“
You have to be the bravest person in the world to go out every day, being yourself when no one likes who you are.
”
”
Matthew Dicks (Memoirs of an Imaginary Friend)
“
But in a home where grief is fresh and patience has long worn thin, making it through another day is often heroic in itself.
”
”
Melanie L. Bennett (Learning to Dance in the Rain)
“
I Have a Dream... someday my son, Zyon and ALL individuals with disabilities will be seen as HUMAN beings.
I Have a Dream... someday the human & civil rights of individuals with disabilities are honored and they are treated as equals.
I Have a Dream... someday ALL parents who have children with disabilities see their child as a blessing and not a burden.
I Have a Dream... someday there will be more jobs and opportunities for individuals with disabilities.
I Have a Dream... someday there will be UNITY "within" the disabled community.
I HAVE A DREAM!!!
”
”
Yvonne Pierre (The Day My Soul Cried: A Memoir)
“
What brought you here isn't your fault. We human beings have to live each day to its fullest and do our best in whatever environment we find ourselves in. There's no need to feel any shame just because your "fullest" and "best" look different from those of others.
”
”
Naoki Higashida (Fall Down 7 Times Get Up 8: A Young Man's Voice from the Silence of Autism)
“
When parents say, ‘I wish my child did not have autism,’ what they’re really saying is, ‘I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead.’ Read that again. This is what we hear when you mourn over our existence. This is what we hear when you pray for a cure. This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces.
”
”
Andrew Solomon (Far from the Tree: Parents, Children, and the Search for Identity)
“
But I ask you, those of you who are with us all day, not to stress yourselves out because of us. When you do this, it feels as if you're denying any value at all that our lives may have--and that saps the spirit we need to soldier on. The hardest ordeal for us is the idea that we are causing grief for other people. We can put up with our own hardships okay, but the thought that our lives are the source of other people's unhappiness, that's plain unbearable.
”
”
Naoki Higashida (The Reason I Jump: the Inner Voice of a Thirteen-Year-Old Boy with Autism)
“
Complicating matters even further, on a day-to-day basis, in the same individual, the sensory sensitivities can change, especially when the person is tired or stressed. These
”
”
Temple Grandin (The Way I See It: A Personal Look at Autism & Asperger's: Revised & Expanded, 4th Edition)
“
People with Asperger’s or autism expend a huge amount of mental energy each day coping with socializing, anxiety, change, sensory sensitivity, daily living skills and so on.
”
”
Laura James (Odd Girl Out: An Autistic Woman in a Neurotypical World)
“
One of the major ways abled society dehumanizes the disabled is by calling our maturity into question. “Adults” are supposed to be independent, though of course no person actually is. We all rely on the hard work and social-emotional support of dozens of people every single day. You’re only seen as less adult, and supposedly less of a person,[3] if you need help in ways that disrupt the illusions of self-sufficiency.
”
”
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
In these days, doctors know little about autism. They blame it on distant parents who don't communicate enough with their children
”
”
Pénélope Bagieu (Brazen: Rebel Ladies Who Rocked the World)
“
Some days you'll just get the robot me.
I'm on autopilot.
It's a form of self protection.
”
”
TinaJ. Richardson
“
One day I dream that we can grow in a matured society where nobody would be 'normal or abnormal' but just human beings, accepting any other human being -- ready to grow together.
”
”
Tito Rajarshi Mukhopadhyay (The Mind Tree: A Miraculous Child Breaks The Silence Of Autism)
“
Life is too hard to behave normal all the time. Just the other day my mom told me I should learn to behave more neurotypically because then I would make more friends. This attitude is truly not great -- insisting that I behave in a way that makes no sense to me. This illustrates the hopelessness of trying to be your own person because this means you must behave like everyone else to be accepted. Being different is not seen as a positive trait. I feel if I have to wear a different face, then I will attract people I don't care to know.
”
”
Jeremy Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
I'd spent the preceding twenty days swirling in a paralyzing vortex of loud sounds and bad smells, overwhelming stimuli, and confusing social norms, and I'd had just about all I could take.
”
”
Tracey Garvis Graves (The Girl He Used to Know)
“
The most significant trust-related challenge for people with autism is trusting other people. Most of us are neurologically hardwired with the ability to predict the behavior of others—to read body language intuitively and make subconscious judgments based on how relaxed a person’s body is, on how a person looks at other people, or by the social context. But that is often more difficult for people with autism. Ros Blackburn explains that she lives every day trying to understand people’s intentions when they approach her. “Because I find it so difficult to predict the behavior of other people,” Ros explains, “what they do often comes across as very sudden and threatening to me.
”
”
Barry M. Prizant (Uniquely Human: A Different Way of Seeing Autism)
“
During meals, I was taught table manners, and I was not allowed to twirl my fork around over my head. The only time I could revert back to autism was for one hour after lunch. The rest of the day, I had to live in a nonrocking, nontwirling world.
”
”
Temple Grandin (The Autistic Brain: Thinking Across the Spectrum)
“
During World War II, the British spy agency MI8 secretly recruited a crew of teenage wireless operators (prohibited from discussing their activities even with their families) to intercept coded messages from the Nazis. By forwarding these transmissions to the crack team of code breakers at Bletchley Park led by the computer pioneer Alan Turing, these young hams enabled the Allies to accurately predict the movements of the German and Italian forces. Asperger’s prediction that the little professors in his clinic could one day aid in the war effort had been prescient, but it was the Allies who reaped the benefits.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
Can you tell me how a meltdown feels?”
She tilted her head to stare at the ceiling. “Itchy. And bad. You get so mad at yourself, because you know the thing that set you off isn’t worth the reaction you’re having, but you can’t control it. It’s like . . . knocking over a cup of tea. It goes everywhere, staining as it spreads, but you can’t take it back. You just have to get over yourself and mop up the mess.
”
”
Julia Day
“
Rather than inhabiting a world of black and white, most individuals in the Reich operated in shades of gray. People confronted countless decisions each day. One might walk by a "Jews unwanted" sign at a local store and not say anything - only to shop at a Jewish-owned store on the next block for its favorable prices. One might help a neighbor threatened by the regime - only to look away as another neighbor disappeared. People navigated daily choices as they presented themselves, extemporizing in their personal and professional spheres. Caught in the swirl of life, one might conform, resist, and even commit harm all in the same afternoon. The cruelty of the Nazi world was inescapable.
”
”
Edith Sheffer (Asperger's Children: The Origins of Autism in Nazi Vienna)
“
[Patricia Highsmith] was an extremely unbalanced person, extremely hostile and misanthropic and totally incapable of any kind of relationship, not just intimate ones. I felt sorry for her, because it wasn't her fault. There was something in her early days or whatever that made her incapable. She drove everybody away and people who really wanted to be friends ended up putting the phone down on her.
It seemed to me as if she had to ape feelings and behaviour, like Ripley. Of course sometimes having no sense of social behaviour can be charming, but in her case it was alarming. I remember once, when she was trying to have a dinner party with people she barely knew, she deliberately leaned towards the candle on the table and set fire to her hair. People didn't know what to do as it was a very hostile act and the smell of singeing and burning filled the room.
”
”
Andrew Wilson (Patricia Highsmith, ζωή στο σκοτάδι)
“
A small step forward . . .every . . single . . .day. The sun is coming up and I am wondering, 'What wondrous thing shall I witness today?
”
”
Liz Becker (Autism and the World According to Matt: A collection of 50 inspirational short stories on raising a moderate / severe mostly non-verbal autistic child from diagnosis to independence)
“
The need for structure is often misunderstood by outsiders, and even care workers. Ironically, they tend to interpret the need for structure a bit too literally, and they think everybody benefits from a daily schedule that’s been planned to the max. The notion that people with autism might experience more stress due to a day that’s been planned down to the hour (because the more that’s been planned, the more that can go wrong) is lost on them.
”
”
Bianca Toeps (But You Don’t Look Autistic at All (Bianca Toeps’ Books))
“
Are the kids at school mean?”
“Not mean, exactly. I’d say that the way they treat me is peculiar. More like I’m a zoo animal than a person.” A fist bounced against her leg. “I figured it out when I was visiting a primates exhibit once. People were staring at the gorilla, wondering what he would do next, hoping to be fascinated or creeped out. When he did something gross, they gasped and leaned closer. But when nothing more happened, they got bored and walked off.” The fist-thumping ended. “All the gorilla wanted was to be left alone. Instead, he was caged and made to entertain people against his will. I felt sorry for him until I reaized the cage protected him. Then I was jealous.
”
”
Julia Day
“
The ‘buzzy’ head mentioned by younger girls seems to persist for some older women. The need to ‘file’ and process the day that has passed and to anticipate the one to come appears to prevent easy rest. Difficulty in getting to sleep was most commonly mentioned.
”
”
Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age)
“
Is autism a disease?
If a woman asked me right now, “but wouldn’t you rather be cured?” I’d reply, “would you like to be cured of being a woman?”
Autism, like womanhood, is painful, and difficult, and not made easy by the structure of our society. But it is who we are.
There are treatments that can make certain aspects easier, yes. But there is no whole cure because there is no whole disease.
Some women take birth control to reduce the effects of PMS or PMDD, to stop their bodies from being so at odds with the world, to make living just a little more easy, a little more comfortable. But it is not for every woman, it does not change the fact that they are a woman, and it does not change the sexism that they face every day, all the problems that result from the fact of society being built to serve people who are not them.
I’d like treatments for autistic people to be seen in the same light. Medicine’s priority should be to improve quality of life, not to make a person more palatable to society.
Society must be forced to deal with these people because these people will not be easily consigned to oblivion.
”
”
Irene Wendy Wode
“
Beyond being a promising anticancer agent,1 sulforaphane may also help protect your brain2 and your eyesight,3 reduce nasal allergy inflammation,4 manage type 2 diabetes,5 and was recently found to successfully help treat autism. A placebo-controlled, double-blind, randomized trial of boys with autism found that about two to three cruciferous vegetable servings’ worth6 of sulforaphane a day improves social interaction, abnormal behavior, and verbal communication within a matter of weeks. The researchers, primarily from Harvard University and Johns Hopkins University, suggest that the effect might be due to sulforaphane’s role as a “detoxicant.”7
”
”
Michael Greger (How Not to Die: Discover the Foods Scientifically Proven to Prevent and Reverse Disease)
“
Humans are biased machines, and we are especially influenced by negatives. We want to believe the worst about ourselves and will pick those scraps up throughout the day and piece them together until we have something that we can look at and say, 'Look, arent I terrible' even if everyone else says otherwise. Maybe that's just me.
”
”
Charlotte Amelia Poe (How to Be Autistic)
“
Many people hear the word autistic, and they think of easily recognizable traits. They think of tics. Outbursts. They think of obsessions with trains. They don’t see the shy kid who’s fascinated with color and glass. They don’t think of the girl with few friends who shows strong leadership skills. But the autism spectrum is as vast and varied as those glass jars Ellis collects. No two situations are the same, and at the end of the day, ASD or not, Ellis is his own person. He’s his own unique person just like everybody else. He’s not broken. He doesn’t need to be fixed. None of us are perfect, but I love my son just as he is. And you do, too. Don’t you?
”
”
Emmy Sanders (To Catch a Firefly)
“
Maybe every person on Earth has amazing powers
and abilities, but didn’t know how to put them
into use. Maybe people had lost the ability to
look for the shining light they all had. Every day, I
hear of somebody who can do something
amazing. Maybe if everyone could get out of their
personal tunnel, they could find their powers.
”
”
Paul C. Nelson (Fisher's Autism Trilogy: Through Fisher's Eyes, Dark Spectrum & A Problem With the Moon)
“
Consider Ricky, a teenage boy with autism who was a talented pianist. Ricky once volunteered to entertain the residents of an assisted-living center. He had never visited such a facility, but his parents told him what a lovely, caring gesture it would be. They also informed him that some of the elderly people he would see had terminal illnesses and other challenges, so surely his music would help to lift their spirits. On the day of his performance, a few dozen residents gathered in a recreation room to listen. Before he sat down to play, Ricky introduced himself, said how happy he was to be there, and added this: “I’m very sorry that some of you are going to die soon.
”
”
Barry M. Prizant (Uniquely Human: A Different Way of Seeing Autism)
“
And I think for a moment, because people don't actually ask that very often. They tell me what they think I feel because they've read it in books, or they say incredible things like "autistic people have no sense of humour or imagination or empathy" when I'm standing right there beside them (and one day I'm going to point out that that is more than a little bit rude, not to mention Not Even True) or they -- even worse -- talk to me like I'm about five, and can't understand.
"It's like living with all your senses turned up to full volume all the time," I say. "And it's like living life in a different language, so you can't ever quite relax because even when you think you're fluent it's still using a different part of your brain so by the end of the day you're exhausted.
”
”
Rachael Lucas (The State of Grace)
“
Once, in the morning, I decided I would be a biologist, and spent hours in the library studying, preparing for my amazing career. I told the librarian, who still smiles at me. She must think I will get out of this place and make it one day. One book I found about organisms was so fascinating I sat down with it in the stacks, engrossed. It took me fifteen minutes to realise it was about orgasms. I read until lunch and then hid the book on the shelf.
”
”
Anna Whateley (Peta Lyre’s Rating Normal)
“
Visual over-stimulation is a distraction from concentration and evokes the same sort of reactions as over-stimulation from noise. But the source might surprise you. Even fussy clothing moving around can be a visual distraction, or too many people in the room, or too many machines with moving parts. For those who work outside, a windy day is a triple-threat—with sound, sight, and touch all being affected. Cars moving, lights, signs, crowds, all this visual chaos can exhaust the AS person. Back in the office, too many computer screens, especially older ones with TV-style monitors, and sickly, flickering, unnatural fluorescent lighting were both high on the trigger list. The trouble with fluorescent light is threefold: Cool-white and energy-efficient fluorescent lights are the most commonly used in public buildings. They do not include the color blue, “the most important part for humans,” in their spectrum. In addition to not having the psychological benefits of daylight, they give off toxins and are linked to depression, depersonalization, aggression, vertigo, anxiety, stress, cancer, and many other forms of ill health. It’s true. There’s an EPA report to prove it (Edwards and Torcellini 2002). Flickering fluorescent lights, which can trigger epileptic seizures, cause strong reactions in AS individuals, including headaches, confusion, and an inability to concentrate. Even flickering that is not obvious to others can be perceived by some on the spectrum.
”
”
Rudy Simone (Asperger's on the Job: Must-have Advice for People with Asperger's or High Functioning Autism, and their Employers, Educators, and Advocates)
“
As the school year progressed, my learning window would get smaller, and smaller, and by the year’s end, it would be closed tight by morning break, if it opened at all. This had always been the case, but in primary school I had a chance of keeping up because there were significantly fewer variables in my day. High school in comparison was a cluster-fuck of environmental shapeshifting, with no day ever looking the same as the one before, and as you’ve probably picked up by now, change was not my friend anymore than my classmates were
”
”
Hannah Gadsby (Ten Steps to Nanette)
“
Your child, too, will one day be an adult. For them to live life with the same degree of independence as neurotypical offspring might be difficult, but one day your child-rearing, child-minding days will come to an end. Parents grow older until they can no longer look after their adult children. The period in which we are together as parents and child is finite. So please, while the child still is a child, and while you’re still around to do so, support them well. Laugh together and share your stories. You won’t be revisiting these years. Value them.
”
”
Naoki Higashida (Fall Down 7 Times Get Up 8: A Young Man's Voice from the Silence of Autism)
“
Divergent Dynamite
(The Sonnet)
You only know my infinite radiance,
you got no clue to my innate hurricane.
Day in and day out I struggle autistic,
Genius is outcome of a mind broken.
There are cracks across my heart,
nothing can bar the pouring rays.
Light is but suffering harnessed,
Genius is brokenness harnessed.
There is no end to my exuberance,
limits of typicals don't apply to me.
I am but an enigma of unbending tenacity,
every breath is testament to impossibility.
Divergence is nature's way to expansion.
Divergent dynamite I, am living evolution.
”
”
Abhijit Naskar (The Divine Refugee)
“
I hope that this book will be my way of helping to clear the fog of mystery surrounding autism. And in passing on my personal story I hope to include with it the best and most valuable of what I have learned along the way both as a mother and in my two decades working as a paediatrician. I also hope it will encourage healthcare professionals to be advocates for families who patiently and willingly endure battles every day for the sake of their children. My book describes a wide range of resources and therapies that can help families of children with special needs and autism
”
”
May Ng (A Journey With Brendan)
“
Simply put, within AS, there is a wide range of function. In truth, many AS people will never receive a diagnosis. They will continue to live with other labels or no label at all. At their best, they will be the eccentrics who wow us with their unusual habits and stream-of-consciousness creativity, the inventors who give us wonderfully unique gadgets that whiz and whirl and make our life surprisingly more manageable, the geniuses who discover new mathematical equations, the great musicians and writers and artists who enliven our lives. At their most neutral, they will be the loners who never now quite how to greet us, the aloof who aren't sure they want to greet us, the collectors who know everyone at the flea market by name and date of birth, the non-conformists who cover their cars in bumper stickers, a few of the professors everyone has in college. At their most noticeable, they will be the lost souls who invade our personal space, the regulars at every diner who carry on complete conversations with the group ten tables away, the people who sound suspiciously like robots, the characters who insist they wear the same socks and eat the same breakfast day in and day out, the people who never quite find their way but never quite lose it either.
”
”
Liane Holliday Willey (Pretending to be Normal: Living with Asperger's Syndrome (Autism Spectrum Disorder) Expanded Edition)
“
Common, Healthy Autistic Behaviors Intense studying of a new favorite topic Not noticing sounds or social signals when focusing on an engrossing task Needing to know exactly what to expect before entering an unfamiliar situation Sticking to a very rigid schedule, and rejecting deviations to that schedule Taking a long time to think before responding to a complex question Spending hours or days alone sleeping and recharging after a socially demanding event or stressful project Needing “all the information” before coming to a decision Not knowing how they feel, or needing a few days to figure out how they feel about something Needing a rule or instruction to “make sense” before they can follow it Not putting energy toward expectations that seem unfair or arbitrary, such as wearing makeup or elaborate grooming
”
”
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
Some tasks that require good systemizing, such as tracking animals or inventing a new tool, take a long time. They might take days, months, or years. Many such tasks benefit from a lack of distraction and lots of hard concentration, preferably in solitude.
So it might be that even if you were good at systemizing you might never accomplish anything great if you were also good at empathizing, since you might then have an equally strong drive to socialize. But supposing you were low on empathizing. You might then be content to lock yourself away for days without much conversation, to focus long and deep on the system that was your current project. In pre-industrial societies this could involve fixing old axe-heads, or perhaps a four-day trek into the forest in search of food for your family (this might be the ancestral equivalent of the modern day pilot). The pay-off from not needing people as much as others do could be great
”
”
Simon Baron-Cohen (The Essential Difference: Male And Female Brains And The Truth About Autism)
“
MY PROCESS I got bullied quite a bit as a kid, so I learned how to take a punch and how to put up a good fight. God used that. I am not afraid of spiritual “violence” or of facing spiritual fights. My Dad was drafted during Vietnam and I grew up an Army brat, moving around frequently. God used that. I am very spiritually mobile, adaptable, and flexible. My parents used to hand me a Bible and make me go look up what I did wrong. God used that, as well. I knew the Word before I knew the Lord, so studying Scripture is not intimidating to me. I was admitted into a learning enrichment program in junior high. They taught me critical thinking skills, logic, and Greek Mythology. God used that, too. In seventh grade I was in school band and choir. God used that. At 14, before I even got saved, a youth pastor at my parents’ church taught me to play guitar. God used that. My best buddies in school were a druggie, a Jewish kid, and an Irish soccer player. God used that. I broke my back my senior year and had to take theatre instead of wrestling. God used that. I used to sleep on the couch outside of the Dean’s office between classes. God used that. My parents sent me to a Christian college for a semester in hopes of getting me saved. God used that. I majored in art, advertising, astronomy, pre-med, and finally English. God used all of that. I made a woman I loved get an abortion. God used (and redeemed) that. I got my teaching certification. I got plugged into a group of sincere Christian young adults. I took courses for ministry credentials. I worked as an autism therapist. I taught emotionally disabled kids. And God used each of those things. I married a pastor’s daughter. God really used that. Are you getting the picture? San Antonio led me to Houston, Houston led me to El Paso, El Paso led me to Fort Leonard Wood, Fort Leonard Wood led me back to San Antonio, which led me to Austin, then to Kentucky, then to Belton, then to Maryland, to Pennsylvania, to Dallas, to Alabama, which led me to Fort Worth. With thousands of smaller journeys in between. The reason that I am able to do the things that I do today is because of the process that God walked me through yesterday. Our lives are cumulative. No day stands alone. Each builds upon the foundation of the last—just like a stairway, each layer bringing us closer to Him. God uses each experience, each lesson, each relationship, even our traumas and tragedies as steps in the process of becoming the people He made us to be. They are steps in the process of achieving the destinies that He has encoded into the weave of each of our lives. We are journeymen, finding the way home. What is the value of the journey? If the journey makes us who we are, then the journey is priceless.
”
”
Zach Neese (How to Worship a King: Prepare Your Heart. Prepare Your World. Prepare the Way)
“
A story best told at speed. After finals, more exams, then the call to the bar, pupillage, a lucky invitation to prestigious chambers, some early success defending hopeless cases—how sensible it had seemed, to delay a child until her early thirties. And when those years came, they brought complex worthwhile cases, more success. Jack was also hesitant, arguing for holding back another year or two. Mid-thirties then, when he was teaching in Pittsburgh and she worked a fourteen-hour day, drifting deeper into family law as the idea of her own family receded, despite the visits of nephews and nieces. In the following years, the first rumors that she might be elected precociously to the bench and required to be on circuit. But the call didn’t come, not yet. And in her forties, there sprang up anxieties about elderly gravids and autism. Soon after, more young visitors to Gray’s Inn Square, noisy demanding great-nephews, great-nieces, reminded her how hard it would be to squeeze an infant into her kind of life. Then rueful thoughts of adoption, some tentative inquiries—and throughout the accelerating years that followed, occasional agonies of doubt, firm late-night decisions concerning surrogate mothers undone in the early-morning rush to work. And when at last, at nine thirty one morning at the Royal Courts of Justice, she was sworn in by the Lord Chief Justice and took her oath of allegiance and her Judicial Oath before two hundred of her bewigged colleagues, and she stood proudly before them in her robes, the subject of a witty speech, she knew the game was up; she belonged to the law as some women had once been brides of Christ.
”
”
Ian McEwan (The Children Act)
“
I swear conversation is such hard work! To make myself understood, it’s like I have to speak in an unknown foreign language, every minute of every day.’
'The Reason I Jump' by Naoki Higashida
”
”
Naoki Higashida (The Reason I Jump: the Inner Voice of a Thirteen-Year-Old Boy with Autism)
“
In general, state-funded education ends the day a person with autism turns 21. Beyond that, there are no legal mandates, and there is very little funding. “It’s like giving someone a wheelchair on a one-month rental,” Gerhardt says, “and at the end of the month, they have to give it back, and walk.
”
”
Rafał Motriuk (Autistic Son, Desperate Dad: How one family went from low- to high-functioning)
“
Only their efforts to make him talk failed. He would say one word at a time, if pressed, but seemed happier not to and could not be made to repeat a whole line. Gradually, as his family learnt how to anticipate his few needs and how to respond, they ceased to notice his silence—his manner of communication seemed full and rich enough to them: he no more needed to converse than Aunt Mira's cat did.
”
”
Anita Desai (Clear Light of Day)
“
The teacher picks a science issue that has political traction at the time, such as climate disruption, vaccines and autism, GM food or the like, and phrases it as an antiscience proposition that students will argue for, using rhetorical arguments, or argue against, using scientific arguments. The trick is that the teacher does not determine who will argue for or against the motion until the day of the debate, by a coin toss. This way, all students have to research both sides of the debate. In so doing, they quickly learn the difference between the knowledge-based scientific arguments against the antiscience proposition, and the non-scientific, emotionally persuasive rhetorical arguments in favor.
”
”
Shawn Lawrence Otto (the war on Science)
“
But young parents, educated middle-class ones anyway, are very jumpy these days, they get so much information from the media about all the things that could be wrong with their child - autism, dyslexia, attention deficit disorder, allergies, obesity and so on - they’re in a constant state of panic, watching their offspring like hawks for warning signs.
”
”
David Lodge (Deaf Sentence: A Novel)
“
Pulp devotees did not invent the word fan (derived from the Latin fanaticus, "possessed by divine madness") but they established the first fandom in the modern sense with its own elaborate customs, art forms, specialized jargon, conventions, and absurdly bombastic internecine warfare. Sam Moskowitz's 1954 chronicle of the early days of fandom, The Immortal Storm, inspired one critic to quip, "If read directly after a history of World War II, it does not seem like an anti-climax.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
When she explains autism, Ros describes living with an almost constant feeling of anxiety and fear. She is fond of pointing out that people in the military, police officers, and firefighters are trained to be calm in the face of panic. Not so for people with autism: “We don’t receive the same type of training, yet we experience this level of panic every day.
”
”
Barry M. Prizant (Uniquely Human: A Different Way of Seeing Autism - Revised and Expanded (Human Horizons))
“
One of the most common issues autistic students have with homework is exhaustion. When I came home after a day of school, I was so tired.
”
”
Casey "Remrov" Vormer (Connecting With The Autism Spectrum: How To Talk, How To Listen, And Why You Shouldn’t Call It High-Functioning)
“
It is often useful to ask another person to come along to meetings at the school as it can be difficult to listen to what is being said as well as to think of the questions you might want to ask. Another person can remind you of what you wanted to get from the meeting. Lucia Santi, head teacher at The Grove, an autism school in Wood Green, north London, and parent of an autistic ten-year-old girl: ‘I’ve lived with autism every day for ten years and worked with it for 20 years.
”
”
Jessie Hewitson (Autism: How to raise a happy autistic child)
“
My seven-year-old was diagnosed with PDD (similar to autism) at the age of four. He has always had behavior issues (screaming, tantrums, hitting his siblings, hurting himself), and I’ve tried everything I could to change this—including taking parenting classes, because I thought I was doing something wrong. In December 2011, my husband and I were introduced to the Whole30. Within just a few days, he was like a brand-new child! He woke up one morning with a smile on his face, was very compliant, and would even sit down and do his homework without whining and crying about it. We are so happy with the results of our whole family that we have continued to eat clean foods, and we rave about this program to anyone who will listen.
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Dallas Hartwig (It Starts with Food: Discover the Whole30 and Change Your Life in Unexpected Ways)
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I was doing well in all my classes, and nothing seemed out of the ordinary. But I started to feel sick, every day.
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Charlotte Amelia Poe (How to Be Autistic)
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The raw data from CDC’s 1999 Verstraeten study showed that children who took thimerosal-containing hepatitis B vaccines in their first thirty days suffered an astonishing 1,135 percent higher rate of autism than children who did not.30 Verstraeten
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Robert F. Kennedy Jr. (The Real Anthony Fauci: Bill Gates, Big Pharma, and the Global War on Democracy and Public Health)
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gaining acceptance, and there’s a difference between using the internet as a way to develop a sense of fluency and competence, and retreating into it because we feel we have no other choice. Thomas tells me that as he’s come to understand his own Autism and work on unmasking, he’s gotten better at noticing how he feels and figuring out how to care for himself. For many years, particularly before his diagnosis, he would just push his emotions and desires away. “This week I noticed my energy replenishment was at a standstill,” he says. “I couldn’t focus on data work, which is normally one of my passions. I journaled about it a bit and realized my girlfriend has been home more than usual lately. I love her, but being around her all day was overstimulating me.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
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Neurodivergent Checklist Time Blindness: Many neurodivergent people have trouble properly perceiving time as it passes. It either goes by too quickly or slowly. The perception of time depends on the level of stimulation the neurodivergent person is dealing with. It also can vary depending on what you’re focused on. If you’ve ever found yourself unable to account for time, you may be neurodivergent. Executive Dysfunction: This is what you experience when you want to accomplish a task, but despite how hard you try, you cannot see it through. Executive dysfunction happens for various reasons, depending on the type of neurodivergence in question. Still, the point is that this is a common occurrence in neurodivergent people. Task Multiplication: What is task multiplication? It happens when you set off to accomplish one thing but have to do a million other things, even though that wasn’t your original plan. For instance, you may want to sit down to finish some writing, only to notice water on the floor. You get up to grab a mop, and on the way, you notice the laundry you were supposed to drop off at the dry cleaners. Stooping to pick up the bag, you find yourself at eye level with your journal and remember you were supposed to make an entry the previous day, so you’re going to do that now. On and on it goes. Inconsistent Sleep Habits: This depends on what sort of neurodivergence you’re dealing with and if you’ve got comorbid disorders. Most importantly, neurodivergent people sleep more or less than “regular” people. You may also notice that your sleep habits fluctuate a lot. Sometimes you may sleep for eight hours at a stretch for a week, only to suddenly start running on just three hours of sleep. Emotional Dysregulation: With many neurodivergent people, it’s hard to keep emotions in check. Emotional dysregulation occurs in extreme emotions, sudden mood swings, or inappropriate emotional reactions (either not responding to the degree they should or overreacting). Hyperfixation: This also plays out differently depending on the brand of neurodivergence in question. Often, neurodivergent people get very involved in topics or hobbies to the point of what others may think of as obsession. Picking Up on Subtleties but Missing the Obvious: Neurodivergent people may struggle with picking up on things neurotypical people can see easily. At the same time, they are incredibly adept at noticing the subtle things everyone else misses. Sensory Sensitivities: If you’re neurodivergent, you may be unable to ignore your clothes tag scratching your back, have trouble hearing certain sounds, and can’t quite deal with certain textures of clothing, food, and so on. Rejection Sensitivity: Neurodivergent people are often more sensitive to rejection than others due to neurological differences and life experiences. For instance, children with ADHD get much more negative feedback than their peers without ADHD. Neurodivergent people are often rejected to the point where they notice rejection even when it’s not there.
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Instant Relief (Neurodivergent Friendly DBT Workbook: Coping Skills for Anger, Anxiety, Depression, Panic, Stress. Embrace Emotional Wellbeing to Thrive with Autism, ADHD, Dyslexia and Other Brain Differences)
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I don’t care if you dress in trousers every day, and never, ever put on a lick of makeup. I don’t care if you love high heels and vintage perfume bottles. I don’t care if you are attracted to boys, girls, both or nobody in particular. What we wear isn’t what makes us women. Who we want to kiss isn’t what makes us women. Tell me this, if you’d tell me what kind of woman you are: Are you being kind to other? To yourself? Are you thinking new ideas? Are you exploring? Are trying new things? Are you showing courage, curiosity and generosity? Good. Because those are the things real women do, no matter what shoes you wear.
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Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
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More recently, autism has been seen by some as a neurological difference and not necessarily a disorder at all. According to the Autistic Self Advocacy Network (ASAN 2022, About Autism section): Autism is a developmental disability [which is a natural part of human diversity] that affects how we experience the world around us. Autistic people are an important part of the world. Autism is a normal part of life, and makes us who we are… Autistic people are born autistic and we will be autistic our whole lives… There is no one way to be autistic. Some autistic people can speak, and some autistic people need to communicate in other ways. Some autistic people also have intellectual disabilities and some autistic people don’t. Some autistic people need a lot of help in their day-to-day lives, and some autistic people only need a little help. All of these people are autistic, because there is no right or wrong way to be autistic. All of us experience autism differently, but we all contribute to the world in meaningful ways. We all deserve understanding and acceptance.
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Pamela Wolfberg (Learners on the Autism Spectrum: Preparing Educators and Related Practitioners)
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Instead of looking at accommodations as a barrier, an inconvenience, see those shifts and changes as getting one step closer to all the compromises being made every minute of the day by a person with autism.
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Carrie Rogers-Whitehead (Serving Teens and Adults on the Autism Spectrum: A Guide for Libraries)
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The Black Crow and the White Dove There was once a black crow who liked a certain song called “The Seven Little Crows,” which began, Crow, Crow, Crow, why do you caw? Except in this song, crows in stories are bullies and villains who everyone hates. This troubled the black crow, who would ask himself, How come it’s always the crows who are the bad guys? One day, a white dove who had lost her way met the black crow. She asked, “Where does this path go?” Then the white dove stared down at the ground, looking lonely. The black crow wondered what was wrong, and asked, “What’s the matter?” On the point of tears, the white dove said, “I’ve been searching for the path to happiness for a long, long time, but I still can’t find it anywhere. And I’m supposed to be the bird of peace, too …” The black crow was surprised to learn that even a bird as beautiful and as loved by everyone as the white dove nonetheless had deep problems to worry about. His answer was this: “But all paths are one connected path.” The white dove looked taken aback by this unexpected answer. But after a time, she smiled. “How about that? So the path I’ve been searching for all this time is the path I am already on.” In excellent spirits, the white dove flew off, up into the blue sky. Then the black crow, too, turned his head skyward, then flapped his wings vigorously, and away he flew. And the black crow looked no less perfect against the deep blue than the white dove.
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Naoki Higashida (The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism)
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Sometimes I work so hard to keep myself calm all day, just to come home and let out all my feelings at once.
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Angela Coelho (Sometimes Noise is Big: Life with Autism)
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In her book Asperger Syndrome and Adolescence: Practical Solutions for School Success, Brenda Smith Myles identifies six areas of difficulty for adolescents with Asperger’s: • Lack of understanding that nonverbal cues express meaning and attitudes. Teens miss out on many social opportunities because they don’t understand that a smile and glances from another person could mean they like him, or that teachers give a “look” that is a warning and should be interpreted as meaning to calm down and get to work. • Problems with using language to initiate or maintain a conversation. AS teens will often start a conversation with a comment that seems irrelevant, or may walk up to a group of teens and want to join in, but does not because he doesn’t know how or when to join in. • Tendency to interpret words or phrases concretely. AS teens often only understand the literal meanings of words and phrases and not expressions such as “You’re pulling my leg” and “Pull yourself together.” Or, as in the example from Luke Jackson’s book quoted earlier, they will do exactly as told and will not understand the implied statement, which leads teachers to think the teen is a smart aleck. • Difficulty understanding that other people’s perspective in conversation need to be considered. This can lead to one-sided monologues, because the AS student is talking about his area of interest and is not monitoring whether or not the listener is interested. • Failure to understand the unspoken rules of the hidden curriculum or a set of rules everyone knows, but that has not been specifically taught. Things that are important to teens, such as how to dress, what to say to whom, how to act, and how to know the difference between gentle teasing and bullying. • Lack of awareness that what you say to a person in one conversation may influence how that individual relates to you in the future. A teen may make a candid remark to another teen, not realizing it was hurtful, and may be puzzled by the person’s lack of response later that day.
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Chantal Sicile-Kira (Adolescents on the Autism Spectrum: A Parent's Guide to the Cognitive, Social, Physical, and Transition Needs ofTeen agers with Autism Spectrum Disorders)
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The program had two elements: points for desirable behaviors (leading, if the number agreed on was reached, to a Popsicle at the end of the day), and a written contract.
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Clara Claiborne Park (Exiting Nirvana: A Daughter's Life with Autism)
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There are two judgments we face as a Christian. In the first judgment we will be asked if we accepted Christ as our Lord and Savior. This judgment will allow us to enter the gates of heaven or send us directly to hell. The second judgment comes to judge our works. What did we do with our time on earth? Things done that were meaningless will burn up like wood, hay and straw when put to the fire. Things that were done of value will stand the test of fire. Gold, silver and costly stones will stand the test of fire.
I believe working with our kids and all that it entails is gold, silver and costly stones. When our works are put before us in heaven, the time that we have spent cooking meals from scratch, tutoring our children, spending our money on their needs, the struggles that it took to get them to take the supplements their bodies needed, spending sleepless nights reading and researching to help them will all stand the test of the fire that is yet to come.
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Kathy Medina (Finding God in Autism: A Forty Day Devotional for Parents of Autistic Children)
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I think of how my husband and I plan a new vacation to take our kids on. My husband and I have it all planned out. We know the way, the cost, the activities and the outcome. But our children know none of this. They must trust us that we know what we are doing. As the parents we know the roads we will take to get there, we know where we are taking them and yet our children must trust we will bring them home safely and with good memories.
Think of this autism journey in the same way. Our heavenly Father knows the way, the cost, the activities and the outcome.
He even knows that we will get through this journey safely and with some happy memories!
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Kathy Medina (Finding God in Autism: A Forty Day Devotional for Parents of Autistic Children)
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the legendary Persian prince Serendip, who “went out for a stroll one day, with no particular quest in mind, and unexpectedly came upon a hoard of treasures,
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Steve Silberman (NeuroTribes: The Legacy of Autism and How to Think Smarter About People Who Think Differently)
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I first met this young client when he was eight years old. He was very shy with a calm disposition. He had been diagnosed with a sensory processing disorder and his parents had hired a special tutor. His mother and father were already clients of mine, and his mother was very conscientious with his diet. She was most concerned about his extreme fatigue, how difficult it was to get him up in the morning, and how difficult it was for him to fall asleep. He was also falling asleep at school. In addition, she was concerned he was having difficulty remembering his schoolwork. With sensory processing disorder, children may have difficulty concentrating, planning and organizing, and responding appropriately to external stimuli. It is considered to be a learning disorder that fits into the autism spectrum of disorders. To target his diet and nutritional supplementation, I recommended a comprehensive blood panel, an adrenal profile, a food sensitivity panel, and an organic acids profile to determine vitamin, mineral, and energy deficiency status. His blood panel indicated low thyroid function, iron deficiency, and autoimmune thyroid. His adrenal profile indicated adrenal fatigue. His organic acids test indicated low B vitamins and zinc, low detoxification capacity, and low levels of energy nutrients, particularly magnesium. He was also low in omega-3 fatty acids and sensitive to gluten, dairy, eggs, and corn. Armed with all of that information, he and I worked together to develop a diet based on his test results. I like to involve children in the designing of their diet. That way they get to include the foods they like, learn how to make healthy substitutions for foods they love but can no longer eat, and learn how to improve their overall food choices. He also learned he needed to include protein at all meals, have snacks throughout the day, and what constitutes a healthy snack. I recommended he start with a gut restoration protocol along with iron support; food sensitivities often go hand in hand with leaky gut issues. This would also impact brain function. In the second phase of his program, I added inositol and serotonin support for sleep, thyroid support, DHA, glutathione support (to help regulate autoimmunity), a vitamin and mineral complex, fish oils, B-12, licorice extract for his adrenals, and dopamine and acetylcholine support to improve his concentration, energy, and memory. Within a month, his parents reported that he was falling asleep easily and would wake up with energy in the morning. His concentration improved, as did his ability to remember what he had learned at school. He started to play sports in the afternoon and took the initiative to let his mom know what foods not to include in his diet. He is still on his program three years later, and the improvements
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Datis Kharrazian (Why Isn't My Brain Working?: A revolutionary understanding of brain decline and effective strategies to recover your brain’s health)
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(see figure 1) or the macro-steps of the day’s plans (see figure 4). The level of detail depends on the context and the child’s needs for communication support. To help encourage literacy and develop sight words at
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Teresa Garland Mot Otr (Self-Regulation Interventions and Strategies: Keeping the Body, Mind & Emotions on Task in Children with Autism, Adhd or Sensory Disorders)
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Two hours a day for two days per week. Four hours. At $7.25 an hour, that gave him a gross income of $29 a week. He is also now a member of the United Food and Commercial Workers International, the union that represents food workers, retail clerks, and farm workers. His monthly dues for the UFCW are $25, all taken out of his first week’s check. That makes Owen arguably the most selfless labor activist in America, with 86 percent of his pay going to support his union.
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Suskind (Life, Animated: A Story of Sidekicks, Heroes, and Autism)
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... each day provided some tiny step forward, some steps so small you would miss them if you weren't looking. I'm always looking- eager to witness that next miracle.
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Liz Becker (Autism and the World According to Matt: A collection of 50 inspirational short stories on raising a moderate / severe mostly non-verbal autistic child from diagnosis to independence)
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Too often we label things “good” or “bad” when the right designation might merely be “different.” The Israeli military needed people who could analyze satellite images for threats. They needed soldiers who had amazing visual skills, wouldn’t get bored looking at the same place all day long, and could notice subtle changes. Not an easy task. But the IDF’s Visual Intelligence Division found the perfect recruits in the most unlikely of places. They began recruiting people with autism. While autistics may struggle with personal interaction, many excel at visual tasks, like puzzles. And they’ve proven themselves a great asset in their nation’s defense.
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Eric Barker (Barking Up the Wrong Tree: The Surprising Science Behind Why Everything You Know About Success Is (Mostly) Wrong)
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In general terms provided to you by a person who let their fitness studies lapse years ago, it goes like this: You can be doing something that’s completely dysfunctional for years without noticing it. Something can be slightly off about the alignment of your knee, for example, in a way that causes no immediate or tangible pain. The movement just slightly tweaks something that’s not exactly where it should be. On its own, this could be no big deal, but that same pattern, repeated over and over again for a long period of time, can take its toll. A tendon or ligament can become weakened and strained as it’s brushed against the bone in a way it was never intended to, until one day, it can no longer withstand the wear and tear. That basic, simple movement you’ve done so many times before with no hint of a problem can suddenly shock you with a pop, a snap or a surge of pain. It will probably seem like a fluke injury. You just stepped off a curb and tore your MCL! But it took years of overcompensation and unwitting neglect to reach this surprise breaking point. At the time that I was obsessed with this phenomenon, I was woefully unaware that the same thing was about to happen to my brain.
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Sarah Kurchak (I Overcame My Autism and All I Got Was This Lousy Anxiety Disorder: A Memoir)
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Don’t pity me or try to cure or change me. If you could live in my head for just one day, you might weep at how much beauty I perceive in the world with my exquisite senses. I would not trade one small bit of that beauty, as overwhelming and powerful as it can be, for ‘normalcy.’”2
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Emily Paige Ballou (Sincerely, Your Autistic Child: What People on the Autism Spectrum Wish Their Parents Knew About Growing Up, Acceptance, and Identity)
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Other research shows that women who have suffered abuse were 60 percent more likely to have a child with autism. The researchers propose that the long-lasting effects of abuse on women’s biological systems, such as the immune system and stress-response system, are responsible for increasing their likelihood of having a child with autism.20 These women were victims of toxic thinking and the stress it causes—and the abuse will therefore impact the next generation as well, and potentially the next three. This is why there are often family histories of autism. I tell you this study to highlight the responsibility we have in not only getting our own minds right but also helping others, especially victims of trauma, get their minds right.
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Caroline Leaf (Switch On Your Brain: The Key to Peak Happiness, Thinking, and Health (Includes the '21-Day Brain Detox Plan'))
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I should be more surprised. I should be reeling. But isn't this exactly how I've always felt? That I'm not quite made the same? That I'm some kind of alien, trying to learn how to be a human from scratch every day? That I constantly need to translate the world around me to myself, and then myself back to the world again, like speaking two completely different languages simultaneously?
Wow. No wonder I'm always so bloody exhausted.
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Holly Smale (Cassandra in Reverse)
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The other hurdle high school threw at me was homework. I’m not morally opposed to extra-curricular curricular, I just didn’t have time for it. As in primary school, I needed my evenings to catch up on things my brain had been unable to take on board during the day, not to mention recover from the sheer exhaustion of trying to subtly navigate a sea of hypercritical teens for hours on end
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Hannah Gadsby (Ten Steps to Nanette)
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Darkest confession: One time, alone with the baby for too many hours—the day already dark, John still at the office—I knowingly let nine-month-old Freddy repeatedly suck on the power cord to my laptop—he giggled and whined simultaneously each time it zapped his tongue—so that I could have a spare second to scour the Internet for something that would tell me the likelihood of a healthy, verbally precocious nine-month-old developing autism.
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Nina Riggs (The Bright Hour: A Memoir of Living and Dying)
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The raw data from CDC’s 1999 Verstraeten study showed that children who took thimerosal-containing hepatitis B vaccines in their first thirty days suffered an astonishing 1,135 percent higher rate of autism than children who did not.30 Verstraeten also documented a grim inventory of other neurological injuries including ADD/ADHD, speech and language delays, tics, and sleep disorders in children exposed to thimerosal. Verstraeten reported that these shocking signals prompted him to review, for the first time, the published medical literature, where he confirmed the alarming toxicity of mercury (thimerosal) to cause these injuries was biologically plausible.
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Robert F. Kennedy Jr. (The Real Anthony Fauci: Bill Gates, Big Pharma, and the Global War on Democracy and Public Health)
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But for the outcasts like me, the ones who don't fit the box, the only words that remind me I'm human are my own.
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Heather Day Gilbert (Queen of Hearts)
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Many people hear the word autistic, and they think of easily recognizable traits. They think of tics. Outbursts. They think of obsessions with trains. They don’t see the shy kid who’s fascinated with color and glass. They don’t think of the girl with few friends who shows strong leadership skills. But the autism spectrum is as vast and varied as those glass jars Ellis collects. No two situations are the same, and at the end of the day, ASD or not, Ellis is his own person. He’s his own unique person just like everybody else. He’s not broken. He doesn’t need to be fixed.
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Emmy Sanders (To Catch a Firefly)
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And obviously my answer is no. My answer is: I have never in my entire life been free tonight, because if we haven't arranged it days in advance and I haven't spent the day mentally preparing myself for social interaction, I am not coming.
Your poorly arranged plans are of no interest to me.
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Holly Smale (Cassandra in Reverse)
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Infants and young children who show signs of autism, or who are diagnosed with autism, do not have normal sleep patterns or amounts. The circadian rhythms of autistic children are also weaker than their non-autistic counterparts, showing a flatter profile of melatonin across the twenty-four-hour period rather than a powerful rise in concentration at night and rapid fall throughout the day.II Biologically, it is as if the day and night are far less light and dark, respectively, for autistic individuals. As a consequence, there is a weaker signal for when stable wake and solid sleep should take place. Additionally, and perhaps related, the total amount of sleep that autistic children can generate is less than that of non-autistic children.
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Matthew Walker (Why We Sleep: Unlocking the Power of Sleep and Dreams)
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Back in the days when I had no ways to communicate at all—no writing, pointing on my alphabet grid or verbal expression—I was extremely lonely. People who have never experienced this will go through life never knowing how soul-crushing the condition of wordlessness is. If I tried to describe what it’s like to be nonverbal in the World of the Verbal in a single word, I’d choose this one: agony. And yet, this is also true: if we know there is even a single person who understands what it’s like for us, that’s solace enough to give us hope.
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Naoki Higashida (Fall Down 7 Times Get Up 8: A Young Man's Voice from the Silence of Autism)
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Back to School As surreal as being a grown adult in high school was, it was also brief: in only one semester I had completed enough credits to obtain my diploma. From there I went directly to the “Adult Entry Program” at my local university and enrolled. I would spend one semester in remedial classes to catch up on missing prerequisites and then college would begin in earnest. One might imagine that by now I would have learned that being a good student takes significant effort, but I continued to coast my first semester, missing classes, and skipping homework. Then, one time after missing a few days in a row, I returned to discover the professor handing back a midterm exam –– one that I had not written! Apparently, I had skipped class that day. Although it would not lead to me failing the class (and as a remedial class it would not affect my overall grade,) it did require a “mercy pass” on the part of the instructor to get me through. The approach I’d been following all along simply wasn’t working. I had the right goals now but evidently I still lacked the right approach. As I think it might be for many people, the fundamental shift in how I went about things came with the realization that I was not going to school because I had to. No one was making me go. I was there of my own accord, for my own purposes and reasons. This understanding completely transformed the way I went about school; from that point forward, I treated it as something I wanted for myself, and I worked accordingly. By the end of my next semester, I was on the academic Dean’s List, and I would graduate with Great Distinction from the Honors program four years later.
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David William Plummer (Secrets of the Autistic Millionaire: Everything I know about Autism, ASD, and Asperger's that I wish I'd known back then... (Optimistic Autism Book 2))
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Anyone who has lived for a long while in an insane asylum where a good number and
variety of individuals and children are confined will have in memory the full spectrum of ritual stances from the various religions, present and past, as if brought to their culmination.
Some see a parody here, since the individuals in question are insane. And for an autistic child, the act of placing one’s hand on a hot stove, without the reflex to withdraw it, can make one think that feeling can be interrupted.
Another individual, growing up, hands joined, gazing at the sky: one would think he had come straight from a painting evoking some mystic from the days of old.
There are strange coincidences here, consistent enough for the insoluble problem of form and content to be posed.
So here we have gestural forms that appear to have no content. Is this possible?
It seems more reasonable to think that, for the same form, there can be several contents.
We know of the rocking that often occurs in mute children, while in certain religions, perhaps most, prayer must be accompanied by rocking; mere language is in some way
surpassed. Whereas for the children affected with what is often viewed as a symptom, it is a question of a vacancy of language. The same attitude corresponds to the same content, the same vacancy, the same lacuna, suffered by some and sought after by others.
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Fernand Deligny (The Arachnean and Other Texts (Univocal))
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People with dyslexia, ADHD, dyscalculia, and a myriad of other conditions (christened “Cousins” in the early days of ANI) were also welcome to join the list. The collective ethos of InLv, said writer and list member Harvey Blume in the New York Times in 1997, was “neurological pluralism.” He was the first mainstream journalist to pick up on the significance of online communities for people with neurological differences. “The impact of the Internet on autistics,” Blume predicted, “may one day be compared in magnitude to the spread of sign language among the deaf.
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Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
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If only there were an emotional Google Translate app for those living with autism. Perhaps one day someone would invent such an app—someone on the high-functioning end of the spectrum, diagnosed with Asperger’s syndrome. One of the group that Hans Asperger first labeled in 1944 as “little professors.
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Eric Bernt (The Speed of Sound (Speed of Sound Thrillers #1))
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What is sensory integration therapy? This form of occupational therapy helps children and adults with SPD (sensory processing disorder) use all their senses together. These are the senses of touch, taste, smell, sight, and hearing. Sensory integration therapy is claimed to help people with SPD respond to sensory inputs such as light, sound, touch, and others; and change challenging or repetitive behaviours.
Someone in the family may have trouble receiving and responding to information through their senses. This is a condition called sensory processing disorder (SPD). These people are over-sensitive to things in their surroundings. This disorder is commonly identified in children and with conditions like autism spectrum disorder.
The exact cause of sensory processing disorder is yet to be identified. However, previous studies have proven that over-sensitivity to light and sound has a strong genetic component. Other studies say that those with sensory processing conditions have abnormal brain activity when exposed simultaneously to light and sound.
Treatment for sensory processing disorder in children and adults is called sensory integration therapy. Therapy sessions are play-oriented for children, so they should be fun and playful. This may include the use of swings, slides, and trampolines and may be able to calm an anxious child. In addition, children can make appropriate responses. They can also perform more normally.
SPD can also affect adults
Someone who struggles with SPD should consider receiving occupational therapy, which has an important role in identifying and treating sensory integration issues. Occupational therapists are health professionals using different therapeutic approaches so that people can do every work they need to do, inside and outside their homes. Through occupational therapy, affected individuals are helped to manage their immediate and long-term sensory symptoms.
Sensory integration therapy for adults, especially for people living with dementia or Alzheimer's disease, may use everyday sounds, objects, foods, and other items to rouse their feelings and elicit positive responses.
Suppose an adult is experiencing agitation or anxiety. In that case, soothing music can calm them, or smelling a scent familiar to them can help lessen their nervous excitement and encourage relaxation, as these things can stimulate their senses. Seniors with Alzheimer's/Dementia can regain their ability to connect with the world around them. This can help improve their well-being overall and quality of life.
What Are The Benefits of Sensory Integration Therapy
Sensory integration treatment offers several benefits to people with SPD:
* efficient organisation of sensory information. These are the things the brain collects from one's senses - smell, touch, sight, etc.
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Active involvement in an exploration of the environment.
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Maximised ability to function in recreational and other daily activities.
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Improved independence with daily living activities.
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Improved performance in the home, school, and community.
* self-regulations. Affected individuals get the ability to understand and manage their behaviours and understand their feelings about things that happen around them.
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Sensory systems modulation.
If you are searching for an occupational therapist to work with for a family with a sensory processing disorder, check out the Mission Walk Therapy & Rehabilitation Centre.
The occupational therapy team of Mission Walk uses individualised care plans, along with the most advanced techniques, so that patients can perform games, school tasks, and other day-to-day activities with their best functional skills.
Call Mission Walk today for more information or a free consultation on sensory integration therapy. Our customer service staff will be happy to help.
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Missionwalk - Physiotherapy and Rehabilitation
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Walker notes that by never revealing their own needs or discomfort with other people, fawners spare themselves the risk of rejection. But they also fail to connect with people in any meaningful way. It’s a lonesome state to live in. It’s also deeply draining. Many masked Autistic adults struggle to balance full-time work with social lives or hobbies at all because maintaining a conciliatory mask for eight hours per day is just too labor intense to have energy for anything else.[55] The connections we do form may never feel satisfying or authentic to who we truly are, because they rely on us meeting people’s needs reflexively and always telling them what we think they want to hear.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
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Can you imagine what it must be like to have to suppress almost every aspect of who you are? Consciously having to prepare yourself each day, just so you can socially engage? Rigorously running social scripts through your mind daily, carefully constructing all your responses and behaviours just so you can converse and interact without obvious social mishaps and judgement of your differences?
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Emma Kendall (Helping You to Identify and Understand Autism Masking: The Truth Behind the Mask)
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When a child or adult typically does well at school or in their workplace with no issues, but then explodes into disruptive meltdowns or raging anger once home in their ‘safe space’, it is a huge sign that they have been masking for the duration of the day. The energy it takes to mask and ‘fit in’ can be mentally and physically exhausting.
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Emma Kendall (Helping You to Identify and Understand Autism Masking: The Truth Behind the Mask)
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Avoiding being seen in these ways becomes our core motivation in life, each day a battle between the heavy armor we wear and the embarrassing characteristics that armor was designed to cover up.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
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Harro could not only perform complex mathematical operations in his head, he was an avid reader who had a vivid and original way of talking about things. Asked to compare the words fly and butterfly, he launched into an etymological reverie: “The butterfly is colorful and the fly is black. The butterfly has big wings so that two flies could go underneath one wing. But the fly is much more skillful and can walk up the slippery glass and up the wall . . . The microscope explains how the fly can walk up the wall: just yesterday I saw it has teeny weeny claws on the feet and at the ends tiny little hooks.” But Harro was failing in school, because he was very disruptive in class, like Fritz. He would crawl around on all fours and announce that a lesson was “far too stupid” for him. He rarely did his homework, and if a teacher gave him a makeup assignment, he would sneer, “I wouldn’t dream of doing this.” He spent his days immersed in the books he loved, a stranger to the children around him.
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Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
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For me, processing emotions is never something I can do at the time, and it can take me days, weeks, months, or even years to figure out what my emotions are or mean.
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Sarah O'Brien (So, I'm Autistic: An Introduction to Autism for Young Adults and Late Teens)
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We’re social chameleons, and masters at making people like us, but we never let much of our real selves show. We erect rigid rules around our lives to manage stress and make an unpredictable social world feel a little less scary: make eye contact for this many seconds, eat this easy-to-prepare meal at this time of day, never talk about yourself for too long.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
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We tend to be emotionally withdrawn yet friendly and socially adaptive. We’re social chameleons, and masters at making people like us, but we never let much of our real selves show. We erect rigid rules around our lives to manage stress and make an unpredictable social world feel a little less scary: make eye contact for this many seconds, eat this easy-to-prepare meal at this time of day, never talk about yourself for too long.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
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When feelings go on overload,
I pause and breathe
and all is . . . slowed.
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Jolene Gutiérrez (Too Much!: An Overwhelming Day)
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D. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning.
Oh right, keyboard heroes declaring on social media that "everyone's a little autistic" - nope. According to the DSM it has to really, really affect you. People with autism will miss days at work or have trouble with relationships, friends and family. They can't keep up in school because thirty kids with clicking pens and smelly deodorant drive them up the walls. They get kicked off the sports team because, according to them, something happened that wasn't in line with the rules (which was probably true, but the autistic in question just couldn't let it go). People who arrange their shoes by colour aren't "a little autistic", they're just shoe freaks.
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Bianca Toeps (Maar je ziet er helemaal niet autistisch uit)
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Like it or not, until we grasp the “whys,” we won’t find effective tools to support the day-to-day tasks that must happen in order to keep a job, maintain a relationship, and feel like competent adults.
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Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
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That what is “obvious” to us isn’t a given for everyone. For us, “remembering to look both ways” does not come naturally. It takes conscious effort. Always. It accumulates slowly, one situation at a time, day upon day, year upon year, and always—always—by intellectualizing. It’s never “just there.” Eventually, if we are explicitly taught, we can spot patterns. Try to make some generalizations.
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Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)