might be different from conventional symptoms of fatigue.
Leonard A. Jason
In July and August 2011 Simon Wessely ran a media campaign with the BBC and the broadsheets, successfully vilifying patients who had justifiably criticised his research. In his case, the marginalisation of ME patients was not ‘unintentional’. It was active and deliberate.
Horace Reid
He has so little energy in his body that he can only walk to the bathroom on the other side of the hallway twice a day. After a few meters he is worn out, much worse than after the marathons he used to run. He was a triathlete, he earned a brown belt in judo, became Dutch champion in hockey, until he contracted pneumonia in 2005 and never recovered. Ever since, he has a headache, vertigo, and insomnia, but worst of all the fatigue: after minimal effort his muscles would lose all their strength and take days to recover. Only after a few years did he get a diagnosis: Chronic Fatigue Syndrome (CFS).
Ellen de Visser
An apple a day might have kept the doctor away prior to the industrialization of food growing and preparation. But, according to research compiled by the United States Drug Administration (USDA) today’s apple contains residue of eleven different neurotoxins—azinphos, methyl chloripyrifos, diazinon, dimethoate, ethion, omthoate, parathion, parathion methyl, phosalone, and phosmet — and the USDA was testing for only one category of chemicals known as organophosphate insecticides. That doesn’t sound too appetizing does it? The average apple is sprayed with pesticides seventeen times before it is harvested.
Michelle Schoffro Cook (The Brain Wash: A Powerful, All-Natural Program to Protect Your Brain Against Alzheimer's, Chronic Fatigue Syndrome, Depression, Parkinson's, and Other Diseases)
November 2, 1984 was an especially tragic day in the Chronic Fatigue Syndrome/AIDS epidemic. That was the day Anthony Fauci became the Director of the National Institutes of Allergy and Infectious Diseases. (NIAID). (Good Intentions p.128) It was the day a thin-skinned, physically ultra-diminutive man with a legendary Napoleonic attitude was positioned by destiny to become the de facto AIDS Czar. In the fog of culpability that constitutes what could be called "Holocaust II" one thing is clear: the buck, on its way to the very top of the government, at least pauses at the megalomaniac desk of Anthony Fauci.
Charles Ortleb (Fauci: The Bernie Madoff of Science and the HIV Ponzi Scheme that Concealed the Chronic Fatigue Syndrome Epidemic)
And so, what the patient knows to be true—this matters. What I know to be true matters. What anyone with chronic fatigue syndrome, multiple chemical sensitivity, fibromyalgia, Lyme, lupus, MS, ulcerative colitis, Crohn’s—what they know, their experience, it matters, and the experts should be listening to them.
Sarah Ramey (The Lady's Handbook for Her Mysterious Illness)
With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die from ‘exercise phobia’. ME is not ‘lethargy’ and ‘aches and pains’, as Liddle claims. Severe ME is lying in a darkened room, alone, in agonising pain, tube-fed, catheterised, too weak to move or speak.
Tanya Marlow
Eating pork, eel and catfish while doing this meditation regularly may result in Kundalini syndrome. Pork oil or lard should definitely be avoided. Kundalini syndrome may manifest as: 1. Chronic fatigue (or chronic extreme general weakness) 2. Overheating of the body 3. Chronic insomnia 4. Depression 5. Skin rashes 6. Hypertension and others
Choa Kok Sui (Pranic Psychotherapy)
The new name 'Chronic Fatigue Syndrome' is far too benign. It trivialises. How seriously would you take something called 'Chronic Thirst Syndrome'? And yet, diabetes is a very serious condition. 'Disabling Fatigue and Immune Dysfunction Syndrome' does a bit better; while more research should allow something more specific. (Thompson, 1992:27)
D Thompson (Chronic Fatigue Syndrome)
The Scream Death changes the meaning of words   Life is not what it use to mean the carefree seamless summer of my childhood is stitched into seasons years decades appointments filling the void with more blackness like oil roiling from the ocean floor love is bottom-lined to to the slit of pleasure God to the slit of the confessional work to clock-punching family to obligation friends to activity partners going through the motions watching myself in a movie in a dream at a wake... we are all amnesiacs lost we suffer from anosognosia and adderall and chronic fatigue and hypochondria he hobbles trembling forsaken alone pressing his ears like a vise in the Krakatoan twilight   I scream
Beryl Dov
Through sickness I became notable.
Steven Magee
The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.
Paul Cheney
Luckily, we are seeing less and less post-exertional malaise, the symptom that stops Danny’s body and brain recovering properly after expending any energy, even just watching TV.
Sonya Chowdhury
Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.
Leonard A. Jason
Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could still be phenomenal dancer even with an SCI
Sarah Todd Hammer (5k, Ballet, and a Spinal Cord Injury (5k, Ballet, #1))
Validation is needed from the doctor ... once that is granted, the patient may assume the privileges of the sick role (sympathy, time off from work, benefits, etc.).
Simon Wessely
You need to be careful about being overweight as a man, as excessive fat produces the female hormone estrogen.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
Many people report reduced back problems when sleeping on memory foam.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
Butter tea has been known for centuries to improve health in people exposed to high altitudes.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
Part of recovering your health is to break long-term toxic habits.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
If your doctors are in the habit of prescribing drugs that are doing you no good, then it is time to change your doctors.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
Given what we have learned in the past eight years about this illness, it is intellectually embarrassing to suggest that ME is a psychological illness.
Betsy Keller
[ME/CFS patients] are more sick and have greater disability than patients with chronic obstructive lung or cardiac disease, and... psychological factors played no role.
William C. Reeves
Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it.
Brynmor John
The deepening corruption of peer view for ME/CFS in the UK continues on wholly unrestrained by evidence, logic, and basic decency.
Carolyn Wiltshire
...patient evidence has repeatedly found that cognitive behaviour therapy is ineffective and graded exercise therapy can make the condition worse.
Charles Shepherd
Light is life.
Steven Magee (Hypoxia, Mental Illness & Chronic Fatigue)
Sophia’s case sheds light on CFS because there were changes in her dorsal ganglia – the gatekeepers to sensation in the brain – and we know that fatigue depends on sensory perception.
Abhijit Chaudhuri
When it comes to hierarchies of illness, evidence shows that chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME), features at the bottommost end of the medical “favoured” list. In the 1980s, newspapers helped coin the dismissive label “yuppie flu”; today, ME/CFS sufferers are still being referred to psychotherapists to work on their “faulty” illness beliefs.
Charlotte Blease
The claim that patients can recover [from ME/CFS] as a result of CBT and GET is not justified by the data, and is highly misleading to clinicians and patients considering these treatments.
Carolyn Wiltshire
Carpal tunnel synd. Insomnia Sexual dysfunction Chest pain Irritable bowel synd. (IBS) Shoulder pain Chronic fatigue synd. Joint pain Sinus problems Colitis Knee pain Social anxiety Constipation Learning disabilities Suicidal thoughts Crohn’s disease Low back pain Tennis elbow Depression Low Self-esteem Thyroid problems Diabetes Lupus Vertigo Dyslexia Migraines Weight issues
Bradley Nelson (The Emotion Code: How to Release Your Trapped Emotions for Abundant Health, Love, and Happiness (Updated and Expanded Edition))
However, there is no fixed rule that dictates when and if a symptom will appear. This group includes: •   Excessive shyness •   Diminished emotional responses •   Inability to make commitments •   Chronic fatigue or very low physical energy •   Immune system problems and certain endocrine problems such as thyroid malfunction and environmental sensitivities •   Psychosomatic illnesses, particularly headaches, migraines, neck and back problems •   Chronic pain •   Fibromyalgia •   Asthma •   Skin disorders •   Digestive problems (spastic colon) •   Severe premenstrual syndrome •   Depression and feelings of impending doom •   Feelings of detachment, alienation, and isolation (“living dead” feelings) •   Reduced ability to formulate plans
Peter A. Levine
Every day that starts ‘let’s just try to have a better day than yesterday’ ends in a worse one. Who gave me this shitty advice - or did I make it up? Why am I setting myself such a high standard?
Alice Hattrick (Ill Feelings)
ME/CFS is not a rare illness, so how could doctors be getting it so wrong? Have we stopped believing in an entire class of patients for whom we don’t yet have the technology to diagnose or drugs to prescribe?
Nina Muirhead
...the chronically traumatized individuals generally show no change or even a decrease in heart rate. These sufferers tend to be plagued with dissociative symptoms, including frequent spacyness, unreality, depersonalization, and various somatic and health complaints. Somatic symptoms include gastrointestinal problems, migraines, some forms of asthma, persistent pain, chronic fatigue, and general disengagement from life.
Peter A. Levine
I wondered if there was anything [the doctor] could do to to make the pain disappear and my arms work again. I wondered if I was going to get any worse than I already was. If so, I wondered if he could fix that, too.
Jennifer Starzec
It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been otherwise destroyed, because some professor has diagnosed them as having a psychiatric illness.
Peter Behan
The renaming of ME to Chronic Fatigue Syndrome (CFS) in 1988, giving misplaced emphasis to “fatigue”, trivializes the substantial disability of the disease 1 – which can extend to the wheelchair or bed-bound requiring 24 hour care ME/CFS is characterized by neurological, immunological, gastrointestinal, cardiovascular and musculoskeletal features – severe forms can present with paresis, seizures, intractable savage headaches and life threatening complications.
Malcolm Hooper
In the cases of chronic fatigue syndrome and fibromyalgia, substantial evidence is now emerging that these syndromes may result from unusual infectious microorganisms that are not detected by the typical laboratory tests. Special, sophisticated lab tests such as polymerase chain reaction (PCR) tests can, however, detect these invaders. A growing number of peer reviewed papers are now confirming the presence of these microorganisms in these particular illnesses.
James L. Wilson (Adrenal Fatigue: The 21st Century Stress Syndrome (The 21st-Century Stress Syndrome))
I have seen mood stabilization, reduced or eliminated depression, reduced or eliminated anxiety, improved cognitive functioning, greatly enhanced and evened-out energy levels, cessation of seizures, improved overall neurological stability, cessation of migraines, improved sleep, improvement in autistic symptoms, improvements with PCOS (polycystic ovary syndrome), improved gastrointestinal functioning, healthy weight loss, cancer remissions and tumor shrinkage, much better management of underlying previous health issues, improved symptoms and quality of life in those struggling with various forms of autoimmunity (including many with type 1 and 1.5 diabetes), fewer colds and flus, total reversal of chronic fatigue, improved memory, sharpened cognitive functioning, and significantly stabilized temperament. And there is quality evidence to support the beneficial impact of a fat-based ketogenic approach in all these types of issues. – Nora Gedgaudas
Jimmy Moore (Keto Clarity: Your Definitive Guide to the Benefits of a Low-Carb, High-Fat Diet)
Studies also show that doctors may view ME/CFS patients as hostile or combative when they challenge the incumbent biopsychosocial model of ME or CFS. Yet rather than feeling threatened or worse still, viewing the patient as uncooperative, there is an opportunity to discuss the limitations of medical knowledge. Here, we believe there is an ethical duty for candour and honesty: indeed, where there are clear gaps in medical knowledge the patient voice should have even more standing.
Charlotte Blease
ME sufferers know full well that there is no present cure for this debilitating illness but equally they do not expect or understand why there is substantial denial within the medical profession of the existence of ME/CFS as a physical condition.
Nina Muirhead
PACE trial is a fault line between the way we did medicine (secretive, clubbable) and the way we should do medicine (transparent, shared)... PACE is turning out to be the science controversy of the decade: it indicts the medical ecosystem of review
Trevor Butterworth
Chronic long-term fatigue, recurrent infections, recovery from long-term illness and infections, nervous exhaustion, chronic fatigue syndrome, chronic disease conditions with depression, low immune function, brain fog, and to accelerate recovery from debilitating conditions. Note: The plant is specific for the kinds of damage that occur during encephalitis infections. It is highly neuroprotective and strongly anti-inflammatory in the brain and CNS. It should be used in all encephalitis infections.
Stephen Harrod Buhner (Herbal Antivirals: Natural Remedies for Emerging & Resistant Viral Infections)
Many families amass more objects than their houses can hold. The result is garages given over to old furniture and unused sports equipment, home offices cluttered with boxes of stuff that haven’t yet been taken to the garage. Three out of four Americans report their garages are too full to put a car into them. Women’s cortisol levels (the stress hormone) spike when confronted with such clutter (men’s, not so much). Elevated cortisol levels can lead to chronic cognitive impairment, fatigue, and suppression of the body’s immune system.
Daniel J. Levitin (The Organized Mind: Thinking Straight in the Age of Information Overload)
The recommendation of graded exercise has caused untold physical damage to thousands of people. In fact, a 2018 survey found that 89% of ME sufferers experienced worsened symptoms after increasing activity. If graded exercise were a drug, it would have lost its licence.
Carol Monaghan
Then there were all the diseases one is vulnerable to in the woods — giardiasis, eastern equine encephalitis, Rocky Mountain spotted fever, Lyme disease, ehrlichiosis, schistosomiasis, brucellosis, and shigellosis, to offer but a sampling. Eastern equine encephalitis, caused by the prick of a mosquito, attacks the brain and central nervous system. If you’re lucky you can hope to spend the rest of your life propped in a chair with a bib around your neck, but generally it will kill you. There is no known cure. No less arresting is Lyme disease, which comes from the bite of a tiny deer tick. If undetected, it can lie dormant in the human body for years before erupting in a positive fiesta of maladies. This is a disease for the person who wants to experience it all. The symptoms include, but are not limited to, headaches, fatigue, fever, chills, shortness of breath, dizziness, shooting pains in the extremities, cardiac irregularities, facial paralysis, muscle spasms, severe mental impairment, loss of control of body functions, and — hardly surprising, really — chronic depression.
Bill Bryson (A Walk in the Woods)
These reports from the IOM, AHRQ, and NIH demonstrate how much we have learned about ME/CFS and how much we still do not know. We do not understand its pathogenesis, and we do not have a diagnostic test or a cure. However, these recent reports, summarizing information from more than 9000 articles, should put the question of whether ME/CFS is a "real" illness to rest. When skeptical physicians, many of whom are unaware of this literature, tell patients with ME/CFS that "there is nothing wrong," they not only commit a diagnostic error: They also compound the patients' suffering.
Anthony L. Komaroff
I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give credence to his own view of ME as a mental illness. Nevertheless, I am uncomfortable that the professor does not appear to be doing his utmost to clear the air on this issue.
Frederick R.P. Curzon
Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to treat you for your ‘false illness beliefs’? This is what happens to Myalgic Encephalomyelitis (ME) patients in the UK. They are told to ignore their symptoms, view themselves as healthy, and increase their exercise. The NHS guidelines amalgamate ME and Chronic Fatigue Syndrome, assuming symptoms are caused by deconditioning and ‘exercise phobia’. Sufferers are offered Graded Exercise to increase fitness, and Cognitive Behavioural Therapy (CBT) to rid them of their ‘false illness beliefs’.
Tanya Marlow
Mark Vink is a not a typical ME/CFS patient. He is severely ill. It takes him twelve hours to recover from a walk from his bed to the bathroom. While he’s not typical he may not be that uncommon, though. Some estimates suggest that about 25% of ME/CFS patients are home bound or bedridden. Few ever make it into research studies.
Cort Johnson
The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic disturbances; abnormalities in energy production including mitochondrial dysfunction, and changes in the expression of certain genes.
Anthony Komaroff
The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.
Margaret Williams
CBT is a much publicised and debated psychotherapeutic intervention for ME/CFS….The premise that cognitive therapy (eg. changing ‘illness beliefs’) and graded activity can ‘reverse’ or cure this illness is not supported by post-intervention outcome data. In routine medical practice, CBT has not yielded clinically significant outcomes for patients with ME/CFS.
Anthony Komaroff
On the other hand, when you mismanage your genes with poor dietary habits or chronic exercise patterns, you will likely suffer from obesity (through the chronic overproduction of insulin), fatigue (poor sleep habits disturbing optimal hormone balance), and systemic inflammation and burnout (chronic production of “fight or flight” hormones in the face of unrelenting environmental stressors).
Mark Sisson (The Primal Blueprint 21-Day Total Body Transformation: A complete, step-by-step, gene reprogramming action plan)
We've got to do better, I thought. This story of injustice had continued on far too long. It's time for the misinformation and stigmatization surrounding ME/CFS to stop. Our leaders need to step up to the plate, acknowledge past mistakes, and fix them. All the evidence is there in black and white. More research funding to find a cure would prevent so much unnecessary suffering and save lives.
Tracie White (The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son)
Mark Vink is a physician in the Netherlands who suddenly fell ill with chronic fatigue syndrome (ME/CFS). He wasn’t just your typical physician; he also happened to have a brown belt in judo, was the former captain of a Dutch national field hockey championship team and was a marathoner and triathlete. In other words, the guy was a stud who loved to test himself physically – the last person anyone would ever expect to get ME/CFS. Or end up bed bound. Or end up using a six yard tramp from his bed to the bathroom to test his exercise capacity. But that’s what happened. Mark Vink’s ME/CFS story – like many stories – is so striking in its suddenness and so devastating in its comprehensive that it beggars the mind to think that anyone could believe his downfall could have other than a physiological cause.
Cort Johnson
For the last 48 years, myalgic encephalomyelitis (ME) has been formally classified by the World Health Organisation as a neurological disorder but for the last 29 years a group of UK psychiatrists (known as the Wessely School) have denied it exists other than as an aberrant belief; they insist that it is a mental (behavioural) disorder that can be cured by graded exercise and “cognitive re-structuring”.
Margaret Williams
The psychological view of ME led to the controversial and now debunked PACE trial—PACE is “Pacing, graded Activity, and Cognitive behaviour therapy; a randomised Evaluation”... As the trial progressed and the results did not meet the authors’ expectations, they simply lowered the threshold to define improvement. In some cases, those whose condition had deteriorated were classed as “recovered”. That is simply not good science.
Carol Monaghan
Maximum Sustained Power workouts are much less taxing on the cardio endurance component and instead focus on going for max power or going home. Literally, you end your mini-sets when you can’t lift the heavy bar again due to accumulated fatigue. Or, in the case of vertical jumps or calibrated exercise equipment, you stop the set when you fall materially short of your baseline absolute power performance standard that you started the workout with.
Mark Sisson (Primal Endurance: Escape chronic cardio and carbohydrate dependency and become a fat burning beast!)
The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is because these people ignore the normal cues that make us stop striving - they continue despite symptoms of fatigue and pain in order to achieve. The achievement is at the expense of their health. Furthermore, these personalities are more likely to turn to addictions to mask symptoms in order that they can keep going.
Sarah Myhill (Diagnosis and Treatment of Chronic Fatigue Syndrome: it's mitochondria, not hypochondria!)
Pacing consists of listening to your body, and seeing symptoms as signs, usually of overactivity. You use information from your body to reorganise your activities to get as low a symptom level as possible. This usually means splitting activities into smaller bits and taking frequent rest breaks. It also means finding less strenuous ways of performing activities. When less energy is spent on some activities, you’ll have more energy left over to have fun.
Ingebjørg Midsem Dahl (Classic Pacing for a Better Life with ME)
We have witnessed hundreds of clients and patients damage their metabolic and hormonal health through low-carb diets. It is becoming increasingly apparent that there is an epidemic of metabolic and hormonal dysfunction emerging in the hordes of people who have been following low-carb diets. This is particularly impactful for women—and especially physically active women—who commonly suffer side effects from their low-carb diets, including: A stopped or irregular menstrual cycle (amenorrhea)418 419 420 421 422 Decreased fertility423 424 425 Hypoglycemic episodes and blood sugar swings426 Depression, anxiety, and irritability427 428 429 Poor libido430 431 432 Disrupted sleep/insomnia433 434 Dysfunctional relationship with food and fear about eating either fat or carbohydrate435 436 Cycles of restriction and binges437 438 Chronic fatigue 439 440 441 442 Poor thyroid function (and a slow metabolism)443 444 445 446 447 448
Ari Whitten (The Low Carb Myth: Free Yourself from Carb Myths, and Discover the Secret Keys That Really Determine Your Health and Fat Loss Destiny)
reconstructions of that period is the fact that subsequently Gallo’s so-called French co-discoverer, Luc Montagnier, had surprisingly indicated that HIV was actually not sufficient to cause AIDS. Montagnier had uncovered evidence that bacteria called mycoplasmas are necessary to stimulate HIV, making mycoplasmas at least a co-factor of AIDS, and possibly even more important than HIV, raising the scandalous question of whether HIV was even the cause of AIDS. Root
Charles Ortleb (Peter Duesberg and the Duesbergians: How a Brave and Brilliant Group of Scientists Challenged the AIDS Establishment and Inadvertently Exposed the Chronic Fatigue Syndrome Epidemic)
This is not an argument with psychiatry. Mental and physical illness are equally real and horrible. As with any long-term illness, some people with ME/CFS will develop comorbid depression and other mental health problems – where CBT can be of help alongside good quality general management. The argument here is with a flawed model of causation assuming efficacy for CBT and GET while taking no significant account of varying clinical presentations and disease pathways.
Charles Shepherd
Several years ago I was lecturing in British Columbia. Dr [Simon] Wessely was speaking and he gave a thoroughly enjoyable lecture on M.E. and CFS. He had the hundreds of staff physicians laughing themselves silly over the invented griefs of the M.E. and CFS patients who according to Dr Wessely had no physical illness what so ever but a lot of misguided imagination. I was appalled at his sheer effectiveness, the amazing control he had over the minds of the staid physicians….His message was very clear and very simple. If I can paraphrase him: “M.E. and CFS are non-existent illnesses with no pathology what-so-ever. There is no reason why they all cannot return to work tomorrow. The next morning I left by car with my crew and arrived in Kelowna British Columbia that afternoon. We were staying at a patient’s house who had severe M.E. with dysautanomia and was for all purposes bed ridden or house bound most of the day. That morning she had received a phone call from her insurance company in Toronto. (Toronto is approximately 2742 miles from Vancouver). The insurance call was as follows and again I paraphrase: “Physicians at a University of British Columbia University have demonstrated that there is no pathological or physiological basis for M.E. or CFS. Your disability benefits have been stopped as of this month. You will have to pay back the funds we have sent you previously. We will contact you shortly with the exact amount you owe us”. That night I spoke to several patients or their spouses came up to me and told me they had received the same message. They were in understandable fear. What is important about this story is that at that meeting it was only Dr Wessely who was speaking out against M.E. and CFS and how … were the insurance companies in Toronto and elsewhere able to obtain this information and get back to the patients within a 24 hour period if Simon Wessely was not working for the insurance industry… I understand that it was also the insurance industry who paid for Dr Wessely’s trip to Vancouver.
Byron Hyde
Any respiratory viral infection, any inflammation in the brain or CNS—especially encephalitis and meningitis, fatigue and weakness, especially after long illness or in chronic infections, poor mitochondrial function, chronic wasting, unproductive cough from no known cause, joint inflammation, mental fog and confusion, low libido, lung infections, kidney infections, thick mucus in the lungs that will not move, immune dysregulation, dizziness, tinnitus, nocturia, cancer. It is especially effective for mycoplasma infections.
Stephen Harrod Buhner (Herbal Antivirals: Natural Remedies for Emerging & Resistant Viral Infections)
The Wessely School rejects the significant body of biomedical evidence demonstrating that chronic “fatigue” or “tiredness” is not the same as the physiological exhaustion seen in ME/CFS and persists in believing that they have the right to demand a level of “evidence‐based” definitive proof that ME/CFS is not an “aberrant belief” as they assert, when their biopsychosocial model of “CFS/ME” that perpetuates their own aberrant belief about the nature of ME/CFS has been exposed by other psychiatrists as being nothing but a myth.
Malcolm Hooper
After that came more injections, pills, low-quality eggs, toilets and screens with naked women on them and the pressure to fill the plastic cup, baptisms they didn’t attend, the question “So when’s the first child coming along?” repeated ad nauseum, operating rooms he wasn’t allowed to enter so that he could hold her hand and she wouldn’t feel so alone, more debt, other people’s babies, the babies of those who could, fluid retention, mood swings, conversations about the possibility of adopting, phone calls to the bank, children’s birthday parties they wanted to escape, more hormones, chronic fatigue and more unfertilized eggs, tears, hurtful words, Mother’s Days in silence, the hope for an embryo, the list of possible names, Leonardo if it was a boy, Aria if it was a girl, pregnancy tests thrown helplessly into the trash can, fights, the search for an egg donor, questions about genetic identity, letters from the bank, the waiting, the fears, the acceptance that maternity isn’t a question of chromosomes, the mortgage, the pregnancy, the birth, the euphoria, the happiness, the death.
Agustina Bazterrica (Tender Is the Flesh)
As a physician bedridden with myalgic encephalomyelitis (ME) for more than a decade who is totally dependent on others, all thanks to a major relapse caused by GET, I am in a unique position to answer how harmful GET and cognitive behavioral therapy (CBT) really are. The basis of these therapies is false illness beliefs, meaning that it is all in the mind. These beliefs ignore all of the evidence that ME is a physical disease, such as intracellular immune dysfunctions, which not only restrict exercise capacity but also worsen with exercise (2).
Maik Speedy
ME/CFS has been classified as a neurological disease by the WHO since 1969 [59] and a growing number of researchers theorize that ME/CFS might be a neuro-immunological condition [60–63]: yet the BPS framework does not account for ME/CFS as a neurological or immunological disease – instead, much of the pro- BPS model literature on ME/CFS adopts what Nassir Ghaemi terms the ‘eclectic approach’; whereby everything appears important, all bio, all psycho, and all social factors [33]. Yet in clinical practice (the BPS framework), there is strong emphasis on psychological interventions (CBT and GET).
Keith Geraghty
COULD IT BE B12 DEFICIENCY? The neurological symptoms of B12 deficiency that occur in young and middle-aged people are very similar to those in older people. They include the following: • Numbness, tingling, or burning sensations of the hands, feet, extremities, or truncal area, often misdiagnosed as diabetic neuropathy or chronic inflammatory demyelinating polyneuropathy (CIDP) • Tremor, often misdiagnosed as essential tremor or pre-Parkinson’s disease • Muscle weakness, paresthesias, and paralysis, sometimes attributed to Guillain-Barré syndrome • Pain, fatigue, and debility, often labeled as “chronic fatigue syndrome” • “Shaky leg” syndrome (leg trembling) • Confusion and mental fogginess, often misdiagnosed as early-onset dementia • Unsteadiness, dizziness, and paresthesias, often misdiagnosed as multiple sclerosis • Weakness of extremities, clumsiness, muscle cramps, twitching, or foot drop, often misdiagnosed as amyotrophic lateral sclerosis (ALS) • Psychiatric symptoms, such as depression or psychosis (covered in greater length in the next chapter) • Visual disturbances, vision loss, or blindness In contrast, a doctor ignorant about the effects of B12 deficiency can destroy a patient’s life. The
Sally M. Pacholok (Could It Be B12?: An Epidemic of Misdiagnoses)
There is no specific test for multiple sclerosis.  Its early symptoms - fatigue, loss of sensation, weakness and visual changes - are frequently misdiagnosed as psychoneurosis or an even more severe psychiatric disorder, such as hysteria, particularly in women. When doctors could find no organic cause for [Jacqueline Du Pré's] complaints, they prescribed a year's rest, and referred her to a psychiatrist... When she consulted a doctor in Australia about her tenacious fatigue and occasional double vision in her right eye, he dismissed her symptoms as "adolescent trauma" and suggested she take up a relaxing hobby.
Carol Easton (Jacqueline du Pré: A Life)
There appears to be a form of chronic mountain sickness that comes from years of repeated frequent mal-acclimitization to very high altitudes by the sea level adapted human living at sea level. It eventually shows up as sleep apnea, bruxism, erratic low blood oxygenation, fatigue, forgetfulness, confusion, gastrointestinal issues, nutritional deficiencies, hormone problems, radiation sickness and failure to acclimatize to any altitude. Left untreated it progresses onto include nerve pains throughout the body, food intolerance, heart arrhythmia's, headaches, irritability, depression, disease and premature death. I call it 'Magee's Disease’.
Steven Magee
On 13th December 1988 Brynmor John MP died from ME/CFS. His experience of the illness was all too familiar: ‘Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’. He found himself unable to dress; the slightest exertion exhausted him and it took days to regain his strength. He was irritated by the profusion of psychiatric comment and was trying to ensure better understanding of ME/CFS (Perspectives, Summer 1991:28‐30). Brynmor John suddenly collapsed and died as he was leaving the House of Commons gym after having been advised to exercise back to fitness.
Malcolm Hooper
Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head. This isn’t science or medicine as I had come to know them but rather a parade of psychogenic bias, neglect, bad science, flawed public policy, and the political agendas of powerful people and institutions that have sentenced ME patients to the medical equivalent of the most squalid slum in the poorest country on earth. The political decisions taken over the last thirty years have polluted research, perverted clinical care, and shipwrecked ME patients with a life-threatening dose of stigma, disbelief and medically induced harm.
Mary Dimmock
ME/CFS is not synonymous with depression or other psychiatric illnesses. The belief by some that they are the same has caused much con- fusion in the past, and inappropriate treatment. Nonpsychotic depression (major depression and dysthymia), anxiety disorders and somatization disorders are not diagnostically exclusionary, but may cause significant symptom overlap. Careful attention to the timing and correlation of symptoms, and a search for those characteristics of the symptoms that help to differentiate between diagnoses may be informative, e.g., exercise will tend to ameliorate depression whereas excessive exercise tends to have an adverse effect on ME/CFS patients.
Bruce M. Carruthers
Characteristics of CFS/ME include persistent mental and physical fatigue accompanied by a range of neurological, autonomic, neuroendocrine, immune and sleep difficulties (Carruthers et al., 2003). In turn, these manifestations produce a range of functional limitations including severe cognitive impairments (e.g. problems with attention, problem-solving, concentration, memory and verbal communication) and debilitating physical difficulties such as problems with general mobility and self-care, shopping, food-preparation and housekeeping (Taylor & Kielhofner, 2005). These impairments are often acute and enduring, impacting upon an individual’s personal, occupational and social lives.
Megan A. Arroll
ME/CFS has a greater negative impact on functional status and well-being than other chronic diseases, e.g., cancer or lung diseases[8], and is associated with a drastic decrement in physical functioning[9]. In a comparison study[10] ME/CFS patients scored significantly lower than patients with hypertension, congestive heart failure, acute myocardial infarction, and multiple sclerosis (MS), on all of the eight Short Form Health Survey (SF-36)[11] subscales. As compared to patients with depression, ME/CFS patients scored significantly lower on all the scales, except for scales measuring mental health and role disability due to emotional problems, on which they scored significantly higher.
Frank Twisk
Have you lost or gained more than 10 percent of your body weight over the past five years—even though you weren’t intentionally dieting?   3.  Do you have trouble going to sleep or staying asleep?   4.  Does pain in your joints or muscles limit your physical activity or mobility?   5.  Do you commonly feel fatigued for no apparent reason?   6.  Are you frequently depressed or anxious?   7.  Do you have problems with memory?   8.  Is there a consistent ringing in your ears?   9.  Do you feel that you are losing your strength? 10.  Do you take any prescription medications? Do you take more than two? 11.  How about over-the-counter medications? Do you commonly take any of these? a  Anti-inflammatories
Jeffrey S. Bland (The Disease Delusion: Conquering the Causes of Chronic Illness for a Healthier, Longer, and Happier Life)
In my work as a therapist I have seen hundreds of clients who struggle with these issues, and I am convinced now more than ever of one simple truth: they are not lazy. In fact, I do not think laziness exists. You know what does exist? Executive dysfunction, procrastination, feeling overwhelmed, perfectionism, trauma, amotivation, chronic pain, energy fatigue, depression, lack of skills, lack of support, and differing priorities. ADHD, autism, depression, traumatic brain injury, and bipolar and anxiety disorders are just some of the conditions that affect executive function, making planning, time management, working memory, and organization more difficult, and tasks with multiple steps intimidating or boring.
K.C. Davis (How to Keep House While Drowning)
When people with ME/CFS report symptoms of post-exertional malaise, those symptoms are independent of emotional distress, but when the general population report what they think are post-exertional malaise symptoms, their symptoms of post-exertional malaise are significantly related to emotional distress. It is possible that because healthy individuals experience a relationship between emotional distress and post-exertional malaise, they might believe that these two domains are connected for themselves and by inference with patients with ME/CFS, when in fact it is not the case. This ultimately might blur the ability of healthy controls to understand the experience of post-extertional malaise for people with ME/CFS.
Leonard A. Jason
I regularly took aspirin, salt tablets, Alka-seltzer and antibiotics and my tetanus immunity was working overtime. Most of the day I was dizzy from ouzo, wine, beer, whisky or the hangover therefrom, too many cigarettes, too little sleep, fatigue, sunstroke or heat exhaustion. I had chronic indigestion from the meats and fats, oils and acids of the Mediterranean diet. My mood swung from elation to despair a dozen times a day. Most of the time I was lonely, bored, frustrated and frightened of getting ill without a decent doctor. My head ached from speaking Greek and people haranguing me or ignoring me. I wanted to buy things without having to haggle and plead. I longed for the telly and a pint of Guinness. I wanted to go home.
John Mole (It's All Greek to Me!: A Tale of a Mad Dog and an Englishman, Ruins, Retsina--and Real Greeks)
research shows that the experiences of patients, and the attitudes of health professionals, is mixed; nonetheless, we conclude that testimonial injustice – the deflation of CFS/ME patients’ testimony on the ground of unjustified negative stereotyping – appears to be a continued problem within mainstream healthcare across a range of settings and countries. Furthermore, it would seem that the testimonial injustice is sustained and also accompanied by hermeneutical injustice because the dominant group (health professionals) may routinely fail to provide adequate training about CFS/ME, leading to prejudiced deflations of patient credibility, and/or an unfair lack of shared concepts with which to make mutual sense of the experience of the patient.
Charlotte Blease
Patients who develop ME/CFS often lose the natural antidepressant effect of exercise, feeling worse after exercise rather than better. Patients may have a drop in body temperature with exercise. Thus fatigue is correlated with other symptoms, often in a sequence that is unique to each patient. After relatively normal physical or intellectual exertion, a patient may take an inordinate amount of time to regain her/his pre-exertion level of function and competence. For example, a patient who has bought a few groceries may be too exhausted to unpack them until the next day. The reactive fatigue of post-exertional malaise or lack of endurance usually lasts 24 hours or more and is often associated with impairment of cognitive functions. There is often delayed reactivity following exertion, with the onset the next day, or even later.
Bruce M. Carruthers
Biopsychosocial discourse often portrays these patients as possessing unhealthy personality traits, such as ‘maladaptive perfectionism’ [67,68]; yet such assertions are not well supported, many studies find no significant differences between ME/CFS patients and the general population with regard to distinctive personality profiles [69–72]. A Swedish study of physicians’ attitudes to CFS found that physicians often downgrade the seriousness of this illness to ‘non-disease’ status and view patients as being ‘illness focused’, ‘demanding’, and ‘medicalising’ [73]. Given community-based doctors have limited knowledge of ME/CFS [74] and doctors display high levels of skepticism in this illness domain [75], it is unsurprising that many patients with ME/CFS report problematic clinical interactions [29–31,76]. Patient surveys conducted by patient organizations confirm high levels of patient dissatisfaction in the medical encounter.
Keith Geraghty
Many doctors (and medical students) display uncertainty about whether or not CFS/ME is real…Patients with CFS/ME often experience suspicion by health professionals…The (often unintentional) marginalization of many CFS/ME patients represents a failure in medical professionalism, one that may lead to further ethical and practical consequences both for progressive research into CFS/ME and for ethical care... With one exception, doctors attending the seminar were either defensive or silent. In their eyes, the ME patients present were conforming to stereotype (angry, unscientific, unreasonable) and therefore they – the doctors – would not engage with them. Paradoxically, these doctors were themselves conforming to another stereotype, as described by the speaker: ‘Knowledge-formation is also influenced by social and cultural factors. Such encounters have an inherent power differential; there is significant potential…to be unjust from an epistemic point of view.
Charotte Blease
Now algae bloomed as never before, causing snail populations to explode. The snails hosted tiny parasitic worms that harbored schistosomiasis, a horrible disease that leaves its victims chronically prostrate with abdominal pain, high fever, fatigue, and diarrhea. Schistosomiasis had been unknown in the region before Ford came along; after Fordlandia, it was endemic. Malaria, yellow fever, elephantiasis, and hookworm were rife as well. Agonizing discomfort could come from almost anywhere. The river teemed with a little fish, the candiru, or toothpick fish, which would swim into any available human orifice (most notoriously the penis), then extend prickly, backward-facing spines, making it impossible to dislodge. On land, maggots from the botfly Dermatobia hominis burrowed into the skin and hatched eggs; victims knew of an infestation when they could see wriggling just under their skin or when sores erupted and newborn maggots spilled out. Beyond the camp boundaries, vipers and jaguars
Bill Bryson (One Summer: America, 1927)
Unfortunately, sitting rests the parts of the body that don’t need much of it while working the parts that desperately do. Specifically, it disengages the lower extremities while utilizing the spine. (This is in sharp contrast to squatting, which disengages the spine while utilizing the lower extremities.) Because sitting positions the spine vertically, it provides no rest or relief from the gravitational forces that compress it. Without a periodic therapeutic reprieve through the day, the relentless load overwhelms the entire structure, joints and muscles alike. To maintain an erect seated posture, some muscle groups in the back have to continually contract. Since this requires a great deal of energy, the muscles quickly become fatigued. (That is why slumping is more comfortable: It takes less energy to maintain.) When the muscles tire, you rely on the backrest more and your muscles less. The less you rely on your muscles, the weaker and more dysfunctional they become. The weaker and more dysfunctional they become, the more you rely on the backrest. The more you rely on the backrest, the more you tend to slump. The more you slump, the more pronounced the debilitating C-shaped curvature becomes. This weakens the muscles in your back even further, which causes them to overload the joints they serve. Sitting in chairs affects even the areas seemingly at rest (particularly the hips and knees). Because sitting keeps the joints static for long periods, the muscles that serve them become fixed in a short, tight position. When at last you do get up and move, the muscles impose more stress on these joints, thereby increasing their susceptibility to wear and tear. The prolonged stasis also prevents the joints from being lubricated with nourishing synovial fluid. Once depleted, the hips and knees, like the spine, deteriorate and erode. Is it any wonder that the areas most traumatized by sitting, namely, the lower back, hips, and knees, are also the most arthritic and disabled areas of the body in the world today? The real mystery is why so few people have made the connection between prolonged sitting and the epidemic of chronic pain. In fact, they need only look to their own bodies for an abundance of evidence.
Joseph Weisberg (3 Minutes to a Pain-Free Life: The Groundbreaking Program for Total Body Pain Prevention and Rapid Relief)
THE DIET-GO-ROUND LOW-CALORIE DIETS Diets began by limiting the number of calories consumed in a day. But restricting calories depleted energy, so people craved high-calorie fat and sugar as energizing emergency fuel. LOW-FAT DIETS High-calorie fats were targeted. Restricting fat left people hungry, however, and they again craved more fats and sugars. FAKE FAT Synthetic low-cal fats were invented. People could now replace butter with margarine, but without calories it didn’t deliver the energy and satisfaction people needed. They still craved real fat and sugar. THE DIET GO-ROUND GRAPEFRUIT DIETS Banking on the antioxidant and fat-emulsifying properties of grapefruit, dieters could eat real fat again, as long as they ate a grapefruit first. But even grapefruits were no match for the high-fat American diet. SUGAR BLUES The more America restricted fat in any way to lose weight, the more the body rebounded by storing fat, and craving and bingeing on fats and sugars. Sugar was now to blame! SUGAR FREE High-calorie sugars were replaced with no-calorie synthetic sweeteners. The mind was happy but the body was starving as diet drinks replaced meals. People eventually binged on excess calories from other sources, such as protein. HIGH-PROTEIN DIETS The new diet let people eat all the protein they wanted without noticing the restriction of carbs and sugar. Energy came from fat stores and dieters lost weight. But without carbs, they soon experienced low energy and craved and binged on carbs. HIGH-CARB DIETS Carb-craving America was ripe for high-carb diets. You could now lose weight and eat up to 80 percent carbs—but they had to be slow-burning, complex carbs. Fast-paced America was addicted to fast energy, however, and high-carb diets soon became high-sugar diets. LOW CHOLESTEROL The combination of sugar, fat, and stress raised cholesterol to dangerous levels. The solution: Reemphasize complex carbs and reduce all animal fats. Once again, dieters felt restricted and began craving and bingeing on fats and sugars. EXERCISE Diets weren’t working, so exercise became the cholesterol cure-all. It worked for a time, but people didn’t like to “work out.” Within 25 years, no more than 20 percent of Americans would do it regularly. VEGETARIANISM With heart disease and cancers on the rise, red meat was targeted. Vegetarianism came into fashion but was rarely followed correctly. People lived on pasta and bread, and blood sugars and energy levels went out of control. GRAZING High-carb diets were causing energy and blood sugar problems. If you ate every 2 hours, energy was propped up and fast-paced America could keep speeding. Fatigue became chronic fatigue, however, with depression and anxiety to follow. FOOD COMBINING By eating fats, proteins, and carbs separately, digestion improved and a host of digestive, energy, and weight problems were helped temporarily. But the rules for what you could eat together led to more frequent small meals. People eventually slipped back to their old ways and old problems. THE ZONE Aimed at fixing blood sugar levels, this diet balanced intake of proteins, fats, and carbs. It worked, but again restricted certain kinds of carbs, so it didn’t last, and America was again craving emergency fuel. COFFEE TO THE RESCUE Exhausted and with a million things to do, America turned to legal stimulants like coffee for energy. But borrowed energy must be paid back, and many are still living in debt. FULL CIRCLE Frustrated, America is turning to new crash diets and a wave of high-protein diets. It is time to break this man-made cycle with the simplicity of nature’s own 3-Season Diet. If you let nature feed you, you will not starve or crave anything.
John Douillard (The 3-Season Diet: Eat the Way Nature Intended: Lose Weight, Beat Food Cravings, and Get Fit)
WHY ADDICTION IS NOT A DISEASE In its present-day form, the disease model of addiction asserts that addiction is a chronic, relapsing brain disease. This disease is evidenced by changes in the brain, especially alterations in the striatum, brought about by the repeated uptake of dopamine in response to drugs and other substances. But it’s also shown by changes in the prefrontal cortex, where regions responsible for cognitive control become partially disconnected from the striatum and sometimes lose a portion of their synapses as the addiction progresses. These are big changes. They can’t be brushed aside. And the disease model is the only coherent model of addiction that actually pays attention to the brain changes reported by hundreds of labs in thousands of scientific articles. It certainly explains the neurobiology of addiction better than the “choice” model and other contenders. It may also have some real clinical utility. It makes sense of the helplessness addicts feel and encourages them to expiate their guilt and shame, by validating their belief that they are unable to get better by themselves. And it seems to account for the incredible persistence of addiction, its proneness to relapse. It even demonstrates why “choice” cannot be the whole answer, because choice is governed by motivation, which is governed by dopamine, and the dopamine system is presumably diseased. Then why should we reject the disease model? The main reason is this: Every experience that is repeated enough times because of its motivational appeal will change the wiring of the striatum (and related regions) while adjusting the flow and uptake of dopamine. Yet we wouldn’t want to call the excitement we feel when visiting Paris, meeting a lover, or cheering for our favourite team a disease. Each rewarding experience builds its own network of synapses in and around the striatum (and OFC), and those networks continue to draw dopamine from its reservoir in the midbrain. That’s true of Paris, romance, football, and heroin. As we anticipate and live through these experiences, each network of synapses is strengthened and refined, so the uptake of dopamine gets more selective as rewards are identified and habits established. Prefrontal control is not usually studied when it comes to travel arrangements and football, but we know from the laboratory and from real life that attractive goals frequently override self-restraint. We know that ego fatigue and now appeal, both natural processes, reduce coordination between prefrontal control systems and the motivational core of the brain (as I’ve called it). So even though addictive habits can be more deeply entrenched than many other habits, there is no clear dividing line between addiction and the repeated pursuit of other attractive goals, either in experience or in brain function. London just doesn’t do it for you anymore. It’s got to be Paris. Good food, sex, music . . . they no longer turn your crank. But cocaine sure does.
Marc Lewis (The Biology of Desire: Why Addiction Is Not a Disease)
But peace, too, is a living thing and like all life it must wax and wane, accommodate, withstand trials, and undergo changes. Such was the case with the peace Josephus Famulus enjoyed. It was unstable, visible one moment, gone the next, sometimes near as a candle carried in the hand, sometimes as remote as a star in the wintry sky. And in time a new and special kind of sin and temptation more and more often made life difficult for him. It was not a strong, passionate emotion such as indignation or a sudden rush of instinctual urges. Rather, it seemed to be the opposite. It was a feeling very easy to bear in its initial stages, for it was scarcely perceptible; a condition without any real pain or deprivation, a slack, luke-warm, tedious state of the soul which could only be described in negative terms as a vanishing, a waning, and finally a complete absence of joy. There are days when the sun does not shine and the rain does not pour, but the sky sinks quietly into itself, wraps itself up, is gray but not black, sultry, but not with the tension of an imminent thunderstorm. Gradually, Joseph's days became like this as he approached old age. Less and less could he distinguish the mornings from the evenings, feast days from ordinary days, hours of rapture from hours of dejection. Everything ran sluggishly long in limp tedium and joylessness. This is old age, he thought sadly. He was sad because he had expected aging and the gradual extinction of his passions to bring a brightening and easing of his life, to take him a step nearer to harmony and mature peace of soul, and now age seemed to be disappointing and cheating him by offering nothing but this weary, gray, joyless emptiness, this feeling of chronic satiation. Above all he felt sated: by sheer existence, by breathing, by sleep at night, by life in his cave on the edge of the little oasis, by the eternal round of evenings and mornings, by the passing of travelers and pilgrims, camel riders and donkey riders, and most of all by the people who came to visit him, by those foolish, anxious, and childishly credulous people who had this craving to tell him about their lives, their sins and their fears, their temptations and self-accusations. Sometimes it all seemed to him like the small spring of water that collected in its stone basin in the oasis, flowed through grass for a while, forming a small brook, and then flowed on out into the desert sands, where after a brief course it dried up and vanished. Similarly, all these confessions, these inventories of sins, these lives, these torments of conscience, big and small, serious and vain, all of them came pouring into his ear, by the dozens, by the hundreds, more and more of them. But his ear was not dead like the desert sands. His ear was alive and could not drink, swallow, and absorb forever. It felt fatigued, abused, glutted. It longed for the flow and splashing of words, confessions, anxieties, charges, self-condemnations to cease; it longed for peace, death, and stillness to take the place of this endless flow.
Hermann Hesse (The Glass Bead Game)
My disabling sickness became a curiosity to me.
Steven Magee
Somatic symptoms for which no clear physical basis can be found are ubiquitous in traumatized children and adults. They can include chronic back and neck pain, fibromyalgia, migraines, digestive problems, spastic colon/irritable bowel syndrome, chronic fatigue, and some forms of asthma.
Bessel van der Kolk (The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma)
After trauma the world is experienced with a different nervous system. The survivor’s energy now becomes focused on suppressing inner chaos, at the expense of spontaneous involvement in their life. These attempts to maintain control over unbearable physiological reactions can result in a whole range of physical symptoms, including fibromyalgia, chronic fatigue, and other autoimmune diseases.
Bessel van der Kolk (The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma)
You know what does exist? Executive dysfunction, procrastination, feeling overwhelmed, perfectionism, trauma, amotivation, chronic pain, energy fatigue, depression, lack of skills, lack of support, and differing priorities.
K.C. Davis (How to Keep House While Drowning: A Gentle Approach to Cleaning and Organising)
I’m afraid of adrenal fatigue. This is related to chronic fatigue but not the same. Western doctors don’t believe in adrenal fatigue, but if you have a job and are a human, then any holistic doctor will tell you that you have adrenal fatigue. It is essentially a dangerous exhaustion that comes from ambition and modern life. I have it so bad. Please read about it on the Internet—you do, too. The
Lena Dunham (Not That Kind of Girl: A young woman tells you what she's "learned")
In her passionate and meticulously argued book The Change, Australian feminist writer Germaine Greer suggests that society’s aversion to menopausal women is, more than anything, “the result of our intolerance for the expression of female anger.”5 But why do we find women’s rage so unacceptable, so threatening? It is for sure an attitude which is deeply embedded in the culture. Several studies conducted over the past few decades have reported that men who express anger are perceived to be strong, decisive, and powerful, while women who express the same emotion are perceived to be difficult, overemotional, irrational, shrill, and unfeminine. Anger, it seems, doesn’t fit at all with our cultural image of femininity, and so must be thoroughly suppressed whenever it is presumptuous enough to surface. One of the saddest findings of these studies is that this narrative is so deeply ingrained that it even exists among women — and we internalize it from an early age. Soraya Chemaly, American author of Rage Becomes Her: The Power of Women’s Anger, writes: Studies show that by the time most children are toddlers they already associate angry expressions with male faces … Girls and women, on the other hand, are subtly encouraged to put anger and other “negative” emotions aside, as unfeminine. Studies show that girls are frequently discouraged from even recognising their own anger, from talking about negative feelings, or being demanding in ways that focus on their own needs. Girls are encouraged to smile more, use their “nice” voices and sublimate how they themselves may feel in deference to the comfort of others. Suppressed, repressed, diverted and ignored anger is now understood as a factor in many “women’s illnesses,” including various forms of disordered eating, autoimmune diseases, chronic fatigue and pain.6 We hide our anger by refusing even to use the word — instead of saying we’re utterly furious, we talk about being “annoyed,” “upset,” or “irritated.” We take refuge in sarcasm, we nurse grudges, or we simply withdraw. And as a consequence of these actions and attitudes, anger is an emotion that, more often than not, makes women feel powerless — not just because we’ve been made to feel as if we’re not allowed to express it, but, accordingly, because we’ve never learned healthy ways to express it.
Sharon Blackie (Hagitude: Reimagining the Second Half of Life)
An excess of delta in the frontal region of the brain during a waking state could result in the experience of mental fog or fatigue. An excess of delta in the frontal area can also result in chronic pain such as fibromyalgia.
Erik Lenderman (Principles of Practical Psychology: A Brief Review of Philosophy, Psychology, and Neuroscience for Self-Inquiry and Self-Regulation)
But here’s a one-in-four statistic that’s way less appealing: about one in four black Americans will experience an anxiety disorder at some point in their life. Researchers say black people that experience chronic racism can develop something called racial battle fatigue, a state that includes, among other symptoms, anxiety, worry, hypervigilance, headaches, and increased heart rate and blood pressure.
Emmanuel Acho (Uncomfortable Conversations With a Black Man)
Americans are acutely unaware of the past and the future. Also, the present. History is infinitely malleable for them. So is reality. Are they just undereducated, indoctrinated, chronically indifferent, hypnotised, or too damn busy makin’ a buck? Consumed by consumerism, they wallow in army fatigues and self-regard, coveting the next dynamite Apple doodad or an AK-47, plasma screen and some Nikes. They have worried everybody and ruined the earth, all so that they can prance around, effect insouciance, drink beer, watch football, guzzle Sloppy Joes and Oreos, wear pro-Auschwitz sweatshirts, make pipe bombs, absorb incessant rock music, object to positive discrimination and the public display of female nipples, wonder whether the mailman has shut the mailbox properly, and choose a new euphemism for excretion yearly.
Lucy Ellmann (Things Are Against Us)
In her book Leaving Church, former parish priest and award-winning preacher Barbara Brown Taylor describes what it was like to feel her soul slipping away. She says: Many of the things1 that were happening inside of me seemed too shameful to talk about out loud. Laid low by what was happening at Grace-Calvary, I did not have the energy to put a positive spin on anything. . . . Beyond my luminous images of Sunday mornings I saw the committee meetings, the numbing routines, and the chronically difficult people who took up a large part of my time. Behind my heroic image of myself I saw my tiresome perfectionism, my resentment of those who did not try as hard as I did, and my huge appetite for approval. I saw the forgiving faces of my family, left behind every holiday for the last fifteen years, while I went to conduct services for other people and their families. Above all, I saw that my desire to draw as near to God as I could had backfired on me somehow. Drawn to care for hurt things, I had ended up with compassion fatigue. Drawn to a life of servanthood, I had ended up a service provider. Drawn to marry the Divine Presence, I had ended up estranged. . . . Like the bluebirds that sat on my windowsills, pecking at the reflections they saw in the glass, I could not reach the greenness for which my soul longed. For years I had believed that if I just kept at it, the glass would finally disappear. Now for the first time, I wondered if I had devoted myself to an illusion.
Ruth Haley Barton (Strengthening the Soul of Your Leadership: Seeking God in the Crucible of Ministry (Transforming Resources))
Are you fit enough, are you progressing in your hobby, are you competent as a cook or gardener? And family life—is your marriage intimate enough, your sexual life optimal, have you done all that you can do to raise excellent children? The infant/body rebels under all this pressure, signaling its distress. In response, we find ways to toughen it or to medicate it into silence. So the chronic stress-related symptoms arise, like digestion problems, muscle tension, constant fatigue, insomnia, migraine headaches; or a weak immune system makes us more susceptible to the flu and to colds.
Elaine N. Aron (The Highly Sensitive Person: How to Thrive When the World Overwhelms You)
Heart Center. (Thoracic segment including hands, arms, and shoulders) Positive position seat. Relationship confidence, and sensitivity developed. Empathy, honesty, trust and love of self and of others. Kindness, openness and generosity. Adaptability and flexibility. To reach out and to accept. Positive aspects: self-love, compassion, trust, empathy, optimism, generosity, high levels of excitement and joyful excitement accessed and supported by the hara (abdominal segment) and the Speed Bump unhindered. With inner strength and creative compassion, understanding, compassion, wholeness balanced. You're wondering what you want.  Healthy aggression when the second and third segments are supported.  Negative aspects: Constant sorrow, guilt, indignity, desire, remorse, isolation, a heart of "blindness." Often accompanied by arms and hands holding down, rounding or locking shoulders blocking an expression reaching out or wanting. External Negative Aspects. Shoulders bent, stooped, or rounded, flat chest, general breathing problems, lung and skin diseases. Segment of the solar plexus/diaphragm. A central release point for all body stresses. The marionette's hand that tightens or loosens the cords, including legs, attached to the pelvis, waist, neck, arms, shoulders, mouth, ears, jaw, and head. The fulcrum or balance point of sympathetic high chest/parasympathetic abdominal response; the balance point with the (upper) caring, sincere, trustworthy, empathetic self with our "lower" rooted, erotic, arrogant, imaginative selves; They meet and balance, or complement each other as required or desired. Positive aspects: it supports the balance of brain hemispheres when eliminated.  Capacity to communicate or regulate strong emotions, whether negative or positive, either instinctively or willingly; faith in improvement, concentration, desire to transcend physical and mental challenges, ability to resolve disputes, more in tune with emotions. Contentment and a sense of lightness, understanding, fulfillment and recognition of oneself. Firm digestion. Powerful, energetic performance. Physical symptoms: Fatigue, agitation, frustration, fatigue, muscle tension, stomach problems, digestive and lower back issues. Negative aspects: Defense, insecurity, a lot of boredom, chronic sadness.  Less able to secure peace of mind from passion, or vice versa. Being stuck in emotions, fear, or anger, whether negative or positive (power hunger or zealotism). Expressive inhibition; sexuality with little or no joy; Selfishness, and unrefined emotionality. Physical Negative Aspects. Rigidity and rigidity. Little lung capacity. Distress of the heart. Body acid / alkaline acid imbalanced. Miserable circulatory system.
Adrian Satyam (Energy Healing: 6 in 1: Medicine for Body, Mind and Spirit. An extraordinary guide to Chakra and Quantum Healing, Kundalini and Third Eye Awakening, Reiki and Meditation and Mindfulness.)
most people today live in a state of chronic fear and have lost the part of themselves that accepts—embraces and copes naturally with—uncertainty, pain, sadness, grief, loss, despair, and disappointment. There is a general malaise in our culture. People feel “homesick”: they are missing feeling at home in themselves, in their communities, and in the fabric of society as a whole.
Kelly Brogan (Own Your Self: The Surprising Path beyond Depression, Anxiety, and Fatigue to Reclaiming Your Authenticity, Vitality, and Freedom)
Such troughs of fatigue, a factor in my life for as long as I could remember, seemed to be growing deeper and more frequent as I got older. I was hardly into my thirties but already I felt the diminishment of vitality associated with middle age - in fact, I had always felt it, even when I was twenty-one, or seventeen. Perhaps I was born middle-aged, I thought. I wondered, not for the first time, whether I suffered from an undiagnosed case of chronic fatigue syndrome - or whether, more simply, I was a lazy bastard.
Rob Doyle (Threshold)
To make matters worse, postmenopausal women are two to three times more likely than premenopausal women to develop new sleep problems, such as sleep apnea. While this disorder is typically considered a men’s issue, once menopause kicks off, women are also at increased risk, possibly because of changes in muscle tone. Sleep apnea is a chronic breathing disorder during which one repeatedly stops breathing mid-sleep. Typically, this is due to a partial or complete obstruction (or collapse) of the upper airway, often affecting the base of the tongue and the soft palate, or due to a depressed signal from the brain to initiate a breath. These events can last ten seconds or longer, sometimes occurring hundreds of times per night, causing severe sleep disruptions. Sleep apnea is more common than you probably think. The National Sleep Foundation reported that it likely affects as much as 20 percent of the population, although as many as 85 percent of individuals with sleep apnea don’t know they have it. That seems to be particularly the case for women, for two reasons. First, many women attribute the symptoms and effects of sleep disorders (like daytime fatigue) to stress, overwork, or menopause, rather than to sleep apnea. Second, the symptoms of sleep apnea are often more subtle in women than in men (read, women snore less). As a result, women tend to not seek evaluation for sleep apnea, which in turn delays diagnosis and treatment. Given the importance of sleep for your health, both physical and mental, I strongly recommend that you get a proper sleep evaluation if you are concerned that your sleep symptoms may be due to menopause, sleep apnea, or a combination of the two. Treatments for sleep apnea are available, which often include lifestyle changes and the use of a breathing assistance device at night, such as a continuous positive airway pressure (CPAP) machine. Sleep disturbances due to menopause are also just as important to address. As with the other symptoms so far, remedies are available, which we’ll review in part 4.
Lisa Mosconi (The Menopause Brain)
Lusso and Gallo had quietly disclosed that they had found HHV-6 was infecting and killing NK cells in both AIDS and CFS patients. “They identified the problem in both sets of patients,” said Knox, “so it makes sense that HHV-6A would also be a problem in Chronic Fatigue Syndrome.
Robert F. Kennedy Jr. (The Real Anthony Fauci: Bill Gates, Big Pharma, and the Global War on Democracy and Public Health)
Symptoms of electrolyte imbalances include chronic fatigue, irregular heartbeat, high blood pressure, brain fog, sleeping problems, muscle weakness, cramping, headaches and numbness[ DiNicolantonio, Dr. James ; Land, Siim (2021-03-20). The Mineral Fix: How to Optimize Your Mineral Intake for Energy, Longevity, Immunity, Sleep and More
Dr. James Dinicolantonio Dr.
While those eating plant-based diets appear to enjoy lower risk of cardiovascular disease and longer lives,3719 those eating low-carb diets suffer significantly higher rates of cardiovascular disease and shorter lives—a 22 percent increase in overall mortality risk.3720 So, the side effects of low-carb ketogenic diets may not only include, as a recent review recited, “chronic fatigue, nausea, headaches, hair loss, reduced tolerance to alcohol, reduced physical performance, heart palpitations, leg cramps, dry mouth, bad taste, bad breath, gout, or constipation,”3721 but premature death as well.3722
Michael Greger (How Not to Age: The Scientific Approach to Getting Healthier as You Get Older)
unhealthy muscle, infiltrated with fat, much like a marbled steak. This can lead to chronic fatigue, loss of strength, and insulin resistance, as well as the limitation of daily activities.
Gabrielle Lyon (Forever Strong™: A New, Science-Based Strategy for Aging Well)
If the individual feels never-ending self-imposed pressure to do good, be good, or appear good, she will eventually fall into the long-term effects of fatigue. The long-term effects of this can only be characterized as chronic fatigue.
Steven Ray Ozanich (The Great Pain Deception: Faulty Medical Advice Is Making Us Worse)
Under proper medical supervision, DHEA may be helpful in the treatment of cancer, diabetes, hypertension, AIDS, herpes, chronic fatigue syndrome, and as replacement therapy for aging. However, caution is advised because there is also evidence that DHEA may lead to insulin resistance and increased coronary risk in women.
Kenneth S. Cohen (The Way of Qigong: The Art and Science of Chinese Energy Healing)
Abraham Lincoln’s purported remark to Harriet Beecher Stowe, “So you’re the little woman who wrote the book that started this great war!
Kent Heckenlively (Plague: One Scientist's Intrepid Search for the Truth about Human Retroviruses and Chronic Fatigue Syndrome (ME/CFS), Autism, and Other Diseases)
mysterious illness dubbed “Gulf War Syndrome” plagued military personnel. Scores of soldiers were falling ill with a plethora of symptoms, the most common being gastrointestinal distress, fibromyalgia, and extreme, chronic fatigue. Years later, researchers would also observe what appeared to be a trend in birth defects in children of Gulf War veterans. The source of this illness, which has been devastating for those impacted and their families, remains somewhat of a mystery. Some suspect the use of chemical or biological weapons
Hourly History (The Gulf War: A History from Beginning to End (Middle Eastern History))
Adrenal fatigue happens when we are exposed to chronic stress. Our adrenal glands become taxed by the constant heightened stress response, rendering adrenal health insufficient. Under normal circumstances, the adrenal glands trigger the release of cortisol (otherwise known as the stress hormone), which steps in to help us handle stress. Adrenaline, our fight-or-flight hormone, is also put in motion by our adrenals. Both of these hormones are activated to help us get out of stressful situations. This is great when used on a short-term basis. However, those suffering from adrenal fatigue have been running on empty as a result of a chronic stress response.
Margarita Alcantara (Chakra Healing: A Beginner's Guide to Self-Healing Techniques that Balance the Chakras)
Injury prevention training boils down to two things: Reduce the acute and chronic stress placed on at-risk tissues (common injury areas or weak points) through periodization of intensity and proper movement mechanics. Increase the stress a tissue can tolerate prior to failure. This is accomplished through building overall muscle mass and strength, connective tissue resilience, sports- or lifestyle-specific corrective exercise, and fatigue management (you’re more prone to injuries when you are tired).
Scott H Hogan (Built from Broken: A Science-Based Guide to Healing Painful Joints, Preventing Injuries, and Rebuilding Your Body)
I awoke from my chronic fatigue and significant mental illness in 2022. I had changed the body chemistry like those in the movie ‘Awakenings’. I was aware that it may be temporary. In 2024 the ‘Awakening Effect’ started slowly subsiding.
Steven Magee
As a sickly person that made a significant recovery by changing the body chemistry, I am aware the “Awakening Effect” may subside and a return to significant mental illness and chronic fatigue may be in my future.
Steven Magee
Saad Jalal Toronto Canada - The Science of Healthy Eating Healthy eating is not just a trend; it's a science that holds the key to a longer, more vibrant life. The choices we make when it comes to food have a profound impact on our overall well-being, from our physical health to our mental clarity. Understanding the science behind healthy eating empowers us to make informed choices and lead healthier lives. At its core, healthy eating is about nourishing our bodies with the right balance of nutrients. This means consuming a variety of foods rich in vitamins, minerals, fiber, proteins, and healthy fats. The science shows that such a diet can: Saad Jalal Promote Physical Health: Nutrient-dense foods provide essential vitamins and minerals that support bodily functions. They can help prevent chronic diseases like heart disease, diabetes, and certain cancers. Boost Mental Health: A well-balanced diet can positively impact mood and cognitive function. Nutrients like omega-3 fatty acids and antioxidants found in certain foods have been linked to improved mental well-being. Sustain Energy: Healthy eating provides a steady supply of energy throughout the day, avoiding energy crashes and fatigue. Saad Jalal Toronto Canada said Complex carbohydrates, lean proteins, and healthy fats are key players in this process. Support Digestive Health: Foods rich in fiber promote healthy digestion and regular bowel movements. They maintain gut health and contribute to a strong immune system. Maintain Healthy Weight: Portion control and balanced nutrition are fundamental to weight management. Eating mindfully and recognizing hunger cues can help control calorie intake. The science of healthy eating is an evolving field, continually revealing new insights into the connection between diet and well-being. By staying informed and making conscientious choices, we can harness this knowledge to lead healthier, happier lives. So, let's embrace the science of healthy eating and make every meal a step towards a brighter, healthier future.
Saad Jalal - Toronto Canada
Just as obviously, you’ll have trouble mobilizing energy in response to the demands of daily life. And that is precisely what is seen in individuals with chronic fatigue syndrome, which is characterized by, among other things, too low levels of glucocorticoids in the bloodstream.
Robert M. Sapolsky (Why Zebras Don't Get Ulcers: The Acclaimed Guide to Stress, Stress-Related Diseases, and Coping)
Symptoms of Systemic Inflammation Symptoms are far ranging, including everything from general fatigue to weight gain.44 Even if you are less concerned about overall health and more worried about your banged-up knees and elbows, pay close attention to this. Studies show low-grade systemic inflammation makes you more susceptible to tendinopathy and joint pain.45 While most people have one or two of these symptoms, you should seek medical guidance if several of these describe you: Weight gain (especially around the midsection) Fatigue, brain fog, general lethargy, insomnia Joint and muscle pain, spasms, muscle cramps Depressed mood and anxiety Digestive discomfort (gas, diarrhea, constipation, stomach cramps and pains) Skin disorders, including easily irritated skin, persistent redness or puffiness, eczema, and psoriasis Frequent infections, colds, and illnesses Frequent allergic reactions and allergy symptoms Symptoms of local chronic inflammation (in a specific region of the body) are more specific: Pain, swelling, irritation, or redness lasting longer than six weeks Progressive muscle weakness Progressive reductions in range of motion Causes and Risk Factors for Chronic Inflammation While some of these are out of your control—like genetics and age—you can influence most of these risk factors:
Scott H Hogan (Built from Broken: A Science-Based Guide to Healing Painful Joints, Preventing Injuries, and Rebuilding Your Body)