Child With Cerebral Palsy Quotes

I Have a Dream... someday my son, Zyon and ALL individuals with disabilities will be seen as HUMAN beings. I Have a Dream... someday the human & civil rights of individuals with disabilities are honored and they are treated as equals. I Have a Dream... someday ALL parents who have children with disabilities see their child as a blessing and not a burden. I Have a Dream... someday there will be more jobs and opportunities for individuals with disabilities. I Have a Dream... someday there will be UNITY "within" the disabled community. I HAVE A DREAM!!!

Our family was starting. We kept on moving with our young lives, shortly afterward and took Ben Young with us everywhere. But pretty soon Pegi started noticing that Ben was not doing the things some other babies were doing. Pegi was wondering if something was wrong. She was young, and nothing had ever gone wrong in her life. People told us kids grow at different rates and do things at different times. But as Ben reached six months old, we found ourselves sitting in a doctor's office. He glanced at us and offhandedly said, "Of course. Ben has cerebral palsy." I was in shock. I walked around in a for for weeks. I couldn't fathom how I had fathered two children with a rare condition that was not supposed to be hereditary, with tow different mothers. I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them, going wild. Luckily that never did happen, but there was a root of instability inside me for a while. Although it mellowed with time, I carried that feeling around for years. Eventually Pegi and I, wanting to have another child after Ben, went to se an expert of the subject. That was Pegi's idea. Always organized and methodical in her approach to problems, Pegi planned an approach to our dilemma with her very high intelligence. We both loved children but were a little gun-shy about having another, to say the least. After evaluating our situation and our children, the doctor told us that probably Zeke dis not actually have CP-he likely had suffered a stroke in utero. The symptoms are very similar. Pegi and I weighed this information. To know someone like her and to make a decision about a subject as important as this with her was a gift beyond anything I have ever experienced. It was her idea, and she had guided us to this point. We made a decision together to go forward and have another child.

My words to Anna, as we stood contemplating the Scuola Grande di San Marco, moments before entering Venice Hospital, came true: 'With a façade like that, I could even accept having a deformed child.' I accepted Tito's cerebral palsy. I accepted it as if it were the most natural thing in the world. I accepted it with delight. I accepted it with enthusiasm. I accepted it with love.

Decades after little Colleen’s death, my sister Kathy still loves her daughter dearly. Colleen was born with cerebral palsy. She died in Kath’s arms in a rocking chair at the age of six. They were listening to a music box that looked very much like a smiling pink bunny. The opening quote in this book, “I will love you forever, but I’ll only miss you for the rest of my life,” is from Kath’s nightly prayers to her child. Colleen couldn’t really talk or walk very well, but loved untying my mother’s tennis shoes and then laughing. When Mom died decades later we sent her off in tennis shoes so Colleen would have something to untie in Heaven. In the meantime, Dad had probably been taking really good care of her up there. He must have been aching to hug her for all of her six years on earth. Mom’s spirit comes back to play with great grandchildren she’d never met or had a chance to love while she was still – I almost said “among the living.” In my family, though, the dead don’t always stay that way. You can be among the living without technically being alive. Mom comes back to play, but Dad shows up only in emergencies. They are both watching over their loved ones. “The Mourning After” is dedicated to all those we have had the joy of loving before they’ve slipped away to the other side. It then celebrates the joy of re-unions.

Mia was proud to advertise herself as a mom willing to adopt a child with cerebral palsy, but the dedication and work involved fell to the other kids.

Jessica uncapped a marker and wrote ILLS at the top of the whiteboard. “Right,” Averman said. “I thought we’d begin with an overview of the problems at hand. This is a brainstorm. There’re no bad suggestions. We’ll prioritize and organize in the second session.” Four men spoke at once and then deferred to Roark. “We’re to list, what? Global pandemics?” “Everything. Like heart disease, for example.” Averman replied. Jessica wrote HEART DISEASE in the top left corner. A voice from the third row. “World hunger?” Jessica wrote WORLD HUNGER. Guy figured he’d come this far. “Jingoism!” JINGOISM. Benatti yelled, “Famine!” “Isn’t that the same as world hunger?” Roark asked. A chorus of assenting murmurs. Wright called up from the second row. “World hunger is a distribution problem. Famine is agricultural.” “Gentlemen.” Averman put his hands up in a conciliatory gesture. “Again, there are no bad suggestions. We’ll sort everything in the second session.” FAMINE. “SIDS!” Mary Ellen yelled. “Malaria!” someone shouted. Momentum gathered: “Alzheimer’s! Influenza! Cerebral palsy! Women’s education! Recidivism! Rising oceans! The migrant crisis! Diabetes! Earthquakes! Wage disparity! Racism! Blindness! Domestic abuse! Nuclear armament! Nuclear stockpiling! Opportunity for the less affluent! Drug patents! Ennui! Urban zoning! High-speed internet access! The Great Barrier Reef! Food deserts! Healthcare reform! Religious extremism! Crohn’s disease! Meningococcemia! Carbon emissions! AIDS! Female genital mutilation! Apathy! Child labor! Deafness! Corporate monopolies! Tax reform! Flesh-eating viruses! Infrastructure! University endowments! River-borne diseases! Mudslides! Marfan syndrome! Wildfires! Sexism! Opioids! Locked-in syndrome! Gambling addiction! Lyme’s! Lack of potable water! Tuberculosis! COPD! Syphilis! Deaths of despair! Mass transportation! High blood pressure! Bee extinction! Monogamy! Pneumonia! Mass incarceration! Mass migration! Pornography! Fibromyalgia! Diarrhea! Cirrhosis! Bacterial infections! Poor hygiene! Illiteracy! E. coli! Car accidents! School shootings! Xenophobia! Holy wars! Preterm birth complications! Sugar! Terrorism! Diabetes! Unemployment! Depression! Norovirus! Fracking! Oxygen depletion in the oceans! Nuclear waste! Mortality! . . .