“
The world needs all types of minds.
”
”
Temple Grandin
“
By autistic standards, the “normal” brain is easily distractible, is obsessively social, and suffers from a deficit of attention to detail and routine. Thus people on the spectrum experience the neurotypical world as relentlessly unpredictable and chaotic, perpetually turned up too loud, and full of people who have little respect for personal space.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
Ought one to surrender to authority even if one believed that that authority was wrong? If the answer was yes, then I knew that I would always be wrong, because I could never do it. Then how could one live in a world in which one's mind and perceptions meant nothing and authority and tradition meant everything? There were no answers.
”
”
Richard Wright (Black Boy)
“
I've met so many parents of the kids who are on the low end of the autism spectrum, kids who are diametrically opposed to Jacob, with his Asperger's. They tell me I'm lucky to have a son who's verbal, who is blisteringly intelligent, who can take apart the broken microwave and have it working again an hour later. They think there is no greater hell than having a son who is locked in his own world, unaware that there's a wider one to explore. But try having a son who is locked in his own world and still wants to make a connection. A son who tries to be like everyone else but truly doesn't know how.
”
”
Jodi Picoult (House Rules)
“
Presuming that a nonspeaking child has nothing to say is like presuming that an adult without a car has nowhere to go.
”
”
Ellen Notbohm (Ten Things Every Child with Autism Wishes You Knew)
“
In dealing with autism, I'm certainly not saying we should lose sight of the need to work on deficits, But the focus on deficits is so intense and so automatic that people lose sight of the strengths.
”
”
Temple Grandin (The Autistic Brain: Thinking Across the Spectrum)
“
If you can still wipe your own backside then life's not that bad!
”
”
E.J. Plows
“
Label-locked thinking can affect treatment. For instance, I heard a doctor say about a kid with gastrointestinal issues, “Oh, he has autism. That’s the problem”—and then he didn’t treat the GI problem.
”
”
Temple Grandin (The Autistic Brain: Thinking Across the Spectrum)
“
It’s become horribly and offensively popular to say that someone is on the autism spectrum, so all I’ll say is his inability to notice when I was crying had to be some kind of pathology.
”
”
Lena Dunham (Not that Kind of Girl: A Young Woman Tells You What She's "Learned")
“
Mental illness is not something you misunderstand in this era. Get educated because bias is no different than racism.
”
”
Shannon L. Alder
“
I see autism as having many different strands. All of these strands are beautiful. They are all the colours of the rainsbow intertwined intricately into the child. If you try and take away the autism by removing the strands you also take away parts of the child as they are attached to them. Thhey are what makes them who they are. However autism is only a part of them, not the whole. It does not define them.
This is for my Tom.
”
”
J.M. Worgan (Life on the Spectrum. The Preschool Years. Getting the Help and Support You Need.)
“
Having autism is like having too many tabs open on a computer. Or more accurately, it’s like trying to surf the web without an ad blocker. Every time you click on something, another window pops up.
”
”
Michael McCreary (Funny, You Don't Look Autistic: A Comedian's Guide to Life on the Spectrum)
“
It’s wondering … always wondering and never understanding: how can I be so smart and still feel so stupid?
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Having autism is a characteristic, not a character.
”
”
Michael McCreary (Funny, You Don't Look Autistic: A Comedian's Guide to Life on the Spectrum)
“
Neuroanatomy isn't destiny. Neither is genetics. They don't define who you will be. But they do define who you might be. They define who you can be.
”
”
Temple Grandin (The Autistic Brain: Thinking Across the Spectrum)
“
For me, showing someone where they’re wrong feels like keeping them safe from the consequences of their mistake. It’s a collaborative pursuit of truth, not a power move.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
There are billions of us -- humans everywhere, with access to our own minds and no one else's, tossing one another songs and sentences to bridge the gap.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
All people, whether Aspie or neuro-typical are predisposed by their society to make guesses, jump to conclusions and then seek to defend those conclusions, regardless of logic or changing circumstance. This is sloppy, illogical thinking which may not hinder your life too much, under normal circumstances. But if you want to be a great detective, then such thinking will absolutely ruin your chances.
”
”
Alexei Maxim Russell (Trueman Bradley - The Next Great Detective)
“
We live in truly unbelievable times. Autism is an epidemic in most western
countries, western governments are nothing more than corrupt corporations, and corporations are
routinely suppressing information regarding the toxicity of many common household items. The result
is that many people are unnecessarily suffering from easily preventable developmental problems,
sickness and cancer.
”
”
Steven Magee
“
When something is "all in your mind," people tend to think that it's willful, that it's something you could control if only you tried harder or if you had been trained differently. I'm hoping that the newfound certainty that autism is in your brain and in your genes will affect public attitudes.
”
”
Temple Grandin (The Autistic Brain: Thinking Across the Spectrum)
“
If we can't start by seeing an autistic child as inherently capable, interesting, and valuable, no amount of education or therapy we layer on top is going to matter.
”
”
Ellen Notbohm (Ten Things Every Child with Autism Wishes You Knew)
“
No matter how I appear on the outside, I will always be autistic on the inside.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
To summarize this chapter, parents and teachers need to “stretch” individuals on the autism spectrum. They need to be stretched just outside their comfort zone for them to develop.
”
”
Temple Grandin (The Way I See It)
“
The autism spectrum is multidimensional, not linear
”
”
Julie Buxbaum (What to Say Next)
“
Being exposed to a variety of people with autism is important because not all people on the spectrum are the same. Just because they share a label does not mean they will have anything in common or want to spend time together.
”
”
Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
The diagnosis of autism can sometimes help you better predict a child’s behaviors, but it tells you nothing about their specific way of thinking, their idiosyncrasies, their strengths, or their individual personality.
”
”
Temple Grandin (Navigating Autism: 9 Mindsets For Helping Kids on the Spectrum)
“
They've learned to survive even though the world is confusing and difficult for them.
”
”
Darren Groth (Are You Seeing Me?)
“
The experience of life from within any group has to be described by members of that group.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
And maybe, just maybe, I’d be able to build an authentic, curious, passionate life on the beautifully atypical Belle Curve.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
In these days, doctors know little about autism. They blame it on distant parents who don't communicate enough with their children
”
”
Pénélope Bagieu (Brazen: Rebel Ladies Who Rocked the World)
“
When we're young we may be called "little professors," but when we get a bit older, we're more like "absent-minded professors.
”
”
Rudy Simone (Aspergirls)
“
One day I dream that we can grow in a matured society where nobody would be 'normal or abnormal' but just human beings, accepting any other human being -- ready to grow together.
”
”
Tito Rajarshi Mukhopadhyay (The Mind Tree: A Miraculous Child Breaks The Silence Of Autism)
“
It makes it very hard to work out where you belong when you are brilliant at things that others find hard, but useless at things that others find easy.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder)
“
However, my favorite way to think of autism is this: I miss what others catch, and I catch what others miss.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
Bad storytelling is bad theology.
”
”
Daniel Bowman Jr. (On the Spectrum: Autism, Faith, and the Gifts of Neurodiversity)
“
Bizarrely, my biggest fear was that the tests would prove I didn’t have Asperger’s or that the psychologist would think I wasn’t autistic enough to merit a diagnosis. Then I’d be back to having no explanation for all the atypical things about me.
”
”
Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
Routines provide an avenue to work through fear. He knew where we were going and what to expect and could make plans to conquer specific fears as all else was the same. It allowed focus.
”
”
Liz Becker
“
That tongue of yours. Lots of people commented on Devon’s tongue. She stuck it out, sometimes, inspecting it in the mirror. There was nothing special about her tongue that she could ever see.
”
”
Sunyi Dean (The Book Eaters)
“
I was, however, a handful. I was overly smart, easily bored, very curious and constantly in motion. Consequently, I got a lot of guidance from adults on how to behave properly. This reined in my more problematic behaviors, but it also made me feel like I was forever in danger of doing something “wrong,” especially when I “wasn’t trying hard enough.
”
”
Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
Derek’s reaction highlights a central challenge of autism: for the vast majority of people on the spectrum, autism can be best understood as a disability of trust. Because of their neurological challenges, people with autism face tremendous obstacles of three kinds: trusting their body, trusting the world around them, and—most challenging of all—trusting other people.
”
”
Barry M. Prizant (Uniquely Human: A Different Way of Seeing Autism)
“
Diagnoses —such as ADHD, oppositional defiant disorder, bipolar disorder, depression, an autism spectrum disorder, reactive attachment disorder, the newly coined disruptive mood regulation disorder, or any other disorder—can be helpful in some ways. They “validate” that there’s something different about your kid, for example. But they can also be counterproductive in that they can cause caregivers to focus more on a child’s challenging behaviors rather than on the lagging skills and unsolved problems giving rise to those behaviors. Also, diagnoses suggest that the problem resides within the child and that it’s the child who needs to be fixed. The reality is that it takes two to tango. Let there be no doubt, there’s something different about your child. But you are part of the mix as well. How you understand and respond to the hand you’ve been dealt is essential to helping your child.
”
”
Ross W. Greene (The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children)
“
Real me only leaks out when the rote-learning system I have devised has insufficient data to maintain the facade. Real me is also allowed out in times of complete comfort and acceptance (it takes a rare soul to love and accept without judgement...)
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder)
“
Men who struggle with deadlines or disorganization more frequently find the socially acceptable support of executive assistants, wives, or mothers … they are the “absent-minded professors,” while there is no word for emotional, discombobulated women.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
And don’t ever, EVER compare yourself to a neurotypical (NT) girl or woman. They are a different species and you’ll only feel inadequate and bad about yourself. Find your tribe – online, in groups at comic conventions. Find people who are delighted that you are you. And you should be delighted that you are you too because when you’re 70, you’ll still be skateboarding, you’ll look amazing (from all those years of not ruining your skin with make-up) and you’ll realise that all those things you worried about don’t matter at all.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age)
“
Masking' is a word for the performative effort required to get it right, which makes it tiring for me to socialize.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
I wish that I could be in water without water being on me.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
Remember a person with Autism isn't a set of symptoms or statistics always remember and remind them that they're a person first.
”
”
Paul Isaacs
“
My ears work. My brain understands. Can't you see I am a REAL PERSON?
”
”
Carol Cujec (Real)
“
Like a chameleon … [those with a diffuse sense of self] change who they are depending on their circumstances and what they think others want from them.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Apparently, letters mean you should change. I need to learn a lot of rules instead of going to the park. I like rules. I don't like talking about rules.
”
”
Anna Whateley (Peta Lyre’s Rating Normal)
“
Alexithymia includes the following: • difficulty identifying different types of feelings • difficulty expressing feelings • difficulty recognizing facial cues in others
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
All the qualifications in the world dont mean a thing if you can't hold a conversation.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder)
“
people on the spectrum were fully capable of irony and sarcasm at a time when it was widely assumed that they didn’t “get” humor.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
He's just like the rest of us - amazing in his own right, and no better or worse than anyone else.
”
”
Darren Groth (Are You Seeing Me?)
“
Behind the disability, we have a heart and a mind.
”
”
Matthew Kenslow
“
Divergence is nature’s way to expansion.
”
”
Abhijit Naskar (The Divine Refugee)
“
I am against the rush to medicalize our children and young people to present as the opposite sex when they are confused or when other conditions such as autism are misattributed as trans.
”
”
Lisa Shultz (The Trans Train: A Parent's Perspective on Transgender Medicalization and Ideology)
“
I go to all the appointments. All the meetings. I sit with the team of inclusion teachers, occupational therapists, doctors, social workers, remedial teachers, and the cab driver that gets him from appointment to appointment, and I push for everything that can be done for my autistic boy. But I will never have a plan that will fix him. Noah is not something to be fixed.
And our life will never be normal. And people always say,
oh well what’s normal, there’s no such thing really, and I say —
sure there is…there’s a spectrum… and there’s lots and lots of possibilities within that spectrum, and trust me buddy, ducks on the moon ain’t one of them….but ….
In this abnormal life, I get to live with a pirate,
and a bird fancier, and an ogre, and a hedgehog, and many many superheroes, and aliens and monsters —
and an angel.
I get to go to infinity and beyond.
”
”
Kelley Jo Burke (Ducks on the Moon: A Parent Meets Autism)
“
The primary problem for individuals on the autism spectrum is not the inability to feel for others, but the profound difficulty in reading other people’s minds and consequently behaving in a socially appropriate manner. This means that individuals on the autism spectrum can come across as if they lack empathy, but in fact many of them report that they feel deeply for other people’s and animals’ misfortune.
”
”
Essi Viding (Psychopathy: A Very Short Introduction (Very Short Introductions))
“
Mental health conditions are the outcome of this refusal to admit limitations. Admission of limitations equates to failure for many women with autism. Admitting vulnerability and asking for concessions or help is hard after a lifetime of masking.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder)
“
There are few things as tragic as when we tacitly agree to the notion that our unchangeable truth is somehow invalid. Less than. Broken. Wrong. That pretending is necessary for professional opportunity or personal acceptance. I’ve done it a million times in ways large and small, and I can tell you this: trying to hide in plain sight is frustrating, disorienting, isolating—an exhausting game of (only possible) short-term gains in exchange for very-certain long-term exclusion. When we agree to play, we not only hide and cast doubt upon our experiences. We’ve willingly participated in the invalidation of ourselves.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Life, they say, is about the journey, not the destination. Well, whoever they are, they are very clearly neurotypical. For spectrum minds, too much choice will halt you in your steps. Waypoints and destinations are the only indications of trajectory.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Often those on the more able end of the spectrum may be considered too "high functioning" by the systems in place to require any type of support, yet access to someone who could coach them a few hours a week would make all the difference in their lives.
”
”
Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
When we feel either understimulated or overstimulated, we physically cannot reason, listen, or think about anything else. We can’t just ignore it. We can’t learn. We can’t be spontaneous or fun. We can’t rationalize well. And we can’t hear others’ needs, let alone be certain we understand our own. It’s like trying to see your own reflection in a pot of boiling water. Nothing is clear.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Largely, it’s what we usually refer to as sympathy or compassion—feeling delighted or afraid or concerned or thrilled for someone, doing what we can to alleviate any suffering, and securing them in love. That’s emotional empathy. And that we’ve got in spades.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
If a friend asks what I think about her new handbag, I find myself unable to speak; despite trawling through my brain for something, anything, to say, I cannot muster a single word as I have absolutely no opinion on handbags beyond it's a bag, it carries stuff.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder)
“
What’s it like to be us? Too much. We feel too much. React too much. Say too much. Need too much. So says the world. I say: the world is wrong. There is an exquisite trade-off for a life so differently led: complex imagination, limitless curiosity, profound compassion, and restless independent thought. They are the core of everything I am. They will be responsible for whatever legacy I leave behind.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
He knew the way he spoke wasn't right, but it was the only way the words came. The thoughts in his head were precise and clear, their meaning was absolutely obvious. But when they emerged in the form of phrases, the superfluous husk simply fell away of its own accord and only the essential idea was left. Probably sometimes rather more fell away than ought to.”
Excerpt From
EF06 - The State Counsellor
”
”
Boris Akunin
“
I think in many ways that we autistic are the normal ones and the rest of the people are pretty strange. They keep saying that climate change is an existential threat and the most important issue of all. And yet they just carry on like before. If the emissions have to stop, then we must stop the emissions. To me that is black or white. There are no grey areas when it comes to survival. Either we go on as a civilization or we don’t.
”
”
Greta Thunberg (No One Is Too Small to Make a Difference)
“
They’re just different in brains that are neurologically different, regardless of which way the comparison is made. Or, as Charles Addams put it, “Normal is an illusion. What is normal for the spider is chaos for the fly.” No matter who’s the fly and who’s the spider, it still makes sense.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
We need to be doing a better job preparing our teens and young adults for employment during their high school and college years. But just as importantly, we need to be educating workplaces, job coaches, corporations, and business leaders about the benefits of hiring a person on the spectrum.
”
”
Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
Asperger survived the war, but his concept of autism as a broad and inclusive spectrum (a “continuum,” his diagnostician Georg Frankl called it) that was “not at all rare” was buried with the ashes of his clinic and the unspeakable memories of that dark time, along with his case records. A very different conception of autism took its place.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
Heightened memories of past threats will increase the wish to disappear, to hide, to avoid the conversation, or just to flat out quit (“flight”). Those same memories—of feeling like a failure, unwanted, or hurt—also make us quicker to anger, and with greater intensity. That’s our shield. We are trying to immediately stop what feels like a threat.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
It means I'm trusting and literal and I've been underestimated and misunderstood more than my pride would like me to admit. And it also means that I'm a creative and a daydreamer, an artistically expressive person who pours herself into her passions and loves fiercely—the causes and people close to my heart—and does none of that by half-measures.
”
”
Chloe Liese (The Mistletoe Motive)
“
It is true that Jeremy could see "naked girls dancing" in strip clubs in San Diego, but parents reading this will appreciate that, since our loved ones on the spectrum tend to have obsessive tendencies, I was not about to tell Jeremy that. Obsessions with French fries I can deal with. Let him think he has to travel to Las Vegas to see naked girls dancing.
”
”
Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
Each one of us is different, but one thing that is true; Each one of us is wonderfully made, and so, my dear, are you!
”
”
Donna Anello (Understanding Charlie (Wonderfully Made Children))
“
To honestly describe how I’m doing, I have to list each fact that’s hovering in my thoughts, and then say how that fact makes me feel. Essentially, I’m pretending that the question isn’t, “How are you?” but rather, “What’s taking up space in your brain?” A few friends have even started phrasing the question that way, which helps me to know when they want a thorough answer.
”
”
Annie Kotowicz (What I Mean When I Say I'm Autistic: Unpuzzling a Life on the Autism Spectrum)
“
In the context of the autism world (and my outlook in general) this is were I stand equality is for everyone, everybody in the world - I look at both sides of the the coin and take into account peoples realities (that makes me neutral/moderate/in the middle).
That means that you look in a more three dimensional perspective of peoples diverse realities you cannot speak for all but one can learn from EACH OTHER through listening and experiencing.
I also try my best to live with the good cards I was given not over-investing in my autism being the defining factor of my being (but having a healthy acknowledgement of it) that it's there but also thinking about other qualities I have such as being a writer, poet and artist.
I do have disability, I do have autism and I have a "mild" learning disability that is true but I a human being first and foremost. And for someone to be seen as person equal to everyone else is a basic human right.
”
”
Paul Isaacs (Living Through the Haze)
“
While bullying happens to both males and females on the spectrum, girls, particularly, can be judgmental. Dr. Grandin advocates that some gifted children with autism should be allowed to skip high school and go right to college and I couldn‘t agree with her more. We flourish much better in an environment where the emphasis is on academic achievement and not socializing. Of course we need to learn to socialize, but through shared interests with like-minded individuals, not by being thrown to the lions. Emotionally, we require an atmosphere of tolerance and non-judgment.
”
”
Rudy Simone (Aspergirls: Empowering Females with Asperger Syndrome)
“
If we are only interested in changing the AS person so that they can better meld themselves into society - a tenuous and nebulous concept to begin with - then perhaps we are misguided. The AS community gives us much cause to celebrate. Never, I think, should we expect or want them to be carbon copies of the most socially adept among us. We should only suggest whatever help they need to insure they have every opportunity of leading productive, rewarding and self-sufficient lives. We would lose too much and they would lose even more, if our goals were anything more, or less.
”
”
Liane Holliday Willey (Pretending to be Normal: Living with Asperger's Syndrome (Autism Spectrum Disorder) Expanded Edition)
“
Over the years, they’ve all felt, believed, or said that I was too smart to be so … irresponsible, clueless, inept. And when you hear something often enough from enough people in enough places, you believe it. I certainly did. No matter how hard I’ve tried to dot each i and cross each t, I’ve so often managed to screw up the simple stuff with no better idea of how to prevent another disaster. Humiliated, hurt, and lonely, I felt caught in a hamster wheel, futilely running as hard as I could without actually making progress. Defending my heart again. My character again. Hopelessly explaining myself, again, until even I became sick of my voice.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
...it is often reported that women with autism are more likely to internalise the anxiety and stress they feel around change, not wanting to draw attention to their inability to cope with the situation. This leads other people to believe they are coping, when in fact they are not. Repression of emotions and the effort involved in hiding them from others can cause long-term mental health problems, and eventually the facade crashes as the curtailed stress has to come out.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder)
“
The real irony of all this talk about muted sense of self is that the very word autism comes from the Greek root autos, meaning “self” (as in “autograph” and “automobile”). We are self-referenced, certainly. It is so hard to understand others’ experiences of the world that being able to distinguish our wants, desires, and thoughts from anyone else’s is almost impossible. Our minds feel transparent. Not because we have so much sense of self. But because we have so little.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Being on the spectrum does not, in any way, mean that a woman or a girl is destined to be in an abusive relationship. Not at all. On the contrary, being aware that she is different and of the ways that she is different is the cornerstone to knowing how to empower her. What to teach her to watch for. What to teach her to cherish. To know, above all, that yes, like everyone in the world, there are things she can do and ways she must grow to be the best friend and partner she can be. And before she looks outward, she needs to know herself. Needs to know that without exception, she is believed. That even when her perspective is limited or her reactions feel extreme to others, they are entirely authentic and real for her. That we will honor and love her for them, not in spite of them. More than a promise, that’s a responsibility.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
People often said to me what I couldn't do things when I was younger such as sports, writing, mathematics, geography, science etc - I pathway can always be tailored can change and that change itself is possible what did I excel in well art was one of those things of have gone BACK to to move FORWARD and have taken up poetry and creativity something that occupies my mind in way that creates happy thoughts, happy feelings, and happiness all round really.
To invest in your strengths and understand but not over-define yourself by your deficits is something that has worked for me over the years and this year in particular (the ethos was always there instilled that I am human being first like anyone else by my parents and family but it has been tenderly and quite rightly reaffirmed by a friend also) it has made me a more balanced person whom has healthy acknowledgment of my autism who but also wants to be known as a person first - see me first, see that I have a personality first.
I say this not in anger or bitterness but as a healthy optimistic realisation and as a message of hope for people out there.
”
”
Paul Isaacs
“
The most common hit I get is the cringeworthy “You’re autistic? Well, you must be very high-functioning.” Sigh. I understand what they’re trying to say. Really, I do. They mean to be kind. The implication is “I don’t see many—if any—of the clearly debilitating characteristics I associate with autism when I talk to you. So, good on you. You’re not bad off!” Only that’s not a compliment at all. It’s a comparison based on the premise that “autistic” is an insult. A stigma. Or at least a bad thing. Because the only reason someone thinks of me as “high-functioning” is by holding me up to someone who is no more or less autistic—just more obviously challenged—and deciding that they are “lower-functioning.” Really, it’s no different than saying, “Oh! Well, good for you. You’re not too ugly. That gal over there? She’s royally ugly.” Lack of understanding tied up with a bow of condescension.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
For a while, every smart and shy eccentric from Bobby Fischer to Bill Gate was hastily fitted with this label, and many were more or less believably retrofitted, including Isaac Newton, Edgar Allen Pie, Michelangelo, and Virginia Woolf. Newton had great trouble forming friendships and probably remained celibate. In Poe's poem Alone, he wrote that "All I lov'd - I lov'd alone." Michelangelo is said to have written "I have no friends of any sort and I don't want any." Woolf killed herself.
Asperger's disorder, once considered a sub-type of autism, was named after the Austrian pediatrician Hans Asperger, a pioneer, in the 1940s, in identifying and describing autism. Unlike other early researchers, according to the neurologist and author Oliver Sacks, Asperger felt that autistic people could have beneficial talents, especially what he called a "particular originality of thought" that was often beautiful and pure, unfiltered by culture of discretion, unafraid to grasp at extremely unconventional ideas. Nearly every autistic person that Sacks observed appeard happiest when alone. The word "autism" is derived from autos, the Greek word for "self."
"The cure for Asperger's syndrome is very simple," wrote Tony Attwood, a psychologist and Asperger's expert who lives in Australia. The solution is to leave the person alone. "You cannot have a social deficit when you are alone. You cannot have a communication problem when you are alone. All the diagnostic criteria dissolve in solitude."
Officially, Asperger's disorder no longer exists as a diagnostic category. The diagnosis, having been inconsistently applied, was replaced, with clarified criteria, in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders; Asperger's is now grouped under the umbrella term Autism Spectrum Disorder, or ASD.
”
”
Michael Finkel (The Stranger in the Woods: The Extraordinary Story of the Last True Hermit)
“
Musk would later talk about—even joke about—having Asperger’s, a common name for a form of autism-spectrum disorder that can affect a person’s social skills, relationships, emotional connectivity, and self-regulation. “He was never actually diagnosed as a kid,” his mother says, “but he says he has Asperger’s, and I’m sure he’s right.” The condition was exacerbated by his childhood traumas. Whenever he would later feel bullied or threatened, his close friend Antonio Gracias says, the PTSD from his childhood would hijack his limbic system, the part of the brain that controls emotional responses. As a result, he was bad at picking up social cues. “I took people literally when they said something,” he says, “and it was only by reading books that I began to learn that people did not always say what they really meant.” He had a preference for things that were more precise, such as engineering, physics, and coding.
”
”
Walter Isaacson (Elon Musk)
“
Impulsivity and a tendency toward perseveration but away from reciprocity lead us to dominate the conversation, redirect the topic back toward our favorite, and interrupt other people frequently. Our limited theory of mind makes it difficult to register when we’re boring or running off those around us—and executive function differences make it incredibly difficult to stop or redirect even when we do. As so often happens, we confuse attention for affection, prioritize accuracy over pleasantry, and instead of interesting and charming, we’ve managed to convey ourselves as self-centered and one-dimensional. Which
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Many autism experts believe daily living skills, such as managing finances, need to be explicitly taught to people on the autism spectrum. Everything most nonautistic people pick up as they go along—how to shop, catch a bus, cook, clean, or manage money—are skills that are difficult for me to acquire simply by assimilation. I need a book, a video, or someone to explain and show me how to do it. There’s a perception that anyone with average or above-average intelligence will naturally pick up these skills. Strangely, intelligence seems to have little to do with it, and one study even found that problems of this kind are especially prominent in those autistic people with greater cognitive abilities.
”
”
Laura James (Odd Girl Out: An Autistic Woman in a Neurotypical World)
“
Even in an absence of major incidents, the residue of “little t traumas” accumulates: bullying, educational and professional uncertainty, emotional manipulation, discrepancies between what we perceive or express and what others see or express, and gaslighting (being convinced that mistreatment is the invention of one’s own mind) make it difficult to imagine—much less establish—healthy interpersonal boundaries or a sense of where “I begin and you end.” If others’ reactions are our main source of determining who and how we are, and if, as Dr. Salters-Pedneault asserts, those reactions have been unpredictable and/or scary, we are literally without a framework within which to develop a strong sense of identity
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
I do believe that we (autistic individuals such as myself) are very susceptible to suicidal thinking for multiple reasons that include: chronic high levels of anxiety, tendency to fixate on or get stuck on negative disturbing thoughts, low self-worth, inability to have significant or intimate relationships with others, replaying over and over again negative statements that others have said to us, feeling unable to be understood, lack [of] a solid self-identity, difficulty with expressing self to others, feelings of great isolation, feeling that you are or may be a burden to others, feeling unable to contribute to society or the greater good, etc […] I do believe that the most important thing that someone else can do for a struggling autistic individual is to affirm their self-worth, recognise and validate their struggles and affirm the things that they do that are greatly valued by others. The worst thing to do for an autistic individual, or any struggling individual for that matter, is to not believe them or to deny the validity of their struggles. My greatest and deepest hurt is that doctors, family members and important others did not believe me in my struggles, particularly when I was younger, before my diagnosis at the age of 35 years. This has been the strongest impetus for my feelings of unworthiness and suicidal thoughts. (Woman with autism)
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age)
“
Maybe we’re feeling left out or defective, ashamed or insecure. The feelings get too big and … for many of us, the fix is to binge on treasure troves of sugar and fat: pizza, ice cream, cookies, cheese, chocolate. For a little while, the chemical relief numbs out the hurt. Hurt? Worry? It’s all shoved deep down beneath layers of chips or donuts. Hidden. Out of sight and out of mind. Until the chemical buzz begins to wear off … and it turns out that the feelings never went away. They’re still here. And worse, now there’s self-loathing and shame to add to the mix. So we punish ourselves … until the hurt gets too big, and the cycle starts again. For those of us who starve ourselves, the story isn’t much different. We’re still trying to escape overwhelming feelings—of being a fraud, not good enough, unworthy, a failure. Instead of indulging in cover-up chaos, undereaters (like I was) discover relief—even a sense of power—in artificial control.
”
”
Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
“
Visual over-stimulation is a distraction from concentration and evokes the same sort of reactions as over-stimulation from noise. But the source might surprise you. Even fussy clothing moving around can be a visual distraction, or too many people in the room, or too many machines with moving parts. For those who work outside, a windy day is a triple-threat—with sound, sight, and touch all being affected. Cars moving, lights, signs, crowds, all this visual chaos can exhaust the AS person. Back in the office, too many computer screens, especially older ones with TV-style monitors, and sickly, flickering, unnatural fluorescent lighting were both high on the trigger list. The trouble with fluorescent light is threefold: Cool-white and energy-efficient fluorescent lights are the most commonly used in public buildings. They do not include the color blue, “the most important part for humans,” in their spectrum. In addition to not having the psychological benefits of daylight, they give off toxins and are linked to depression, depersonalization, aggression, vertigo, anxiety, stress, cancer, and many other forms of ill health. It’s true. There’s an EPA report to prove it (Edwards and Torcellini 2002). Flickering fluorescent lights, which can trigger epileptic seizures, cause strong reactions in AS individuals, including headaches, confusion, and an inability to concentrate. Even flickering that is not obvious to others can be perceived by some on the spectrum.
”
”
Rudy Simone (Asperger's on the Job: Must-have Advice for People with Asperger's or High Functioning Autism, and their Employers, Educators, and Advocates)
“
Many of the haters call me mental, which, by the way, is quite true, both metaphorically and clinically. It's true clinically because I am a person on the spectrum with OCD, and metaphorically, because I refuse to accept the sanity of unaccountability as the right way of civilized life. I am not going to glorify the issues of mental illness by saying that it's a super power or that it makes a person special. On the contrary, it makes things extremely difficult for a person.
But guess what! Indifference is far more dangerous than any mental illness. Because mental illness can be managed with treatment, but there is no treatment for indifference, there is no treatment for coldness, there is no treatment for apathy. So, let everyone hear it, and hear it well - in a world where indifference is deemed as sanity what's needed is a whole lot of mentalness, a whole lot of insanity, insanity for justice, insanity for equality, insanity for establishing the fundamental rights of life and living for each and every human being, no matter who they are, what they are, or where they are.
”
”
Abhijit Naskar (Either Reformist or Terrorist: If You Are Terror I Am Your Grandfather)
“
Is autism a disease?
If a woman asked me right now, “but wouldn’t you rather be cured?” I’d reply, “would you like to be cured of being a woman?”
Autism, like womanhood, is painful, and difficult, and not made easy by the structure of our society. But it is who we are.
There are treatments that can make certain aspects easier, yes. But there is no whole cure because there is no whole disease.
Some women take birth control to reduce the effects of PMS or PMDD, to stop their bodies from being so at odds with the world, to make living just a little more easy, a little more comfortable. But it is not for every woman, it does not change the fact that they are a woman, and it does not change the sexism that they face every day, all the problems that result from the fact of society being built to serve people who are not them.
I’d like treatments for autistic people to be seen in the same light. Medicine’s priority should be to improve quality of life, not to make a person more palatable to society.
Society must be forced to deal with these people because these people will not be easily consigned to oblivion.
”
”
Irene Wendy Wode
“
The idea that Autism is a “boy’s” disorder goes all the way back to when the condition was first described at the turn of the twentieth century. Hans Asperger and other early Autism researchers did study girls on the spectrum, but generally left them out of their published research reports.[55] Asperger in particular avoided writing about Autistic girls because he wanted to present certain intelligent, “high-functioning” Autistic people as “valuable” to the Nazis who had taken over Austria and were beginning to exterminate disabled people en masse. As Steve Silberman describes in his excellent book NeuroTribes, Hans Asperger wanted to spare the “high functioning” Autistic boys he’d encountered from being sent to Nazi death camps. Silberman described this fact somewhat sympathetically; Asperger was a scientist who had no choice but to collude with the fascist regime and save what few children he could. However, more recently unearthed documents make it clear that Asperger was far more complicit in Nazi exterminations of disabled children than had been previously believed.[56] Though Asperger held intelligent, “little professor” type Autistics close to his heart, he knowingly sent more visibly debilitated Autistics to extermination centers.
”
”
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
Simply put, within AS, there is a wide range of function. In truth, many AS people will never receive a diagnosis. They will continue to live with other labels or no label at all. At their best, they will be the eccentrics who wow us with their unusual habits and stream-of-consciousness creativity, the inventors who give us wonderfully unique gadgets that whiz and whirl and make our life surprisingly more manageable, the geniuses who discover new mathematical equations, the great musicians and writers and artists who enliven our lives. At their most neutral, they will be the loners who never now quite how to greet us, the aloof who aren't sure they want to greet us, the collectors who know everyone at the flea market by name and date of birth, the non-conformists who cover their cars in bumper stickers, a few of the professors everyone has in college. At their most noticeable, they will be the lost souls who invade our personal space, the regulars at every diner who carry on complete conversations with the group ten tables away, the people who sound suspiciously like robots, the characters who insist they wear the same socks and eat the same breakfast day in and day out, the people who never quite find their way but never quite lose it either.
”
”
Liane Holliday Willey (Pretending to be Normal: Living with Asperger's Syndrome (Autism Spectrum Disorder) Expanded Edition)
“
What I gleaned from all this research is that empathy is the result of numerous cognitive and affective processes, all firing away behind the scenes somewhere in our brains. Cognitive processes allow us to understand the mental state of another person—his or her emotions, desires, beliefs, intentions, et cetera—which in turn helps us to understand and even predict the person’s actions or behaviors. They allow us to step outside of our own experience in order to take on and understand other people’s perspectives—something that every wife on the planet wishes her husband would do. The affective component of empathy is more related to our emotional responses to the mental states that we observe in other people. This component allows us to feel some appropriate and non-egocentric emotional response to another person’s emotions—something else that every wife on the planet wishes her husband would do. Empathy involves both processes, and while they operate independently of one another, there is some overlap. A graphical representation of empathy might involve a Venn diagram—two circles, one for the affective component and one for the cognitive, slightly overlapping, with me standing well outside of both circles talking incessantly about the weather during a funeral. In people with Asperger syndrome and other autism spectrum conditions, these mechanisms of understanding are much less reliable and productive than in neurotypicals. Those of us living within the parameters of an autism spectrum condition simply can’t engage the empathic processes that allow for social reasoning and emotional awareness. Furthermore, we have difficulty separating ourselves from our own perspectives (the word autism comes from the Greek word autos, meaning “self”), so we can’t easily understand or even access the perspectives and feelings of others.
”
”
David Finch (The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband)
“
Although there are no set methods to test for psychiatric disorders like psychopathy, we can determine some facets of a patient’s mental state by studying his brain with imaging techniques like PET (positron emission tomography) and fMRI (functional magnetic resonance imaging) scanning, as well as genetics, behavioral and psychometric testing, and other pieces of information gathered from a full medical and psychiatric workup. Taken together, these tests can reveal symptoms that might indicate a psychiatric disorder. Since psychiatric disorders are often characterized by more than one symptom, a patient will be diagnosed based on the number and severity of various symptoms. For most disorders, a diagnosis is also classified on a sliding scale—more often called a spectrum—that indicates whether the patient’s case is mild, moderate, or severe. The most common spectrum associated with such disorders is the autism spectrum. At the low end are delayed language learning and narrow interests, and at the high end are strongly repetitive behaviors and an inability to communicate.
”
”
James Fallon (The Psychopath Inside: A Neuroscientist's Personal Journey into the Dark Side of the Brain)