“
My room is the safest place my body has. My mind doesn’t really have a safe place.
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”
Anna Whateley
“
Presuming that a nonspeaking child has nothing to say is like presuming that an adult without a car has nowhere to go.
”
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Ellen Notbohm (Ten Things Every Child with Autism Wishes You Knew)
“
There is a perception that because individuals with autism have challenges in the area of communication and social skills, they are not interested in having friends. This is not so. Adults with autism may be socially isolated, but it is not always indicative of a preference for solitude.
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Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
Aware adults with autism and their parents are often angry about autism. They may ask why nature or God created such horrible conditions as autism, manic depression, and schizophrenia. However, if the genes that caused these conditions were eliminated there might be a terrible price to pay. It is possible that persons with bits of these traits are more creative, or possibly even geniuses. If science eliminated these genes, maybe the whole world would be taken over by accountants.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
The word “autism” still conveys a fixed and dreadful meaning to most people—they visualize a child mute, rocking, screaming, inaccessible, cut off from human contact. And we almost always speak of autistic children, never of autistic adults, as if such children never grew up, or were somehow mysteriously spirited off the planet, out of society.
”
”
Temple Grandin (Thinking in Pictures: My Life with Autism)
“
I look at the sky and the dust that separates us from the stars that will be my home. I breathe in the night air, the rotten night air, and I miss,
I miss,
I miss.
”
”
Corinne Duyvis (On the Edge of Gone)
“
As a functional Aspergian adult, one thing troubles me deeply about those kids who end up behind the second door. Many descriptions of autism and Asperger’s describe people like me as “not wanting contact with others” or “preferring to play alone.” I can’t speak for other kids, but I’d like to be very clear about my own feelings: I did not ever want to be alone. And all those child psychologists who said “John prefers to play by himself” were dead wrong. I played by myself because I was a failure at playing with others. I was alone as a result of my own limitations, and being alone was one of the bitterest disappointments of my young life.
”
”
John Elder Robison (Look Me in the Eye: My Life with Asperger's)
“
Autistic thinking is always detailed and specific. Teachers and parents need to help both children and adults with autism take all the little details they have in their head and put them into categories to form concepts and promote generalization.
”
”
Temple Grandin (The Way I See It)
“
Interestingly, adults are only shamed for having an obsessive interest if that interest is a bit too “strange,” and doesn’t come with the opportunity to rack up a lot of achievements or make a lot of money. People who routinely complete eighty-hour workweeks aren’t penalized for being obsessive or hyperfixated; they’re celebrated for their diligence. If an adult fills their evenings after work learning to code or creating jewelry that they sell on Etsy, they’re seen as enterprising. But if someone instead devotes their free time to something that gives them pleasure but doesn’t financially benefit anyone, it’s seen as frivolous or embarrassing, even selfish. In this instance, it’s clear that the punishing rules imposed on Autistic children reflect a much broader societal issue: pleasure and nonproductive, playful time are not valued, and when someone is passionate about the “wrong” things, that passion is discouraged because it presents a distraction from work and other “respectable” responsibilities.
”
”
Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
I was, however, a handful. I was overly smart, easily bored, very curious and constantly in motion. Consequently, I got a lot of guidance from adults on how to behave properly. This reined in my more problematic behaviors, but it also made me feel like I was forever in danger of doing something “wrong,” especially when I “wasn’t trying hard enough.
”
”
Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
My alphabet hates itself. Like ... imagine someone says, ‘Think outside the box.’ My hyperactive mind creates a sphere and laughs at the box and researches for hours on end how much better spheres are. Then my Autism freaks out that I broke the rules without realising there were any, and wonders why we are supposed to think
inside cardboard boxes in the first place. Surely being inside cardboard boxes isn’t comfortable.
”
”
Anna Whateley
“
Bizarrely, my biggest fear was that the tests would prove I didn’t have Asperger’s or that the psychologist would think I wasn’t autistic enough to merit a diagnosis. Then I’d be back to having no explanation for all the atypical things about me.
”
”
Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
Finally, at age seventy, Goodman was able to get the diagnosis and access to services he needed. Joining a support group for adults run by the Asperger’s Association of New England, he says, was “like coming ashore after a life of bobbing up and down in a sea that seemed to stretch to infinity in all directions.
”
”
Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
It is important to note that the stress we feel as parents is not generated by our adult child with autism, but rather from the failings of the systems in place that are supposedly there to help us. There are caring people in the systems, yet often the lack of options and foresight and inability to plan ahead or provide options for our loved ones are accepted as normal by the systems in place.
”
”
Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
One of the major ways abled society dehumanizes the disabled is by calling our maturity into question. “Adults” are supposed to be independent, though of course no person actually is. We all rely on the hard work and social-emotional support of dozens of people every single day. You’re only seen as less adult, and supposedly less of a person,[3] if you need help in ways that disrupt the illusions of self-sufficiency.
”
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
-autism is neither a deficit, disease nor disorder, but simply a different, and equally valid, way of being.
”
”
Victoria Honeybourne (A Practical Guide to Happiness in Adults on the Autism Spectrum)
“
Nothing escapes my alphabet powers. It’s exhausting.
”
”
Anna Whateley (Peta Lyre’s Rating Normal)
“
Adults tend to be more understanding and accepting of differences than teenagers. The important thing is to find a group that your adult child is personally interested in being a part of, and then acting on the assumption that he has the right to be there and that he will fit right in.
”
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Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
felt like I was somehow mothering my younger self—revisiting each moment, looking at it in a new light and telling that younger version of me that it wasn’t my fault, that I’d done the best I could, that to expect more from me in the absence of support would have been unreasonable.
”
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Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
We need to be doing a better job preparing our teens and young adults for employment during their high school and college years. But just as importantly, we need to be educating workplaces, job coaches, corporations, and business leaders about the benefits of hiring a person on the spectrum.
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Chantal Sicile-Kira (A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence)
“
I have always gravitated towards children and teaching. I am now a special needs teacher working with children with Autism and it is very fulfilling for me.
”
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
I would describe myself as pretty determined. I achieve goals with intent and purpose, once I’ve figured out what it is I want to do.
”
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
Do you have uneven sets of skills? (e.g., you can comfortably speak in front of a large group at work but are unable to speak to a small group of strangers at a party?
”
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Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
Indeed, courage is not the absence of fear but the ability to feel the fear without letting it stop you from doing what you want.
”
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Gillan Drew (An Adult with an Autism Diagnosis: A Guide for the Newly Diagnosed)
“
auditory processing issues: difficulty understanding spoken language, often experienced as a delay between hearing spoken words and being able to process those audio sounds into recognizable words .
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Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
He acknowledged that being an autistic adult doesn’t necessarily mean not attending your cousin’s baby shower; it can mean going to the baby shower and spending a good part of the afternoon hiding out in the kitchen (one of
”
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Cynthia Kim (I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults)
“
She lives inside the book. She loves English literature to the point that her bedroom looks like it came out of Jane Austen’s Pride and Prejudice. She is in love with the words, the characters, the paper, the pens … even the smell of the pages. – Uncle of avid reader
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
Allen had an aide who hovered within inches of his face and physically prompted him so frequently that her very proximity became a dysregulating factor. As time passed, Allen became more and more agitated—mostly because of the aide’s behavior. Some adults who work with children have the misguided concept that to be effective, it’s best to be in the child’s face, even to give positive support. But for a child with autism who has social anxiety and sensory challenges, that can be scary and intimidating. It can also impede progress.
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Barry M. Prizant (Uniquely Human: A Different Way of Seeing Autism)
“
I never allowed my Autism/Asperger's to have the prerogative to neither tear nor slow me down. I earned a degree in chemistry, juggle for elementary schools, play piano for seniors on Sunday mornings, and been mentoring children/teens from K-12 at Royal Rangers almost every week for six years and counting.
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Matthew Kenslow (Juggling the Issues: Living With Asperger's Syndrome)
“
There exists a social spectrum that at one end a person may be so social that they cannot stand to be alone all the way to the other end (the person cannot tolerate being with people). When an individual learns where they are on the spectrum they can then make environmental and social adjustments. This can help with exhaustion and tiredness.
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
I knock into things all the time, fall over sometimes, have bruises all over me, spill food or drink on my shirt, I miss my mouth … it’s frustrating and embarrassing at times when I lose my balance. Our daughter can fall out of a chair she’s sitting in, knock into objects and trip out the doorway, all whilst answering the doorbell! She has always had difficulty with coordination
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
I really identify with being a bookworm. I love reading, learning and books. I mean, I have 1000 books, all catalogued, already in my specially made library my dad made me. Books are my friends. I live in sweat pants and workout gear or t-shirt and jeans. I dress more for comfort than for fashion. I dress up if I have to go out but I can’t wait to come home and take off the makeup, heels and scratchy clothing.
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
I never could fit in with other kids, but I could impress teachers with my grasp of big words and my sophisticated-sounding opinions. Though my language was highly developed, my social and emotional life was not. I annoyed other kids by talking too much about subjects that didn’t interest them. I clung to adults who found me “impressive” and equated being well-behaved with being mature and worthy of their respect
”
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
Just as functioning isn't uniform, it isn't linear either. There is a commonly seen phenomenon in autistic children where they'll make big gains in elementary school then regress when they hit adolescence. Or a child will be labeled a late bloomer, seeming practically "normal" in their teen years, then seem to backslide dramatically when they go off to college or enter the adult world of work and independent living
”
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Cynthia Kim (Nerdy, Shy, and Socially Inappropriate: A User Guide to an Asperger Life)
“
The Asperger’s child at the gifted meeting is doing well in school, but the Asperger’s child at an autism meeting may be in a poor special ed program, bored, and getting into trouble because adults in his life hold lower expectations of his abilities. Unfortunately, in some cases, people are so hung up on the labels attached to students that they teach to these low expectations and aren’t even curious to learn if the child is actually more capable.
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Temple Grandin (The Way I See It)
“
For as long as I can remember, I have been on a quest for self-understanding and self-improvement. I am driven to figure myself and other people out. I have analysed myself as far back as I can remember, reanalysed myself, been to many psychologists, psychiatrists, doctors and psychics. I love self-help books, courses, anything to improve myself. My special interest is self-improvement, quantum physics, medicine, anything to do with bettering oneself and self-help.
”
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
I do certain things over and over again. I fidget, twirl my hair, leg-bounce, rub or massage my feet together. I’m usually always doing something with my hands whether it is biting my nails or skin, picking at my skins, chewing my hair, fidgeting with something. I grind my teeth and bite the inside of my mouth. I also sway when I’m standing up. I was in trouble for constantly leg bouncing when I was at work because it distracted others. I just learnt its called self-regulation or self-soothing.
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
Your child, too, will one day be an adult. For them to live life with the same degree of independence as neurotypical offspring might be difficult, but one day your child-rearing, child-minding days will come to an end. Parents grow older until they can no longer look after their adult children. The period in which we are together as parents and child is finite. So please, while the child still is a child, and while you’re still around to do so, support them well. Laugh together and share your stories. You won’t be revisiting these years. Value them.
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Naoki Higashida (Fall Down 7 Times Get Up 8: A Young Man's Voice from the Silence of Autism)
“
While many autistic people face great challenges as children, things become even harder once they reach adulthood. Suddenly, society expects you to be “an adult” and behave and function as such. It is such a shame that exactly at the point in their lives when they need it the most, the support they receive from organizations and resources often stops. Because I was diagnosed at 21, I never received any support as a child. After I received my diagnosis, my mother tried to find all kinds of resources, but she soon realized that I was too old for much of anything.
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Casey "Remrov" Vormer (Connecting With The Autism Spectrum: How To Talk, How To Listen, And Why You Shouldn’t Call It High-Functioning)
“
We may assume that the socialising aspect of play settings is beneficial to the child. This is an almost universally held belief, particularly in the case of girls. The child with ASD may disagree. It may be that for some children with ASD there really is no point or functional benefit in them attending a group play setting and that the distress caused outweighs any possible benefit gained. This notion is difficult for many parents to acknowledge as they believe that being alone cannot be good for the child; but for many children and adults with ASD, being alone is the best thing of all.
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Sarah Hendrickx (Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age)
“
I have auditory processing challenges. I often don’t catch what is said and I’m always asking people to repeat themselves. People whispering in a lecture would drive me crazy and I’d have to get up and move somewhere else! She is highly sensitive. She dislikes fireworks, balloons popping, vacuums, and too many people talking. She would say the noise hurts her and makes her feel sick. She hears things more loudly, sees things more clearly and feels things much more than others do. She also can hear what everybody is saying in the house, so we really have to watch what we say! – Siblings of highly sensitive person
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
Psychology (and psychiatry), philosophy and education has always been my passion and has been ever since I was really young. I have always been intrigued by human behaviour and what makes people tick. Where do we come from? Why are we here? Where are we going? Why do people do what they do? From very young she has asked us the BIG questions and we didn’t know the answers. So she read and studied and read and studied. She does find it difficult at times because she wants the answers to life in very black-and-white ways. She loves the rules and when things don’t make sense, she can get frustrated. – Stepmother of curious psychology student
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
“
What is it about autism that makes two rational, educated adults torture themselves in this way? Playing the blame game is not healthy and helps no one. Autism does that. It grabs you and, if you’re not careful, it drags you down with it. Despite all the progress made, I’ve felt its pull lately. But we must not let it get the better of us. I propose a new version of the blame game. In this version we ask, ‘Where did he get those beautiful eyes from? That smile? That gorgeous hair and stunning face? Who’s responsible for his amazing reading ability and astonishing memory? Where did those dancing skills come from? And the musical ability?’ Trouble is, my wife would win that version too! Nonetheless, these are the questions we should be asking because, ultimately, they are his defining features, not autism.
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B's Dad (Life with an Autistic Son)
“
The enemy is not the blunt adult perseverating on applied behavioral analysis (ABA) research, the enemy is not the parent wearing a puzzle piece t-shirt (but please don’t), the enemy is the system that makes it so exhausting for families to get in-home supports, it is the bias that creates inequity in IEPs, it is the administrative burden that makes county services or social security a multi-year battle. If we fight these systems from the perspective of the community as a whole then we can create a better outcome for everyone. So it’s time—I challenge everyone reading this, both parents and advocates, to put down our swords and hold ourselves accountable for what has happened in the past, but also move forward with forgiveness and humbleness. There is no shame in realizing that you were previously speaking from a less informed place, there is no shame in accepting that we have room to learn and grow still.
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Meghan Ashburn (I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World)
“
The 2D:4D ratio is so variable, and the sex difference so small, that you can’t determine someone’s sex by knowing it. But it does tell you something about the extent of fetal testosterone exposure. So what does the extent of exposure (as assessed by the ratio) predict about adult behavior? Men with more “masculine” 2D:4D ratios tend toward higher levels of aggression and math scores; more assertive personalities; higher rates of ADHD and autism (diseases with strong male biases); and decreased risk of depression and anxiety (disorders with a female skew). The faces and handwriting of such men are judged to be more “masculine.” Furthermore, some reports show a decreased likelihood of being gay. Women having a more “feminine” ratio have less chance of autism and more of anorexia (a female-biased disease). They’re less likely to be left-handed (a male-skewed trait). Moreover, they exhibit less athletic ability and more attraction to highly masculine faces. And they’re more likely to be straight or, if lesbian, more likely to take stereotypical female sexual roles.72
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Robert M. Sapolsky (Behave: The Biology of Humans at Our Best and Worst)
“
Having Asperger’s is like having an enhancer plugged into an outlet in our brains. Asperger’s is an accelerator, amplifying the perceptions that we have on the world and the ambiance around us. Like going to the store and buying a device to plug in or install on something in order to make it run faster, Asperger’s will deepen everything’s significance, causing us to take things to a more intense level. Those of us with Asperger’s need to take our time on certain things, which causes us difficulty in accomplishing simple tasks. We learn to diligently persevere and be more prudent and careful.
"Juggling the Issues: Living with Asperger’s Syndrome is an anthology explaining these topics through the eyes of someone with Asperger’s. This is more than a researcher giving an outline of what we face and what we can do. Instead, this is one of those books told by a person who has Asperger’s and has dealt with certain difficulties in order to experience achievements over the past twenty years. I have personally overcome and am still overcoming a lot of the trials that come with having Asperger’s.
”
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Matthew Kenslow (Juggling the Issues: Living With Asperger's Syndrome)
“
They also devised an ingeniously low-tech solution to a complex problem. Even highly verbal autistic adults occasionally struggle with processing and producing speech, particularly in the chaotic and generally overwhelming atmosphere of a conference. By providing attendees with name-tag holders and pieces of paper that were red on one side and yellow on the other, they enabled Autistics to communicate their needs and desires without having to articulate them in the pressure of the moment. The red side facing out signified, "Nobody should try to interact with me," while the yellow side meant, "Only people I already know should interact with me, not strangers." (Green badges were added later to signify, "I want to interact but am having trouble initiating, so please initiate an interaction with me.") These color-coded "interaction signal badges" turned out to be so useful that they have since been widely adopted at autistic-run events all over the world, and name-tag labels similar to Autreat ("autistic retreat") green badges have recently been employed at conferences for Perl programmers to indicate that the wearer is open to spontaneous social approaches.
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Steve Silberman (NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“
MY PROCESS I got bullied quite a bit as a kid, so I learned how to take a punch and how to put up a good fight. God used that. I am not afraid of spiritual “violence” or of facing spiritual fights. My Dad was drafted during Vietnam and I grew up an Army brat, moving around frequently. God used that. I am very spiritually mobile, adaptable, and flexible. My parents used to hand me a Bible and make me go look up what I did wrong. God used that, as well. I knew the Word before I knew the Lord, so studying Scripture is not intimidating to me. I was admitted into a learning enrichment program in junior high. They taught me critical thinking skills, logic, and Greek Mythology. God used that, too. In seventh grade I was in school band and choir. God used that. At 14, before I even got saved, a youth pastor at my parents’ church taught me to play guitar. God used that. My best buddies in school were a druggie, a Jewish kid, and an Irish soccer player. God used that. I broke my back my senior year and had to take theatre instead of wrestling. God used that. I used to sleep on the couch outside of the Dean’s office between classes. God used that. My parents sent me to a Christian college for a semester in hopes of getting me saved. God used that. I majored in art, advertising, astronomy, pre-med, and finally English. God used all of that. I made a woman I loved get an abortion. God used (and redeemed) that. I got my teaching certification. I got plugged into a group of sincere Christian young adults. I took courses for ministry credentials. I worked as an autism therapist. I taught emotionally disabled kids. And God used each of those things. I married a pastor’s daughter. God really used that. Are you getting the picture? San Antonio led me to Houston, Houston led me to El Paso, El Paso led me to Fort Leonard Wood, Fort Leonard Wood led me back to San Antonio, which led me to Austin, then to Kentucky, then to Belton, then to Maryland, to Pennsylvania, to Dallas, to Alabama, which led me to Fort Worth. With thousands of smaller journeys in between. The reason that I am able to do the things that I do today is because of the process that God walked me through yesterday. Our lives are cumulative. No day stands alone. Each builds upon the foundation of the last—just like a stairway, each layer bringing us closer to Him. God uses each experience, each lesson, each relationship, even our traumas and tragedies as steps in the process of becoming the people He made us to be. They are steps in the process of achieving the destinies that He has encoded into the weave of each of our lives. We are journeymen, finding the way home. What is the value of the journey? If the journey makes us who we are, then the journey is priceless.
”
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Zach Neese (How to Worship a King: Prepare Your Heart. Prepare Your World. Prepare the Way)
“
Danforth and Grob have reason to believe that MDMA could be crucial in breaking down the barriers autistic people face, especially their extreme difficulty in connecting to the “neurotypical” world. There are ample accounts from those with autism who have taken MDMA independently, without medical guidance, stating that the drug makes it possible for them to function—not only while they’re on the drug, but for weeks and sometimes months afterward. In Danforth’s own study of how autistic adults experience the subjective effects of MDMA, she found that 91 percent of respondents reported an increase in feelings of connectedness on MDMA, while 86 percent of them said that communication became easier.
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Lauren Slater (Blue Dreams: The Science and the Story of the Drugs that Changed Our Minds)
“
The light was not broken, but in the darkness it had a different kind of radiance. If I seek it, I’ll find it.
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A. Zukowski (Courting Light)
“
What is of essential importance is the impact that being autistic has on a person at any given time. This can range from horrifically negative right through to sublimely positive -- and sometimes both can be found in the same individual. So, if this dramatic difference can be seen at different times in the same person -- what 'grade' is that person? Clearly, this is where the whole notion of 'autism severity' crumbles.
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Luke Beardon (Autism and Asperger Syndrome in Adults)
“
When a child plays, he learns valuable skills that he will use as an adult.
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Cara Koscinski (The Parent's Guide to Occupational Therapy for Autism and Other Special Needs: Practical Strategies for Motor Skills, Sensory Integration, Toilet Training, and More)
“
Like many 2e children, he's endured more than his share of suffering because of academic underachievement, peer rejection, bullying, and even judgment by adults who thought he was too smart to be autistic and too autistic to be smart.
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Diane M. Kennedy (Bright Not Broken: Gifted Kids, ADHD, and Autism)
“
Already in my field of neurology, researchers are studying the application of low-carbohydrate diets for epilepsy in adults, as well as for Alzheimer’s disease, autism, brain tumors, and Lou Gehrig’s disease (ALS).
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Eric C. Westman (The New Atkins for a New You: The Ultimate Guide to Shedding Pounds and Feeling Great)
“
Linda Kreger Silverman describes giftedness as follows: Gifted children and adults see the world differently because of the complexity of their thought processes and their emotional intensity. People often say to them, ‘Why do you make everything so complicated?’ ‘Why do you take everything so seriously?’ ‘Why is everything so important to you?’ The gifted are ‘too’ everything: too sensitive, too intense, too driven, too honest, too idealistic, too moral, too perfectionist, too much for other people! Even if they try their entire lives to fit in, they still feel like misfits. The damage we do to gifted children and adults by ignoring this phenomenon is far greater than the damage we do by labeling it. Without the label for their differences, the gifted come up with their own label: ‘I must be crazy. No one else is upset by this injustice but me.’ (Silverman 1993)
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Philip Wylie (Very Late Diagnosis of Asperger Syndrome (Autism Spectrum Disorder): How Seeking a Diagnosis in Adulthood Can Change Your Life)
“
When I was 20 years old, I learned how much art can mean to people. I worked as a
camp counselor for developmentally disabled youth and adults in the redwood forest
near Santa Cruz, California. It was mostly for children with heavy autism-spectrum
disorders and related conditions.
There was a kid there, about 11 years old. He was fidgety, nervous, but generally
happy and liked to play and explore. His nickname was "Crossing Lights" because
every few seconds, he would become terribly uneasy and start saying "crossing
lights...crossing lights PLEASE... CROSSING LIGHTS...PLEASE!!", screaming and crying
to the point where he would be having a full mental meltdown. The only way to ease his distress was to draw a series of little symbols like this: (image shown)
...over and over again, constantly, and forever. If you stopped, he would gradually become disturbed and have a severe psychological attack. But if you kept drawing the little symbol, he was calm and peaceful, like a wave washing over him. Silence. Then, a few seconds later.. "Crossing lights... Crossing lights please..." I filled up probably thirty sheets of paper like this. Tragically, the entire camp was burnt down last year in the California wildfires. I am working on a fundraiser to help them rebuild everything.
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Andy Morin
“
Autism spectrum disorders: Screen-time reinforces brain pathways and tendencies specific to autism; it increases risk of regression; it limits or hinders development of language and social skills; it suppresses right brain and frontal lobe development; and it may therefore limit job, relationship, and independence potential as an adult.
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Victoria Dunckley (Reset Your Child's Brain: A Four-Week Plan to End Meltdowns, Raise Grades, and Boost Social Skills by Reversing the Effects of Electronic Screen-Time)
“
Autistics have been observed to exhibit what’s called an anxious-ambivalent attachment style at rates that are elevated compared to the neurotypical population. People with an anxious-ambivalent attachment are difficult to soothe and reassure, and don’t see close loved ones as a safe, “secure base” they can find comfort in when lost or threatened. As adults, people who are anxious-ambivalent tend to get into patterns of intense emotional dependency, combined with insecurity. They yearn to be accepted yet doubt that they can be. When other people try to connect with us, we rebuff them without even realizing it.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
“
I have suggested that cats are autistic dogs, so there may be a natural affinity between cats and people with autism and Asperger’s syndrome. Ronald, a mature adult with Asperger’s syndrome, wrote to me in an e-mail that ‘I only start to be alive and truly natural when alone or with my cats’.
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Anthony Attwood (The Complete Guide to Asperger's Syndrome)
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It is not emotions themselves that can be negative, but more our response to them.
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Victoria Honeybourne (A Practical Guide to Happiness in Adults on the Autism Spectrum)
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Alexithymia is translated as “no words for feelings” and can be described as the inability to understand and process emotions, which also affects how they communicate their emotions to others.
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T.G. Alexander (Adults with Autism Spectrum Disorder: Understanding Your Diagnosis, Finding the Best Resources and Support Team for Emotional Regulation, Self-Advocacy, and Obtaining Employment)
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If you have been misunderstood your whole life, take heart, you are not alone. There are many people who have been diagnosed with ASD as adults. It is never too late to receive a diagnosis.
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T.G. Alexander (Adults with Autism Spectrum Disorder: Understanding Your Diagnosis, Finding the Best Resources and Support Team for Emotional Regulation, Self-Advocacy, and Obtaining Employment)
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Instead of looking at accommodations as a barrier, an inconvenience, see those shifts and changes as getting one step closer to all the compromises being made every minute of the day by a person with autism.
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Carrie Rogers-Whitehead (Serving Teens and Adults on the Autism Spectrum: A Guide for Libraries)
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If a woman does not comply, then she is the problem, the ‘feminist killjoy’, the Old Dragon, the Battleaxe, the Termagant, the Nippy Sweety, the Uppity Cow, the Bitch. I’ve come to understand all that, and also to understand that ableism works in the same way, that as an autistic person I am not supposed to make assertions that cause non-autistic people–parents of autistic children, autistic professionals–to feel bad about themselves. If, as an autistic person, I make a non-autistic person feel bad about themselves in relation to autism, it must be because I am a defective person, lacking both an adult understanding of my own condition and empathy for the individuals who are trying so patiently to cope with the consequences of it. I see this very argument–if I must dignify it with that word–used on social media again and again, whenever an autistic person seeks to advocate for autistic people as a group.
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Joanne Limburg (Letters to My Weird Sisters: On Autism and Feminism)
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She has always been a bookworm and now she writes them. She just won an award for her best-selling book series. She is a fairly famous author now. – Niece of best-selling author
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
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I am a super-senser who seeks touch. I have always been sensitive all over. So for instance, my husband just caresses my side or kisses me and it transports me to a whole other world. I’m very lucky he is similar to me.
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
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during conversation faces are so expressive that they distract individuals with ASC. So people with ASC have to decide, Do I watch or listen? This is why those of us with ASC so often don’t look at you when we’re speaking or being spoken to. We can only do one thing at a time.
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Wenn Lawson (Older Adults and Autism Spectrum Conditions: An Introduction and Guide)
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Coaching offers customized, one-on-one support to assist individuals in reaching their goals. The process involves goal setting, identifying obstacles, brainstorming solutions and creating a workable action plan.
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Barbara Bissonnette (Helping Adults with Asperger's Syndrome Get & Stay Hired: Career Coaching Strategies for Professionals and Parents of Adults on the Autism Spectrum)
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SMART is an acronym for Specific, Measurable, Achievable, Reasonable and Time-oriented.
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Barbara Bissonnette (Helping Adults with Asperger's Syndrome Get & Stay Hired: Career Coaching Strategies for Professionals and Parents of Adults on the Autism Spectrum)
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She is a bookworm and a professional student, always learning. I swear she was born with a book in her little baby hands. She has a master’s degree in library studies and I am really proud of her. – Mother of librarian daughter
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
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I would describe myself as an academic and research superstar. I love learning and I am an extravert who loves to talk, too much at times, or so they tell me. I also love to debate. I have been attached to a university for years now. I don’t ever want to leave, except to time travel back to live in the Jane Austen era. I absolutely adore English literature, Shakespeare, anything Victorian. I have always loved words, grammar, Pride and Prejudice …
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
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From very early on she had a love for books. She could read before she went to school, didn’t like sharing her books or people touching or opening them. She would rather stay at home and read a good book than go out. – Grandparents of literature expert
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Tania Marshall (I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum)
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Denham Resources is a California-based recruiting, staffing and human resources consulting firm. It produces videos on how to answer interview questions. Skits feature “good,” “bad,” and “ugly” responses. The latter are quite exaggerated and clearly illustrate poor verbal and nonverbal communication. The videos can be found by searching Denham Resources Interview Videos on YouTube.
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Barbara Bissonnette (Helping Adults with Asperger's Syndrome Get & Stay Hired: Career Coaching Strategies for Professionals and Parents of Adults on the Autism Spectrum)
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McCarthy’s movie career wasn’t limited to The Stupids. In 1998, she had a small role in BASEketball and the following year in Diamonds , directed by John Asher, whom she married in September 1999. A few years later, on May 18, 2002, their only child, Evan, was born in Los Angeles. But all was not well. Following a chance encounter with a stranger, McCarthy knew that something was different about her son. “One night I reached over and grabbed my Archangel Oracle tarot cards and shuffled them and pulled out a card,” she wrote. “It was the same card I had picked over and over again the past few months. It was starting to drive me crazy. It said that I was to help teach the Indigo and Crystal children. [Later,] a woman approached Evan and me on the street and said, ‘Your son is a Crystal child,’ and then walked away. I remember thinking, ‘Okay, crazy lady,’ and then I stopped in my tracks. Holy shit, she just said ‘Crystal child,’ like on the tarot card.” McCarthy realized that she was an Indigo adult and Evan a Crystal child. Although Evan would soon be diagnosed with autism, McCarthy took heart in the fact that Crystal children were often mislabeled as autistic. According to Doreen Virtue, author of The Care and Feeding of Indigo Children, “Crystal Children don’t warrant a label of autism! They aren’t autistic, they’re AWE-tistic.
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Anonymous
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Could some of the challenging behaviours that often partner autism begin as experiements on measuring human reactions? Are these children exploring boundaries - seeing what makes the toy squeak or the adult shriek?
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Adele Devine (Colour Coding for Learners with Autism: A Resource Book for Creating Meaning through Colour at Home and School)
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Could some of the challenging behaviours that often partner autism begin as experiments on measuring human reactions? Are these children exploring boundaries - seeing what makes the toy squeak or the adult shriek?
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Adele Devine (Colour Coding for Learners with Autism: A Resource Book for Creating Meaning through Colour at Home and School)
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One common denominator was that each person profiled was encouraged and 'stretched' just outside their comfort zone by at least one adult in their life.
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Debra Moore (The Loving Push: How Parents and Professionals Can Help Spectrum Kids Become Successful Adults)
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While most children with ASD establish warm, loving relationships and secure bonds with parents, siblings, and understanding adults, most, if not all, individuals with ASD experience difficulty relating to peers of approximately the same age. Some children
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Sally Ozonoff (A Parent's Guide to High-Functioning Autism Spectrum Disorder: How to Meet the Challenges and Help Your Child Thrive)
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Disability isn’t a choice, but neurodevelopmental disabilities are often treated as though they are.
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Meghan Ashburn (I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World)
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Autism is not a behavioral diagnosis. Autism is a neurodevelopmental diagnosis. Behaviorist practices focus solely on changing outward behaviors.
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Meghan Ashburn (I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World)
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Let’s explore some key signs you should be watchful for: Unrelenting fatigue: Persistent exhaustion, even after adequate rest and sleep, is a key part of Autistic burnout. When grappling with burnout, your body may feel utterly exhausted, leaving you scrambling for energy to complete even the simplest tasks. Heightened sensory sensitivities: Sensitivity to sensory stimuli—be it noise, light, texture, or smell—intensifies during burnout, amplifying your susceptibility to sensory overload, meltdowns, and shutdowns. Sensory stimuli that used to feel manageable may now feel overwhelming. Skills and functioning decline: A conspicuous drop in skills like focusing, organizing, problem-solving, and speaking is another feature of burnout and makes social interactions more daunting. Emotional dysregulation: Burnout-induced dysregulation in your nervous and sensory systems hampers your ability to manage your emotions, resulting in intense emotions or emotional numbness. Increased anxiety, irritability, or feelings of being overwhelmed are common during burnout. Diminished tolerance for change: During burnout, your capacity to absorb and adapt to change wanes, and you may seek comfort in sameness and predictability. You might experience heightened distress in the face of the unexpected. Social isolation: Burnout can spark a retreat into solitude and diminish your ability to engage socially. You might withdraw from social interactions and lose motivation for once-enjoyed hobbies or activities. Masking: Burnout can throw a wrench in your masking abilities, and it can be confusing if you don’t understand what is happening! Interestingly, lots of adults don’t get their autism diagnosis until they are in burnout and have lost their ability to mask.
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Dr. Megan Anna Neff (Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!)
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It can also be awkward when you argue with your partner, for the very person you go to for comfort and advice is the one person you can’t go to in that situation.
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Gillan Drew (An Adult with an Autism Diagnosis: A Guide for the Newly Diagnosed)
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The sad fact is that many autistic adults do not have a job or have never worked for pay. Many autistic people do volunteer work while living on disability payments because they encounter too many issues at a workplace. Even though volunteer work also comes with responsibilities, there's less pressure regarding expectations and deadlines.
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Casey "Remrov" Vormer (Connecting With The Autism Spectrum: How To Talk, How To Listen, And Why You Shouldn’t Call It High-Functioning)
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– but what exactly do we mean by happiness? Is happiness a short-term state (‘I’m happy when I’m playing tennis’) or a longer-term condition (‘I’m a happy person’)? The very thing that makes one person extremely happy (going to a football match, reading a book, being alone...) might indeed induce a state of extreme unhappiness in another. But happiness, however defined, is something generally considered a positive state worth cultivating.
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Victoria Honeybourne (A Practical Guide to Happiness in Adults on the Autism Spectrum)
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-success does not bring long-term happiness, but that being happy can increase the likelihood of success.
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Victoria Honeybourne (A Practical Guide to Happiness in Adults on the Autism Spectrum)
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High-functioning autism is not a disability but a different way of seeing life, and we should focus on our skills and the things we are capable of rather than the things we cannot do. We are defined by our abilities and our potential, not our problems.
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Gillan Drew (An Adult with an Autism Diagnosis)
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More than thirty years later, I look back on us both with compassion and even some degree of regret. A six-year-old lunchtime existentialist is charming in theory, but exhausting in daily life. Even now as an adult, I know there are few people with whom I can sync up intellectually and emotionally. Everyone else prefers small doses … so I’ve learned to quickly tuck up the deep stuff, bring in the small talk, and smile.
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Jennifer O'Toole (Autism in Heels: The Untold Story of a Female Life on the Spectrum)
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Back to School As surreal as being a grown adult in high school was, it was also brief: in only one semester I had completed enough credits to obtain my diploma. From there I went directly to the “Adult Entry Program” at my local university and enrolled. I would spend one semester in remedial classes to catch up on missing prerequisites and then college would begin in earnest. One might imagine that by now I would have learned that being a good student takes significant effort, but I continued to coast my first semester, missing classes, and skipping homework. Then, one time after missing a few days in a row, I returned to discover the professor handing back a midterm exam –– one that I had not written! Apparently, I had skipped class that day. Although it would not lead to me failing the class (and as a remedial class it would not affect my overall grade,) it did require a “mercy pass” on the part of the instructor to get me through. The approach I’d been following all along simply wasn’t working. I had the right goals now but evidently I still lacked the right approach. As I think it might be for many people, the fundamental shift in how I went about things came with the realization that I was not going to school because I had to. No one was making me go. I was there of my own accord, for my own purposes and reasons. This understanding completely transformed the way I went about school; from that point forward, I treated it as something I wanted for myself, and I worked accordingly. By the end of my next semester, I was on the academic Dean’s List, and I would graduate with Great Distinction from the Honors program four years later.
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David William Plummer (Secrets of the Autistic Millionaire: Everything I know about Autism, ASD, and Asperger's that I wish I'd known back then... (Optimistic Autism Book 2))
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What is sensory integration therapy? This form of occupational therapy helps children and adults with SPD (sensory processing disorder) use all their senses together. These are the senses of touch, taste, smell, sight, and hearing. Sensory integration therapy is claimed to help people with SPD respond to sensory inputs such as light, sound, touch, and others; and change challenging or repetitive behaviours.
Someone in the family may have trouble receiving and responding to information through their senses. This is a condition called sensory processing disorder (SPD). These people are over-sensitive to things in their surroundings. This disorder is commonly identified in children and with conditions like autism spectrum disorder.
The exact cause of sensory processing disorder is yet to be identified. However, previous studies have proven that over-sensitivity to light and sound has a strong genetic component. Other studies say that those with sensory processing conditions have abnormal brain activity when exposed simultaneously to light and sound.
Treatment for sensory processing disorder in children and adults is called sensory integration therapy. Therapy sessions are play-oriented for children, so they should be fun and playful. This may include the use of swings, slides, and trampolines and may be able to calm an anxious child. In addition, children can make appropriate responses. They can also perform more normally.
SPD can also affect adults
Someone who struggles with SPD should consider receiving occupational therapy, which has an important role in identifying and treating sensory integration issues. Occupational therapists are health professionals using different therapeutic approaches so that people can do every work they need to do, inside and outside their homes. Through occupational therapy, affected individuals are helped to manage their immediate and long-term sensory symptoms.
Sensory integration therapy for adults, especially for people living with dementia or Alzheimer's disease, may use everyday sounds, objects, foods, and other items to rouse their feelings and elicit positive responses.
Suppose an adult is experiencing agitation or anxiety. In that case, soothing music can calm them, or smelling a scent familiar to them can help lessen their nervous excitement and encourage relaxation, as these things can stimulate their senses. Seniors with Alzheimer's/Dementia can regain their ability to connect with the world around them. This can help improve their well-being overall and quality of life.
What Are The Benefits of Sensory Integration Therapy
Sensory integration treatment offers several benefits to people with SPD:
* efficient organisation of sensory information. These are the things the brain collects from one's senses - smell, touch, sight, etc.
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Active involvement in an exploration of the environment.
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Maximised ability to function in recreational and other daily activities.
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Improved independence with daily living activities.
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Improved performance in the home, school, and community.
* self-regulations. Affected individuals get the ability to understand and manage their behaviours and understand their feelings about things that happen around them.
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Sensory systems modulation.
If you are searching for an occupational therapist to work with for a family with a sensory processing disorder, check out the Mission Walk Therapy & Rehabilitation Centre.
The occupational therapy team of Mission Walk uses individualised care plans, along with the most advanced techniques, so that patients can perform games, school tasks, and other day-to-day activities with their best functional skills.
Call Mission Walk today for more information or a free consultation on sensory integration therapy. Our customer service staff will be happy to help.
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Missionwalk - Physiotherapy and Rehabilitation
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Just a quick word on reasonable adjustments here - they are not a privilege, they are not intended to be annoying, or to create extra work for other people - they are a human right.
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Luke Beardon (What Works for Autistic Adults)
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Walker notes that by never revealing their own needs or discomfort with other people, fawners spare themselves the risk of rejection. But they also fail to connect with people in any meaningful way. It’s a lonesome state to live in. It’s also deeply draining. Many masked Autistic adults struggle to balance full-time work with social lives or hobbies at all because maintaining a conciliatory mask for eight hours per day is just too labor intense to have energy for anything else.[55] The connections we do form may never feel satisfying or authentic to who we truly are, because they rely on us meeting people’s needs reflexively and always telling them what we think they want to hear.
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)
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Likewise with Asperger’s and the autism spectrum: research and numerous interviews show that because of the way girls and women are socialized, they often mirror and mimic the behaviors of other females around them and learn how to “be” and interact with others. Internally, however, they put an extraordinary amount of energy into how to act—what to say, when to say what, how to move their bodies in a particular social situation. At some point in their lives, often when adult responsibilities become too much, the amount of energy required to continue pretending, or “passing,” simply becomes too much. Depression, burnout, fatigue, and anxiety frequently surface.
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Jenara Nerenberg (Divergent Mind: Thriving in a World That Wasn't Designed for You)
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It's such a huge relief to finally know without any doubts that there's a real answer to my lifelong struggles. I've cried and celebrated and despite those feelings, it's still not quite real yet.
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T.G. Alexander (Adults with Autism Spectrum Disorder: Understanding Your Diagnosis, Finding the Best Resources and Support Team for Emotional Regulation, Self-Advocacy, and Obtaining Employment)
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She couldn’t help the hope that kindled painfully in her chest. Couldn’t help the steps she took in the wrong direction—nearer to him. Greater than any pull of gravity upon a flier, more than her duty to Soladisa, stronger than the lure of Teras to sinners, he would always be the primary force compelling her. Alive or dead, boy or monster.
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Leanne Schwartz (To a Darker Shore)
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An Autistic meltdown is not: A tantrum. A tantrum is an act of manipulation. It is a physical and emotional “show” to put on to try and get someone to agree to your demands or desires by making them feel uneasy, confronted, confused, embarrassed or threatened by acting overdramatic. A tantrum is controllable; therefore it is not an Autistic meltdown. Acting selfishly. This is not a meltdown either. You can’t watch someone having an Autistic meltdown and think to yourself, Stop being so selfish! They can’t “stop” being anything. Acting out or attention-seeking behaviour. Again, not a meltdown but can be seen in both adults and children. Autistic children and adults can be susceptible to Autistic meltdowns for their entire life. So the whole only-Autistic-kids-can-have-meltdowns thing is not true. You can’t parent or punish Autistic meltdowns out of an Autistic person.
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Orion Kelly (Autism Feels ...: An Earthling's Guide)
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When a child or adult typically does well at school or in their workplace with no issues, but then explodes into disruptive meltdowns or raging anger once home in their ‘safe space’, it is a huge sign that they have been masking for the duration of the day. The energy it takes to mask and ‘fit in’ can be mentally and physically exhausting.
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Emma Kendall (Helping You to Identify and Understand Autism Masking: The Truth Behind the Mask)
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Adults” are supposed to be independent, though of course no person actually is.
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Devon Price (Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity)
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Here is a quick intuitive example. Suppose your null hypothesis is that male professional basketball players have the same mean height as the rest of the adult male population. You randomly select a sample of 50 professional basketball players and a sample of 50 men who do not play professional basketball. Suppose the mean height of your basketball sample is 6 feet 7 inches, and the mean height of the non–basketball players is 5 feet 10 inches (a 9-inch difference). What is the probability of observing such a large difference in mean height between the two samples if in fact there is no difference in average height between professional basketball players and all other men in the overall population? The nontechnical answer: very, very, very low.* The autism research paper has the same basic methodology
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Charles Wheelan (Naked Statistics: Stripping the Dread from the Data)
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For me, processing emotions is never something I can do at the time, and it can take me days, weeks, months, or even years to figure out what my emotions are or mean.
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Sarah O'Brien (So, I'm Autistic: An Introduction to Autism for Young Adults and Late Teens)
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The baffled families of transgender people and adult Autistics alike tend to claim there “were no signs” of these identities when the person was young.[1] In actuality, there were often many signs, which the child’s family either did not know to look for, or didn’t wish to see.[2
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Devon Price (Unmasking Autism: Discovering the New Faces of Neurodiversity)